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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Chronic fatigue, Fibromyalgia sufferers gather for hope

International news

Thursday 18 September 2014

 

From US newspaper the Deseret News:

 

Fibromyalgia tender points
Hundreds gathered in Salt
Lake City Saturday for a
conference dealing with
chronic fatigue and
fibromyalgia. Attendees
heard from doctors, other
patients and vendors who
believe they can help
with the illness.
Jeffrey D. Allred,
Deseret News

 

Chronic fatigue, fibromyalgia sufferers gather for hope

By Wendy Leonard, Deseret News
Follow @wendyleonards
Published: Saturday, Sept. 13 2014 6:59 p.m. MDT
Updated: Saturday, Sept. 13 2014 6:59 p.m. MDT

SALT LAKE CITY — Jessica Turner is battling what she calls a "soul-threatening" disease.

Chronic fatigue won't kill her, but the associated pain and general malaise sometimes leaves her feeling like she might be better off dead.

"The illness is so isolating," she said. "My body is broken and nobody knows what to do about it."

Turner, of Cottonwood Heights, is one of hundreds, if not thousands of Utahns who brave each day, juggling traditional and alternative medicine techniques just to feel human. Many of those people, including patients, family members, caregivers and others, gathered in Salt Lake City on Saturday to learn more about their illness and what they can do about it.

Read more…

 
 
 

UK mum sets up support group for Fibromyalgia sufferers

International news

Wednesday 17 September 2014

 

From UK newspaper the Lancashire Telegraph:

Councillor Andy Tatchell officially opens the new group started by Cath Farrer
Councillor Andy Tatchell
officially opens the new
group started by Cath Farrer.
 

East Lancs mum sets up support group for fibromyalgia sufferers

By , Health Reporter
First published  in News

A MUM-of-three has set up a new support group for people who suffer from a long-term condition which causes excruciating pain all over the body.

Cath Farrer, from Clayton-le-Moors, said there was ‘next to no help’ available for fibromyalgia sufferers when she was diagnosed 20 years ago, so has set up the group in Burnley to ensure newly-diagnosed patients get more support than she received.

About 12 people turned out to a launch party at the East Lancashire Voluntary Services Resource Centre in Burnley yesterday, including the town’s mayor Andy Tatchell.

Read more…

 
 
 

On a mission for mum

International news

Tuesday 16 September 2014

 

From UK newspaper The Blackpool Gazette:

(l to r) Brandon Wynne, Aimee Bowker, and Jane Hogan
(From left to right)
Brandon Wynne, his sister
Jane Hogan, and their
mother Jane Hogan.
(PIC BY ROB LOCK 5-9-2014)
 

On a mission for mum

Published on the 09 September 2014 09:40

Just two years ago, Aimee Bowker enjoyed celebrating her birthday on a night out in Blackpool with family and friends, including her mum.

But now, just coming up her 23rd birthday, her mum – Jane Hogan, known to her friends as ‘Jay’ – is sometimes unable to even get out the house.

Jane, 45, from Fleetwood, was diagnosed with fibromyalgia a couple of years ago.

Fibromyalgia is a chronic condition, which causes pain all over the body, including muscle and joint pain.

It can leave trigger points painful to touch, cause swelling, and cause muscles to twitch, burn or have a deep stabbing pain. Sufferers also experience extreme fatigue.

Now Aimee, her family and friends have joined together in a bid to raise money for vital equipment for Jane.

Read more…

 
 
 

Chronic Fatigue Syndrome grant explores why men get ME/CFS

International news

Monday 15 September 2014

 

From Health Rising:

Mary Fletcher
Mary Fletcher
 

Big Chronic Fatigue Syndrome Grant Explores Why Men Get ME/CFS

By Cort Johnson on September 13, 2014

Dr. Mary Fletcher and the ME/CFS research team at the Institute for Neuroimmune Medicine at Nova Southeastern University have received a very large grant ($1.9 million) from the National Institute of Neurological Disorders and Stroke at the NIH. This grant will look for biomarkers in, get this, men with Chronic Fatigue Syndrome. The grant builds on the work provided by $10 million (that’s right, ten million dollars) worth of work on Gulf War Syndrome – a syndrome populated mostly by men. It may be first study devoted to specifically understanding this disease in men.

It’s about time! The NSU research group has been focused mainly on women, and this big grant will balance that out. ME/CFS is often spoken of as a “woman’s disorder”, but men make up twenty to forty percent of the million people in the U.S. believed to have Chronic Fatigue Syndrome. (The press release, interestingly, suggests that this figure is too low. One wonders who they feel the epidemiological studies missed.)

Read more…

 
 
 

'Don'ts' aren't helping: here are five things you can say to someone with a disability

Australian news

Sunday 14 September 2014

 

From The Guardian Australia:

John McKenna and Prime Minister Tony Abbott
Prime Minister Tony Abbott
with empowerment advocate
John McKenna in 2013.
(Photograph: AAP)
 

'Don'ts' aren't helping: here's five things you can say to someone with a disability

Robert Hoge
theguardian.com
Saturday 13 September 2014 11.00 AEST

Disability can sometimes be a tough topic to talk about. It’s especially hard when people without a disability struggle to fully grasp what’s it’s like to live with one.

But when it comes time for talking, many of us with a disability shoot ourselves in the prosthetic foot, by strictly defining the kinds of conversations we can have. Occasionally this happens through lists of what people can’t or shouldn’t say to us, rather than what they can or should.

They pop up often enough: “10 things not to say to someone with a disability”, or “10 things you shouldn’t say to someone in a wheelchair”. They include things like castigating strangers for offering their help, or for asking about a person’s disability.

At best, these lists represent the personal views of their authors, which is fine. Too often though, they suggest they’re universal disabled truths. At worst, turning a conversation about disability into a list of “don’ts” tells people that it’s best to avoid engaging about issues of disability at all, for fear of offending someone.

Read more…

 
 
 

CWA continues Lyme Disease campaign

Australian news

Saturday 13 September 2014

 

From Australia's ABC News:

Lime Disease tick
 

CWA continues Lyme Disease campaign despite government committee dissolution

Published 12/09/2014

The Country Women's Association (CWA) is continuing its campaign to have Lyme Disease officially recognised, despite the dissolution of a federal government committee tasked to investigate its legitimacy.

Last month it was revealed the committee looking into whether the disease existed, had not been able to come to any firm conclusions, and was dissolved.

Lyme Disease is recognised in much of the Northern Hemisphere and is caused by a tick bite, leading to a fever, headache and fatigue.

The CWA New South Wales Vice President, Lois Stolley, says the group believes it exists.

"From the reports that we've had from members around the state from various areas, the Lyme Disease like syndrome is appearing in quite different areas," she said.

Read more…

 
 
 

Feel our pain

International news

Friday 12 September 2014

 

From The Irish News:

Woman couch
 

Feel our pain

By Abi Jackson
Published 10/09/2014

It's only a couple of decades since fibromyalgia was recognised as an illness and there is still a long way to go in terms of awareness.

Abi Jackson speaks to those trying to lead the way.

BEING in constant pain and so fatigued that even the simplest everyday tasks become mammoth challenges is bad enough.

For many people with fibromyalgia, however, these things are only part of the battle – often one of the toughest things to deal with is the lack of understanding. "With chronic fatigue-type conditions, sometimes other people will say, 'Oh, well I feel tired sometimes too – you just have to get on with it'," says Kim Lawson, from Sheffield Hallam University's Department of Biosciences, Biomedical Research Centre. " They don't appreciate the severity of it."

And fibromyalgia (FM) can be extremely severe, to the point that even normal or soft touch can elicit significant pain. Simple movement can feel unbearable, while sitting down can be excruciating too. Fatigue is usually what causes most problems, though, and many people end up having to give up jobs and hobbies and change their lifestyles.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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