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ME/CFS Australia Ltd
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
Speaker: Dr Roger Spizzo, from Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
Speaker: Skye Cibich, Accredited Exercise Physiologist from Adelaide Exercise Physiology
Saturday 8 August 2015
Speaker: Stelios Soulis, dietitian with Nutrition Health Experts at Mile End
Saturday 14 November 2015
Annual General Meeting
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(PDF, 1.49 MB)


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)


For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)


For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

Australian ME/CFS Societies
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
The ME/CFS & FM Association NSW
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


List of Australian ME/CFS organisations
(PDF, 19 KB)


List of Australian ME/CFS organisations (Word, 41 KB)



Aerobic Energy Production And Lactic Acid Excretion Impeded In ME/CFS

International news

Wednesday 14 October 2015


From ProHealth:


Aerobic Energy Production and Lactic Acid Excretion are both Impeded in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

By M. Vink
October 12, 2015

Note: You can read the full study HERE.

By M. Vink


Background: In this study the muscle bioenergetic function in response to exercise in severe ME was explored to see if the underlying metabolic problem in ME, responsible for the severe difficulties with trivial exercise, and the severe loss of muscle power, could be discovered.

Methods: Inorganic phosphate, creatine kinase and lactate were measured in a former Dutch National Field Hockey Champion, who is now a patient bedridden with severe ME, before and 5 minutes after very trivial “exercise”, from which his muscles needed 12 hours to recover.

Read more…


Combination Of Strategies Reduces Fibromyalgia Symptoms In Adolescents

International news

Tuesday 13 October 2015


From the American Physical Therapy Association's PT In Motion News:


Combination of Physical Therapy, Psychological Support Works to Significantly Reduce Fibromyalgia Symptoms in Adolescents

Posted by News Now Staff
Friday October 9, 2015

Intensive physical therapy and occupational therapy coupled with psychotherapy can significantly improve pain and function among youth with fibromyalgia, according to a study of teenagers who participated in a program designed to treat the condition without the use of drugs.

Between 2008 and 2011, researchers tracked the progress of 64 adolescents 13-18 with fibromyalgia as they progressed through a program that included 5 to 6 hours a day of physical therapy aimed at "quickly reestablishing normal function, along with maximizing aerobic conditioning." Participants also received up to 4 hours per week of psychosocial support that included individual and group cognitive-behavioral therapy, art therapy, music therapy, and "support for coping during [physical therapy and occupational therapy] sessions."

The length of the therapy varied by the participant, authors write, and was "individually determined by the treatment team based on physical functioning goals obtained, rate of improvement, and judgment regarding the child's ability to sustain and further improve on these functional goals in the home environment without formal physical therapy." The study was published online in the September issue of the Journal of Pediatrics.

Read more…


Institute Of Medicine Diagnostic Criteria Redeemed?

International news

Monday 12 October 2015


From Health Rising:

Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Redefining an Illness

IOM Diagnostic Criteria Redeemed? Dr. Klimas Answers Critics at CFSAC Meeting

By Cort Johnson
October 10, 2015

Dr. Nancy Klimas spoke on the Institute of Medicine (IOM) report on ME/CFS at the recent federal advisory panel for chronic fatigue syndrome (CFSAC) meeting. She explained how the report was done and addressed some rather hot controversies that have sprung up since its publication. This was the first time an IOM report panel has publicly done so.

Panel Composition

She said the IOM panel for chronic fatigue syndrome was a bit different. IOM panels are typically weighted towards experts in literature review and processing information. This panel (surely in response to concerns from the ME/CFS community) probably had more content experts (Chu, Bateman, Lerner, Klimas, Rowe, Natelson, Lerner, Keller, Davis) and fewer “process experts” than usual. She was surprised to find that some of the “process” experts had family members with the illness.

The panel members included Margarita Alegria, Lucinda Bateman, Lily Chu, Charles Cleeland, Ronald Davis, Betty Diamond, M.D. Theodore Ganiats, Betsy Keller, Nancy Klimas, A. Martin Lerner, Cynthia Mulrow, Benjamin Natelson, Peter Rowe, Michael Shelanski. The report was also reviewed by a long list of ME/CFS experts.

Dr. Klimas said the report was an enormous amount of work. In between four long meetings the panel members had assessed thousands of articles. The public workshops also greatly influenced the panel’s report, with the committee being greatly touched by the patient stories.

The press, of course, was very favorable (and continues to be favorable. Two more articles in the last week focused on the IOM report.) The JAMA article was downloaded 43,000 times by non-subscribers. Six months later the IOM report for ME/CFS is still one the top ten downloads on the IOM website – something the Institute of Medicine was very pleased to see. (Since the ME/CFS report was released in February the IOM has produced over 60 reports on issues ranging from cancer to obesity to emerging viral diseases.) That high interest could be good news for the next report Dr. Klimas believes should be produced – on therapeutics.

All that attention suggests, of course, that for all the inattention given ME/CFS by the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC), the medical community is actually quite interested in this disease.

Read more…


Chronic Fatigue Syndrome: What Is It Really Like?

International news

Sunday 11 October 2015


From Cultured Vultures:



By Athena Hobson
October 2, 2015

‘It’s like you’ve just run a marathon. Whilst hungover. With the flu.’ This is the most accurate description I’ve seen of the poorly understood condition known as Chronic Fatigue Syndrome. A condition that, even amongst medical professionals, is too often over-looked as a bout of depression, a lack of sleep or just plain laziness.

“Chronic fatigue? Ha, tell me about it. I’ve worked 55 hours this week.”

Yes, we all get tired, but CFS is beyond tired. There doesn’t need to be a trigger or any form of physical exertion involved, nor will a good ten hours in duvet land cure it. And sadly, there’s more. If you’ve ever drank yourself into a state where your speech is slurring and your brain is struggling to remember basic details of conversations that took place five minutes ago, then you have an idea of what our brains are like on a bad day. In other words ‘I cannot brain today. I has the dumb.’

Okay, but seriously… Who has been lining my clothes with lead weights?

Read more…


Study Finds Medical Marijuana Safe And Effective For Chronic Pain Relief

International news

Saturday 10 October 2015


From Fibromyalgia News Today:


Study Finds Medical Marijuana Safe And Effective For Chronic Pain Relief

Charles Moore
October 5th, 2015

In a national multicenter study investigating the safety of medical cannabis use by patients suffering from chronic pain, a research team led by Dr. Mark Ware from the McGill University Health Centre (MUHC) in Montreal, Canada has found that chronic pain patients who used cannabis daily for one year, when carefully monitored, had no increase in serious adverse events compared to pain patients who did not use cannabis. The study results, which have been published online in The Journal of Pain, will serve as a benchmark study on cannabis side effects of when used for pain management.

The Journal of Pain Open Access paper, entitled “Cannabis for the Management of Pain: Assessment of Safety Study (COMPASS)“ (The Journal of Pain, 2015; DOI:, is coauthored by Mark A. Ware, MBBS MRCP MS, Tongtong Wang, BMed PhD, Stan Shapiro, PhD, Jean-Paul Collet, MD PhD, Aline Boulanger, MD, John M. Esdaile, MD, Allan Gordon, MD, Mary Lynch, MD, Dwight E. Moulin, MD, and Colleen OConnell, MD.

The coauthors note that cannabis is widely used as a self-management strategy by patients with a wide range of symptoms and diseases including chronic noncancer pain, but the safety of cannabis use for medical purposes has not been systematically evaluated.

Read more…


Fibromyalgia Aggravates Pain And Cognitive Capabilities Of Chronic Fatigue Syndrome Patients

International news

Friday 9 October 2015


From Fibromyalgia News Today:


Fibromyalgia Aggravates Pain and Cognitive Capabilities of Chronic Fatigue Syndrome Patients

Bruno Castro, PhD
October 7th, 2015

A team of researchers from Vrije Universiteit Brussel and the University of Antwerp, in Belgium, found that fibromyalgia increases the disability of Chronic Fatigue Syndrome patients. The study entitled “Associations Between Cognitive Performance and Pain in Chronic Fatigue Syndrome: Comorbidity with Fibromyalgia Does Matter” was recently published in the Pain Physician journal.

Chronic Fatigue Syndrome (CFS) is a debilitating and complex disorder characterized by continuous extreme fatigue that is not alleviated by bed rest, interfering with a person’s well-being. The majority of CFS patients also present widespread and persistent musculoskeletal pain. These symptoms are also the hallmark of fibromyalgia, a chronic disorder of unknown etiology. Fatigue, sleep disturbances, mood disturbances and cognitive dysfunctions are other symptoms shared by CFS and fibromyalgia. Indeed, researchers have shown that CFS patients with and without fibromyalgia have worse cognitive capabilities than healthy persons. In this work, authors investigated the relationship between cognitive performance and self-reported and experimental pain measurements in FCS patients with or without fibromyalgia.

Read more…


UK Mum Is Learning To Live With An Incurable Condition

International news

Thursday 8 October 2015


From UK newspaper the Swindon Advertiser:

Julie Cushion
ME sufferer Julie Cushion
(Photo: Dave Cox)

Swindon mum is learning to live with an incurable condition

Marion Sauvebois
Tuesday 6 October 2015

More than a decade after the ‘hidden illness’ took over her life, turning the simplest task into a Herculean effort, ME sufferer Julie Cushion is resolved to shed light on her often misunderstood condition. She talks to MARION SAUVEBOIS

JULIE Cushion imagines her life as a jagged timeline splintered mid-length leaving two disconnected strands: before and after ME.

“Nothing was ever the same after I got ME,” admits the 47-year-old from Gorse Hill.

“You keep wondering ‘Why me?’ Everything I took for granted was gone. You just can’t walk away from it. You reach the lowest point in your life and have to work your way back up.”

Read more…


For previous news items, visit our full “In the News” archive:

In the News

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