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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
1:30pm
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Gut Infection Could Underlie Symptoms In Chronic Fatigue Syndrome

International news

Sunday 25 January 2015

 

From Health Rising:

duodenum
Signs of inflammation in the
duodenum started the
WPI off on their investigation
 

Gut Infection Could Underlie Symptoms in Chronic Fatigue Syndrome

By Cort Johnson on January 13, 2015

“We are cautiously optimistic regarding these results because, if confirmed, we may have identified a contributing factor to the innate immune issues associated with ME/CFS and a molecular target for potential treatment strategies.” – Lombardi et al.

Over the past couple of years the Whittemore-Peterson Institute has been quietly digging into the human gut. They found that the duodenum – the first section of the small intestine – of many people with ME/CFS is inflamed and has become infiltrated with lymphocytes (disease-fighting white blood cells) – a clear sign that the immune system is on the attack.

Plasmacytoid dendritic cells in the duodenum of individuals diagnosed with myalgic encephalomyelitis are uniquely immunoreactive to antibodies to human endogenous retroviral proteins. De Meirleir KL, Khaiboullina SF, Frémont M, Hulstaert J, Rizvanov AA, Palotás A, Lombardi VC. In Vivo. 2013 Mar-Apr;27(2):177-87.

Further investigations indicated that innate immune cells called plasmacytoid dendritic cells (pDCs) were present in higher than normal levels. The first part of the immune system on the scene of a pathogen attack, the innate immune system initiates a kind of a broad inflammatory attack against pathogens. It’s the innate immune system that’s behind those flu-like symptoms you experience when you get a cold.

Read more…

 
 
 

Plasma Cytokine Expression In Adolescent Chronic Fatigue Syndrome

International news

Saturday 24 January 2015

 

From ProHealth:

Research
 

Plasma cytokine expression in adolescent chronic fatigue syndrome

By Vegard Bruun Wyllera et al.
www.ProHealth.com
January 7, 2015

By Vegard Bruun Wyllera et al.

Abstract

Chronic fatigue syndrome (CFS) is a prevalent and disabling condition among adolescents. The pathophysiology is poorly understood, but low-grade systemic inflammation has been suggested as an important component. This study compared circulating levels of individual cytokines and parameters of cytokine networks in a large set of adolescent CFS patients and healthy controls, and explored associations between cytokines and symptoms in the CFS group.

Read more…

 
 
 

"I'd Rather Have Cancer Than Chronic Fatigue Syndrome"

International news

Friday 23 January 2015

 

From UK newspaper the Daily Mail:

Jenny Andrews
Jenny Andrews, 42, has
suffered from chronic fatigue
for 10 years - and says
it has destroyed her life
far more than the
bladder cancer she battled
 

'I'd rather have CANCER than chronic fatigue syndrome': Woman who's battled condition for 10 years says people with it are unfairly labelled 'attention seekers'

By ANNA HODGEKISS FOR MAILONLINE
PUBLISHED: 23:53 EST, 22 January 2015
UPDATED: 02:36 EST, 23 January 2015

A former cancer patient says she would rather still have the deadly disease than the chronic fatigue syndrome that has plagued the last decade of her life.

Jenny Andrews, 42, says the condition has made her life grind to a halt over the past 10 years - and she fears she may never recover.

Not only has it forced her to quit her job as a scientist and her beloved hobby of belly dancing, but at times has meant she can barely lift her head from the pillow. 

'At my worst, I had dizziness when standing, sheer exhaustion so bad I couldn't even go out - never mind continue my scientific studies,' she told MailOnline

'I hated smells, lights, and my brain felt continually foggy and couldn't read anymore or even concentrate on daytime TV.'

Ten years ago, Ms Andrews, from Nottinghamshire, was diagnosed with bladder cancer. 

'But the chronic fatigue syndrome - or CFS as it is known - is so much worse than that,' she said.

Read more…

 
 
 

US Neuroscientist Says Exercise Worsens ME/CFS Symptoms

International news

Thursday 22 January 2015

 

From The Argus Report:

Treadmill
 

US Neuroscientist Says Exercise is a Noxious Stimulus That Worsens Symptoms of ME/CFS

By Penny Swift

A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy (GET) is an effective treatment for Chronic Fatigue Syndrome (CFS).

The Lancet Psychiatry report, published earlier this week, is the sixth based on the now dated PACE Trials that have been widely discredited by the international ME/CFS community.

Prof. J. Mark VanNess from the Californian University of the Pacific, referred specifically to The Lancet Psychiatry report’s claim that CFS patients have “fear avoidance beliefs” when it comes to exercise, and that this plays a role in “perpetuating fatigue and disability” in CFS.

Read more…

 
 
 

Unexplained Medical Symptoms – A Radio National Panel Discussion

Australian news

Wednesday 21 January 2015

 

From Australian ABC program Radio National: Health Report:

Man pain
IMAGE: Not getting an
adequate explanation of
medical symptoms can be
very distressing.
(Photo: Getty/ Stock Shop
Photography LLC)

 

Unexplained medical symptoms - a panel discussion

Everyone's got a theory about unexplained medical symptoms, from gluten to Lyme disease.

Monday 19 January 2015
(First broadcast Monday 8 September 2014 5:30PM)

What happens when symptoms can't be explained? The panel looks into complicated issues surrounding unexplained medical symptoms in this special event for the Ultimo Science Festival in Sydney.

Read more…

 
 
 

Australian Disability Advocates Say Federal Government Employment Policies Not Working

Australian news

Tuesday 20 January 2015

 

From Australia's ABC:

Disability coordinator Gary Kerridge, using Auslan sign language online at work
Photo: Disability coordinator
Gary Kerridge said that a
wholesale attitude shift is
needed by employers
.
(Source: ABC News)
 

Disability advocates say Federal Government employment policies not working

By Social Affairs correspondent Norman Hermant
Saturday 17 January 2015

Advocates say despite years of Federal Government policies to designed to boost employment, it is as hard as ever for people with a disability to enter the workforce.

The number of people living with a disability working for the Australian Public Service fell from 5 per cent in 1999 to just 3 per cent last year.

The latest figure puts Australia behind countries such as Canada, with 5.8 per cent of its public service identifying as living with a disability, and the UK, where the figure is 8.8 per cent.

Both countries have strong employment equity laws which have the effect of encouraging employers to take active steps to hire more people with a disability, and there have been calls from some advocates for Australia to consider similar legislation.

Read more…

 
 
 

Life Is Hard For Us ME Sufferers – And Simplistic News Reports Don't Help

International news

Monday 19 January 2015

 

From UK newspaper The Guardian:

 

Shopping
'I want to be able to walk and
go shopping. But I also know
the physical suffering I feel
after pushing myself too hard.'
(Photograph: Andy Rain/EPA)
 

Life is hard for us ME sufferers – and simplistic news reports don’t help


Saturday 17 January 2015

Chronic fatigue syndrome is misunderstood by the public, and the media must take some of the blame for that

My heart sank when I went online this week. I saw that some new research about chronic fatigue syndrome (CFS) had been released, with one headline saying that “fear of exercise exacerbates CFS”. Researchers claim that a fear of exercise worsens the disorder – which is also known as ME – and sufferers need to try and get out of bed if they want to get better.

I just wanted to cry. It has taken me 18 months of fighting to get people to believe that what I am suffering is real and not simply made up, or laziness. Some still don’t. I’ve been told that I need to get a grip, make an effort, stop being lazy, that it’s all in my head. I have even been told that “it would be better for people if you were dead”. CFS is still a mystery to the medical world. It’s never really spoken of, and so people don’t understand what it’s like to have your life changed so dramatically.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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