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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Where Fibromyalgia and Chronic Fatigue Syndrome part ways (and where they don't)

International news

Wednesday 3 September 2014

 

From Health Rising:

Meeting road
 

Where Fibromyalgia and Chronic Fatigue Syndrome Part Ways (and Where They Don't)

By Cort Johnson

Lately we’ve seen what appears to be a great deal of similarity in muscle issues in Chronic Fatigue Syndrome and Fibromyalgia. We know that Dr. Bateman and others believe ME/CFS and Fibromyalgia occur on a fatigue-pain continuum – that they are similar disorders that differ in the amount of fatigue and pain present. They both predominantly affect women, and similar medications are used in both.

Both Dr. Natelson and the Lights, however, have found differences in ME/CFS + FM vs ME/CFS patients alone, and Natelson argues that they’re quite different disorders.

Now a recent study demonstrates an important way that this is so.

Read more…

 
 
 

Fibromyalgia – main source of pain finally found

International news

Tuesday 2 September 2014

 

From Viral Global News:

Hands
 

Fibromyalgia–Main Source of Pain Finally Found!

Posted by  on August 20, 2014 in 

Scientists have finally found the main source of pain in fibromyalgia patients, and it is not stemming from any psychological cause as many doctors have believed in the past. Rather, it is linked with abnormal fibers in the skin, particularly the skin of the hands, called arteriole-venule shunts. The first study was performed by Dr. Frank Rice of Integrated Tissue Dynamics last year, and now, his team has learned even more about how the abnormal nerve fibers are influenced by estrogen, which provides an explanation for why fibromyalgia is much more common in women than in men. The research team has also found new information about exactly how the additional nerve fibers cause pain; an exciting breakthrough that could lead to new treatments for the disorder.

The original findings were published in the journal Pain Medicine after three years of extensive research. Dr. Rice says that the margin of error for his study is so small, he feels confident stating that the data can pave the way for doctors to be able to positively diagnose fibromyalgia and for new, more effective medicines to be developed. “This discovery provides concrete evidence of a fibromyalgia-specific pathology which can now be used for diagnosing the disease, and as a novel starting point for developing more effective therapeutics,” he says.

Read more…

 
 
 

"Fibro-fog has turned my life into a nightmare"

International news

Monday 1 September 2014

 

From UK newspaper the Derby Telegraph:

Kathleen Carter
Kathleen Carter
 

Chaddesden mum: 'Fibro-fog' has turned my life into a nightmare

By Caroline Jones
Derby Telegraph
Posted: August 22, 2014

SHE has nearly caused two fires while cooking, gets so exhausted she cannot turn a key in a lock and, some days, forgets her own name.

For Kathleen Carter, it is a far cry from the days when her job kept her busy and active – along with being a mum-of-four.

It was more than a decade ago when she was diagnosed with the condition which "stopped her in her tracks" and turned her life into a "nightmare".

This is because fibromyalgia causes widespread pain, tiredness coupled with difficulty sleeping and memory and concentration problems – known as "fibro-fog".

Read more…

 
 
 

Interview: Jennifer Brea talks about obstacles, adjustments, and inspiration

International news

Sunday 31 August 2014

 

From ProHealth:

Jennifer Brea
Jennifer Brea
 

Interview: Jennifer Brea Talks About Obstacles, Adjustments, and Inspiration

By Erica Verrillo
www.ProHealth.com
August 25, 2014

Last January, ProHealth named Jennifer Brea as its Advocate of the Year for her exemplary work in creating the film, Canary in a Coal Mine, as well as for her inspiring commitment to the ME/CFS community.

Jennifer Brea contracted ME in 2011, when she was suddenly hit with a flu-like illness. A little over a year later, she became bedridden – just a few months before her wedding.

At the time, Jennifer was enrolled as a PhD candidate in Harvard University’s Department of Government. She was also pursuing a Master’s degree in statistics. Before beginning her doctoral program, Jennifer had worked as a freelance journalist covering China and East Africa for the Guardian, the Scotsman, the Africa Report, China Daily, and Ebony Magazine.

It was her background in journalism that led Jennifer to the idea of making a full-length documentary about ME/CFS. To drive home the impact of the illness, Jennifer wanted to feature the stories of patients as well as the clinicians who have spent years treating those patients and attempting to unravel the puzzle of ME/CFS.

Last fall the project garnered over $200,000 in an outpouring of support from the ME/CFS community. In November, Canary in a Coal Mine won Indiewire's Project of the Month, which earned her a creative consultation with the Tribeca Film Institute, one of the industry's most prestigious funders of innovative film projects. In July, Canary in a Coal Mine was chosen as a Sundance Institute Documentary Film Program grantee. It was one of 44 projects selected from over 600 applications from 69 countries around the world.

Jennifer was kind enough to answer some questions about her experiences making the film, and about her battle with ME/CFS.

Read more…

 
 
 

2014 Medical Seminar in Victoria

Australian news

Saturday 30 August 2014

 

From ME/CFS Australia (Victoria):

Stethoscope and puzzle
 

2014 MEDICAL SEMINAR

Exploring the puzzle that is ME/CFS and related neuroimmunlogical diseases

WHEN

Saturday 13th September 2014
9:15am – 3:45pm

WHERE

The Alfred Hospital
Amrep Education Centre: The Seminar Room
55 Commercial Road, Prahran Vic 3181

BOOK HERE

Tickets
$15 Members
$40 Non-Members

DOWNLOAD A BROCHURE HERE

Join world leading researcher Professor Sonya Marshall-Gradisnik, ME/CFS and Lyme medical expert Dr Richard Schloeffel together with highly regarded GPs in their field of expertise to discuss the medical complexity of ME/CFS with the view to enabling clinicians to work more effectively with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and related neuroimmunological diseases.

Conference Topics

This seminar will provide an update on world leading research, ME/CFS/Lyme clinical management strategies, further understanding of the relationship between intestinal dysbiosis, low blood pressure and hypermobility and ME/CFS. Supporting the day is a presentation by Maurice Blackburn Lawyers providing an overview of legal issues surrounding ME/CFS and related neuroimmunological diseases for the clinician and client.

Read more…

 
 
 

Giardia linked to long-term risk for IBS, Chronic Fatigue

International news

Friday 29 August 2014

 

From Medscape Medical News:

Gut problem
 

Giardia Linked to Long-term Risk for IBS, Chronic Fatigue

By Jennifer Garcia
August 20, 2014

Infection with Giardia may triple the risk for irritable bowel syndrome (IBS) and chronic fatigue (CF) even years after infection, according to a prospective study published online August 12 in the journal Clinical Infectious Diseases.

Kurt Hanevik, MD, PhD, from the University of Bergen, Norway, and colleagues identified 1252 individuals diagnosed with Giardia infection during an outbreak in 2004 and followed them for the 6 years after infection. They compared data from the Giardia-exposed group with data from 2504 individuals who were matched for age and sex; the researchers identified control participants through Statistics Norway in 2007.

Of those participants, 748 (60.4%) participants in the exposed group and 878 (35.9%) in the control group responded to questionnaires mailed in 2007 and 2010.

Read more…

 
 
 

Angela beats the odds to finish 800-mile motorcycle challenge

International news

Friday 22 August 2014

 

From Irish newspaper the Ulster Star:

Angela Whitla with Mayor of Lisburn, Councillor Andrew Ewing
Angela Whitla with
Mayor of Lisburn,
Councillor Andrew Ewing,
at the start of her 800-mile
motorcycle challenge.
 

Angela beats the odds to finish 800-mile motorcycle challenge

Published on the 17 August 2014 09:12

A Kinallen woman has beaten the odds to complete an 800-mile motorcycle challenge taking her across the island of Ireland and back home in six days.

Exhausted and in pain, Angela Whitla (50) arrived home after making her way from Lisburn to Waterford to Limerick to Enniskillen and then throughout Northern Ireland, stopping at Londonderry, Coleraine, Carrickfergus and elsewhere.

Having for more than 20 years battled with Obsessive Compulsive Disorder, Post Traumatic Stress Disorder, self-harming and depression, Angela, also lately diagnosed with fibromyalgia, undertook the challenge to raise funds for three charities, namely Aware Defeat Depression, PIPS suicide prevention and FMS/ME Awareness NI.

Read more…

 
 
 

'Forgotten' UK ME sufferers given new hope as charity hits cash target for clinical drug trials

International news

Thursday 21 August 2014

 

From UK newspaper Mancunian Matters:

Pills
 

'Forgotten' Manchester ME sufferers given new hope as charity hits cash target for clinical drug trials

By Georgina Sykes
17 Aug 2014 - 06:20AM

ME sufferers across Greater Manchester have been given a timely boost, after a charity raised £350,000 to trial a drug on usually used to treat some forms of cancer.

The charity Invest In ME have raised the cash towards a clinical trial of Rituximab, a drug also used by arthritis sufferers.

Greater Manchester charity Bury/Bolton ME/CFS Support Group fully supports the trial, hoping it will bring about more treatment options for ME sufferers.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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