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ME/CFS Australia Ltd
Please Click Here To Donate ME/CFS Australia (SA) Inc
 
Society Seminars
Saturday 22 November 2014
Annual General Meeting
1 pm - 3 pm
Speaker: Dr Susan Cockshell
Details…
 
Become a Member
PDF Application Form 2014 (PDF, 243KB)
Text Application Form 2014 (plain text)
Why become a member?
 
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: 27 Scott Street, Toowoomba Qld 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Assessment of recovery status in Chronic Fatigue Syndrome using normative data

International news

Tuesday 21 October 2014

 

From ProHealth:

Medical records
 

Assessment of recovery status in chronic fatigue syndrome using normative data

By A. Matthees
www.ProHealth.com
October 19, 2014

Abstract

INTRODUCTION: Adamowicz et al. have reviewed criteria previously employed to define recovery in chronic fatigue syndrome (CFS). They suggested such criteria have generally lacked stringency and consistency between studies and recommended future research should require "normalization of symptoms and functioning".

METHODS: Options regarding how "normalization of symptoms and functioning" might be operationalized for CFS cohorts are explored.

Read more…

 
 
 

Woman who is 'allergic' to the 21st century has no physical contact with the outside world

Australian news

Monday 20 October 2014

 

From Australian newspaper The Daily Telegraph:

Amelia Hill
Amelia Hill has closed
herself off from the
rest of the world.
(Picture: Jodi Nash)
 

Woman who is 'allergic' to the 21st century has no physical contact with the outside world

By Amelia Hill
Sunday Style
October 19, 2014 12:00AM

FOR almost five years, I’ve lived in one single room, stripped of all possessions – apart from a fold-out bed that doesn’t even have a mattress.

Yes, you read that right: one room for five years!

My family and friends can only speak to me through a glass wall; I eat the same six foods on rotation; and can wear just one outfit.

I’m not in prison and this isn’t some kind of Big Brother social experiment.

I have a condition called multiple chemical sensitivity (MCS), as well as electromagnetic hypersensitivity (EHS).

This means I’m intolerant to an endless list of everyday items, including fragrances, fabrics, plastics, cleaning products, computers and Wi-Fi technology.

Minimal exposure can cause a life-threatening allergic reaction – my airway swells, I can’t breathe and feel like I’ve overdosed on sedatives.

You could say that I’m allergic to the 21st century.

The only way for me to survive and have any quality of life is to seal myself off from my friends, family and the outside world.

Read more…

 
 
 

Is Venlafaxine effective for treating Fibromyalgia

International news

Sunday 19 October 2014

 

From ProHealth:

Tablets
 

Is Venlafaxine Effective for Treating Fibromyalgia

By L.A. VanderWeide, et al.
www.ProHealth.com

October 8, 2014

Editor's comment: Venlafaxine is a serotonin and norepinephrine reuptake inhibitor (SNRI) antidepressant, best known by the brand name Effexor. It has FDA approval for the treatment of major depressive disorder, social anxiety disorder, generalized anxiety disorder, panic disorder and migraine headache prophylaxis (prevention) but is also sometimes prescribed off-label for fibromyalgia.

A systematic review of the efficacy of venlafaxine for the treatment of fibromyalgia.

Abstract:

WHAT IS KNOWN AND OBJECTIVE: Fibromyalgia is a painful disease affecting 1-2% of the United States population. Serotonin and norepinephrine reuptake inhibitors (SNRIs), such as duloxetine and milnacipran, are well studied and frequently used for treating this disorder. However, efficacy data are limited for the SNRI venlafaxine despite its use in nearly a quarter of patients with fibromyalgia. Accordingly, we systematically reviewed the efficacy of venlafaxine for treatment of fibromyalgia.

Read more…

 
 
 

Enable Adelaide...

South Australian news

Saturday 18 October 2014

 

From The City of Adelaide and Enable Development (via email):

Disability Speaks
 

Enable Adelaide...

MEDIA RELEASE: October 16th, 2014

The City of Adelaide and Enable Development are working together to help all people, including those with disabilities or access needs and those who spend time with them, get the info they need to enjoy and use the city in the easiest ways possible.

We are looking at developing a way to share accessibility and other disability related information with the people who can and will use it.

The Enable Development team are ALL folks with lived experience of disability – we use wheelchairs, we wear hearing aids, we speak differently, we have assistance dogs, we have sensory overload issues or we live with someone who does, and we are not here for lip service.

There are a few different ways you might be able to help us.

Read more…

 
 
 

Modified ACR criteria effective for Fibromyalgia diagnosis

International news

Friday 17 October 2014

 

From DoctorsLounge:

Fibromyalgia tender points
 

Modified ACR Criteria Effective for Fibromyalgia Diagnosis

Last Updated: October 09, 2014.

The 2011 modification of the 2010 American College of Rheumatology (ACR) preliminary criteria for the diagnosis of fibromyalgia has acceptable diagnostic accuracy compared with the 1990 ACR criteria, according to research published in the September issue of Arthritis Care & Research.

THURSDAY, Oct. 9, 2014 (HealthDay News) -- The 2011 modification of the 2010 American College of Rheumatology (ACR) preliminary criteria for the diagnosis of fibromyalgia (2011ModCr) has acceptable diagnostic accuracy compared with the 1990 ACR criteria, according to research published in the September issue of Arthritis Care & Research.

Robert M. Bennett, M.D., from the Oregon Health & Science University in Portland, and colleagues validated the 2011ModCr and developed alternative criteria in a sample of patients with pain disorders. Data were collected from eight clinicians from geographically varied locations in the United States. Complete data were assessed for 321 patients.

Read more…

 
 
 

Serum cytokines in patients with moderate and severe ME/CFS

International news

Thursday 16 October 2014

 

From ProHealth:

Test tubes
 

Serum cytokines in patients with moderate and severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)

By Sharni L. Hardcastle et al.
www.ProHealth.com
October 10, 2014

By Sharni L. Hardcastle et al.

Abstract

Aims: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a disabling illness with an unknown aetiology and diagnosis is based on symptom-specific criteria. Immunological dysregulation and cytokine abnormalities are consistent in CFS/ME. As recent studies have highlighted the importance of assessing severity subgroups in the illness, the purpose of this study was to further examine the relationship between severity subgroups in CFS/ME, assessing Th1/Th2/Th17 and inflammatory cytokines in severe (housebound) and moderate (mobile) CFS/ME patients.

Read more…

 
 
 

Large grant awarded to Griffith CFS researcher

Australian news

Wednesday 15 October 2014

 

From Griffith University:

 

Professor Sonya Marshall-Gradisnik
Professor Sonya
Marshall-Gradisnik
 

Large grant awarded to Griffith CFS researcher

By Louise Durack
October 13, 2014

Providing increased services for Chronic Fatigue Syndrome sufferers will be the focus of Griffith research following the award of a $1.85m grant to one of Australia’s foremost authorities on the condition.

Professor Sonya Marshall-Gradisnik from the National Centre For Neuroimmunology and Emerging Diseases (NCNED) at Griffith University was awarded the research grant from the Stafford Fox Medical Research Foundation as part of her team’s bid to accelerate the diagnosis and implementation of appropriate treatment.

Otherwise known as Myalgic Encephalomyelitis (ME), CFS is a highly debilitating disorder characterised by profound fatigue, muscle and joint pain, cerebral symptoms of impaired memory and concentration, impaired cardiovascular function, gut disorder and sensory dysfunction such as noise intolerance and balance disturbance.

Many cases can continue for months or years. It is believed to affect around 460,000 Australians.

In July this year, the NCNED launched a new CFS/ME specialised clinic and smartphone app, both aimed to help patients manage their illness and improve health outcomes.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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Last modified: October 21, 2014