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ME/CFS Australia Ltd
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Society Seminars
Saturday 16 August 2014
12:30 pm - 2:30 pm
Speaker: Robyn Lingard
Details…
 
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Archibald Prize entry: "My Plague" by Julian Parker Welch

Australian news

Wednesday 23 July 2014

 

From artist Julian Parker Welch (via email):

"My Plague" by Julian Parker Welch
A section of "My Plague"
by Julian Parker Welch
(Click here for
the full painting)
 

I am a Sydney painter that recently did a piece for the Archibald Prize. I was not picked, which doesn't shock me or undermine my real reason for this piece.

Hopefully my explanation will give you a clear idea of what and who the painting is of.

The painting depicts two figures – in a pool of light at the foreground sits Professor Andrew Lloyd, Head of Infectious Disease at the University of New South Wales, and in the shadows at the back looms a Black Plague doctor from the 1400s.

This work has particular significance to me. For the last four years I have suffered from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), which is a severe functionally disabling neuro-immune illness.

Read more…

 
 
 

Fibromyalgia research update from Integrated Tissue Dynamics

International news

Tuesday 22 July 2014

 

From ProHealth:

Research
 

Fibromyalgia Research Update from Integrated Tissue Dynamics

www.ProHealth.com • July 17, 2014

Editor's comment: In June 2013, we told you about new research conducted by Integrated Tissue Dynamics (INTiDYN), which found that people with fibromyalgia have excessive sensory nerve fibers around specialized blood vessel structures located in the palms of the hands. (See “Fibromyalgia: It's Not All in Your Head – It's in Your Hands!”) This week Dr. Frank Rice, President and Chief Scientist at INTiDYN, sent out this letter updating us on what they have been doing since releasing their groundbreaking study last year. Following the letter, you'll find links to the original journal article and related documents as well as some additional notes from Dr. Rice.

It has been too long since I have been in contact with many of you. An update is long overdue.

I am sure you wish research would go faster and so do we. We regret that we have not yet published anything new since the study last June in PAIN Medicine. It took over 3 years of research for that one publication. Based on the initial discovery of a real pathology, there are more than enough ideas to pursue (many inspired by you) limited by time and money. We are working on novel ideas and funding from many angles including the recent submission of a multi-million dollar grant proposal to the National Institutes of Health (NIH) in collaboration with the Center of Excellence for Pain Medicine at the University of California at San Diego. The proposed research would expand our study on female fibromyalgia patients, add male fibromyalgia patients, and include patients with complex regional pain syndrome (also known as reflex sympathetic dystrophy) and low back pain. It will take 3 months before we will know whether it is funded. So keep your fingers crossed.

Read more…

 
 
 

Yard sale boosts awareness for self-help group

International news

Monday 21 July 2014

 

From Canada's Seaway News:

Seaway M.E./FM Self Help Group
The Seaway M.E./FM Self
Help Group strikes a pose.
(Photo: © Adam Brazeau)
 

Yard sale boosts awareness for self help group

By Adam Brazeau
Published on July 20, 2014

CORNWALL, Ontario - The Seaway M.E./FM Self Help Group hosted its third annual yard sale to help its members cope with a life-altering disease.

The group was up bright and early July 19, bartering with hundreds of bargain hunters to raise funds for upcoming events and activities.

The self help group is open to anyone with M.E. (Myalgic Encephalomyelitis) better known as Chronic Fatigue Syndrome and Fibromyalgia (FM).

The group delivers information sessionsto newly diagnosed individuals, provides literature on the two illnesses, and offers an aqua fitness program for a yearly cost at the Cornwall Aquatic Centre at noon every Tuesday and Friday.

FM sufferer and president of the registered charitable organization Denise Hurtubuise, said the event continues to grow each year.

Read more…

 
 
 

A mystery no longer?

International news

Sunday 20 July 2014

 

From Health Rising:

Jigsaw
Are the pieces finally starting
to come together for
Chronic Fatigue Syndrome?

 

A Mystery No Longer? The Big Picture Emerging In Chronic Fatigue Syndrome – Dr. Bateman Talks

By Cort Johnson on July 17, 2014

Puzzle Pieces Coming Together

“There have been some things that have really helped me … to move my thinking forward… . The picture is coming together.”
– Dr. Lucinda Bateman from a talk at OFFER

Take the pieces of a big puzzle – piece a few together, scatter some of the rest on the floor, and then throw the box and the rest of the pieces away – and that’s what we’ve had with Chronic Fatigue Syndrome. We’ve had a few pieces of the puzzle, some of which fit together (and some of which didn’t appear to) but nowhere has the broad outline of the puzzle – the disease – been apparent.

Dr. Lucinda Bateman thinks that’s changing. In a videotaped talk for OFFER (The Organization for Fatigue & Fibromyalgia Education & Research) she stated she believes the broad outlines of the ME/CFS puzzle are now visible, and as they continue to become more visible we’ll be able to fill in the pieces of the puzzle faster and faster.

Two events helped Dr. Bateman come to this conclusion.

Read more…

 
 
 

Study: Paediatric ME/CFS diagnosis and management in Australia

Australian news

Saturday 19 July 2014

 

From the Journal of Paediatrics and Child Health:

Journal of Paediatrics and Child Health
(Image: Royal Australian
College of Physicians
- Paediatrics and Child
Health Division
)
 

How is paediatric chronic fatigue syndrome/myalgic encephalomyelitis diagnosed and managed by paediatricians? An Australian Paediatric Research Network Study

Sarah Knight1,2,3,4,*,
Adrienne Harvey1,2,3,
Susan Towns5,6,
Donald Payne7,8,
Lionel Lubitz9,
Kathy Rowe9,10,
Colette Reveley9,10,
Sabine Hennel2,
Harriet Hiscock1,3,11 and
Adam Scheinberg1,2,12

Article first published online: 10 JUL 2014

DOI: 10.1111/jpc.12677

© 2014 The Authors. Journal of Paediatrics and Child Health © 2014 Paediatrics and Child Health Division (Royal Australasian College of Physicians)

Conflict of interest: Nil.

Keywords:

adolescent; chronic fatigue syndrome; chronic illness; general paediatrics

Aim

The diagnosis and management of paediatric chronic fatigue syndrome/myalgic encepnalomyelitis (CFS/ME) represent ongoing challenges for paediatricians. A better understanding of current approaches at a national level is important in informing where research and education could improve treatment outcomes. We aimed to examine current diagnosis and management practices for CFS/ME by Australian paediatricians.

Read more…

 
 
 

Mike's marathon effort to give something back

International news

Friday 18 July 2014

 

From Carers UK:

Mike Rippingale
Mike Rippingale
 

Mike's marathon effort to give something back

11 July 2014

Mike Rippingale from Rhyl, North Wales, is about to add training for the 2015 London Marathon to an already hectic life of juggling caring responsibilities with work and parenthood.

Mike, 32, cares for his wife Sam, 27, who has fibromyalgia. He also works full-time and looks after their three children who are all under nine years old.

Mike hopes that, as well as raising awareness of fibromyalgia, he will also help to draw attention to the challenges that carers face and the support that Carers UK can offer. Mike said: 

“I am a carer for my wife… and would like to give something back for the support Carers UK gave us when needed.”

Read more…

 
 
 

Disability pension concerns

South Australian news

Thursday 17 July 2014

 

From society member Peter Mitchell (via our regular news eBulletin):

ME/CFS Australia (SA) Inc
 

DISABILITY PENSION CONCERNS

16 July 2014

Many sufferers understandably feel very vulnerable when it comes to Centrelink, and those concerns have been raised with the recent changes to the Disability Support Pension’s (DSP) ‘work capacity assessment’ for pensioners under 35 years old.

We can’t be sure how this change might affect our members, or how many might be affected.  We believe the reason for this change is to primarily assist people with conditions different to ours, who may be able to work 8 hours or more a week.  The government won’t be forcing unwell people to work to the further detriment of their health.

While this transition is taking place, we would like all members, and non-members who would like to register with us, to let us know if you have any difficulty with this process.  If it turns out that there are difficulties then we will be able to act as a united body, with the assistance of supportive doctors, politicians, and disability advocates.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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