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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

'One day I was fine, the next I was hit by an overwhelming sense of fatigue'

International news

Wednesday 17 December 2014

 

From UK newspaper the Lancashire Evening Post:

Lesley Pickering
Lesley Pickering and a friend
have set up the North West
Chronic Fatigue Clinic on
Garstang Road, Preston, after
she began suffering from
Chronic Fatigue Syndrome
at the age of 24.
 

‘One day I was fine, the next I was hit by an overwhelming sense of fatigue’

By Aasma Day
16 December 2014 06:00

When people are suffering from a condition, they often feel other people don’t fully understand what they are going through.

Aasma Day talks to Lesley Pickering, who battled Severe Chronic Fatigue Syndrome for more than six years before being diagnosed, about why she has set up a clinic in Preston to treat sufferers.

Lying in bed in a darkened, silent room, Lesley Pickering felt overwhelmed with despair and frustration.

Consumed by extreme tiredness, she was unable to tolerate even light or sound and literally spent her days lying in bed in a dark and silent room.

Lesley, now 42, was 24 when she first started suffering from her symptoms only six months after completing a degree at the Royal College of Music in London.

She recalls: “It affected me very suddenly. One day, I was perfectly fine, and the next I was hit by this overwhelming sense of fatigue.”

Read more…

 
 
 

Lyme disease, Fibromyalgia link evaporates

International news

Tuesday 16 December 2014

 

From MedPage Today:

Warning: Tick Habitat
 

Lyme Disease, Fibromylagia Link Evaporates

By Wayne Kuznar, Contributing Writer, MedPage Today
Published: Dec 14, 2014

Lyme disease is not a trigger for fibromyalgia, according to a long-term assessment of patients with culture-confirmed Lyme disease.

The prevalence of fibromyalgia among patients with culture-confirmed Lyme disease who were followed at the Lyme Disease Diagnostic Center in Westchester County, N.Y., for up to 20 years was no greater than that in the general population, say investigators at New York Medical College in Valhalla, N.Y., led by Gary P. Wormser, MD.

Earlier studies that suggested that Lyme disease may trigger fibromyalgia were performed before the use of two-tier serologic testing for Lyme disease and therefore may have included patients who did not actually have Lyme disease, the investigators wrote online in Arthritis & Rheumatology. Further, these studies did not follow Lyme disease patients over the long term.

In the current study, 100 patients with a diagnosis of Lyme disease confirmed by recovery of Borrelia burgdorferi from culture -- the gold standard for microbiologic confirmation -- were systematically evaluated for fibromyalgia using both prior and current diagnostic criteria 11 to 20 years after the onset of Lyme disease. At diagnosis, patients were treated with antibiotic regimens consistent with current guidelines.

Read more…

 
 
 

Shake that *^#&! ing stigma – The Shake the CFS Stigma challenge begins

International news

Monday 15 December 2014

 

From Cort Johnson's US website Health Rising:

 

Stop stigma
 

Shake That *^#&! ing Stigma – The Shake the CFS Stigma Challenge Begins

By Cort Johnson on December 2, 2014

Wouldn’t you just love to “Shake the Stigma”? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it’s a cover up for malingerers. That it’s not “real”.

Wouldn’t you just love for the [US] National Institutes of Health to “Shake the CFS Stigma” and starting treating ME/CFS like a real disorder that deserves real funding?

The Simmaron Research Foundation thinks it’s time to “Shake the CFS Stigma” off – literally – and to challenge your friends and government officials to do the same. To leave that stigma lying in the dust from, (and if you feel like it, maybe stomp on it a couple of times..(my suggestion :)))

ME/CFS is real, it’s serious, and the ME/CFS community – all 17 million of them around the world – are not going away; it’s time to shake that CFS stigma for good!

The Simmaron Foundation has begun the #ShakeTheCFSStigma challenge.

Here’s how it works:

Read more…

 
 
 

Seven Fibromyalgia seasonal stress strategies

International news

Sunday 14 December 2014

 

From ProHealth:

Christmas candles
 

7 Fibromyalgia Seasonal Stress Strategies

By Sue Ingebretson
www.ProHealth.com
December 9, 2014

Odds are, if you step into an elevator, walk into a department store, or turn on the radio right now, it wouldn’t be long before you hear Andy Williams crooning “It’s the Most Wonderful Time of the Year!” It’s December. It is a wonderful time of the year for most – including those of us with fibromyalgia.

But, it’s also the most stressful time of the year.

We don’t hear a lot of holiday songs about increased fibromyalgia pain and symptoms.

What does holiday stress mean to you? Do you find yourself experiencing any of the following symptoms?

Read more…

 
 
 

UK council fined for failing to provide education to teenager off school with ME/CFS

International news

Saturday 13 December 2014

 

From UK newspaper Cambridge News:

Findlay Waters, 17, with mum Jane and dad Richard
Findlay Waters, 17, with
mum Jane and dad Richard
 

Cambridgeshire County Council fined for failing to provide education to teenager off school with Chronic Fatigue Syndrome

By Eleanor Dickinson
Cambridge News
Posted: December 10, 2014

A seriously-ill teenager has won a fight against the "injustice" of a local authority for "destroying" his education while he was off school for three years.

Findlay Waters, 17, has been unable to attend St Ivo School since 2011 after being struck down with the debilitating Chronic Fatigue Syndrome (CFS).

A local government ombudsman has now fined Cambridgeshire County Council £4,800 for failing to provide his education.

His mum Jane called their handling of it a "scandal".

Read more…

 
 
 

Warning about Fibromyalgia poison ivy treatment

International news

Friday 12 December 2014

 

From EmaxHealth:

Poison ivy
 

Warning about fibromyalgia poison ivy treatment

By Lana Bandoim G+
2014-12-08 21:31

The desperate search for relief from the chronic pain of fibromyalgia has led some sufferers to try a variety of treatments. However, patients need to be aware of a homeopathic poison ivy treatment that has appeared in multiple online forums. Although there are studies related to the treatment, it is important not to attempt DIY or home remedies.

Poison ivy (Rhus toxicodendron) is a toxic plant associated with an itchy rash that develops if a person touches it because it contains urushiol in the sap. Despite the risks, it has been used in some homeopathic treatments. A study published in 1989 examined the use of poison ivy for fibromyalgia patients with a placebo control group and found that some people reported relief from the remedy. They reported reduced pain, fewer tender points and better sleep. However, other studies that focused on autoimmune disorders and poison ivy did not see any improvement.

Read more…

 
 
 

A pill for Gulf War Syndrome?

International news

Thursday 11 December 2014

 

From US newspaper The San Diego Union-Tribune:

Dr. Beatrice Golomb
Portrait of Dr. Beatrice
Golomb, UCSD Medical
School professor and
researcher, with a map of
Iraq where she's studied
Gulf War Syndrome.
(Photo: Charlie Neuman)
 

A pill for Gulf War Syndrome?

UCSD researcher finds that coenzyme Q10 may help hard-to-diagnose illnesses

By Jeanette Steele
7:26 P.M.DEC. 3, 2014

More than 20 years after Operation Desert Storm, at least 175,000 U.S. military veterans claim a broad range of mysterious symptoms known as Gulf War Syndrome.

Doctors have voiced skepticism about their complaints, which include fatigue, digestive distress and recall problems. Sure, some physicians say, a lot of civilians have those health challenges, too — especially as they age.

But a UC San Diego physician has long taken a different view, and now her research is focusing on a possible treatment in the form of a simple, over-the-counter supplement.

Dr. Beatrice Golomb, a professor and researcher with the university’s medical school, recently published a study that showed some success against the syndrome with a high-quality brand of coenzyme Q10.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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