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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
1:30pm
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Patients With Fibromyalgia Have Eye Differences

International news

Tuesday 21 April 2015

 

From Healio Rheumatology:

Eye
 

Patients with FM have smaller stromal nerve thickness, lower corneal sub-basal plexus nerve density

Ramírez M, et al. Sem Arth Rheum. 2015;doi:10.1016/j.semarthrit.2015.03.003.
April 16, 2015

Women with fibromyalgia (FM) had a thinner average stromal nerve thickness and decreased corneal sub-basal plexus nerve density per square millimeter compared with healthy control participants, and corneal confocal microscopy could be a useful tool to identify patients with FM, according to the results of recently published research.

Researchers enrolled 17 women with fibromyalgia (FM) who met both American College of Rheumatology 1990 and 2010 criteria for FM and 17 healthy women matched for age. Participants were between 18 and 50 years of age with no concurrent diseases.

All participants completed Spanish language questionnaires to assess FM symptoms, including autonomic dysfunction, sleep quality, anxiety, depression, fatigue, neuropathic pain and general well-being. The questionnaires included the Fibromyalgia Impact Questionnaire (FIQ), the Medical Outcome Sleep Scale (MOS), the Composite Autonomic Symptoms and Signs (COMPASS) assessment, the Hospital Anxiety and Depression Scale (HADS), the Multidimensional Assessment of Fatigue Scale (MAF), SF-36, and the Leeds Assessment of Neuropathic Symptoms and Signs (LANSS) assessment.

Read more…

 
 
 

Chronic Fatigue Syndrome: Features Of A Population Of Patients From Northern Italy

International news

Monday 20 April 2015

 

From ProHealth:

ProHealth
 

Abnormalities of AMPK Activation and Glucose Uptake in Cultured Skeletal Muscle Cells from Individuals with Chronic Fatigue Syndrome

By A.E. Brown et al.
www.ProHealth.com
April 17, 2015

By A.E. Brown et al.

Abstract

Background: Post exertional muscle fatigue is a key feature in Chronic Fatigue Syndrome (CFS). Abnormalities of skeletal muscle function have been identified in some but not all patients with CFS. To try to limit potential confounders that might contribute to this clinical heterogeneity, we developed a novel in vitro system that allows comparison of AMP kinase (AMPK) activation and metabolic responses to exercise in cultured skeletal muscle cells from CFS patients and control subjects.

Methods: Skeletal muscle cell cultures were established from 10 subjects with CFS and 7 age-matched controls, subjected to electrical pulse stimulation (EPS) for up to 24h and examined for changes associated with exercise.

Read more…

 
 
 

Debilitating Fatigue Reported By Patients With Autoimmune Diseases

International news

Sunday 19 April 2015

 

From Healio Rheumatology:

Healio
 

Debilitating fatigue reported by patients with autoimmune diseases

April 15, 2015

Fatigue was reported by 98% of patients with autoimmune disorders polled, and fatigue that prevented completion of everyday tasks was reported by 68% of the patients, according to a press release from the American Autoimmune Disease Related Diseases Association.

The American Autoimmune Disease Related Diseases Association (AARDA) conducted an online survey of 7,838 patients with autoimmune disorders who were recruited through the AARDA’s Facebook page, by outreach to the Autoimmune Awareness and Education Forum Facebook group, and via email to the National Coalition of Autoimmune Patient Groups, a network of 37 disease-specific patient groups.

The survey was accessible online between Feb. 7 and March 2. The fewer than 0.5% of respondents with only non-autoimmune disorders, such as fibromyalgia or chronic fatigue syndrome, were excluded. Results from the survey were presented recently at an autoimmune summit in Washington, D.C.

Read more…

 
 
 

Mercy Of The Wind By Naomi Flanagan

Australian news

Saturday 18 April 2015

 

From Emerge Australia:

Naomi Flanagan
Naomi Flanagan
 

Mercy of the Wind by Naomi Flanagan

Melbourne-based singer/songwriter Naomi Flanagan has recently released her first solo EP, Mercy of the Wind.

Naomi has lived with ME/CFS (Chronic Fatigue Syndrome) for the last 20 years which leaves her mostly housebound and sometimes bedbound.

In her early 20’s she pursued her love of music, performing at venues around Melbourne and with family and friends, but for the last 13 years the severity of her illness has left her unable to leave the house to collaborate with other musicians or perform live.

She has however continued to write songs, and in 2013 she set herself the goal of recording an EP from home. Assisted by her brother John, a professional musician, and working via phone and email with sound engineer and friend Adam Fox (who also suffers with ME/CFS), Naomi wrote and recorded five songs. As well as singing, she plays the guitar and mandolin on the folk-inspired EP, with family members adding banjo, piano and violin. The recording sessions were limited to 20 minutes at most, once per week on her good weeks. She completed the work over eighteen months.

Read more…

 
 
 

"I Didn't Know What Fibromyalgia Was – I Had To Google It To Find Out"

International news

Friday 17 April 2015

 

From Irish newspaper the Derry Journal:

Sinead Cox
Sinead Cox
 

I didn’t know what Fibromyalgia was - I had to google it to find out

Published 12:26 Tuesday 14 April 2015

Five years ago Sinead Cox was doing a job she loved teaching science at St Joseph’s Boys School in Derry.

However the Derry woman was forced to quit her job when severe fatigue, dizzy spells and fainting episodes made it impossible for her to continue work.

What Sinead didn’t know was that she was suffering from Fibromyalgia, a condition she had never even heard of.

The 36-year-old has now used her experiences to pen her first book, Children of the Oak, fulfilling a lifetime’s ambition to write her own novel.

Read more…

 
 
 

Being Me With ME

Australian news

Thursday 16 April 2015

 

From ABC Open contributor "chicken_bits":

chicken_bits
chicken_bits
 

Being me with ME

By chicken_bits
3 min read
From Open Drum

LIVING WITH DISABILITY: What makes the world right for you?

10 years ago, at 18 years old, I caught a cold. Two weeks later, I still couldn't get out of bed. I wanted to get out of bed, but my body felt like it was made of lead. I vividly remember my boyfriend at the time (now husband) having to wash me in the shower because I was too ill to stand up and wash myself. 

Fast forward through seeing multiple medical professionals, both traditional and alternative; being told I was depressed when I knew I wasn't - I had suffered depression as a teenager and knew this wasn't the same; I was finally diagnosed as having Chronic Fatigue Syndrome, which I later learned is also known as Myalgic Encephalomyelitis.

Read more…

 
 
 

IOM's Chronic Fatigue Syndrome Report Released; Includes Westat Statistical Expertise

International news

Wednesday 15 April 2015

 

From statistics company Westat:

Statistics
 

IOM’s Chronic Fatigue Syndrome Report Released; Includes Westat Statistical Expertise

2015-04-13

The Institute of Medicine (IOM) had a special briefing in Washington, DC, on March 25, 2015, for the recent landmark report on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

Speakers at the briefing included Dr. Ellen Wright Clayton, Chair of the IOM Committee on the Diagnostic Criteria for ME/CFS; Carol Head, president of the Solve ME/CFS Initiative; and Morgan Fairchild, actress, activist, and former patient.

ME/CFS has been poorly defined and understood, limiting recognition of patients and the development of treatment strategies.

Westat’s René Gonin, Ph.D., a senior biostatistician and medical researcher, served as statistical consultant to the IOM. Dr. Gonin reviewed the relevant literature, evaluated the methodology of each study, and provided a synopsis of reproducible study data, which could be used for a new definition of the syndrome.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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