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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Support

Eco Pest Control

ME/CFS Australia (SA) Inc wishes to thank Eco Pest Control for its support of the Society.

BankSA & Staff Charitable Fund

ME/CFS Australia (SA) Inc wishes to thank BankSA & Staff Charitable Fund for its support of Talking Point, the Society’s official journal.

Society Seminars for 2015
Saturday 14 February 2015
1:30pm
Speaker: Dr Roger Spizzo, Prospect Medical Centre
Topic: "The Fatigue Spectrum and the Gut"
Saturday 13 June 2015
1:30pm
Saturday 8 August 2015
1:30pm
Saturday 14 November 2015
1:30pm
Details for all seminars…

ME/CFS Diagnostic Criteria and Guidelines

www ME: International Consensus Criteria
(Journal of Internal Medicine, Aug 2011)
PDF

For GPs:
ME – Adult & Paediatric:
International Consensus Primer for Medical Practitioners
(2012)
(PDF, 1.49 MB)

PDF

ME/CFS: A Clinical Case Definition and Guidelines for Medical Practitioners
– An Overview of the Canadian Consensus Document
(2005)
(PDF, 1 MB)

  Note: See here for an overview on the Canadian Consensus Criteria for Fibromyalgia (PDF, 1.70 MB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(English) (PDF, 460 KB)

PDF

ME/CFS Guidelines for GPs
(South Australian Department of Health)
(German) (PDF, 186 KB)

PDF

For Psychiatrists (in English):
CFS: Assessment and Treatment of Patients with ME/CFS – Clinical Guidelines for Psychiatrists
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 460 KB)

PDF

For Psychiatrists (in German):
Chronic Fatigue Syndrom: Diagnose und Behandlung von Patienten mit ME/CFS – Klinische Leitlinien für Psychiater
(Eleanor Stein MD FRCP[C], 2005)
(PDF, 313 KB)

 
Australian ME/CFS Societies
NATIONAL
ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au
AUSTRALIAN CAPITAL TERRITORY
ACT ME/CFS Society, Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au
NEW SOUTH WALES
ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.me-cfs.org.au
Email: admin@me-cfs.org.au
NEW SOUTH WALES
The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org
NORTHERN TERRITORY
ME/CFS Australia (Northern Territory)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au
QUEENSLAND
ME/CFS/FM Support Association Qld Inc
Address: c/o Mission Department, St. Vincent’s Hospital, Toowoomba Qld 4350
Phone: (07) 4632 8173
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com
Facebook Page
SOUTH AUSTRALIA
ME/CFS Australia (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237 ('834 MECFS')
Support line: (08) 8346 3237 or 1300 128 339 for country callers
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au
TASMANIA
ME/CFS Australia (Tasmania)
Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au
VICTORIA
ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au
WESTERN AUSTRALIA
The ME/CFS Society of WA (Inc)
Address: The Centre for Neurological Support, The Niche, 11 Aberdare Road, Nedlands, Perth WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

PDF

List of Australian ME/CFS organisations
(PDF, 19 KB)

Word

List of Australian ME/CFS organisations (Word, 41 KB)

 

 

Fibromyalgia Flares: A Qualitative Analysis

South Australian news

Monday 1 February 2015

 

ME/CFS Australia (SA) IncOur first seminar for 2015 is on St Valentine's Day, Saturday 14 February at 1:30 pm.

The speaker will be Dr Roger Spizzo. His topic will be "The Fatigue Spectrum and the Gut."

Dr Spizzo is an ACNEM General Practitioner at the Prospect Medical Centre.

Dr Spizzo's main professional interests as an Integrated GP are: all areas of nutritional medicine, bio-identical hormones, gut dysfunction, and fatigue states.

As a member of the Australian College of Nutritional and Environmental Medicine, he will discuss the fatigue spectrum in relation to the digestive system.

We expect it to be a very interesting seminar and hope to see you there.

Read more…

 
 
 

BBC Documentary Series Features ME/CFS And Fibromyalgia Sufferers

International news

Sunday 1 February 2015

 

Operation Meet The Street
 

A recent episode of the BBC One documentary series about loneliness, Operation Meet the Street, featured ME/CFS sufferer Kate, and Fibromyalgia sufferer Simon.

The segment on Kate begins at 4:22.

The segment on Simon begins at 17:22.

Operation Meet The Street, Episode 4 (18 December 2014):

Read more…

 
 
 

A Life Of Helping Women

South Australian news

Saturday 31 January 2015

 

From South Australian newspaper the Eastern Courier Messenger:

Effy Kleanthi
Effy Kleanthi has been
awarded an OAM for her
social work and position
on NP&SP Council.
(Picture: Tricia Watkinson)
 

A Life Of Helping Women

Eugene Boisvert
Eastern Courier Messenger
28 Jan 2015

THE difference between the opportunities afforded to her mother and grandmother in Greece and her life in Australia inspired Effy Kleanthi to improve women’s lives at home and away.

Mrs Kleanthi, 55, of Norwood, was awarded an Order of Australia Medal (OAM) on Australia Day.

The award recognises Mrs Kleanthi’s work with the UN’s Development Fund for Women, as a social worker and as a Norwood, Payneham & St Peters councillor from 2000 to 2006.

Read more…

 
 
 

Patients With RA, Fibromyalgia Less Likely To Achieve Remission, Low Disease Activity

International news

Friday 30 January 2015

 

From Healio Rheumatology:

Healio
 

Patients with RA, fibromyalgia less likely to achieve remission, low disease activity

By Shirley Pulawski
January 28, 2015

Patients with both rheumatoid arthritis and fibromyalgia were less likely to achieve remission or low disease activity scores, according to finding presented recently.

The study comprised 697 individuals with rheumatoid arthritis from the ESPOIR cohort, a 10-year follow-up study of patients with early arthritis in France. Patients were recently diagnosed with early arthritis and not had not received disease-modifying anti-rheumatic drugs. Of the 697, 120 were diagnosed with fibromyalgia (FM) at baseline.

Read more…

 
 
 

Knowing M.E., Knowing You

International news

Thursday 29 January 2015

 

From The Huffington Post U.K.:

The Huffington Post
 

Knowing M.E, Knowing You

By Stephen Tudor
Editor of The Daisy Cutter and occasional eater of dairy.
Posted: 26/01/2015 17:41 GMT
Updated: 26/01/2015 17:59 GMT

Fifteen years ago I came down with the flu that turned into a prolonged post-viral thingy which was eventually diagnosed as M.E. I recall being very relieved at the news as I feared it might be something long-term.

Basic research in the time of dial-up and land-lines revealed that this was a woefully misunderstood condition that only seemed to strike middle-class teens called Rachel or Isabelle and whose existence was actively disbelieved by many. This last part was more than a little confusing to me.

From being a normal lad who went out clubbing, drinking, watching City and failing hopelessly with girls I now found myself waking each morning with red stinging eyes as if I'd been up for three days straight. My head would be swirling with a thick pea souper that Jack the Ripper could run amok in while my legs were aflame with agony. I barely had enough strength to lift a brew and generally felt like I'd gone ten rounds with Carl Froch after calling his girlfriend a minger. All this struck each and every day in the first few minutes of consciousness and it usually went downhill fast from there. Yet apparently it was all a figment of my imagination.

Read more…

 
 
 

IACFS/ME Chides NIH For Inadequate Funding

International news

Wednesday 28 January 2015

 

From ProHealth:

Money (US)
 

IACFS/ME Chides NIH for Inadequate Funding

www.ProHealth.com
January 27, 2015

On December 9 and 10, 2014, the Pathways to Prevention (P2P) workshop was held on the NIH campus, in Bethesda, Maryland. The workshop was sponsored by the Office of Research on Women’s Health (ORWH), which is the division of the NIH responsible for ME/CFS. The purpose of the workshop was to identify gaps in ME/CFS research, and to address key questions about incidence, prevalence, diagnosis and subtyping.

The P2P published its Draft Report on December 18, 2014. The public was invited to submit comments until January 16, 2015. Many individuals and organizations had criticisms of the Draft Report, which they formally submitted. You can read some of these comments on Jennie Spotila’s blog, Occupy CFS.

The International Association of CFS/ME (IACFS/ME) is the largest international group the largest international group of clinicians, researchers, and other professionals dedicated to the care and research of patients with ME/CFS. Their membership includes all of the major clinicians and researchers in the field.

Read more…

 
 
 

New US Public Transport Ads Focus On Fibromyalgia And Other Invisible Disabilities

International news

Tuesday 27 January 2015

 

From EmaxHealth:

Washington Metropolitan Area Transit Authority logo
 

New metro ads focus on fibromyalgia and other invisible disabilities

By Lana Bandoim
2015-01-09 22:28

The Washington Metropolitan Area Transit Authority is focusing on people with health problems and disabilities that may not be visible to others. A new group of ads has been created with help from the Accessibility Advisory Committee (AAC) to remind people to leave seats open for others. It is a positive step for the people who use the metro in Washington D.C. and cannot find a seat despite their disability.

The priority seats meant to be used by people with disabilities are often taken by others who refuse to give them up. If a person has an invisible illness such as fibromyalgia, then it is almost impossible to convince others to move. The Washington Metropolitan Area Transit Authority (WMATA) has released ads that state: “Not all disabilities are visible. That's why it's important to keep priority seating clear at all times.” These reminders are meant to help people who need the seats and often cannot get them.

Read more…

 
 
 

For previous news items, visit our full “In the News” archive:

In the News


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