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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 31 May 2014
1 pm - 3 pm
Speaker: Julie Peacock
 
Saturday 16 August 2014
12:30 pm - 2:30 pm
 
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
 
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
Why become a member?
 
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners

(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/Chronic Fatigue Syndrome Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 9904 8433
Fax: (02) 9904 8435
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

92 Club: Bristol football fans to visit all 92 grounds for Invest In ME charity

International news

Thursday 17 April 2014

 

From UK newspaper The Bristol Post:

 

92 Football Grounds in 92 hrs
 

92 Club: Bristol football fans to visit all 92 grounds for Invest In ME charity

By The Bristol Post
Posted: April 14, 2014

FOUR football fans from Bristol are preparing to embark on a tour of all 92 football league grounds in 92 hours in aid of Invest In ME. Team leader Mike Harley, 31, will be accompanied on the challenge by his wife Cat, 31, and two friends, Raza Rivzi and Mike Ward, both 32.

The group was inspired to raise money for the ME research charity by a childhood friend, who has had the condition for several years. Money raised will go towards UK trials of the drug Rituximab.

A 2,600-mile route is due to be completed in 92 hours of driving, spread out over the course of six days. The clock will be stopped every night so that each club can be visited in daylight, raising maximum publicity for the charity.

Mr Harley, a recruitment consultant from Bedminster, said: "The idea is to reach the grounds at a time where we can give out information and maximise on raising the profile of ME, the need for research into the illness and the Invest In ME charity.

"What's more important is to raise awareness of new treatments, rather than to break any records".

He added: "It's going to be a gruelling challenge but, as football fans, it's one we're all looking forward to."

Read more…

 
 
 

Brain scans to detect Chronic Fatigue Syndrome

International news

Wednesday 16 April 2014

 

From AsianScientist:

Man sitting
 

Brain Scans To Detect Chronic Fatigue Syndrome

Health & Medicine
April 8, 2014

A study shows that PET scans could potentially be used to diagnose chronic fatigue syndrome.

AsianScientist (Apr. 8, 2014) – Researchers have found that inflammation of the nervous system is higher in patients with chronic fatigue syndrome (CFS) than in healthy people.

The study, published in The Journal of Nuclear Medicine, suggests that using positron emission tomography (PET) scans to detect brain inflammation could be an objective diagnostic test for CFS.

CFS, which is also known as myalgic encephalomyelitis, is a debilitating condition characterized by chronic, profound, and disabling fatigue. Unfortunately, the causes of CFS are not well understood. Neuroinflammation – the inflammation of nerve cells – has been hypothesized to be a cause of the condition, but no clear evidence has been put forth to support this idea.

Read more…

 
 
 

University of Derby painkiller questionnaire

International news

Tuesday 15 April 2014

 

From researcher Omimah Said at the UK's University of Derby:

Questionnaire
 

Painkiller Questionnaire

Please take a few minutes to read the following information about this research before continuing to the questionnaire.

You are invited to take part in this research study, which is investigating painkiller use in the USA, Canada, Australia and New Zealand. The purpose of this research is to examine the prevalence of painkiller use in these countries and clarify how factors such as pain, beliefs about pain and beliefs about painkillers might influence painkiller use. Additionally, this research has recently been conducted in the UK and is now being extended to these countries in order to increase understanding of painkiller use.

Read more…

 
 
 

Marked improvement of pain from long-term Fibromyalgia

International news

Monday 14 April 2014

 

From PubMed:

PubMed
 

Clin Exp Obstet Gynecol. 2014;41(1):90-2.

Marked improvement of pain from long-term fibromyalgia with dextroamphetamine sulfate in a woman who failed to improve with conventional pharmacologic treatment.

Check JH, Cohen R.

Abstract

PURPOSE: To determine if treatment with the sympathomimetic amine dextroamphetamine sulfate, which has been so effective in treating a variety of pain syndromes, including severe pelvic pain and interstitial cystitis in women with the sympathetic neural hyperalgesia edema syndrome would also mitigate pain from fibromyalgia which was resistant to multiple therapies.

Read more…

 
 
 

Toxic Reform petition

Australian news

Sunday 13 April 2014

 

From Australian consumer advocate organisation Choice (via email):

 

Food poison logo
 

Toxic Reform

Did you know there are currently dozens of pesticides approved for use in agriculture that have never been properly assessed in Australia?

The previous government introduced a re-approval and re-registration scheme that would have required systematic review of these pesticides to ensure they are safe. However, a new proposal by the federal government would see the re-registration scheme – and assessment of these pesticides – abandoned before it even begins.

We need your help to make sure this doesn't happen.

A number of pesticides still used in Australia have been removed in the European Union and US. The re-registration scheme would ensure the risks are properly evaluated and Australian consumers are afforded the same protections.

Tell the government Australia needs the pesticides re-approval and re-registration scheme!

Read more…

 
 
 

Society seminar report

South Australian news

Saturday 12 April 2014

 

ME/CFS Australia (SA) IncSEMINAR REPORT: MRI Brain Scan Research, Dr Leighton Barnden

Report by committee secretary Peter Mitchell and president James Hackett

We had a very successful beginning to our 2014 series of seminars on Saturday 21 March. Dr Leighton Barnden gave a comprehensive run through the research which the team at The Queen Elizabeth Hospital have been doing on MRI scans of the brain of ME/CFS patients (compared with healthy controls). They have found significant areas of difference in the brains of those with ME/CFS, compared with the healthy controls, and were able to directly correlate ME/CFS symptoms with those differences. These results are extremely significant to ME/CFS sufferers – giving evidence of some of the mechanisms behind some of the most common symptoms. Dr Barnden reminds us that the “summary of our observations and an interpretation, [is] necessarily speculative at this stage, of their meaning.”

Unfortunately we will not have a video of this seminar. However we hope this summary helps to account for the bulk of the seminar's substance. We were delighted that nearly forty people attended to benefit from a fine presentation. This was reassuring because we were not sure how the different time of 3pm might affect members.

Read more…

 
 
 

Online learning for students with disabilities

International news

Friday 11 April 2014

 

From the US's Online Colleges Database (via email):

Online learning for students with disabilities
 

Online Colleges Database: Online Learning for Students with Disabilities

Online Colleges Database is a website and organization focused on providing post-secondary information for students and learners across the world.

Our organization recently published a new resource that supports the families and students with disabilities: “OnlineCollegesDatabase.org: Online Learning for Students with Disabilities.”

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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Last modified: April 17, 2014