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ME/CFS Australia Ltd
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Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.


Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(PDF, 1.49 MB)


ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)


ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)


For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)


For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

Australian ME/CFS Societies
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
The ME/CFS & FM Association NSW
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534


List of Australian ME/CFS organisations
(PDF, 19 KB)


List of Australian ME/CFS organisations (Word, 41 KB)



Marijuana rated most effective alternative treatment for pain

International news

Saturday 20 September 2014


From the US's National Pain Report:


Marijuana Rated Most Effective Alternative Treatment for Pain

By Pat Anson, Editor
September 18th, 2014

Medical marijuana has been rated the most effective alternative treatment for relieving chronic pain, according to the results of a new survey that also gave high marks to massage and chiropractic therapy.

The most widely used non-drug alternative treatment – vitamins and supplements – was rated the least effective by pain patients.

The online survey of over 2,400 women in chronic pain was conducted by National Pain Report and For Grace, a non-profit devoted to better care and wellness for women in pain.

Read more…


ME/CFS study in Adelaide: Volunteers wanted

South Australian news

Friday 19 September 2014


From the National Centre for Neuroimmunology and Emerging Diseases (via email):


Medical files

ME/CFS Study

The National Centre for Neuroimmunology and Emerging Diseases (NCNED) on the Gold Coast is conducting an ME/CFS study in Adelaide. 

We are seeking people for two groups:

  • ME/CFS group: Participants who are diagnosed with ME/CFS
  • Control group: Participants experience no problem with severe fatigue (and fatigue is relieved after bed rest)

The inclusion criteria for both groups are:

  • Females and males between the ages of 18 to 75 years old
  • Able to travel to Royal Adelaide Hospital's Pathology department
  • Non-smoker or has not smoked for the last 2 years
  • No current/previous diagnosis of serious chronic illness, e.g. autoimmune, neurological, cancer, cardiovascular, diabetes, primary psychiatric (minor depression and anxiety are permissible)
  • Must not be pregnant or breast feeding
  • Not currently on hormone medication

The study involves:

  • donation of 80ml of blood
  • completion of an online questionnaire

Read more…


Chronic fatigue, Fibromyalgia sufferers gather for hope

International news

Thursday 18 September 2014


From US newspaper the Deseret News:


Fibromyalgia tender points
Hundreds gathered in Salt
Lake City Saturday for a
conference dealing with
chronic fatigue and
fibromyalgia. Attendees
heard from doctors, other
patients and vendors who
believe they can help
with the illness.
Jeffrey D. Allred,
Deseret News


Chronic fatigue, fibromyalgia sufferers gather for hope

By Wendy Leonard, Deseret News
Follow @wendyleonards
Published: Saturday, Sept. 13 2014 6:59 p.m. MDT
Updated: Saturday, Sept. 13 2014 6:59 p.m. MDT

SALT LAKE CITY — Jessica Turner is battling what she calls a "soul-threatening" disease.

Chronic fatigue won't kill her, but the associated pain and general malaise sometimes leaves her feeling like she might be better off dead.

"The illness is so isolating," she said. "My body is broken and nobody knows what to do about it."

Turner, of Cottonwood Heights, is one of hundreds, if not thousands of Utahns who brave each day, juggling traditional and alternative medicine techniques just to feel human. Many of those people, including patients, family members, caregivers and others, gathered in Salt Lake City on Saturday to learn more about their illness and what they can do about it.

Read more…


UK mum sets up support group for Fibromyalgia sufferers

International news

Wednesday 17 September 2014


From UK newspaper the Lancashire Telegraph:

Councillor Andy Tatchell officially opens the new group started by Cath Farrer
Councillor Andy Tatchell
officially opens the new
group started by Cath Farrer.

East Lancs mum sets up support group for fibromyalgia sufferers

By , Health Reporter
First published  in News

A MUM-of-three has set up a new support group for people who suffer from a long-term condition which causes excruciating pain all over the body.

Cath Farrer, from Clayton-le-Moors, said there was ‘next to no help’ available for fibromyalgia sufferers when she was diagnosed 20 years ago, so has set up the group in Burnley to ensure newly-diagnosed patients get more support than she received.

About 12 people turned out to a launch party at the East Lancashire Voluntary Services Resource Centre in Burnley yesterday, including the town’s mayor Andy Tatchell.

Read more…


On a mission for mum

International news

Tuesday 16 September 2014


From UK newspaper The Blackpool Gazette:

(l to r) Brandon Wynne, Aimee Bowker, and Jane Hogan
(From left to right)
Brandon Wynne, his sister
Jane Hogan, and their
mother Jane Hogan.
(PIC BY ROB LOCK 5-9-2014)

On a mission for mum

Published on the 09 September 2014 09:40

Just two years ago, Aimee Bowker enjoyed celebrating her birthday on a night out in Blackpool with family and friends, including her mum.

But now, just coming up her 23rd birthday, her mum – Jane Hogan, known to her friends as ‘Jay’ – is sometimes unable to even get out the house.

Jane, 45, from Fleetwood, was diagnosed with fibromyalgia a couple of years ago.

Fibromyalgia is a chronic condition, which causes pain all over the body, including muscle and joint pain.

It can leave trigger points painful to touch, cause swelling, and cause muscles to twitch, burn or have a deep stabbing pain. Sufferers also experience extreme fatigue.

Now Aimee, her family and friends have joined together in a bid to raise money for vital equipment for Jane.

Read more…


Chronic Fatigue Syndrome grant explores why men get ME/CFS

International news

Monday 15 September 2014


From Health Rising:

Mary Fletcher
Mary Fletcher

Big Chronic Fatigue Syndrome Grant Explores Why Men Get ME/CFS

By Cort Johnson on September 13, 2014

Dr. Mary Fletcher and the ME/CFS research team at the Institute for Neuroimmune Medicine at Nova Southeastern University have received a very large grant ($1.9 million) from the National Institute of Neurological Disorders and Stroke at the NIH. This grant will look for biomarkers in, get this, men with Chronic Fatigue Syndrome. The grant builds on the work provided by $10 million (that’s right, ten million dollars) worth of work on Gulf War Syndrome – a syndrome populated mostly by men. It may be first study devoted to specifically understanding this disease in men.

It’s about time! The NSU research group has been focused mainly on women, and this big grant will balance that out. ME/CFS is often spoken of as a “woman’s disorder”, but men make up twenty to forty percent of the million people in the U.S. believed to have Chronic Fatigue Syndrome. (The press release, interestingly, suggests that this figure is too low. One wonders who they feel the epidemiological studies missed.)

Read more…


'Don'ts' aren't helping: here are five things you can say to someone with a disability

Australian news

Sunday 14 September 2014


From The Guardian Australia:

John McKenna and Prime Minister Tony Abbott
Prime Minister Tony Abbott
with empowerment advocate
John McKenna in 2013.
(Photograph: AAP)

'Don'ts' aren't helping: here's five things you can say to someone with a disability

Robert Hoge
Saturday 13 September 2014 11.00 AEST

Disability can sometimes be a tough topic to talk about. It’s especially hard when people without a disability struggle to fully grasp what’s it’s like to live with one.

But when it comes time for talking, many of us with a disability shoot ourselves in the prosthetic foot, by strictly defining the kinds of conversations we can have. Occasionally this happens through lists of what people can’t or shouldn’t say to us, rather than what they can or should.

They pop up often enough: “10 things not to say to someone with a disability”, or “10 things you shouldn’t say to someone in a wheelchair”. They include things like castigating strangers for offering their help, or for asking about a person’s disability.

At best, these lists represent the personal views of their authors, which is fine. Too often though, they suggest they’re universal disabled truths. At worst, turning a conversation about disability into a list of “don’ts” tells people that it’s best to avoid engaging about issues of disability at all, for fear of offending someone.

Read more…


For previous news items, visit our full “In the News” archive:

In the News

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