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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 16 August 2014
12:30 pm - 2:30 pm
Speaker: Robyn Lingard
Details…
 
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
Why become a member?
 
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

'Forgotten' UK ME sufferers given new hope as charity hits cash target for clinical drug trials

International news

Thursday 21 August 2014

 

From UK newspaper Mancunian Matters:

Pills
 

'Forgotten' Manchester ME sufferers given new hope as charity hits cash target for clinical drug trials

By Georgina Sykes
17 Aug 2014 - 06:20AM

ME sufferers across Greater Manchester have been given a timely boost, after a charity raised £350,000 to trial a drug on usually used to treat some forms of cancer.

The charity Invest In ME have raised the cash towards a clinical trial of Rituximab, a drug also used by arthritis sufferers.

Greater Manchester charity Bury/Bolton ME/CFS Support Group fully supports the trial, hoping it will bring about more treatment options for ME sufferers.

Read more…

 
 
 

Emily is the secret to mum's success

International news

Wednesday 20 August 2014

 

From Scottish newspaper The (Erskine) Gazette:

Hazel Toal with her daughter Emily
Hazel Toal with her
daughter Emily
 

Emily is the secret to mum’s success

Published: 7 Aug 2014 11:00

WHEN policewoman Hazel Toal was struck down with chronic fatigue syndrome, it was a battle just to get out of bed.

Having spent the last three years of her life worrying about her daughter Emily — who was about to undergo heart surgery for the second time — the mum-of-one felt exhausted by the pressures of life.

ME (myalgic encephalopathy) made work difficult for Hazel and forced her to give up some of the many sports she loved. However, one year on, the 43-year-old has bounced back — by setting herself a series of gruelling fitness challenges.

Read more…

 
 
 

Celiac symptoms in Fibromyalgia patients

International news

Tuesday 19 August 2014

 

From ProHealth:

Gut
 

Celiac Symptoms in Fibromyalgia Patients

www.ProHealth.com
August 15, 2014

Celiac symptoms in patients with fibromyalgia: a cross-sectional study.

By Juan Miguel García-Leiva, et al.

Abstract:

Fibromyalgia is a chronic pain syndrome associated with numerous somatic symptoms including gastrointestinal manifestations of nonspecific nature. Celiac disease and nongluten sensitivity frequently evolve in adults with gastrointestinal and extraintestinal symptoms similar to those found among patients with fibromyalgia.

The objective of the present study was to evaluate the presence of celiac-type symptoms among patients with fibromyalgia in comparison with healthy subjects and with those experienced by adult celiac patients and subjects with gluten sensitivity.

A list of typical celiac-type symptoms was developed, comparing the frequency of presentation of these symptoms between patients with fibromyalgia (N = 178) and healthy subjects (N = 131), in addition to those of celiac patients and gluten-sensitive patients reported in the literature.

Read more…

 
 
 

New UK Fibromyalgia group offers support to sufferers

International news

Monday 18 August 2014

 

From UK news outlet the Buckingham Advertiser:

Julie Moore
Julie Moore has set up a
support group for those
with Fibromyalgia
 

New fibromyalgia group offers support to sufferers

Published on the 15 August 2014, 12:31

A post office worker with an ‘invisible illness’ has set up a support group to help others with the same condition.

Julie Moore, 40, pictured, has felt pain and stiffness in her muscles every day since being diagnosed with fibromyalgia (FM) after a fall in 2011.

She slipped, dislocated her elbow and broke her wrist but when the pain remained months later, Julie was told she had the disabling condition.

The unpredictable pains forced her to quit her job as a hairdresser after 14 years and she now works part-time at Brackley Post Office.

Julie, who lives in Hawkins Close, Brackley, said: “It affects the whole body from nerves to muscles.

“I have very bad pain and stiffness and you get irritable bowel problems too. They call it the invisible illness.”

Read more…

 
 
 

Woman builds herself a gorgeous, tiny, healthy, "chemical free" house

International news

Sunday 17 August 2014

 

From TreeHugger:

My Chemical Free House
© My Chemical Free House
 

Woman builds herself a gorgeous, tiny, healthy, "chemical free" house

Lloyd Alter
(@lloydalter)
Design / Tiny Houses

August 12, 2014

Flame retardants, formaldehyde and volatile organic compounds shouldn't be in any of our houses, but for those with Multiple Chemical Sensitivities (MCS), they are a disaster. The tiny house concept has been a godsend for not a few people suffering from MCS, Chronic Fatigue Syndrome (CFS/ME), Fibromyalgia and other auto-immune illnesses; it gives them a chance to live in a home that is built without any of the paints, glues, plastics and chemicals that they react to, usually in a place far away from pollution and other irritants.

It's not easy to do. Corinne suffers from severe reactions to chemicals, and built her own tiny house out of carefully selected and tested materials. It is a lovely modern design, but it is also really healthy. She not only researched all the materials, tested them, and built a house out of them, but she has created a terrific blog documenting it, with extensive resources for others suffering from the same sensitivities. None of this was easy.

"Much research has gone into this site as I found it difficult to find out what really is in the materials that were going into my new house. Information from other blogs has been fact-checked. Books, Material Safety Date Sheets, consultants for the chemically sensitive, and environmental organizations have greatly informed my posts."

Read more…

 
 
 

Society seminar reminder

South Australian news

Saturday 16 August 2014

 

ME/CFS Australia (SA) IncA reminder that the society's next seminar will be held today (Saturday, 16 August 2014) at 12:30pm.

Here are the details:

Speaker

The speaker will be Robyn Lingard, accredited mental health social worker individual and couple therapist.

Robin's talk will be:

"Can relationships survive when one partner has ME/CFS? If so, how can the relationship strengthen?"

Based on her recent postgraduate research, Robyn has identified a number of keys to building friendship, intimacy, problem-solving skills, and resiliency in couple relationships. After all, great people deserve great relationships. This presentation may also be of interest to extended family and friendship networks who support sufferers of CFS and their partners"

Robyn has recently had her research published in The Family Journal.

Read more…

 
 
 

Whole-body vibration may reduce pain associated with Fibromyalgia

International news

Friday 15 August 2014

 

From Healio Rheumatology:

Exercise vibration belt
 

Whole-body vibration may reduce pain associated with fibromyalgia

August 6, 2014

Whole-body vibration exercise effectively reduced the severity of pain in patients with fibromyalgia, according to study findings.

“Our findings are promising, but it is not entirely clear whether these improvements were the result of added vibration or just the effects of being more active,” study author Anthony S. Kaleth, PhD, associate professor at the School of Physical Education and Tourism Management, Indiana University-Purdue University Indianapolis, said in a press release from the American College of Sports Medicine annual meeting.

Kaleth and colleagues enrolled 24 women with fibromyalgia and randomly assigned them to either 8 weeks of twice-weekly, lower-body, progressive-resistance exercise with whole-body vibration or an attention control group. Whole-body vibration involved patients standing, sitting or laying on a vibrating platform to induce alternating muscle contraction and relaxation.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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Last modified: August 21, 2014