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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Rapper's album answers challenge of disease

International news

Friday 28 November 2014

 

From Illinois Wesleyan University's newspaper The Argus:

Trip Lee
US rapper Trip Lee
 

Trip Lee’s Rise answers challenge of disease

Posted by Nicole Ciemniak
November 26, 2014

“Christian rap?” I remember the time my dad looked at me in disbelief when he heard hip-hop blaring from my car’s speakers only to realize that it wasn’t the typical misogynistic, materialistic fodder to which we have grown so accustomed. Rap is quickly becoming a staple in today’s Christian music, much to the surprise of many.

Christian rap and hip-hop have come a long way in recent years, with very talented artists rising to the top of the CCM—contemporary Christian music—scene. Artists like Lecrae, Braille, Propaganda, Beautiful Eulogy and Trip Lee are examples of seriously talented rappers and poets. Sadly, most go under the radar, as they do not perpetuate the inexplicably beloved themes of money, money, money and sex.

If given the chance, Trip Lee’s Rise and albums like it could flip the rap and hip-hop scene on its head. The most impressive aspect of Rise? I’ll give you a hint—it’s not his lyrical talent, nor is it the sick beats; instead, it’s the time and effort Trip put into its release.

Of course, you could name 10 artists off the top of your head that put a lot of work into an album. But how many of them are battling chronic fatigue syndrome? CFS is an incurable, untreatable disorder that does exactly what you might guess—exhausts.

Read more…

 
 
 

Chronic Fatigue Syndrome often not believed

International news

Thursday 27 November 2014

 

From US newspaper the Georgetown News Democrat (via Rocklin and Roseville Today):

The News Democrat
 

Chronic Fatigue Syndrome Often Not Believed

Daniel J. Vance MS, LPC, NCC
Posted: Tuesday, November 25, 2014

Chronic Fatigue Syndrome (CFS), also called Chronic Fatigue Immune Dysfunction Syndrome, had Carl Miller of Georgetown, Ohio, and his doctors, completely baffled for a long while. He reads this column in the Georgetown News Democrat.

Said 64-year-old Miller, "I used to drive a tour bus and it was getting really difficult for me to unload and load luggage without getting very worn out. Also, I used to run a lot out on the road and remember running the day the World Trade Center towers were hit. I knew something was going on (with me physically) because I was going halfway out on my run and having to walk back home. Before that I used to run five miles regularly without any problem."

The fatigue became much more problematic. His doctor thought he was making it up. The verbal exchange with this doctor would so bother and "floor" him that he did not see another doctor for a long time. He said, "I didn't know why (the doctor) would tell me such a thing. I've always tried to be a good person and not lie."

Read more…

 
 
 

Brains of people with Chronic Fatigue Syndrome offer clues about disorder

International news

Wednesday 26 November 2014

 

From The New York Times:

Brain scans
(Photo: Michael Zeineh)
 

Brains of People with Chronic Fatigue Syndrome Offer Clues About Disorder

By David Tuller
November 24, 2014 7:03 PM

Patients with chronic fatigue syndrome are accustomed to disappointment. The cause of the disorder remains unknown; it can be difficult to diagnose, and treatment options are few. Research suggesting that an infection from a mouse virus may cause it raised hopes among patients a few years ago, but the evidence fell apart under closer scrutiny.

Many patients are still told to seek psychiatric help. But two recent studies — one from investigators at Stanford a few weeks ago and another from a Japanese research team published earlier this year — have found that the brains of people with chronic fatigue syndrome differ from those of healthy people, strengthening the argument that serious physiological dysfunctions are at the root of the condition.

“You’ve got two different groups that have independently said, ‘There’s something going on in the brain that is aberrant,’ ” said Leonard Jason, a psychologist at DePaul University in Chicago who studies the condition, also called myalgic encephalomyelitis and widely known as M.E./C.F.S. “I think you have a growing sense that this illness should be taken seriously.”

Read more…

 
 
 

New oral medication shows promise in treating Fibromyalgia

International news

Tuesday 25 November 2014

 

From News Medical:

Innovative Med Concepts
 

New oral medication shows promise in treating fibromyalgia

Published on November 18, 2014 at 10:59 AM

A new oral medication known as IMC-1, developed by Innovative Med Concepts, proved highly effective at reducing pain and other symptoms of fibromyalgia (FM) in patients in a recent clinical trial.

Detailed results of the randomized, double-blinded, placebo-controlled Phase II study, known as PRID-201, were presented today at the 2014 American College of Rheumatology annual meeting in Boston by William L. Pridgen, M.D., FACS, founder and CEO of Innovative Med Concepts.

According to Daniel J. Clauw, M.D., director of the Chronic Pain & Fatigue Research Center at the University of Michigan (Ann Arbor), commenting on the PRID-201 results, "IMC-1 shows promise as a potentially new treatment for the millions of people who suffer from this debilitating condition."

Read more…

 
 
 

Irish TV show Doctor in the House addresses Fibromyalgia

International news

Monday 24 November 2014

 

From EmaxHealth:

Stethoscope and heart
 

‘Doctor in the House’ addresses fibromyalgia problems

By Lana Bandoim 
2014-11-17 22:05

It is not often that people who suffer from fibromyalgia see their health problems addressed on television shows. However, “Doctor in the House” is challenging the usual coverage of common diseases on TV by presenting an episode that deals with fibromyalgia. Eileen Callaghan discovers that her self-diagnosis was correct and learns how to handle the condition.

“Doctor in the House” follows Dr. Nina Byrnes, Dr. Sinead Beirne and Professor Niall Moyna as they try to help patients by visiting their households. The Irish television show provides families the opportunity to have professionals assess their health and offer them a real plan to improve it. The medical experts return after eight weeks to evaluate the families for results.

The latest episode of “Doctor in the House” features Eileen Callaghan and Peter Whelan seeking help as they consider starting a family in the future. Eileen Callaghan thinks she has fibromyalgia, and the doctors confirm her disorder after the examinations. However, this is not the only health problem they find that may make it difficult for her to start a family. The doctors inform Eileen Callaghan about her high cholesterol, diabetes risk and weight issues. They are concerned that she is overweight and not taking care of herself.

Read more…

 
 
 

Does oral Coenzyme Q10 plus NADH supplementation improve Chronic Fatigue Syndrome?

International news

Sunday 23 November 2014

 

From ProHealth:

Tablets
 

Does oral Coenzyme Q10 plus NADH supplementation improve fatigue and biochemical parameters in Chronic Fatigue Syndrome?

By Dr. Jesus Castro-Marrero et al.
www.ProHealth.com
November 17, 2014

By Dr. Jesus Castro-Marrero et al.

ABSTRACT

Chronic Fatigue Syndrome (CFS) is a chronic and extremely debilitating illness characterized by prolonged fatigue and multiple symptoms with unknown cause, diagnostic test, or universally effective treatment.

Inflammation, oxidative stress, mitochondrial dysfunction, and CoQ10 deficiency have been well documented in CFS. We conducted an 8-weeks randomized, double-blind, placebo-controlled trial to evaluate the benefits of oral CoQ10 (200 mg/day) plus NADH (20 mg/day) supplementation on fatigue and biochemical parameters in 73 Spanish CFS patients. This study was registered in ClinicalTrials.gov (NCT02063126).

Read more…

 
 
 

Society seminar reminder

South Australian news

Saturday 22 November 2014

 

ME/CFS Australia (SA) IncA reminder that the society's next seminar will be held today (Saturday, 22 November 2014) at 1pm.

Here are the details:

Speaker

The speaker will be Dr Susan Cockshell.

Dr Cockshell will be talking about cognitive functioning and ME/CFS.

Location

All seminars are held at Sophia House.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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