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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Medical cannabis closer to federal approval

Australian news

Tuesday 30 September 2014

 

From The Sydney Morning Herald:

Australian Coat of Arms
 

Medical cannabis closer to federal approval


Communications and education correspondent
September 29, 2014

The federal government would be given oversight over the production and distribution of medical cannabis under new legislation to make the make the drug available to patients with chronic pain.

The push to legalise medical cannabis is gathering pace, with Greens Senator Richard Di Natale, chairman of the cross-party Parliamentary Group for Drug Policy and Law Reform, now finalising a bill that is set to be introduced into Parliament next month.

Supporters of legalised medical cannabis have been buoyed by Prime Minister Tony Abbott's strong public support for the legalisation of the drug for medical use.

"I have no problem with the medical use of cannabis, just as I have no problem with the medical use of opiates," Mr Abbott wrote in a letter to 2GB radio host Alan Jones, dated August 23.

"If a drug is needed for a valid medicinal purpose … and is being administered safely there should be no question of its legality."

Read more…

 
 
 

Fibromyalgia info booklet launched after fundraising

International news

Monday 29 September 2014

 

From Irish newspaper Wicklow People:

Gemma Flood
Gemma Flood
 

Fibromyalgia info booklet launched after fundraising

Published 27/09/2014

West Wicklow woman Gemma Flood is about to realise a dream with the launch of her booklet on Fibromyalgia.

Gemma has suffered Fibromyalgia most of her life. She suffered extreme pain, fatigue and memory loss but it was not until 2008 she was diagnosed.

Gemma spends her time raising awareness for her condition which has affected the lives of many. The booklet contains true life stories of how sufferers are affected on a daily basis, stories from partners, siblings look on and feeling helpless.

Read more…

 
 
 

Dr Rosamund Vallings ME/CFS lecture

International news

Sunday 28 September 2014

 

On YouTube:

Dr Rosamund VallingsCFS/ME lecture | Dr Ros Vallings | Sep-2014

By ANZMES videos
Published on Sep 24, 2014

Dr Ros Vallings [pictured] talks at the University of Otago in New Zealand. This is a great resource for doctors, patients, and researchers alike.

Dr Vallings has over 35 years of experience working with CFS/ME patients in New Zealand. She is the author of Chronic Fatigue Syndrome M.E.: Symptoms, Diagnosis, Management, has served as Medical Advisor for ANZMES [Associated New Zealand ME Society], and is actively involved in CFS/ME research.

The presentation covers diagnosis, treatment, symptoms and the latest research on CFS/ME.

Read more…

 
 
 

Study: Fibromyalgia sufferers have trouble processing sight, sound, touch

International news

Saturday 27 September 2014

 

From Healthline News:

MRI
 

Study: Fibromyalgia Sufferers Have Trouble Processing Sight, Sound, Touch

Written by David Heitz
Published on September 24, 2014

New research provides even more evidence that people with fibromyalgia have a real pathology and that it may be linked to trouble processing everyday sights and sounds.

In a paper published earlier this month in Arthritis & Rheumatology, Marina Lopez-Sola of the University of Colorado, Boulder, showed that people suffering from fibromyalgia are hypersensitive to everyday sensory stimulation. This includes sight and sound cues as well as touch. Fibromyalgia causes feelings of general malaise in addition to severe aches and pains.

Using functional magnetic resonance imaging (fMRI), the researchers showed a decreased response in visual and auditory regions of the brain in fibromyalgia patients, where one would expect to see an increase. Instead, their sensory integration regions showed increased activity.

“Our study provides new evidence that fibromyalgia patients display altered central processing in response to multisensory stimulation, which are linked to core fibromyalgia symptoms and may be part of the disease pathology,” Lopez-Sola said in a news release. “The finding of reduced cortical activation in the visual and auditory brain areas that were associated with patient pain complaints may offer novel targets for neurostimulation treatments in fibromyalgia patients.”

Read more…

 
 
 

UK PhD student dumps shoes to raise Chronic Fatigue Syndrome awareness

International news

Friday 26 September 2014

 

From UK news outlet Chronicle Live:

Zoltan Derzsi
Neuroscientist Zoltan Derzsi
from Gateshead, who has
been walking bare footed
for over two months to raise
awareness of the condition
chronic fatigue syndrome.
 

Watch: Newcastle PhD student dumps shoes to raise Chronic Fatigue Syndrome awareness

By John Lowdon-NEC
Sep 24, 2014 16:00

Zoltan Derzsi is going barefoot on the streets of Newcastle to raise awareness of some of the nastier symptoms of the disease

A Newcastle PhD student is raising awareness of a medical syndrome by casting aside his shoes and walking the streets barefoot.

Hungarian student Zoltan Derzsi from Bensham, Gateshead, has decided to go about daily life in Newcastle without his shoes to raise money and awareness of Chronic Fatigue Syndrome, also known as ME.

The condition causes constant tiredness, joint pain and severe headaches. Around 12,000 are thought to face the condition in the North East while 250,000 people suffer from the syndrome in the UK. It is thought that ME is twice as common in women.

Zoltan, who calls himself the Barefoot Scientist, was inspired to start a fundraising campaign after a friend’s daughter was diagnosed with the condition four years ago.

He has looked on as she has struggled with her ME, enduring almost constant immobility and pain. There is no cure.

Zoltan said: “When I saw how helpless medical staff were in treating my friend I decided I had to do something to raise awareness of this terrible disease.”

Read more…

 
 
 

ME versus psychiatric disorders

International news

Thursday 25 September 2014

 

On YouTube:

Professor Leonard A Jason
Professor Leonard A Jason
 

53. ME versus psychiatric disorders /
ME tegenover psychische aandoeningen - Prof. Jason

By Wetenschap voor Patienten [Science for Patients] - ME/cvs Vereniging [ME/CFS Association]
Published on Sep 23, 2014

English:

In this webinar Prof. Leonard Jason talks about ME versus psychiatric disorders.

0:24 Confusion about ME and (major) depression, what is the difference? 
1:37 Are there biological differences between a major depression and ME? 
3:33 Are there other psychic disorders which can be confused with ME? 
4:48 Which role does depression play in ME and how is it to be treated? 
7:17 Resemblances autistic disturbances, MS, Parkinson & Alzheimer with ME

Disclaimer: This video does not contain any diagnostic or therapeutic information about your own medical condition. It can never replace a personal consult. Names and trademarks of drugs and application(s) of the same which the speaker may refer to, are referred to at his/her own responsibility. Notify your attending doctor in time about any question, complaint or symptom you might have.

Read more…

 
 
 

UK Fibromyalgia sufferer to stand as an MP in forthcoming election

International news

Wednesday 24 September 2014

 

From UK political blog Getting Ready for 2015:

Joe Neilson
Joe Neilson
 

DISABLED PEACEHAVEN MAN TO STAND AS INDEPENDENT MP.

By
June 7, 2014

Joe Neilson, who has Fibromyalgia and macular degeneration, is standing as an independent MP for Brighton Kemptown constituency in the scheduled 2015 general election.

Possibly the only disabled person standing in the election, Joe Neilson has received a grant under the ‘Access to Elected Office for Disabled People Fund’ to help finance his election campaign; Joe said, “Without this grant I could have become a candidate.”

This little known fund, ‘The Access to Elected Office for Disabled People Fund’ can pay a disabled person up to £40,000.00 per year to stand for public office.

Amazon explorer Joe Neilson from Peacehaven said, “I want to bring integrity and honesty to public office and be a voice to the people of the Brighton Kemptown constituency.”

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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Last modified: September 30, 2014