| More evidence of inflammation in ME/CFS |
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International news
Saturday 21 November 2009
 ME Action UK has an article by Margaret Williams in response to recent claims:
More evidence of inflammation in (ME)CFS
Margaret Williams
14th November 2009
In his presentation in Bergen on 20th November 2009, Professor Peter White’s power point slides state about (ME)CFS that maintaining factors include illness beliefs, the search for legitimacy, being on benefits, and the diagnostic label, and that immune or viral measures are NOT involved in the maintenance of the disorder.
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| Health system failing people with ME/CFS |
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Australian news
Friday 20 November 2009
 Paul Leverenz, Chairman of ME/CFS Australia, has written an article on ME/CFS Australia's Blog about the state of the Australian health system for people with ME/CFS:
Health System Failing People with ME/CFS
The health system is failing Australians with ME/CFS. We outline some of the reasons for this and offer some suggestions as to what the Government might do to begin to close the gap.
ME/CFS affects an estimated 100,000 Australians; those living with it can be as impaired as people with MS, AIDS, or those undergoing chemotherapy for cancer.
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| Chronic fatigue beaten in path to draft |
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Australian news
Thursday 19 November 2009
 AFL.com.au has an article about 18-year-old Australian Rules Football Draft pick Jack Fitzpatrick (pictured) overcoming ME/CFS:
Chronic fatigue beaten in path to draft
DESPITE a decade-long struggle with chronic fatigue syndrome, Jack Fitzpatrick looms as one of the most intriguing ruck prospects at this month's NAB AFL Draft.
Fitzpatrick's condition was brought on by a bout of glandular fever when he was just six and he deteriorated to the point where his parents had to lift him off the couch to use the toilet.
Fast forward 10 years and, through the advice of countless doctors and herbalists, Fitzpatrick learned to manage it well enough to progress from local club Wyndhamvale to the Western Jets.
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| ME/CFS research funding needs boost |
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Australian news
Wednesday 18 November 2009
Paul Leverenz, Chairman of ME/CFS Australia, has written an article on ME/CFS Australia's Blog about the need for more research funding in Australia:
ME/CFS Research Funding Needs Boost
ME/CFS Australia calls upon the Australian Government to develop a strategic plan to increase the amount of ME/CFS research in Australia. The Australian Government contributes only $1.17 per patient per annum for CFS research. ME/CFS needs to be made a research priority and ultimately a stimulus package needs to be put in place to support it. This will encourage promising academics into a field which is exciting and will push the boundaries of science, benefiting all. Not only do we need more research but we need the right research so public money is not wasted. Some suggestions are offered.
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| Southern Chronic Illness Links Networks meetings |
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South Australian news
Tuesday 17 November 2009
 The Bridges and Pathways Institute Inc / Southern Chronic Illness Links Network is an organisation that provides support for people with CFS and Fibromyalgia.
The Institute / Network is an Australian not-for-profit charity dedicated to improving information and services for Australians with non-priority complex chronic conditions towards Australian better health management and living well.
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| TAFE SA disability guide for staff |
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South Australian news
Monday 16 November 2009
 TAFE SA has produced a guide for staff on disability discrimination and how best to support students with disabilities. For the first time, staff on TAFE campuses across the state are being provided with information about working with and supporting students who have ME/CFS or Multiple Chemical Sensitivity.
The Guide can be downloaded here:
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| New MCS book |
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International news
Sunday 15 November 2009
 Femail has some information on Slow Death by Rubber Duck, a new book by Rick Smith and Bruce Lourie on the effects of toxic chemicals:
Slow Death By Rubber Duck
How the toxic chemistry of everyday life affects our health
When Rick Smith and Bruce Lourie decided to tell the story of pollution in our modern world by using their own bodies as laboratories, they could not have known what they were about to discover. They ingested and inhaled a host of things that surround all of us all the time: from mercury-laden tuna and flame-retardant chemicals in clothes and furniture, to toxins in plastics, shampoos and deodorants. The results of these experiments are both alarming and unexpected.
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| Pacing by Numbers: using your heart rate to stay inside the energy envelope |
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International news
Saturday 14 November 2009
 CFIDS & Fibromyalgia Self-Help has an article by Bruce Campbell about pacing:
Pacing by Numbers: Using Your Heart Rate To Stay Inside the Energy Envelope
By Bruce Campbell
If you have CFS, you are probably familiar with post-exertional malaise, the severe fatigue that results from doing too much. You can avoid or at least reduce malaise by staying within your limits or energy envelope. This article describes a strategy for staying within one part of the envelope: the anaerobic threshold.
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| PatientsLikeMe expands to include CFS |
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International news
Friday 13 November 2009
 PatientsLikeMe is a website that promotes a community of people with diseases to share their experiences.
EarthTimes reports on the expansion of PatientsLikeMe to include Chronic Fatigue Syndrome.
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| RCEP Handbook of Disabilities |
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International news
Thursday 12 November 2009
 The Rehabilitation Continuing Education Program (RCEP) at the University of Missouri was an organisation that provided training and other services to vocational rehabilitation agencies and counselors in the four US states of RSA Region 7 (Missouri, Iowa, Nebraska, and Kansas).
Unfortunately, funding for RCEP has stopped and the Region 7 RCEP is now closed. However, one of its legacy documents is The Handbook of Disabilities, which can be found on the RCEP Projects page (click on the "Learn more about the Handbook of Disabilities" link).
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| Top Ten Things Not to Say to Someone with Chronic Fatigue Syndrome |
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International news
Wednesday 11 November 2009
 EmpowHer: Women's Health Online has an article by Jody Smith on problematic comments made by well-meaning people:
1. "I get tired too."
The ridiculous moniker hung long ago upon this debilitating disease continues to throttle us. "Chronic Fatigue Syndrome". Its name is all about being tired.
Everyone and his dog is tired. Take an unofficial impromptu poll anywhere. People can hardly keep going. I remember what that was like. Quite fondly, actually. That was when I could keep going. Wanted to do it. Did do it. Gloried in it. And now it is beyond me.
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| ME/CFS patient's treatment in UK health system |
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International news
Tuesday 10 November 2009
 This is Kent reports on ME/CFS patient Jeannie Carson (pictured) who has criticised her treatment by the UK's National Health Service and how the NHS views the disease as a psychiatric rather than physical one:
'NHS must not treat ME as mental illness'
A PENSIONER from Tonbridge with chronic fatigue syndrome has slammed her treatment which included a stay in the psychiatric ward of a major London hospital.
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| Art exhibition inspired by ME/CFS |
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South Australian news
Monday 9 November 2009
 The Saturday 7 November edition of Adelaide's The Advertiser newspaper had an article on a new art exhibition inspired by its creator's experiences with ME/CFS.
This Life was created by Sydney artist Ahmed Zehran and her husband Sam Darveniza (both pictured):
IMPACT: Human condition inspires art
Despair opens a door to personal expression
Louise Nunn
Sydney artist Zehra Ahmed's new work will resonate with anyone who has suffered a chronic illness.
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| Society AGM: President's report and farewell speech |
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South Australian news
Sunday 8 November 2009
 The Society held its Annual General Meeting yesterday (7 November) and outgoing President Peter Cahalan (pictured) took the opportunity to give his annual report and farewell speech.
President’s report for 2009
This is my last report as president of your Society. I leave with a sense of regret at jobs unfinished but with pride at having been given the chance to work with many wonderful and heroic people.
The theme of this year was rationalising our effort. We did this in several key ways.
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