Society Logo
ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
   
Become a Member
PDF Application Form 2015 (PDF, 243KB)
Text Application Form 2015 (plain text)
Why become a member?
 
Facebook

 
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
1:30pm
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

A Disease Doctors Refuse To See

International news

Saturday 28 February 2015

 

From The New York Times:

 

Fatigue art
(Image: Bénédicte Muller)
 

A Disease Doctors Refuse to See

Chronic Fatigue Syndrome Needs Effective Treatments

By Julie Rehmeyer
February 25, 2015

SANTA FE, N.M. — TOO often, doctors don’t understand chronic fatigue syndrome. They don’t know how to diagnose it, and they frequently even believe that patients with the disease are just whining or suffering from psychological problems. This needs to change.

That was the message from the Institute of Medicine’s recent report on the illness, which proposed new criteria to diagnose it and recommended ditching the syndrome’s confusing and demeaning name. The proposed alternative: systemic exertion intolerance disease, or S.E.I.D.

As a patient for 16 years, I’ve dealt with plenty of doctors who were ignorant about the disease. So my questions were: Will this work? Is a report from one of the most prestigious bodies in American medicine, an arm of the National Academy of Sciences, enough to make doctors take the disease seriously? Will patients get diagnoses faster and be treated more effectively?

Read more…

 
 
 

The Pain Brain: Hippocampal Atrophy Found In Fibromyalgia

International news

Friday 27 February 2015

 

From Cort Johnson's Health Rising:

 

Cognitive impairment
Reduced volume in the
hippocampus is just the
latest of many brain
findings in fibronyalgia
 

The Pain Brain: Hippocampal Atrophy Found in Fibromyalgia

By Cort Johnson on February 16, 2015

Sometimes you’ve got to ask where is it going to stop with fibromyalgia (FM) and the brain? Reductions in the volume of “gray matter” (the neuronal cell bodies and glial cells as opposed to the long nerve fibers) have been found in the insular, anterior cingulate cortices and the amygdala in the brains of FM patients. Other issues have been found in the thalamus, the basal ganglia, the parahippocampal gyrus, the premotor cortex, motor cortex, the somatosensory cortices and the prefrontal cortex in the brain. Other abnormalities have been found in the connections between various parts of the brain.

2015 Jan 30;8:47-52. doi: 10.2147/JPR.S71959. eCollection 2015. Fibromyalgia patients have reduced hippocampal volume compared with healthy controls.McCrae CS1, O’Shea AM1, Boissoneault J2, Vatthauer KE1, Robinson ME3, Staud R4, Perlstein WM5, Craggs JG1.

This Florida group was looking to add another brain region to the list: the hippocampus, a part of the limbic system that plays an important role in short-term memory (remember that?), long-term memory (generally thought to be intact) and “spatial navigation”. The hippocampus isn’t directly involved in the production of pain but a breakdown in hippocampal functioning could lead to a “feed-forward” process that ends up disrupting the limbic system and the pain networks in the brain.

Read more…

 
 
 

US Author Uses Marbles To Enlighten Children About Physical Limitations

International news

Thursday 26 February 2015

 

From US news outlet Herald-Mail Media:

How Many Marbles Do YOU Have?
 

Author uses marbles to enlighten children about physical limitations

By Meg Partington
Posted: Sunday, February 22, 2015 7:00 am

Name: Melinda Malott

Age: 51

City in which you reside: Williamsport

Day job: Retired nursing administrator

Book title: “How Many Marbles Do YOU Have?”

Genre: Children’s fiction

Quick synopsis of book: A mom uses a jar and some marbles to show her son how she goes about making decisions about what she can and can’t do in terms of activities in a day. He can take part in the decisions. She is physically limited by chronic fatigue syndrome and fibromyalgia. Very complex concepts are simplified in a colorful children’s book. Though her body is limited, her love for her children has no limits.

Read more…

 
 
 

Prefontal Myelination In Chronic Fatigue Syndrome

International news

Wednesday 25 February 2015

 

From the medical journal NMR in Biomedicine (via Wiley Online Library):

 

How Many Marbles Do YOU Have?
 

Evidence in chronic fatigue syndrome for severity-dependent upregulation of prefrontal myelination that is independent of anxiety and depression

NMR in Biomedicine
Volume 28, Issue 3, Article first published online: 22 FEB 2015

View Full Article (HTML)
Enhanced Article (HTML)
Get PDF (943K)

References
Cited By

Abstract

Keywords:

  • CFS;
  • MRI;
  • severity;
  • depression;
  • midbrain;
  • myelin upregulation;
  • prefrontal white matter

White matter (WM) involvement in chronic fatigue syndrome (CFS) was assessed using voxel-based regressions of brain MRI against CFS severity scores and CFS duration in 25 subjects with CFS and 25 normal controls (NCs). As well as voxel-based morphometry, a novel voxel-based quantitative analysis of T1- and T2-weighted spin-echo (T1w and T2w) MRI signal level was performed.

Severity scores included the Bell CFS disability scale and scores based on the 10 most common CFS symptoms. Hospital Anxiety and Depression Scale (HADS) depression and anxiety scores were included as nuisance covariates.

By relaxing the threshold for cluster formation, we showed that the T1w signal is elevated with increasing CFS severity in the ventrolateral thalamus, internal capsule and prefrontal WM.

Earlier reports of WM volume losses and neuroinflammation in the midbrain, together with the upregulated prefrontal myelination suggested here, are consistent with the midbrain changes being associated with impaired nerve conduction which stimulates a plastic response on the cortical side of the thalamic relay in the same circuits.

Read more…

 
 
 

UK Physios And Philosophers Receive £1m Research Grant

International news

Tuesday 24 February 2015

 

From the UK's Chartered Society of Physiotherapy:

 

Matthew Low and Roger Kerry
Physiotherapists Matthew
Low and Roger Kerry will
help run a four-year study
of complex conditions.
 

Physios and philosophers receive £1 million research grant

Two physiotherapists are to play their part in a €1.3 (about £1 million) study that will explore what leads to improvements in people’s health and wellbeing.

20 February 2015 - 3:16pm

They are members of an international research team, CauseHealth, which was awarded the £1 million grant by the Research Council of Norway.

It will fund a four-year study that could pave the way for a radically new way of understanding health and wellbeing.

The physios in the 27-strong team, which includes health scientists and philosophers, are Roger Kerry and Matthew Low. They are an associate professor of physiotherapy education at the University of Nottingham and a spinal extended-scope practitioner at the Royal Bournemouth and Christchurch NHS trust.

Professor Kerry will be lead co-investigator on the project, which begins work in the spring. His publications formed the basis of the team’s grant application, and his PhD was supported by a CSP educational award.

He told Frontline: ‘This project is the largest of its kind in both healthcare and philosophy and demonstrates a groundbreaking collaboration between the sciences and humanities.’

Read more…

 
 
 

Fighting Back Against Fibromyalgia: US Woman Turns To The Arts To Cope With Her Chronic Illness

International news

Monday 23 February 2015

 

From US newspaper the Duluth News Tribune:

Kelly Kvenlog Wichlacz
Kelly Kvenlog Wichlacz
displays her little book
about her struggle with
fibromyalgia titled
“My Life as a AA Battery.”
She wrote and took all
the photos for the book.
(Photo: Bob King /
rking@duluthnews.com)

 

Fighting back against fibromyalgia: Duluth woman turns to the arts to cope with her chronic illness

By John Lundy on Feb 20, 2015 at 10:55 p.m.

Kelly Kvenlog Wichlacz has discovered her artistic side, hand-sewing tote bags, crafting jewelry, writing an essay, setting it to her photography on YouTube and now hoping to publish a book.

“She’s a wonderful writer, very artistic, very poetic and pretty tenacious,” said Jan Murphy, a chaplain for Essentia Health who has known Wichlacz about four years.

It’s ironic, because all of this previously hidden talent for arts and crafts emerged only with the chronic illness that the Lakeside neighborhood resident said has stolen parts of her previous life.

Wichlacz, 50, was diagnosed with fibromyalgia in 2009. The disorder is “characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues,” according to the Mayo Clinic website. Researchers believe it is related to an abnormal increase of brain chemicals that signal pain. Causes aren’t known, but genetic factors, infections and physical or emotional trauma all may play a role.

Read more…

 
 
 

IOM Report – Dr Lucinda Bateman's response

International news

Sunday 22 February 2015

 

From The Organization for Fatigue & Fibromyalgia Education & Research:

Dr Lucinda Bateman
Dr Lucinda Bateman, MD
 

Lucinda Bateman, MD - Response to article by Leonard Jason, MD

Statement from Lucinda Bateman MD about controversy surrounding the IOM report on ME/CFS, new diagnostic criteria and the name Systemic Exertion Intolerance Disease (SEID):

The IOM accepted the controversial contract issued by DHHS (funded by NIH, CDC, FDA, and AHRQ) and worked on the project for one year in 2014. One “Charge to the Committee” was to “develop evidence-based diagnostic criteria for use by clinicians” which involved reviewing the higher quality, peer reviewed, published scientific papers in order to determine which illness criteria are best supported by the evidence. An additional charge was to “recommend whether new terminology for ME/CFS should be adopted.”

The committee focused intensely on the complex project, and avoided the temptation to go beyond or outside the statement of task. The contract is now complete and the report has been delivered to the sponsor. The complete report can be accessed online at http://iom.edu/Reports/2015/ME-CFS.aspx

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


Home | Welcome | In the News | ME/CFS Australia (Victoria) | The Society | Society Management | Become a member | Events | About ME/CFS | Resources | Publications | Medical | Links | Multimedia | Humour | My favourite… | Contact the Society | Volunteer positions
Copyright © ME/CFS Australia (SA) Inc
www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
Site maintained by Peter Scott
Last modified: February 28, 2015