Society Logo
ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
Why become a member?
 
Facebook

 
 
ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Irish TV show Doctor in the House addresses Fibromyalgia

International news

Monday 24 November 2014

 

From EmaxHealth:

Stethoscope and heart
 

‘Doctor in the House’ addresses fibromyalgia problems

By Lana Bandoim 
2014-11-17 22:05

It is not often that people who suffer from fibromyalgia see their health problems addressed on television shows. However, “Doctor in the House” is challenging the usual coverage of common diseases on TV by presenting an episode that deals with fibromyalgia. Eileen Callaghan discovers that her self-diagnosis was correct and learns how to handle the condition.

“Doctor in the House” follows Dr. Nina Byrnes, Dr. Sinead Beirne and Professor Niall Moyna as they try to help patients by visiting their households. The Irish television show provides families the opportunity to have professionals assess their health and offer them a real plan to improve it. The medical experts return after eight weeks to evaluate the families for results.

The latest episode of “Doctor in the House” features Eileen Callaghan and Peter Whelan seeking help as they consider starting a family in the future. Eileen Callaghan thinks she has fibromyalgia, and the doctors confirm her disorder after the examinations. However, this is not the only health problem they find that may make it difficult for her to start a family. The doctors inform Eileen Callaghan about her high cholesterol, diabetes risk and weight issues. They are concerned that she is overweight and not taking care of herself.

Read more…

 
 
 

Does oral Coenzyme Q10 plus NADH supplementation improve Chronic Fatigue Syndrome?

International news

Sunday 23 November 2014

 

From ProHealth:

Tablets
 

Does oral Coenzyme Q10 plus NADH supplementation improve fatigue and biochemical parameters in Chronic Fatigue Syndrome?

By Dr. Jesus Castro-Marrero et al.
www.ProHealth.com
November 17, 2014

By Dr. Jesus Castro-Marrero et al.

ABSTRACT

Chronic Fatigue Syndrome (CFS) is a chronic and extremely debilitating illness characterized by prolonged fatigue and multiple symptoms with unknown cause, diagnostic test, or universally effective treatment.

Inflammation, oxidative stress, mitochondrial dysfunction, and CoQ10 deficiency have been well documented in CFS. We conducted an 8-weeks randomized, double-blind, placebo-controlled trial to evaluate the benefits of oral CoQ10 (200 mg/day) plus NADH (20 mg/day) supplementation on fatigue and biochemical parameters in 73 Spanish CFS patients. This study was registered in ClinicalTrials.gov (NCT02063126).

Read more…

 
 
 

Society seminar reminder

South Australian news

Saturday 22 November 2014

 

ME/CFS Australia (SA) IncA reminder that the society's next seminar will be held today (Saturday, 22 November 2014) at 1pm.

Here are the details:

Speaker

The speaker will be Dr Susan Cockshell.

Dr Cockshell will be talking about cognitive functioning and ME/CFS.

Location

All seminars are held at Sophia House.

Read more…

 
 
 

Watch Voices from the Shadows documentary for free till the end of the year

International news

Friday 21 November 2014

 

From the Voices from the Shadows Facebook page:

Voices from the Shadows
 

Watch Voices from the Shadows documentary for free till the end of the year

The film ‘Voices from the Shadows’ is now available to watch for free until the end of the year – on Vimeo – by entering a promo code of VOICES after clicking the “rent for $3” button [see at the end of this article].

Vimeo also requires you to register with a name, email address and password.

This film is not considered suitable viewing for children and young people with ME, but is intended for adults who are not familiar with the illness.

Read more…

 
 
 

Chronic Fatigue Syndrome - very real, highly disturbing medical condition

International news

Thursday 20 November 2014

 

From US newspaper the San Jose Mercury News:

Research
 

Chronic Fatigue Syndrome - very real, highly disturbing medical condition

By Lisa M. Krieger
lkrieger@mercurynews.com
POSTED: 11/16/2014 06:35:37 PM PST
UPDATED: 4 DAYS AGO

New clues are emerging about the mystery condition called chronic fatigue syndrome, which causes such disabling exhaustion that people can't complete normal daily activities.

"There is physical evidence that something is going on," said Carol Drake, 56, a Fremont patient and participant in a Sunday support group at the Palo Alto Medical Foundation in Mountain View.

"When you tell people you have cancer, they take it more seriously. Chronic fatigue syndrome, they don't," she said. "If it doesn't affect somebody's life directly, they don't really have an interest in it." Chronic fatigue syndrome is estimated to affect between 1 and 4 million individuals in the United States and millions more worldwide.

But patients have struggled to have their symptoms recognized as a legitimate physical illness.

Read more…

 
 
 

US couple wins national scholarships to help people with chronic pain

International news

Wednesday 19 November 2014

 

From US news outlet The Progress-Index:

Louis Ogden et al
Louis and Karen Ogden et al
(Contributed photo)
 

Local couple wins national scholarships to help people with chronic pain in Virginia

By Staff Report
Posted Nov. 16, 2014 @ 2:01 am

PRINCE GEORGE — County residents Louis and Kristen Ogden recently won scholarships to attend the National Fibromyalgia & Chronic Pain Association’s national training program, Leaders Against Pain, to learn how to effectively advocate for the 110 million people with chronic pain illnesses in the United States.

Louis is one of those 110 million chronic pain sufferers.

The national training program was held in Salt Lake City, Utah, Oct. 23-26. While there the couple learned from leading experts the skills needed to advocate on behalf of people with chronic pain for faster diagnosis, better treatments, more research funding and ultimately a cure for these conditions.

The couple, citing the Institute of Medicine’s congressionally mandated study, “Relieving Pain in America,” said that chronic pain affects an estimated one in four, or 110 million U.S. adults, which is more than the number affected by heart disease, diabetes, and cancer combined.

“It was an honor for me and my wife to be among the 29 people chosen from across the country to attend Leaders Against Pain,” Louis Ogden said. “I was diagnosed with fibromyalgia in 1990. I have lived with chronic severe pain for most of my adult life, and it has been life-altering for me and my wife.

Read more…

 
 
 

Society seminar

South Australian news

Tuesday 18 November 2014

 

ME/CFS Australia (SA) IncThe society's next seminar will be held this Saturday, 22 November 2014, at 1pm.

Here are the details:

Speaker

The speaker will be Dr Susan Cockshell.

Dr Cockshell will be talking about cognitive functioning and ME/CFS.

Location

All seminars are held at Sophia House.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


Home | Welcome | In the News | ME/CFS Australia (Victoria) | The Society | Society Management | Become a member | Events | About ME/CFS | Resources | Publications | Medical | Links | Multimedia | Humour | My favourite… | Contact the Society | Volunteer positions
Copyright © ME/CFS Australia (SA) Inc
www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
Site maintained by Peter Scott
Last modified: November 24, 2014