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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Fibromyalgia sufferer creates successful doll clothing business

International news

Saturday 25 October 2014

 

From Californian news outlet Santa Clarita News:

 

American Planet
 

Santa Clarita Mom Creates American Girl Doll Clothing Biz

A Santa Clarita mom and former girl scout leader has created her own business by hand-making and selling earth-friendly American Girl doll clothing.

Posted by: Jessica Boyer
October 23, 2014

Char Nathanson, 55, who has been sewing since she was 10 years old, founded American Planet in April of this year.

American Girl clothes are expensive,” she said. “I was researching Etsy and found that there weren’t any doll clothes that were eco-friendly, either. Instead of buying new fabrics from store, I look for things gently worn from thrift stores or remnants from fabric stores.”

Read more…

 
 
 

Fibromyalgia mystery finally solved

International news

Friday 24 October 2014

 

From Liberty Voice:

Fibromyalgia tender points
 

Fibromyalgia Mystery Finally Solved!

Researchers Find Main Source of Pain in Blood Vessels

Added by Rebecca Savastio on June 20, 2013.

Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

Read more…

 
 
 

The Institute for Advanced Medical Research launches Fibromyalgia study

International news

Thursday 23 October 2014

 

From America's Institute for Advanced Medical Research (via Digital Journal):

Institute for Advanced Medical Research
 

The Institute for Advanced Medical Research Launches Fibromyalgia Study

Alpharetta facility offers support for those with fibromyalgia

ALPHARETTA, Ga. -- Oct. 21, 2014 -- PRZen -- Today the Institute for Advanced Medical Research announced that they will launch a new clinical trial for fibromyalgia on November 1, 2014. The pivotal phase 3 trial will test the efficacy of a new compound.

Fibromyalgia (FM) can best be described as a chronic pain state caused by excitation of nerves carrying pain signals to the brain. It is a highly complex disorder with a variety of symptoms that come and go, making it difficult to identify, diagnose and treat. The disease also includes specific pain trigger points useful in making a clear diagnosis. Experts predict that approximately 10 million Americans have this disorder, most of them women.

In addition to the chronic, debilitating pain of fibromyalgia, many of the symptoms of fibromyalgia are similar to other medical conditions and actually often co-exists with others including severe fatigue, insomnia, muscle knots, cramping and weakness, brain fog and IBS.

Read more…

 
 
 

Stanford unravels the mysteries of Chronic Fatigue Syndrome

International news

Wednesday 22 October 2014

 

From Stanford University (via YouTube):

Stanford Medicine
 

Stanford unravels the mysteries of Chronic Fatigue Syndrome

Published on 13 Oct 2014

Researchers and clinical specialists combine forces to better understand one of the most puzzling and stigmatized of human illnesses, Chronic Fatigue Syndrome. Broadly labeled and little understood, this syndrome encompasses a variety of diagnoses and labels, including immune dysfunction syndrome, myalgic encephalomyelitis, postural orthostatic tachycardia, and others.

Working in conjunction with world-class scientists and utilizing cutting edge technology, infectious disease expert José Montoya, MD is aggressively pushing to discover causes and develop treatments through the Stanford Initiative on Infection-Associated Chronic Diseases.

For more information:

http://chronicfatigue.stanford.edu

http://stanmed.stanford.edu/2014fall/immune-system-disruption.html

Read more…

 
 
 

Assessment of recovery status in Chronic Fatigue Syndrome using normative data

International news

Tuesday 21 October 2014

 

From ProHealth:

Medical records
 

Assessment of recovery status in chronic fatigue syndrome using normative data

By A. Matthees
www.ProHealth.com
October 19, 2014

Abstract

INTRODUCTION: Adamowicz et al. have reviewed criteria previously employed to define recovery in chronic fatigue syndrome (CFS). They suggested such criteria have generally lacked stringency and consistency between studies and recommended future research should require "normalization of symptoms and functioning".

METHODS: Options regarding how "normalization of symptoms and functioning" might be operationalized for CFS cohorts are explored.

Read more…

 
 
 

Woman who is 'allergic' to the 21st century has no physical contact with the outside world

Australian news

Monday 20 October 2014

 

From Australian newspaper The Daily Telegraph:

Amelia Hill
Amelia Hill has closed
herself off from the
rest of the world.
(Picture: Jodi Nash)
 

Woman who is 'allergic' to the 21st century has no physical contact with the outside world

By Amelia Hill
Sunday Style
October 19, 2014 12:00AM

FOR almost five years, I’ve lived in one single room, stripped of all possessions – apart from a fold-out bed that doesn’t even have a mattress.

Yes, you read that right: one room for five years!

My family and friends can only speak to me through a glass wall; I eat the same six foods on rotation; and can wear just one outfit.

I’m not in prison and this isn’t some kind of Big Brother social experiment.

I have a condition called multiple chemical sensitivity (MCS), as well as electromagnetic hypersensitivity (EHS).

This means I’m intolerant to an endless list of everyday items, including fragrances, fabrics, plastics, cleaning products, computers and Wi-Fi technology.

Minimal exposure can cause a life-threatening allergic reaction – my airway swells, I can’t breathe and feel like I’ve overdosed on sedatives.

You could say that I’m allergic to the 21st century.

The only way for me to survive and have any quality of life is to seal myself off from my friends, family and the outside world.

Read more…

 
 
 

Is Venlafaxine effective for treating Fibromyalgia

International news

Sunday 19 October 2014

 

From ProHealth:

Tablets
 

Is Venlafaxine Effective for Treating Fibromyalgia

By L.A. VanderWeide, et al.
www.ProHealth.com

October 8, 2014

Editor's comment: Venlafaxine is a serotonin and norepinephrine reuptake inhibitor (SNRI) antidepressant, best known by the brand name Effexor. It has FDA approval for the treatment of major depressive disorder, social anxiety disorder, generalized anxiety disorder, panic disorder and migraine headache prophylaxis (prevention) but is also sometimes prescribed off-label for fibromyalgia.

A systematic review of the efficacy of venlafaxine for the treatment of fibromyalgia.

Abstract:

WHAT IS KNOWN AND OBJECTIVE: Fibromyalgia is a painful disease affecting 1-2% of the United States population. Serotonin and norepinephrine reuptake inhibitors (SNRIs), such as duloxetine and milnacipran, are well studied and frequently used for treating this disorder. However, efficacy data are limited for the SNRI venlafaxine despite its use in nearly a quarter of patients with fibromyalgia. Accordingly, we systematically reviewed the efficacy of venlafaxine for treatment of fibromyalgia.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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