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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Know someone chronically ill this holiday season? You can help

International news

Saturday 20 December 2014

 

From EmpowHer:

Women drinking
(Photo: MonkeyBusiness
Images/PhotoSpin)

 

Know Someone Chronically Ill This Holiday Season? You Can Help

By Jody Smith

Living with a chronic illness is hard all year round. During the holiday season it causes unique extra challenges.

I knew nothing about this before I became chronically ill myself. I have had many years now living with ME/CFS, some holiday seasons moderately affected and some ruined.

ME stands for myalgic encephalomyelitis. CFS stands for the ludicrous name of chronic fatigue syndrome. But that's another story.

Chances are someone you love is saddled with a chronic illness. There are lots of these illnesses. Arthritis, Lyme disease, multiple sclerosis, many cancers, fibromyalgia, diabetes, IBS, celiac disease, heart conditions, lupus, neurological disorders, are just a few.

It would be great to have someone who offers to drive, to navigate through the stores, to keep track of the list, and to stand in line. It can be a lifesaver to have a champion who will make sure their sick loved one has a chance to rest, in the car, in a quiet restaurant, or on a bench.

Read more…

 
 
 

Research finds nerve damage in patients with Fibromyalgia

International news

Friday 19 December 2014

 

From PRNewswire:

Hands
 

Research finds nerve damage in patients with fibromyalgia

NEW YORK, Dec. 16, 2014 /PRNewswire/ -- Therapath, LLC (www.therapath.com), a leader in neuropathology laboratory services, reports that new findings have revealed that patients diagnosed with fibromyalgia may also have a diagnosable small fiber neuropathy.

Recently, several studies have examined fibromyalgia patients for small fiber neuropathy using a skin biopsy test to determine Epidermal Nerve Fiber Density (ENFD). The studies reported a decrease in ENFD in a subset of patients with fibromyalgia (Oaklander et al., Pain 2013; Caro & Winter, Arthritis Rheumatology 2014; Giannoccaro et al., Muscle Nerve 2014). These studies conclude that ENFD testing should be considered in the diagnostic work-up of fibromyalgia to search for small fiber neuropathy. 
www.therapath.com/rheumatology

Patients diagnosed with small fiber neuropathy exhibit similar symptoms to those with fibromyalgia, including:

  • Chronic pain
  • Increased sensitivity to pressure and touch
  • Numbness and tingling

Read more…

 
 
 

Specific cytokine lower in Fibromyalgia patients

International news

Thursday 18 December 2014

 

From Healio Rheumatology:

Test tubes
 

Specific cytokine lower in fibromyalgia patients

Garcia JJ. An Acad Bras Cienc 2014. doi:10.1590/0001-3765201420130081.
December 16, 2014

Plasma from female patients with fibromyalgia had lower levels of fractalkine cytokines than healthy control patients, according to results of a recently published study.

Plasma analysis of levels of fractalkine, an inflammatory chemokine with chemotactic activity for monocytes that mediates pain, was conducted by taking blood samples from 17 female fibromyalgia (FM) patients (32 years to 60 years of age) and 10 female age-matched control participants. All FM patients had been diagnosed by a rheumatologist according to American College of Rheumatology criteria. The control participants were sedentary and had no symptoms of pain or infection. Exclusion criteria included neoplastic disorder based on medical history, infection, cardiopulmonary, vascular, or other internal medical conditions and oral or local corticosteroid or anticytokine use that may affect cytokine levels.

After analysis with an enzyme-like immunoassay, the plasma from FM patients was lower (mean 5.021 ng/mL) than in the healthy group (mean 8.511 ng/mL).

Read more…

 
 
 

'One day I was fine, the next I was hit by an overwhelming sense of fatigue'

International news

Wednesday 17 December 2014

 

From UK newspaper the Lancashire Evening Post:

Lesley Pickering
Lesley Pickering and a friend
have set up the North West
Chronic Fatigue Clinic on
Garstang Road, Preston, after
she began suffering from
Chronic Fatigue Syndrome
at the age of 24.
 

‘One day I was fine, the next I was hit by an overwhelming sense of fatigue’

By Aasma Day
16 December 2014 06:00

When people are suffering from a condition, they often feel other people don’t fully understand what they are going through.

Aasma Day talks to Lesley Pickering, who battled Severe Chronic Fatigue Syndrome for more than six years before being diagnosed, about why she has set up a clinic in Preston to treat sufferers.

Lying in bed in a darkened, silent room, Lesley Pickering felt overwhelmed with despair and frustration.

Consumed by extreme tiredness, she was unable to tolerate even light or sound and literally spent her days lying in bed in a dark and silent room.

Lesley, now 42, was 24 when she first started suffering from her symptoms only six months after completing a degree at the Royal College of Music in London.

She recalls: “It affected me very suddenly. One day, I was perfectly fine, and the next I was hit by this overwhelming sense of fatigue.”

Read more…

 
 
 

Lyme disease, Fibromyalgia link evaporates

International news

Tuesday 16 December 2014

 

From MedPage Today:

Warning: Tick Habitat
 

Lyme Disease, Fibromylagia Link Evaporates

By Wayne Kuznar, Contributing Writer, MedPage Today
Published: Dec 14, 2014

Lyme disease is not a trigger for fibromyalgia, according to a long-term assessment of patients with culture-confirmed Lyme disease.

The prevalence of fibromyalgia among patients with culture-confirmed Lyme disease who were followed at the Lyme Disease Diagnostic Center in Westchester County, N.Y., for up to 20 years was no greater than that in the general population, say investigators at New York Medical College in Valhalla, N.Y., led by Gary P. Wormser, MD.

Earlier studies that suggested that Lyme disease may trigger fibromyalgia were performed before the use of two-tier serologic testing for Lyme disease and therefore may have included patients who did not actually have Lyme disease, the investigators wrote online in Arthritis & Rheumatology. Further, these studies did not follow Lyme disease patients over the long term.

In the current study, 100 patients with a diagnosis of Lyme disease confirmed by recovery of Borrelia burgdorferi from culture -- the gold standard for microbiologic confirmation -- were systematically evaluated for fibromyalgia using both prior and current diagnostic criteria 11 to 20 years after the onset of Lyme disease. At diagnosis, patients were treated with antibiotic regimens consistent with current guidelines.

Read more…

 
 
 

Shake that *^#&! ing stigma – The Shake the CFS Stigma challenge begins

International news

Monday 15 December 2014

 

From Cort Johnson's US website Health Rising:

 

Stop stigma
 

Shake That *^#&! ing Stigma – The Shake the CFS Stigma Challenge Begins

By Cort Johnson on December 2, 2014

Wouldn’t you just love to “Shake the Stigma”? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it’s a cover up for malingerers. That it’s not “real”.

Wouldn’t you just love for the [US] National Institutes of Health to “Shake the CFS Stigma” and starting treating ME/CFS like a real disorder that deserves real funding?

The Simmaron Research Foundation thinks it’s time to “Shake the CFS Stigma” off – literally – and to challenge your friends and government officials to do the same. To leave that stigma lying in the dust from, (and if you feel like it, maybe stomp on it a couple of times..(my suggestion :)))

ME/CFS is real, it’s serious, and the ME/CFS community – all 17 million of them around the world – are not going away; it’s time to shake that CFS stigma for good!

The Simmaron Foundation has begun the #ShakeTheCFSStigma challenge.

Here’s how it works:

Read more…

 
 
 

Seven Fibromyalgia seasonal stress strategies

International news

Sunday 14 December 2014

 

From ProHealth:

Christmas candles
 

7 Fibromyalgia Seasonal Stress Strategies

By Sue Ingebretson
www.ProHealth.com
December 9, 2014

Odds are, if you step into an elevator, walk into a department store, or turn on the radio right now, it wouldn’t be long before you hear Andy Williams crooning “It’s the Most Wonderful Time of the Year!” It’s December. It is a wonderful time of the year for most – including those of us with fibromyalgia.

But, it’s also the most stressful time of the year.

We don’t hear a lot of holiday songs about increased fibromyalgia pain and symptoms.

What does holiday stress mean to you? Do you find yourself experiencing any of the following symptoms?

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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