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ME/CFS Australia (SA) Inc
Registered Charity 698


Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001


Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
Fax: (08) 8410 8931

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8410 8930


SA country callers:
Ph: 1800 136 626
(freecall)


Office Hours:
Wednesdays, 10am-3pm


ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.



ME/CFS Australia (SA) Inc is a member of Charity Direct.



ourcommunity.com.auDonate online

Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

Read more…



Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

XMRV in the News

Keep up to date with our XMRV in the News page. It's constantly updated with links, videos and audio of news about XMRV.

 
Ride for CFS updates
www.myspace.com/cfs_riders

Canadian Consensus Documents

ME/CFS Guidelines

To further assist busy medical practitioners, Dr Bruce Carruthers, principal author of the ME/CFS Consensus Document and Co-Editor of the FMS Consensus Document, and Marjorie van de Sande, Consensus Coordinator of the Consensus Documents, have written and published Overviews of the Canadian Consensus Documents for ME/CFS and FMS independent of any organisation:

PDF

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners – An Overview of the Canadian Consensus Document (PDF, 1MB)

PDF

Fibromyalgia Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners – An Overview of the Canadian Consensus Document (PDF, 1.7MB)


ME/CFS Guidelines

For GPs

ME/CFS Guidelines

Every GP in South Australia should have on their shelves a copy of a new set of guidelines on how to diagnose and treat ME/CFS.

PDF

ME/CFS Guidelines for GPs
(English)
(PDF, 460KB)

PDF

ME/CFS Guidelines for GPs
(German)
(PDF, 186KB)

For psychiatrists

ME/CFS Guidelines

The Guidelines for psychiatrists are from Eleanor Stein MD FRCP(C), respected internationally for her work as a psychiatrist on ME/CFS.

PDF

ME/CFS Guidelines for psychiatrists
(English)
(PDF, 460KB)

PDF

ME/CFS Guidelines for psychiatrists
(German)
(PDF, 313KB)



Australian ME/CFS Societies

NATIONAL
The ME/Chronic Fatigue Syndrome Association of Australia Limited
Address: c/o ME/CFS Victoria, 23 Livingstone Close, Burwood VIC 3125
Phone: (03) 9888 8991
Fax: (03) 9888 8981
Web: www.mecfs.org.au
Email: mecfs@mecfs.org.au

AUSTRALIAN CAPITAL TERRITORY
The ACT ME/CFS Society, Inc
Postal address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au

NEW SOUTH WALES
ME/Chronic Fatigue Syndrome Society of NSW Inc
Address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 9904 8433
Fax: (02) 9904 8435
Postal address: PO Box 5403, West Chatswood, NSW, 1515
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au

SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Address: 266 Port Road, Hindmarsh, Adelaide 5007
Postal address: GPO Box 383, Adelaide 5001
Phone: (08) 8410 8929
Support line: (08) 8410 8930 or 1800 136 626 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au

VICTORIA
ME/Chronic Fatigue Syndrome Society of Victoria
Address: 23 Livingstone Close, Burwood VIC 3125
Support Line: (03) 9888 8798 (9am – 5pm, Monday – Friday)
Administration: (03) 9888 8991 (9am – 4:30pm, Monday – Friday)
Fax: (03) 9888 8981
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au

QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com

WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: c/o Wish, PO Box 8140, Perth WA 6849
Phone: (08) 9381 6695
Phone: (08) 9228 4488
Phone: 1800 195 575
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

TASMANIA
Phone: (03) 6224 2576
Web: www.mecfs-vic.org.au/tasmania
Email: admin@mecfs-tas.org.au

NORTHERN TERRITORY
Phone: (08) 8941 2365 (staffed Thursdays 9:00am – 4:30pm)
Fax: (08) 8981 8278
Web: www.mecfs-vic.org.au/northern-territory
Email: admin@mecfs-nt.org.au

PDF

Download list of ME/CFS organizations as a PDF file (aus_societies.pdf – 17KB)

Word

Download list of ME/CFS organizations as a Word document (aus_societies.doc – 39KB)



Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

More evidence of inflammation in ME/CFS

International news

Saturday 21 November 2009

ME Action UKME Action UK has an article by Margaret Williams in response to recent claims:

More evidence of inflammation in (ME)CFS

Margaret Williams
14th November 2009

In his presentation in Bergen on 20th November 2009, Professor Peter White’s power point slides state about (ME)CFS that maintaining factors include illness beliefs, the search for legitimacy, being on benefits, and the diagnostic label, and that immune or viral measures are NOT involved in the maintenance of the disorder.

Read more…

 
 
Health system failing people with ME/CFS

Australian news

Friday 20 November 2009

ME/CFS Australia's BlogPaul Leverenz, Chairman of ME/CFS Australia, has written an article on ME/CFS Australia's Blog about the state of the Australian health system for people with ME/CFS:

Health System Failing People with ME/CFS

The health system is failing Australians with ME/CFS. We outline some of the reasons for this and offer some suggestions as to what the Government might do to begin to close the gap.

ME/CFS affects an estimated 100,000 Australians; those living with it can be as impaired as people with MS, AIDS, or those undergoing chemotherapy for cancer.

Read more…

 
 
Chronic fatigue beaten in path to draft

Australian news

Thursday 19 November 2009

Jack FitzpatrickAFL.com.au has an article about 18-year-old Australian Rules Football Draft pick Jack Fitzpatrick (pictured) overcoming ME/CFS:

Chronic fatigue beaten in path to draft

DESPITE a decade-long struggle with chronic fatigue syndrome, Jack Fitzpatrick looms as one of the most intriguing ruck prospects at this month's NAB AFL Draft.

Fitzpatrick's condition was brought on by a bout of glandular fever when he was just six and he deteriorated to the point where his parents had to lift him off the couch to use the toilet.

Fast forward 10 years and, through the advice of countless doctors and herbalists, Fitzpatrick learned to manage it well enough to progress from local club Wyndhamvale to the Western Jets.

Read more…

 
 
ME/CFS research funding needs boost

Australian news

Wednesday 18 November 2009

ME/CFS Australia's BlogPaul Leverenz, Chairman of ME/CFS Australia, has written an article on ME/CFS Australia's Blog about the need for more research funding in Australia:

ME/CFS Research Funding Needs Boost

ME/CFS Australia calls upon the Australian Government to develop a strategic plan to increase the amount of ME/CFS research in Australia. The Australian Government contributes only $1.17 per patient per annum for CFS research. ME/CFS needs to be made a research priority and ultimately a stimulus package needs to be put in place to support it. This will encourage promising academics into a field which is exciting and will push the boundaries of science, benefiting all. Not only do we need more research but we need the right research so public money is not wasted. Some suggestions are offered.

Read more…

 
 
Southern Chronic Illness Links Networks meetings

South Australian news

Tuesday 17 November 2009

Bridges & PathwaysThe Bridges and Pathways Institute Inc / Southern Chronic Illness Links Network is an organisation that provides support for people with CFS and Fibromyalgia.

The Institute / Network is an Australian not-for-profit charity dedicated to improving information and services for Australians with non-priority complex chronic conditions towards Australian better health management and living well.

Read more…

 
 
TAFE SA disability guide for staff

South Australian news

Monday 16 November 2009

TAFE SA: A Guide for Staff TAFE SA has produced a guide for staff on disability discrimination and how best to support students with disabilities. For the first time, staff on TAFE campuses across the state are being provided with information about working with and supporting students who have ME/CFS or Multiple Chemical Sensitivity.

The Guide can be downloaded here:

PDF

TAFE SA: A Guide for Staff on Disability Discrimination and Supporting Students with a Disability or Medical Condition (PDF, 2.55MB)

Read more…

 
 
New MCS book

International news

Sunday 15 November 2009

Slow Death by Rubber DuckFemail has some information on Slow Death by Rubber Duck, a new book by Rick Smith and Bruce Lourie on the effects of toxic chemicals:

Slow Death By Rubber Duck

How the toxic chemistry of everyday life affects our health

When Rick Smith and Bruce Lourie decided to tell the story of pollution in our modern world by using their own bodies as laboratories, they could not have known what they were about to discover. They ingested and inhaled a host of things that surround all of us all the time: from mercury-laden tuna and flame-retardant chemicals in clothes and furniture, to toxins in plastics, shampoos and deodorants. The results of these experiments are both alarming and unexpected.

Read more…

 
 
Pacing by Numbers: using your heart rate to stay inside the energy envelope

International news

Saturday 14 November 2009

Check pulseCFIDS & Fibromyalgia Self-Help has an article by Bruce Campbell about pacing:

Pacing by Numbers: Using Your Heart Rate To Stay Inside the Energy Envelope

By Bruce Campbell

If you have CFS, you are probably familiar with post-exertional malaise, the severe fatigue that results from doing too much. You can avoid or at least reduce malaise by staying within your limits or energy envelope. This article describes a strategy for staying within one part of the envelope: the anaerobic threshold.

Read more…

 
 
PatientsLikeMe expands to include CFS

International news

Friday 13 November 2009

PatientsLikeMePatientsLikeMe is a website that promotes a community of people with diseases to share their experiences.

EarthTimes reports on the expansion of PatientsLikeMe to include Chronic Fatigue Syndrome.

Read more…

 
 
RCEP Handbook of Disabilities

International news

Thursday 12 November 2009

RCEPThe Rehabilitation Continuing Education Program (RCEP) at the University of Missouri was an organisation that provided training and other services to vocational rehabilitation agencies and counselors in the four US states of RSA Region 7 (Missouri, Iowa, Nebraska, and Kansas).

Unfortunately, funding for RCEP has stopped and the Region 7 RCEP is now closed. However, one of its legacy documents is The Handbook of Disabilities, which can be found on the RCEP Projects page (click on the "Learn more about the Handbook of Disabilities" link).

Read more…

 
 
Top Ten Things Not to Say to Someone with Chronic Fatigue Syndrome

International news

Wednesday 11 November 2009

NoEmpowHer: Women's Health Online has an article by Jody Smith on problematic comments made by well-meaning people:

1. "I get tired too."

The ridiculous moniker hung long ago upon this debilitating disease continues to throttle us. "Chronic Fatigue Syndrome". Its name is all about being tired.

Everyone and his dog is tired. Take an unofficial impromptu poll anywhere. People can hardly keep going. I remember what that was like. Quite fondly, actually. That was when I could keep going. Wanted to do it. Did do it. Gloried in it. And now it is beyond me.

Read more…

 
 
ME/CFS patient's treatment in UK health system

International news

Tuesday 10 November 2009

Jeannie CarsonThis is Kent reports on ME/CFS patient Jeannie Carson (pictured) who has criticised her treatment by the UK's National Health Service and how the NHS views the disease as a psychiatric rather than physical one:

'NHS must not treat ME as mental illness'

A PENSIONER from Tonbridge with chronic fatigue syndrome has slammed her treatment which included a stay in the psychiatric ward of a major London hospital.

Read more…

 
 
Art exhibition inspired by ME/CFS

South Australian news

Monday 9 November 2009

Sam Darveniza and Ahmed ZehranThe Saturday 7 November edition of Adelaide's The Advertiser newspaper had an article on a new art exhibition inspired by its creator's experiences with ME/CFS.

This Life was created by Sydney artist Ahmed Zehran and her husband Sam Darveniza (both pictured):

IMPACT: Human condition inspires art

Despair opens a door to personal expression

Louise Nunn

Sydney artist Zehra Ahmed's new work will resonate with anyone who has suffered a chronic illness.

Read more…

 
 
Society AGM: President's report and farewell speech

South Australian news

Sunday 8 November 2009

Peter CahalanThe Society held its Annual General Meeting yesterday (7 November) and outgoing President Peter Cahalan (pictured) took the opportunity to give his annual report and farewell speech.

PDF

Download President's report for 2009 (PDF, 36KB)

President’s report for 2009

This is my last report as president of your Society. I leave with a sense of regret at jobs unfinished but with pride at having been given the chance to work with many wonderful and heroic people.

The theme of this year was rationalising our effort. We did this in several key ways.

Read more…

 
 
More news…

For previous news items, visit our full “In the News” archive:

In the News


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Last modified: November 20, 2009