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ME/CFS Australia Ltd
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

Suite 506,
19 North Terrace,
Hackney, SA, 5069

1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2016
Saturday 20 February 2016
Dr Katia Ferrar and Ms Minh Pham from the University of South Australia discuss the research study “Physical activity and time use patterns of adults with chronic fatigue syndrome”.

Saturday 9 April 2016
A screening of the ME/CFS documentary, Forgotten Plague.

Saturday 25 June 2016
Dr Ian Buttfield discusses the ANRES website.
Mr Max Nelson discusses his PhD and two-day bike test study.
Dr Katia Ferrar presents an information document on her research.

Saturday 27 August 2016
Annual General Meeting
Dr Bruce Wauchope gives an update on a proposed ME/CFS clinic [download pamphlet], and talks about the stepped, problem-solving approach to their treatment protocol.

Saturday 19 November 2016
Dr Rachel Wells talks about the new Autonomia Clinic at the Royal Adelaide Hospital and what they are doing about POTS and other dysautonomia symptoms common in ME/CFS.
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners


ME/CFS Guidelines for GPs
(SA Department of Health)


ME/CFS Guidelines for GPs
(SA Department of Health)


ME/CFS Guidelines for psychiatrists


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)
Australian ME/CFS Societies
ACT ME/CFS Society, Inc
Address: PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS & FM Association NSW
Facebook: ME/CFS & FM NSW Support Group
Facebook: Chronic Fatigue Syndrome NSW
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Support line: 1300 128 339

Emerge Australia
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


Please note: This page reports a wide range of news items about ME/CFS and Fibromyalgia, not all positive or underpinned by science. See our Disclaimer (below left). If you see views that contradict the reality of the illness, please make it known to the writers or publishers of such articles – this will help to spread awareness amongst the general public.


MRI Could Help Diagnose Fibromyalgia: Study

International news

Saturday 22 October 2016


From Newsmax Media:


MRI scan
(Copyright iStock)

MRI Could Help Diagnose Fibromyalgia: Study

By Nathalie Wright
Wednesday, 19 October 2016
© 2016 Newsmax Media, Inc. All Rights Reserved.

Doctors may one day be able to diagnose fibromyalgia by means of a simple MRI scan. A study published in the journal Pain has, for the first time, identified a different brain response to pain and non-pain stimuli in people suffering from this chronic inflammatory disease.

Specialists have defined specific clinical procedures currently used to diagnose fibromyalgia, notably by assessing 12 tender points on the body. However, this doesn't explain what's going on at a neurological level in fibromyalgia patients or reflect individual levels of suffering.


Full article…


South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants

South Australian news

Friday 21 October 2016


From the South Australian Health and Medical Research Institute (via email):



South Australian Health and Medical Research Institute (SAHMRI)

Research participants wanted

Chronic fatigue syndrome: Leptin, interleukin 6 and clinical symptoms.

What is Chronic Fatigue Syndrome?

Chronic fatigue syndrome (CFS) is characterised by a constellation of symptoms in previously healthy and active individuals.

Because of these symptoms, quality of life of people with CFS can be extremely compromised. While the search for a clear-cut cause remains elusive, we believe that we can make a major contribution to a person’s quality of life by elucidating the biological basis of their clinical symptoms.

If the biology underlying the disabling symptoms of CFS is elucidated, we will be able to target treatments aimed at symptomatic improvement.

What is the purpose of this study?

To evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome. We can test these by using a blood sample. We are also embarking on the development of a genetic database for CFS.


Read more…


Photos From The Society Office Opening

South Australian news

Thursday 20 October 2016


Here are some photos from the official opening of the Society's new offices on Saturday 15 October 2016.

Senator Nick Xenophon was there to do the honours, and our unofficial dress code for the day was pyjamas.


Office Opening (15 October 2016)
Senator Nick Xenophon (left) with Society President Penelope McMillan (right) who is wearing
"at-home attire" to represent the way many ME/CFS sufferers are dressed

Read more…


My Final Year At Oxford, When I Felt Punished For Having ME

International news

Wednesday 19 October 2016


From The Guardian:


Nathalie Wright
Nathalie Wright had to go through a ‘rustication’ process
and sit exams to re-enter Oxford after she
became ill in her final year.
(Photograph: Christopher Thomond for the Guardian)

My final year at Oxford, when I felt punished for having ME

For centuries Oxford has ‘rusticated’ students – expelled them to their family home in the country – and those who are ill receive the same treatment

By Nathalie Wright
Tuesday 18 October 2016
© 2016 Guardian News and Media Limited or its affiliated companies. All rights reserved.

I had made it to the final year of my English degree at Oxford University, but I almost didn’t make it any further. I’d applied knowing the workload would be heavy but was still unprepared for the intensity of the course, which would often require two essays a week. For a single essay, we could be expected to read three novels as well as vast amounts of other reading. My peers and I would think nothing of doing a couple of all-nighters a week to stay on top of it. The next morning at breakfast, we would exchange tales of our martyrdom – someone had stayed up for three days straight reading Crime and Punishment, another had moved into the library, toothbrush and all.

This life shuddered to a halt when I suddenly became ill in the first term of my final year. I had glandular fever which, unbeknown to me then, had triggered ME – a chronic, extremely debilitating disease. As there was no way I could continue with my coursework, with the support of my GP I applied for a week’s extension. It was denied by the university.


Full article…


Volunteers Wanted For UniSA Research

South Australian news

Tuesday 18 October 2016


From the University of South Australia's Max Nelson (via email):


University of South Australia

UniSA 2-day testing study

Researchers at the University of South Australia are looking for ME/CFS sufferers and healthy controls aged 18-65 to take part in a study which aims to investigate how non-invasive heart rate measures can be used to monitor post-exertional malaise. The study employs a 2-day maximal testing protocol, which has previously been shown to provide information on post-exertional malaise in ME/CFS patients, and may in addition be able to provide evidence on a reliable biomarker within the ME/CFS population.

Testing will all take place at the University of South Australia High Performance and Exercise Physiology Clinic located at the UniSA City-East campus on the corner of North Terrace and Frome Road. Testing will consist of one short familiarisation session (45 minutes), and two maximal testing sessions (90 minutes each). The maximal testing sessions need to be completed on consecutive days.


Read more…


Honeymooners Sue Over Bed Bug-Ridden Cruise Cabin

International news

Monday 17 October 2016


From AOL Travel:


Philip and Janice Stephens
Philip and Janice Stephens
(Photo: Irwin Mitchell /

Honeymooners sue over bed bug-ridden cruise cabin

By Ruth Doherty
October 15, 2016

A couple are suing TUI UK Ltd after they claim they experienced bed bugs and were left vomiting after a honeymoon cruise with Thomson.

Philip and Janice Stephens honeymooned on the Thomson Celebration cruise ship to Turkey in September 2014.

But, after a couple of days they said they noticed bed bug bites and their room had to be fumigated twice.

They also said their food was allegedly lukewarm and undercooked.

Since her return to the UK, Janice has developed chronic fatigue syndrome and has had to take voluntary redundancy from work as a result of the chronic fatigue she suffers, the exact cause of the chronic fatigue remains under investigation and may be as a result of a post viral infection.


Full article…


Podcast: A Flawed Study on Chronic Fatigue Syndrome; Patients Fight Back

International news

Sunday 16 October 2016


From Dr. Ronald Hoffman:


Dr. Ronald Hoffman

Part 1: A Flawed Study on Chronic Fatigue Syndrome; Patients Fight Back

By Dr. Ronald Hoffman
13 October 2016

CFS patients fight back against flawed PACE study! It may seem like a paradox that exhausted, debilitated patients should be engaged in a militant effort to refute the conclusions of a study published in the Lancet in 2011 which posited that “fatigued patients who go out and exercise have the best hope of recovery.”

The PACE study claimed that CFS patients were deconditioned and exercise-phobic, and that dramatic successes could be achieved with “graded exercise” and cognitive behavioral therapy.

Critics of the study were denounced as “cranks.” But CFS activists (an oxymoron?!) were convinced the study was bogus and trivialized the deep-seated physical dysfunction of true sufferers.

The CFS community waged a long, ultimately successful battle to uncover the methodological errors and outright conflicts of interest that rendered the PACE a case study of bad science.


Full article…


Personality Traits May Impact Severity Of Fibromyalgia Symptoms

International news

Sunday 16 October 2016


From Fibromyalgia News Today:


Two people

Personality Traits May Impact Severity of Fibromyalgia Symptoms

By Magdalena Kegel
14 October 2016

Patients with fibromyalgia and chronic fatigue syndrome tend to fall into two personality categories, of which one group has more severe symptoms — an insight that might improve both evaluation and treatment of patients based on their specific needs and psychological capabilities.

The study, “Distinctive personality profiles of fibromyalgia and chronic fatigue syndrome patients,” published in the journal PeerJ, underscored that such assessments would conform to the idea of personalized medicine, which is currently gaining ground.


Full article…


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