Society Logo
ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
   
Become a Member
PDF Application Form 2015 (PDF, 243KB)
Text Application Form 2015 (plain text)
Why become a member?
 
Facebook

 
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, from Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Speaker: Skye Cibich, Accredited Exercise Physiologist from Adelaide Exercise Physiology
Saturday 8 August 2015
1:30pm
Speaker: Stelios Soulis, dietitian with Nutrition Health Experts at Mile End
Saturday 14 November 2015
Annual General Meeting
1:30pm
Speaker: Dr Peter Tunbridge
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

The Advertiser Family Forum

South Australian news

Monday 6 July 2015

 

From the Saturday (4 July 2015) edition of South Australian newspaper The Advertiser (in the Family Forum section):

 

The Advertiser
 

Family Forum

By The Advertiser Family Forum panel
Saturday 4 July, 2015

CHRONIC FATIGUE
Where can I get help for chronic fatigue syndrome? Is there a specialist somewhere in Adelaide who can assist me with the treatment for this complaint?

ANSWER: Consider joining the support group for chronic fatigue and myalgic encephalomyelitis. Contact ME/CFS Australia (SA) by phone 1300 128 339 (Wednesdays 10am to 3pm), or visit the website (sacfs.asn.au). Fees are based on what you can afford. The group suggests you see a GP who belongs to the Australasian College of Nutritional and Environmental Medicine. The college website lists specialists in each state including South Australia (www.acnem.org/find-a-practitioner/south-australia).

Dr Roger Spizzo, Dr Susan Nugent and Dr Kylie Dodsworth are at the Centre for Health and Wellbeing in Rose Park, near Norwood (phone 8332 4100). You don't need specialist referral. Ask for a long consultation.

Alternatively, the GP on our panel suggested you could discuss your symptoms with your own doctor and try to look for a cause. You may need to see a rheumatologist, such as Dr Peter Penglis or Dr Gary Champion.

People with ME/CFS suffer from profound exhaustion (mental and physical), which is not alleviated by rest, and can be exacerbated by only mild activity. Many also suffer muscle or joint pain, tender lymph nodes, unrefreshing sleep, low blood pressure, heart palpitations, poor short-term memory and trouble thinking clearly.

Adelaide Advertiser Family Forum (2015-07-04)

Read more…

 
 
 

A Pathway To Progress: The Final P2P Report On ME/CFS Highlights Needs

International news

Monday 6 July 2015

 

From Health Rising:

Broken staircase
Simply the fact that the report
got done indicated that the
NIH recognizes ME/CFS is a
major disorder with unmet
needs.
 

A Pathway To Progress: The Final P2P Report on Chronic Fatigue Syndrome Highlights Needs

By Cort Johnson
July 3, 2015

"Furthermore, limited knowledge, insufficient research funding, and a lack of diagnostic tools diminish a clinician’s ability to provide optimal care."
– P2P Report Press Release

Funded by the National Institutes of Health's (NIH) Pathways to Prevention (P2P) program to identify research gaps and methodological and scientific weaknesses in “topics that have incomplete or underdeveloped research”, the report did just that. In order to meet the criteria for having a report done a disorder must meet:

  • Have a primary or secondary disease prevention focus.
  • Have broad public health importance—key considerations are the severity of the problem and the feasibility of interventions.
  • Have limited published data or incomplete or underdeveloped research.
  • Have difficulty completing a systematic review and producing a report synthesizing published literature due to lack of randomized controlled trials.
  • Have two or more NIH ICs or Offices committed to addressing the topic by participating in workshop activities (i.e., sponsor, steering committee, post-workshop meetings).

The second criteria means that the NIH recognizes chronic fatigue syndrome is a real problem; i.e. that it has “broad public health importance”.

Read more…

 
 
 

Ambrosia Movie

Australian news

Sunday 5 July 2015

 

From Pain Australia (via email):

Ambrosia

 

Special Film Preview - Ambrosia

A compelling new film which reveals that

PAIN HAS A MEMORY

You are invited to attend a special preview of a new feature film ‘Ambrosia' by director Rhiannon Bannenberg presented during National Pain Week at Fox Studios [in New South Wales] on Thursday 23rd of July.

The film which deals with the psychological impact of chronic pain on a young woman’s life has been selected by hosts Painaustralia and Chronic Pain Australia to be a key event in the annual week-long festival.

National Pain Week 20 – 26 July aims to remove the stigma and silence around the invisible burden carried by those who suffer chronic pain and their carers. This screening of Ambrosia which adds to an Australia-wide line-up of activities will appeal to a very broad audience.

We love the way this film intimately describes the issues that people living with pain deal with every day. Feelings of isolation and guilt are often not associated with those suffering from ongoing pain but they are both very real and present issues.

Read more…

 
 
 

UK Snooker Players And Their Battles Off The Baize

International news

Saturday 4 July 2015

 

From UK news outlet The News Hub:

Jason Weston
Jason Weston
(Photo: Sarah Standing)
 

Snooker players and their battles off the baize

By in Other Sport
18 June 2015, 19:08 GMT

Jason Weston has just won a pro tour snooker card for two years after qualifying through QSchool last month. But, off the baize he is fighting and managing another tough battle.

The 44-year-old Portsmouth cueist suffers from CFS (Chronic Fatigue Syndrome) or ME, as it is sometimes called - although there is still some doubt over which term to use in how to define this type of illness.

CFS is an unusual illness which, according to NHS Choices, has 250,000 people in the UK sufferering from it.

It is an illness which causes a person to be constantly tired - and the feeling doesn't go away from just normal sleep or rest.

The illness is treatable, but can cause unusual patterns in sleep, i.e, some people will want to sleep in the afternoon, and will probably not sleep very well at night.

The actual causes are not exact, but it could be due to stress or anxiety, a hormone inbalance, or, a viral bacterial infection. More research is needed.

Read more…

 
 
 

Unintended Consequences Of Not Specifying Exclusionary Illnesses For Systemic Exertion Intolerance Disease

International news

Friday 3 July 2015

 

From ProHealth:

ProHealth
 

Unintended Consequences of not Specifying Exclusionary Illnesses for Systemic Exertion Intolerance Disease

By Leonard A. Jason et al.
www.ProHealth.com
June 26, 2015

Abstract

The Institute of Medicine recently proposed a new case definition for chronic fatigue syndrome (CFS), as well as a new name, Systemic Exertion Intolerance Disease (SEID). Contrary to the Fukuda et al.’s CFS case definition, there are few exclusionary illnesses specified for this new SEID case definition.

The current study explored this decision regarding exclusionary illnesses using the SEID criteria with four distinct data sets involving patients who had been identified as having CFS, as well as healthy controls, community controls, and other illness groups.

Read more…

 
 
 

Antibody Wipeout Found To Relieve Chronic Fatigue Syndrome

International news

Thursday 2 July 2015

 

From New Scientist:

Woman on couch
There's now hope of a
treatment for chronic
fatigue syndrome
(Image: Julien Magre/
plainpicture
)

Antibody wipeout found to relieve chronic fatigue syndrome

By Andy Coghlan
01 July 2015

"I was completely revitalised," says Karen. "Suddenly, I could be sociable again. I would go to work, go home, eat dinner and feel restless."

Karen (not her real name) experienced this relief from chronic fatigue syndrome while taking a drug that is usually used to treat the blood cancer lymphoma and rheumatoid arthritis (see "Karen's experience", below).

She was one of 18 people with CFS who reported improvements after taking rituximab as part of a small trial in Bergen, Norway. The results could lead to new treatments for the condition, which can leave people exhausted and housebound.

Finding a cause for CFS has been difficult. Four years ago, claims that a mouse virus was to blame proved to be unfounded, and some have suggested the disease is psychosomatic.

The latest study implicates the immune system, at least in some cases. Rituximab wipes out most of the body's B-cells, which are the white blood cells that make antibodies.

Read more…

 
 
 

UK ME/CFS Teenager's Support Dog To Have Vital Hip Operation

International news

Wednesday 1 July 2015

 

From UK newspaper The Liverpool Echo:

Sophie Perkins with her mother Carolyn, veterinary surgeon Ben Keeley, and Hunter
Hunter the German Shepherd
is due to head to Runcorn
today for life-changing
surgery so he can continue
as chronic fatigue syndrome-
sufferer Sophie Perkins's
assistance dog.
Cambridgeshire teenager
Sophie, 16, is pictured
here with her mother
Carolyn and veterinary
surgeon Ben Keeley.

Teenager's support dog to have vital hip operation in Runcorn courtesy of vets group

By Oliver Clay-Le
18 June 2015

Cambridgeshire teen's hopes of helping beloved German Shepherd Hunter a step closer thanks to surgeons

A teenager with chronic fatigue syndrome (CFS) who launched a campaign to raise cash for her beloved German Shepherd to have vital hip surgery is over the moon after vets offered to carry out the operation in Runcorn.

Sophie Perkins, 16, has CFS – also known as ME – and relies on Hunter, who is an assistance in disability (AID) dog, to help her to do simple tasks including rising out of bed and for walking around the house.

The 22-month old pooch suffers hip dysplasia and arthritis in both pelvic joints and needs surgery before he loses function.

But, after becoming aware of Sophie’s campaign to raise up to £9,000 for the medical procedure, the Pets At Home Vet Group agreed to carry out the operations at its Northwest Surgeons specialist referrals centre at Delamere House in Sutton Weaver, funded in part by the £3,663 in cash raised so far.

Read more…

 
 
 

Diagnostic Methods For ME/CFS – A Systematic Review

International news

Tuesday 30 June 2015

 

From American News Report:

Brain

Fibromyalgia Considered Lifelong Central Nervous System Disorder

By Doug Lynch
28 June 2015

Fibromyalgia is now considered to be a central nervous system disorder, according to University of Michigan professor of anesthesiology, Daniel Clauw, M.D.

In a scientific session at the American Pain Society Annual Scientific Meeting, Dr. Clauw stated, “Fibromyalgia can be thought of both as a discreet disease and also as a final common pathway of pain centralization and chronification. Most people with this condition have lifelong histories of chronic pain throughout their bodies,” said Dr. Clauw. “The condition can be hard to diagnose if one isn’t familiar with classic symptoms because there isn’t a single cause and no outward signs.”

A press release from the American Pain Society describes that “fibromyalgia pain comes more from the brain and spinal cord than from areas of the body in which someone may experience peripheral pain. The condition is believed to be associated with disturbances in how the brain processes pain and other sensory information.” The society notes that doctors should suspect fibromyalgia in people with musculoskeletal pain “that is not fully explained by injury or inflammation.”

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


Home | Welcome | In the News | ME/CFS Australia (Victoria) | The Society | Society Management | Become a member | Events | About ME/CFS | Resources | Publications | Medical | Links | Multimedia | Humour | My favourite… | Contact the Society | Volunteer positions
Copyright © ME/CFS Australia (SA) Inc
www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
Site maintained by Peter Scott
Last modified: July 6, 2015