ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.
To further assist busy medical practitioners, Dr Bruce Carruthers, principal author of the ME/CFS Consensus Document and Co-Editor of the FMS Consensus Document, and Marjorie van de Sande, Consensus Coordinator of the Consensus Documents, have written and published Overviews of the Canadian Consensus Documents for ME/CFS and FMS independent of any organisation.
If he wants to observe a classic David-versus-Goliath rumble, Gladwell might want to go to Washington on Tuesday (Dec. 10). He will see a frail woman go up against the federal government with a humble petition and a small following of mostly very sick people.
Her name is Susan Kreutzer and she suffers from the debilitating and mysterious disease Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis, which is the name patients favor.
Kreutzer and others will begin their demonstration at 9a.m. outside the headquarters of the Department of Health and Human Services on Independence Avenue, where she will hand over a petition. Then she will move up the street to Capitol Hill to demonstrate and hand-deliver petitions to members of Congress. She will end her day of petitioning her government outside the White House.
When you have a debilitating chronic illness like fibromyalgia and chronic fatigue syndrome, sometimes you find yourself stuck in bed or on the couch for long stretches of time - like days or weeks. At the same time, most of us have to keep a household running as much as possible. It's a daunting task, especially when taking a shower leads to a four-hour nap, or when you're in so much pain that you can barely speak.
I had a few years where I'd be up for a couple weeks, then down for a couple weeks. My kids were really little then. It wasn't easy, but we found ways to make it work ... at least, at a basic level. I've had some reminders of this lately, since I keep getting really sick and going down for a few days (thank you, suppressed immune system!) It's also shown me what it's like with somewhat older kids, who are capable of more, but also harder to keep my eye on.
First, a word of encouragement for those who are in this situation: Being limited by your illness DOES NOT make you a bad parent. A whole lot of us have raised happy, well-adjusted kids while facing those limitations, and they often grow up to be especially caring, understanding, and self-reliant because of our challenges. Make sure they know they're loved, and they'll be okay in spite of fewer trips to the park and getting their own snack out of the fridge.
A brand new neuroscience research project is about to get underway on the Isle of Wight that will focus its attention on the debilitating chronic pain condition, Fibromyalgia Syndrome (FMS).
The Island’s Radiology and Chronic Pain departments will be linking with neuroscience colleagues at both Imperial College and University of Southampton to explore new techniques to help them better understand the condition.
C. R. Alves from University of Sao Paulo in Sao Paulo, Brazil and colleagues conducted the trial and found creatine supplements increased intramuscular phosphorylcreatine content and improved lower- and upper-body muscle function, which is desired.
For the 16-week, randomized, double-blind, placebo-controlled, parallel-group trial, patients with fibromyalgia were randomly assigned to receive either creatine monohydrate or placebo. And the participants were all evaluated at baseline and after 16 weeks for a range of physical, mental, physiological and biochemical parameters.
The Centre will be opened as part of an international symposium on Chronic Fatigue Syndrome (CFS) at the university’s Griffith Health Centre on its Gold Coast campus.
Otherwise known as Myalgic Encephalomyelitis, Chronic Fatigue Syndrome (CFS) is a highly debilitating disorder characterised by profound fatigue, muscle and joint pain, cerebral symptoms of impaired memory and concentration, impaired cardiovascular function, gut disorder and sensory dysfunction such as noise intolerance and balance disturbance. Many cases can continue for months or years. It is believed to affect around 250,000 Australians.
IOM Accused of Bias: Burmeister Calls for Investigation
By Jeannette Burmeister • www.ProHealth.com • November 13, 2013
Editor's Comment: On November 11, Jeannette Burmeister, attorney at law and patient advocate, sent a letter to the DHHS Inspector General requesting an immediate investigation into the IOM (Institute of Medicine) contract to define "chronic fatigue syndrome." Her charge is that the IOM is not qualified to define the illness because it is guilty of bias and conflict of interest, as laid out by federal regulations.
Atty Burmeister's letter - cc'd to an impressive list of Senators and representatives - is the most recent public statement against the IOM contract. Since the contract was announced there has been an overwhelming response from the ME/CFS community, from both advocates and experts in the field. (See Experts' Letter, Advocates' letter, and petitions here, here and here.) Signatures on these letters and petitions have been added as the pressure increases on the DHHS to abandon the IOM contract.