| National Welfare Rights Network |
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Australian news
Saturday 4 February 2012
From Australia's National Welfare Rights Network:
 National Welfare Rights Network
The National Welfare Rights Network (NWRN) provides free and independent information, advice and representation about Social Security law and its administration.
NWRN member organisations operate in all states and territories of Australia and consist of specialist community legal centres and services and individual advocates.
They are independent of Centrelink and all government departments.
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| Pulse abnormalities at rest and during tilt test could be highly indicative screen for ME/CFS |
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International news
Saturday 4 February 2012
From ProHealth:
 Pulse abnormalities at rest and during tilt test could be highly indicative screen for ME/CFS
ProHealth.com
January 30, 2012
Article:
Chronic fatigue syndrome and impaired peripheral pulse characteristics on orthostasis - a new potential diagnostic biomarker
– Source: Physiological Measurement, Jan 25, 2012
By John Allen, et al.
[Note: To read the full text of this article free, click here. The best-known sign of orthostatic intolerance involves symptoms (e.g., weakness, faintness) in an upright position that can be relieved by lying prone.]
Abstract:
Autonomic nervous system dysfunction is frequently reported in chronic fatigue syndrome (CFS) with orthostatic intolerance, a common symptom that can be objectively assessed.
The frequent finding of autonomic dysfunction and symptoms on standing has the potential to provide a diagnostic biomarker in chronic fatigue.
In this study we explored the clinical value of non-invasive optical multi-site photoplethysmography (PPG) technology to assess cardiovascular responses to standing. [PPG is a quick, low-cost measurement of changes in pulsed skin blood volume using a small light probe that is placed on the surface of the skin.]
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| Society seminar reminder |
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South Australian news
Friday 3 February 2012
 A reminder that the Society's first seminar for 2012 will be held next tomorrow (Saturday 4 February).
Here are the details:
| ME/CFS Australia (SA) Inc |
| Seminar |
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Saturday
4 February,
1pm |
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| Student hub for people with ME |
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International news
Thursday 2 February 2012
From UK publication the Carrick Gazette:
 Student hub for people with ME
Published on Monday 30 January 2012 17:19
At this time of year, many young people will be considering university options and many parents and guardians will be worrying about them leaving home for the first time.
Leaving home to go to university can be an exciting and challenging time – and, if the truth be told, a little bit scary, especially if you have a serious medical condition. Action for ME, the leading UK charity for people with Myalgic Encephalomyelitis (ME) and their carers, has now set up a Student Hub section on its website www.actionforme.org.uk.
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| Breaking the Shell: Understanding centralization and myofascial trigger point's effects in Fibromyalgia |
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International news
Wednesday 1 February 2012
From Fibromyalgia & Chronic Pain LIFE:
Celeste Cooper |
Breaking the Shell: Understanding centralization and myofascial trigger point's effects in fibromyalgia
By Celeste Cooper
January 26, 2012
As an RN, patient, published author, advocate, and past medical/nursing educator, I have great respect for the educational process; therefore, I have crucial concerns for the omission of chronic myofascial pain from myofascial trigger points (MTPs) as a comorbid condition, and the deletion of the anatomical tender point assessment in the “Preliminary Proposed Diagnostic Criteria for Fibromyalgia.” Though there is some debate over the tender point versus trigger point and widespread allodynia (unexplained pain), the anatomical diagram requires the examiner to touch the patient.
There are other reasons for unease. A recent news article at News Medical (1-21-12) speaks to a published study in the Journal of Psychotherapy and Psychosomatics, which suggests that a more positive lifestyle will abate the symptoms related to fibromyalgia. Certainly, it is impossible to separate the brain from the body because it is affected by signals from the peripheral, sympathetic and autonomic nervous systems, and visa versa. But to believe we can think away our symptoms and comorbid conditions is another consideration all together.
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| "Governed by the pain": Narratives of Fibromyalgia |
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International news
Tuesday 31 January 2012
From ProHealth:
“Governed by the pain”: Narratives of fibromyalgia – Source: Disability and Rehabilitation, Jan 23 , 2012
ProHealth.com
by Lindsay McMahon, Craig Murray, et al.
January 24, 2012
Purpose: Fibromyalgia (FM) is a chronic syndrome characterized by pain and fatigue. The aim of this study was to explore how individuals with FM make sense of the illness experience and integrate it into their personal biographies.
Method: Ten women from a pain management service in the north west of England were interviewed for the study. A chronological summary of each life story was produced and narrative features such as plot, tone, imagery and metaphors were identified and compared.
Results: Findings are presented in the form of a meta-narrative incorporating all 10 narratives over five phases:
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| Cortical electrostimulation for Fibromyalgia |
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International news
Monday 30 January 2012
From About.com's Adrienne Dellwo:
 Cortical Electrostimulation for Fibromyalgia
By Adrienne Dellwo, About.com Guide
January 28, 2012
Research Brief
A study published this month in the journal Pain Medicine supports earlier findings that noninvasive cortical electrostimulation may be somewhat effective against fibromyalgia symptoms.
In noninvasive cortical electrostimulation, a practitioner attaches electrodes to the outside of the head and delivers an electric current to the cerebral cortex (outer layer of gray matter on the upper part of the brain.)
In this study, researchers say participants had modest improvements in pain, tender point count, fatigue and sleep without significant side effects. They're recommending it as a part of the fibromyalgia treatment regimen, not as a stand-alone treatment. (It's rare for any single treatment to adequately manage all fibromyalgia symptoms.)
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| Surveying Siberia on a 70-year-old motorcycle |
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International news
Sunday 29 January 2012
From the London Evening Standard:
Simon Limpus and
Dave Murray |
Surveying Siberia on a 70-year-old motorcycle
Fatema Pittalwala
26 Jan 2012
A London surveyor is celebrating his return to health after battling chronic fatigue by crossing Siberia on a motorbike in temperatures as low as -60C.
Simon Limpus, 31, from Acton, with his New Zealander team-mate Dave Murray, 32, will be taking part in a race in some of the world's harshest conditions - on a WW2 vintage Russian Ural motorbike and sidecar.
The 1,500km race will start on February 11 in Irbit, go along the river Ob and end on February 24 at Salkhard in the Artic Circle.
The duo will sleep in tents along the way, and live off dried food and melted snow. Temperatures at this time of the year are expected to range between -10C to -60C.
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