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ME/CFS Australia Ltd
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2016
Saturday 20 February 2016

Saturday 9 April 2016

Saturday 25 June 2016

Saturday 27 August 2016

Saturday 19 November 2016
Annual General Meeting

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(PDF, 1.49 MB)


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)


For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)


For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

Australian ME/CFS Societies
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
The ME/CFS & FM Association NSW
Facebook: ME/CFS & FM NSW Support Group
Facebook: Chronic Fatigue Syndrome NSW
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Facebook Page
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


List of Australian ME/CFS organisations
(PDF, 19 KB)


List of Australian ME/CFS organisations (Word, 41 KB)



Queen Mary University Of London To Appeal Information Commissioner's Decision On Disclosure Of PACE Trial Data

International news

Friday 27 November 2015


From the blog of UK lawyer and ME/CFS sufferer Valerie Eliot Smith:

Queen Mary University of London

Queen Mary University of London to appeal Information Commissioner’s decision on disclosure of PACE Trial data

Valerie Eliot Smith
November 26, 2015


I have lived with the illness myalgic encephalomyelitis (ME) for nearly 35 years. The condition is also (misleadingly) known as “Chronic Fatigue Syndrome” and is therefore often referred to as “ME/CFS” or “CFS/ME”. For more information see “About”.

I have previously written about the controversial PACE Trial (Principal Investigator: Professor Peter White of St Bartholomew’s Hospital in London) and its highly questionable effects on the treatment of patients – see PACE vs FOIA: Access Denied.

The current case

Ever since the results of this £5 million (US$8m) publicly-funded trial were published by The Lancet in 2011, patients have been attempting to gain access to the trial data as the results were spun in a surprisingly positive light. In 2014, I made a request under the Freedom of Information Act (FOIA) to ascertain the number of requests which had been made in total. The answer wasn’t clear but the figure seemed to be well in excess of 150. However, very little data has been released so far and patient groups are still puzzled by how the results have continued to be framed in such positive terms.

Professor White has also used patients’ efforts to access trial information as a vehicle to make spurious claims of harassment against members of the PACE team and a “campaign to discredit the trial”.

Read more…


Carl-Gerhard Gottfries: A Swedish Chronic Fatigue Syndrome Story

International news

Friday 27 November 2015


From Health Rising:

Against the flow

Carl-Gerhard Gottfries: A Swedish Chronic Fatigue Syndrome Story

Nov 21, 2015

“These are really…immunological disorders” Dr. Carl-Gerhard Gottfries (psychiatrist)

It’s a fascinating story. It involves a psychiatrist who over fifty years ago cured his chronic fatigue syndrome using an immune booster. When he was barred from treating others in the clinic with it he resumed his psychiatric work but never stopped thinking about it. Thirty years later he used the same agent to successfully help many people with ME/CFS in an ME/CFS clinic in small town on the west coast of Sweden.

His names is Dr. Carl-Gerhard Gottfries. He’s the founder of the Gottfries Clinic in Sweden. He became interested in ME/CFS and FM almost fifty years ago after the Asian Flu epidemic of 1957/8 ravaged Sweden leaving some with severe and long lasting post-infectious fatigue. When doctors couldn’t explain what was going on with these patients, they were sent, of course, to his psychiatric clinic.

Gottfrie’s detailed examinations of over a hundred patients, however, uncovered no signs of a psychiatric disorder. He might have left it at that – another medical mystery – but then he caught the flu.

Gottfries was in bed for a week – that was normal – but then like his patients he had trouble recovering. Convinced that some of the infection must remain Gottfries began attempting to boost his immune system. In the late 1950’s he didn’t have many options and so he began a course that many today would find frightening – he began poking himself with vaccines.

It took him three years but eventually Gottfries found that a staphylococcus aureus vaccine (Staphypan Berna (Berna Biotech, Switzerland) containing a mixture of staphylococcus strains and a toxoid worked, and his fatigue went away. When his superiors balked treating patients at their psychiatric clinic with vaccines Gottfries returned to his focus on dementia and other diseases.

Read more…


Visual Stress Could Be A Symptom Of Chronic Fatigue Syndrome, Research Suggests

International news

Thursday 26 November 2015


From Medical Xpress:

(Credit: George Hodan/
public domain

Visual stress could be a symptom of chronic fatigue syndrome, research suggests

November 24, 2015

People suffering from chronic fatigue syndrome (CFS) could experience higher levels of visual stress than those without the condition, according to new research from the University of Leicester.

CFS, also known as myalgic encephalomyelitis (ME), is a condition that causes persistent exhaustion that affects everyday life and doesn't go away with sleep or rest. Diagnosis of the condition is difficult as its symptoms are similar to other illnesses.

A research team from the University of Leicester led by Dr Claire Hutchinson from the Department of Neuroscience, Psychology and Behaviour has examined patients with and without CFS and has found that those suffering from the condition are more vulnerable to pattern-related visual stress, which causes discomfort and exhaustion when viewing repetitive striped patterns, such as when reading text.

The results of the study, which is published in the journal Perception, could help in the diagnosis of CFS, as the findings suggest that there are visual system abnormalities in people with ME/CFS that may represent an identifiable and easily measurable behavioural marker of the condition.

Read more…


'Nostalgia' Art Exhibit Brings To Life Visual Representations Of The Past

International news

Wednesday 25 November 2015


From Canadian newspaper The Journal Pioneer:

Eddy Schwartz and Bernadette Kernaghan
Eddy Schwartz (left), an artist
himself was the inspiration for
the oil painting, “The Captain,”
which was done by his wife
Bernadette Kernaghan (right).
(© Desiree Anstey/Journal Pioneer)

'Nostalgia' art exhibit brings to life visual representations of the past

Desiree Anstey
Published on November 22, 2015

The Summerside Art Club has taken over the Eptek Centre with an all-new show, entitled “Nostalgia,” bringing to life memories and interpretations of artists in a dazzling display.

Liana Brittain, a member of the club, suffers from Fibromyalgia, a complex chronic pain disorder that affects her physically, mentally and socially.

She discovered “zentangle” as a therapeutic way to relax and intentionally facilitate a shift in focus and perspective.

“Zentangle was formed when a yoga instructor and artist combined their abilities to create a healing experience,” explained Brittain. “So I adopted this style of artwork in order to help maintain my Fibromyalgia (at a lower level) and how much chronic pain I experience at a time.”

Intricate patterns are drawn by Brittain and then coloured and shaded to create a three-dimensional effect. Her watercolour painting, entitled “Once Upon a Time,” represents a page in a child’s fairy-tale book.

“It’s a good therapeutic experience,” she added. “And it took me around two or three weeks to complete.”

Read more…


Sleep Improvement For Fibromyalgia Sufferers Possible, Study Shows

International news

Wednesday 25 November 2015


From National Pain Report:


Sleep Improvement for Fibromyalgia Sufferers Possible, Study Shows

Posted on November 23, 2015

A new drug being tested in clinical trials to treat fibromyalgia, called Tonmya, is showing promise for sleep improvement and pain reduction.

Tonmya is being evaluated in the 500-patient Phase 3 AFFIRM study in fibromyalgia. The primary outcome measure for this study is a pain responder analysis, which basically means patients report a minimum of a 30% reduction in pain from their baseline after undergoing treatments for 12 weeks.

The drug is taken at night daily, and researchers are seeing that patients are seeing improvements in sleep.

“Our new analyses of the BESTFIT data show that those patients who reported the greatest improvement in sleep quality were the most likely to experience pain relief,” said Seth Lederman, M.D., Tonix’s chairman and CEO. “We also observed that the group treated with Tonmya was approximately twice as likely as placebo-treated patients to be in the top third of reported sleep quality improvement. Among all patients in BESTFIT who ranked highest in reported sleep quality improvement, twice as many Tonmya-treated patients experienced at least a 30% improvement in their pain as compared to those treated with placebo.”

Read more…


Professor James Coyne Declares "Moral Equivalent Of War" On PACE

International news

Tuesday 24 November 2015


From #ME Action:

Professor James Coyne
Professor James Coyne


By #ME Action
November 18, 2015

In a public talk in Edinburgh on Monday [16 November 2015], psychologist Professor James Coyne declared the “moral equivalent of war” on the practices and assumptions that, he said, have allowed the “bad science” of the PACE trial to go unchallenged by scientists and the media.

The authors of the UK’s £5 million PACE trial have claimed that it showed that cognitive behavioural therapy and graded exercise therapy were beneficial for patients with chronic fatigue syndrome. Patients have criticised the trial’s methodology since its publication but criticisms have been dismissed by the study authors as reflecting “the apparent campaign to bring the robust findings of the trial into question.”

Professor Coyne’s attention was drawn to PACE by the authors’ latest claims, made in a recent Lancet Psychiatry paper, that long-term follow-up of patients confirmed these benefits. Coyne published a detailed blog post condemning the paper as “uninterpretable” and as having used “voodoo statistics” in a failed attempt to correct for “fatal flaws.”

Read more…


Support Medical Research While You Shop Online

International news

Monday 23 November 2015


From US blog Learning to Live With ME/CFS:


Support Medical Research While You Shop Online!

Sunday, November 22, 2015

I have been in denial that the holiday season is coming up so fast, but Thanksgiving is next week, so I need to face facts: it's time to start my holiday shopping. Here in the U.S., people get whipped into a shopping frenzy before they've even digested their turkey dinner on Thursday.

I'm sure most of us won't be standing in lines outside stores at 5 am on Black Friday, but if you're like me, you probably do most of your shopping online. I do plan to take advantage of the sales and discounts on Cyber Monday (November 30 this year). I can usually get almost all of my holiday shopping done online, with a quick stop at the drugstore or Target for stocking stuffers.

Did you know that you can donate to your favorite charities and medical research organizations while online shopping...without spending a dime? There are several ways to do this. In each case, you choose the organization to donate to, and the online store donates a percentage of your purchase to them (the amount varies by store), so it costs you nothing! I usually choose the Solve ME/CFS Initiative because they have spearheaded and financed some of the most important, ground-breaking research in our field and have been at it the longest, since 1987. You can look for your favorite charity or organization and choose whichever one is important to you.

Read more…


Fibromyalgia Patients Benefit From Surprisingly Simple Exercise

International news

Monday 23 November 2015


From EmaxHealth:

Walking on sidewalk

Fibromyalgia patients benefit from surprisingly simple exercise

By Lana Bandoim G+
2015-11-20 17:30

A new study reveals that the path to reducing fibromyalgia pain does not have to be complicated. Researchers focused on a group of female fibromyalgia patients who were able to decrease their pain by simply walking. Previous studies have shown that exercise can have a positive impact on patients who are dealing with fibromyalgia. Now, more research backs up the idea that staying active is essential.

Decreasing pain through exercise

Researchers at the University of Iowa focused on female fibromyalgia patients and analyzed the impact of exercise on their pain levels. They found that increasing activity levels helped the women reduce their pain. Although it is not easy for many patients to stick to an exercise program, the benefits are too important to ignore.

Researchers recognize that fibromyalgia patients often struggle with the initial pain associated with a workout. Their stiffness, fatigue, aches, tenderness, cramps, spasms and other symptoms make it difficult to exercise. However, they still encourage fibromyalgia sufferers to try an exercise program and stay with it.

Read more…


Muscle Strength And Flexibility Linked To Pain For Women With Fibromyalgia

International news

Sunday 22 November 2015


From MD Magazine:


Muscle Strength and Flexibility Linked to Pain for Women with Fibromyalgia

Caitlyn Fitzpatrick
Nov 19, 2015

It may be easy to write a prescription for opioids in hopes that they will do the trick for patients struggling with fibromyalgia pain. But the best path towards effective analgesia may not require medication at all.

This isn’t the first time that research has pointed out the benefits of exercise as a form of treatment for women with fibromyalgia. A study released earlier in the year found that patients who took more steps each day experienced less pain. However, in the new trial researchers used a larger population pool to make their case in Arthritis Care & Research, and they succeeded.

A total of 468 women with fibromyalgia were evaluated and levels of pain were recorded with several methods including algometry, numeric rating scale, visual analog scale, and the bodily pain subscale on the Short Form 36 health survey. The authors also looked at chronic pain self-efficacy and pain catastrophizing to determine patients who may exaggerate what they were actually feeling. The Senior Fitness Test battery and handgrip dynamometry were used to measure physical fitness – made up of aerobic fitness, muscle strength, flexibility, and motor agility – and average global fitness profile.

Read more…


Interview With Online Entrepeneur and ME/CFS Sufferer Lizzy Goddard

International news

Saturday 21 November 2015


From Autostraddle:

Lizzy Goddard
Lizzy Goddard, Virtual Assistant
and owner/founder of The Pillow Fort
Age 26, Nottingham, UK

Follow Your Arrow: Virtual Assistant Lizzy Goddard on Entrepreneurship and Chronic Illness

Posted by on November 19, 2015 at 1:00pm UTC

We can probably all agree that starting a business is damn hard work. The amount of energy most of us put into developing our ideas, getting past those weird money/marketing feels, and putting ourselves out there, not to mention actually doing our work and all of the admin that goes with it can add up to one of the biggest (and most exciting) challenges many of us will ever face.

But what if you also add disability and/or illness into the mix? What if you can’t rely on those energy levels at any given time, or your body lets you down just when your business needs you to show up? Is it really possible to head down the road to business ownership when faced with such roadblocks?

Virtual assistant (VA) Lizzy Goddard is familiar with the additional challenges chronic illness can bring to entrepreneurship. Having lived with chronic fatigue syndrome for most of her adult life, she found that working for herself actually helped her to design a life that worked with her body’s needs. She has found simple and practical ways to manage two small businesses alongside her body’s needs — firstly as the creator of The Pillow Fort, an online community for young people with chronic illness, and later as a VA, a freelancing gig that accidentally became her main source of income.

In this installment of Follow Your Arrow, Lizzy talks us through her day-to-day life as a solopreneur, how entrepreneurship has transformed her outlook on life, the inspirational power of women’s business communities…and doing business in a onesie.

Read more…


For previous news items, visit our full “In the News” archive:

In the News

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