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ME/CFS Australia Ltd

 
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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Links on this page
ME/CFS societies (Aus)
ME/CFS societies (int’l)
ME/CFS information (Aus)
ME/CFS information (int’l)
Research/Medical (Aus)
Research/Medical (int’l)
Research/Medical (int’l)
Medical journals
ME/CFS activist sites
Youth-related
Diet-related
Miscellaneous


Contact list – Australian ME/CFS Societies

Contact details of all Australian ME/CFS Societies are available for download:

aus_societies.pdf (PDF, 27KB); or

aus_societies.doc (Word, 39KB)


Bulk SMS system

Message Media

ME/CFS Australia (SA) Inc’s bulk SMS system is provided by messagemedia, the SMS specialists.

Links

ME/CFS societies

Australian

National

 

ME/CFS Australia Ltd
Address: PO Box 7100 Dandenong VIC 3175
Phone: (03) 9793 4500
Fax: (03) 9793 1866
Web: www.mecfs.org.au
Email: ceo@mecfs.org.au

ME/CFS Australia
   

Australian Capital Territory

 

ACT ME/CFS Society Inc
Address: c/o SHOUT, PO Box 717, Mawson ACT 2607
Phone: (02) 6290 1984
Fax: (02) 6290 4475
Web: www.mecfscanberra.org.au
Email: mecfsadmin@shout.org.au

ACT ME/CFS Society Inc
   

New South Wales

 

ME/CFS Society of NSW Inc
Postal address: PO Box 5403, West Chatswood NSW 1515
Office address: Suite 204, 10 Help Street, Chatswood NSW 2067
Phone: (02) 8006 7448
Web: www.mecfsnsw.org
Email: admin@me-cfs.org.au

ME/CFS Society of NSW
   

New South Wales

 

The ME/CFS & FM Association NSW
Web: www.mecfsnsw.org

 
   

Northern Territory

 

ME/CFS Australia (Northern Territory)
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-nt.org.au


ME/CFS Australia (Northern Territory)
   

Queensland

 

ME/CFS/FM Support Association Qld Inc
Postal address: 27 Scott Street, Toowoomba QLD 4350
Phone: (07) 4632 8173
Phone: (07) 4659 5239
Web: www.mecfsfmq.org.au
Email: mefmtba@bigpond.com

ME/CFS/FM Support Association Qld Inc
   

South Australia

 

ME/CFS Society (SA) Inc
Postal address: PO Box 28, Hindmarsh SA 5007
Office address: 266 Port Road, Hindmarsh SA 5007
Phone: (08) 8346 3237
Web: www.sacfs.asn.au
Email: sacfs@sacfs.asn.au

ME/CFS Society (SA) Inc
   

Tasmania

 

ME/CFS Australia (Tasmania)
Postal Address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-tas.org.au

ME/CFS Australia (Tasmania)
   

Victoria

 

ME/CFS Australia (Victoria)
Office address: 2/240 Chapel Street, Prahran, VIC, 3181
Postal address: PO Box 120, Prahran, VIC 3181
Reception: (03) 9529 1344
Support Line: (03) 9529 1600
Web: www.mecfs-vic.org.au
Email: admin@mecfs-vic.org.au

ME/CFS Australia (Victoria)
   

Western Australia

 

ME/CFS Society of Western Australia
Address: The Centre for Neurological Support,
The Niche, 11 Aberdare Road Nedlands, Perth
WA 6009
Phone: (08) 9346 7477
Fax: (08) 9346 7534
Web: www.mecfswa.org.au
Email: info@mecfswa.org.au

ME/CFS Society of WA

International

Canada  

FM-CFS Canada
A national charity helping the more than one million Canadians with FM and CFS/ME, the organiser of Canada’s first national public awareness campaign, working to educate physicians through relationships with medical associations, and home of the Patient Registry, where patients volunteer to help researchers.

FM-CFS Canada

National ME/FM Action Network
The National ME/FM Action Network is a registered, charitable, non-profit organization dealing with ME/CFS and FM, offering support, advocacy, education and research into the many and varied anomalies connected with these illnesses.

National ME/FM Action Network
Italy  

Associazione Malati di CFS
The Associazione Malati di CFS is trying to find new resources for CFS research, and is helping the growth of a CFS project at the University of Pavia. The association is also trying to convince Italy’s politicians that the problem of CFS needs much more attention than it is given now.

Associazione Malati di CFS
New Zealand  

ANZMES (Australia and New Zealand ME/CFS group)
ANZMES is proactive and busy serving existing members and assisting those who are newly diagnosed, as well as helping those who may only suspect they are sufferers.

ME ANZMES
UK  

Action for M.E.
Action for M.E. is a national charity campaigning to improve the lives of people with ME in the UK.

Action for ME

Leeds & District M.E. Group
The Leeds & District M.E. Group is for people who suffer from ME, their carers, relatives, friends and anyone with an interest in ME.

Leeds & District M.E. Group

The ME Association
The ME Association, founded in 1976, fulfils its strategic aims by funding and supporting research and providing information and support, education and training.

The ME Association

ME Support in the Midlands

 

Overton Studios Trust
A UK Registered Charity providing holistic online and offline support for sufferers of ME, CFS, PVS, CFIDS and fibromyalgia.

 

The 25% M.E. Group
This UK site offers information and support for severely affected ME sufferers.

The 25% M.E. Group
USA  

International Association for CFS/ME
The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment.

IACFS/ME

CFIDS Association of America
The CFIDS Association of America is the largest and most active charitable organization dedicated to conquering chronic fatigue syndrome.

CFIDS Association of America

The Unify Coalition
Advocacy and help for “invisible” illnesses.

The Unify Coalition
Top of page Up

Best sites for ME/CFS information

Australia

Alison Hunter Memorial Foundation
Alison Hunter was a young Australian who died from complications from ME/CFS. This foundation was started by her mother to honour her, and is a great source of information.

Alison Hunter Memorial Foundation

International

About.com: Fibromyalgia & Chronic Fatigue Syndrome
This is the premiere Web site for information on living and dealing with this illness. Run by Adrienne Dellwo, it is a great site to check out.

About.com

CFIDS Association of America
One of the biggest ME/CFS/CFIDS organisations in the world, they have an excellent journal as well as a specialist research publication – go to the Archives section to read back-issues.

CFIDS Association of America

Het Alternatief
Het Alternatief (The Alternative) is a Dutch website with a lot of biomedical information about ME.

Het Alternatief

The ME/CFS Information Page
By Mary Schweitzer. A great source of links to other sites.

 

The CFIDS Report
By Craig Maupin. Cutting-edge news and commentary for the CFIDS community.

The CFIDS Report

CFS Italia
Informative site from Italy (in Italian).

CFS Italia

CFS News
Tons of links to other sites – a great resource.

 

MayoClinic.com: Women’s Health: Chronic Fatigue Syndrome
A comprehensive overview of ME/CFS in the Women’s Health section of the Mayo Clinic’s website.

Mayo Clinic

M.E. Support
M.E. Support is one of the leading websites on Myalgic Encephalomyelitis providing information, advice and support.

M.E. Support

Phoenix Rising
By Cort Johnson. This website is a library that CFS patients and interested parties can access in order to get overviews of particular areas of CFS research.

CFS Phoenix

ProHealth ImmuneSupport.com
A great place to find out about news, research and treatments. Immune support is run by a private nutritional supplement company.

CFS Phoenix
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Research/Medical

Australian

Bioscreen
Bioscreen is a specialist medical testing laboratory with current analytical testing information related to chronic fatigue and chronic pain related disorders.

Bioscreen

CFS Discovery
Dr DP Lewis has been involved in the care and management of patients with chronic fatigue syndrome (CFS) since 1985. In order to provide effective treatment for his patients, which now number more than one thousand, Dr Lewis has established a medical practice that is dedicated solely toward the diagnosis and treatment of CFS.

CFS Discovery

Dr Mark Donohoe’s Website
Dr Donohoe has been one of Australia’s best known doctors in the field of environmental medicine, and has been involved in many areas of change within medicine, especially regarding the environment’s impact on human health.

Dr Mark Donohoe's Website

International

CDC (Centers for Disease Control and Prevention): Chronic Fatigue Syndrome
This web site offers information about Chronic Fatigue Syndrome and its diagnosis and treatment.

CDC

Center for Complex Infectious Diseases
The primary mission of CCID is to determine the nature, origin, disease associations, modes of transmission, methods of diagnosis and responses to therapy of complex infectious diseases, and to disseminate such information.

Center for Complex Infectious Diseases

East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre
This UK site aims to provide useful information about the specialist services available within The Improvement Network and also to guide you to information that they consider to be helpful in the management of Chronic Fatigue Syndrome.

East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre

Institute for Molecular Medicine
The mission of the Institute for Molecular Medicine is to contribute to the understanding of and the prevention and cure of catastrophic human chronic diseases, such as autoimmune diseases, fatigue illnesses, rheumatic diseases, cancer, AIDS, and infectious and genetic diseases.

Institute for Molecular Medicine

MedRefs Medical References Management Database & The Chronic Fatigue Syndrome & Fibromyalgia Database
A Microsoft Access database of medical references to ME/CFS.

MedRefs

National CFIDS Foundation
Founded in 1997 by two 14-year CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) advocates, the goals of the Foundation are to help fund medical research to find a cause, expedite treatments and eventually a cure for this devastating disease.

National CFIDS Foundation
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Diet-related

Complaints List: A Guide for Consumers About Food Safety
A list of resources for anyone interested in food safety.

Complaints List

Food Intolerance Network
Author Sue Dengate (pictured) provides information about the effects of food on behaviour, health and learning in children adults.

Sue Dengate
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Journals

HighWire Press
A division of the Stanford University Libraries, HighWire Press hosts the largest repository of high impact, peer-reviewed content, with 1,065 journals and more than 4 million full text articles from over 130 scholarly publishers.

HighWire Press

Free Medical Journals
Over the next few years, many important medical journals will be available online, free and in full-text. The unrestricted access to scientific knowledge will have a major impact on medical practice. Open access medical textbooks will soon become the standard in medical publishing.

Free Medical Journals

Free Full Text
FreeFullText.com provides direct links to over 7000 scholarly periodicals which allow some or all of their online content to be viewed by ANYONE with Internet access for free (though some may require free registration). The issue(s) which are available for free are indicated for each title on the alphabetical periodical lists.

Free Full Text
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ME/CFS activist sites

Blue Ribbon for the Awareness of ME
UK-based movement seeking to raise awareness around the world about ME/CFS.

BRAME
R.E.S.C.I.N.D.
R.E.S.C.I.N.D. is Repeal Existing Stereotypes about Chronic, Immunological and Neurological Diseases.
 
Top of page Up

Youth-related

Association of Young People with ME (AYME)
AYME is a UK-based independent registered charity dedicated to giving help, friendship, support and vital contact to children and young people with ME.

AYME

Band-Aides and Blackboards
A fantastic resource for kids, teens and adults. Covers a wide range of issues concerned with growing up and coping with a medical problem.

Band-Aides and Blackboards

CFIDS in Youth
From the CFIDS Association of America.

CFIDS Association of America

For Parents of Sick and Worn-Out Children
When your child persistently suffers from symptoms of Chronic Fatigue and related syndromes, you as a parent have special kinds of problems. This page is devoted to developing and pointing toward help on these problems.

 

Young Action Online
Our central principle is to create and maintain a concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.

Young Action Online
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Miscellaneous

An Eye Opening Guide to Chronic Fatigue Syndrome
A list of links providing information and support for CFS sufferers.

 

Axford’s Abode: ME/CFS
The ME/CFS Web site at Axford’s Abode aims to provide factually accurate, reliable and up-to-date information about chronic fatigue syndromes. The summaries of the research are compiled and checked by qualified health professionals with more than ten years experience in this field. The editor is a chartered health psychologist and psychophysiologist who has followed the research on ME since 1984.

Axford's Abode

Brainfog
Keeping the lighter side of ME/CFS and life well and truly alive! Brainfog flies in the face of all preconceived notions that the illness ME/CFS is a creation of psychological disorders.

Brainfog

CFS Days
Be it information on Chronic Fatigue Syndrome, Fibromyalgia or the healing tonic of a good laugh at them, this is the place to go.

CFS Days

Chronic Fatigue Treatments
Chronic Fatigue Treatments is a forum for people to talk about what treatments have worked for them.

Chronic Fatigue Treatments

The Chronic Syndrome Support Association
The CSSA was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done (and potential research that needs to be done) on serious, yet invisible, chronic immunological and neurological diseases.

CSSA

Co-Cure
This mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness commonly referred to as Chronic Fatigue Syndrome and Fibromyalgia.

Co-Cure

Drug3k
Drug3k is a website that provides information on prescription drugs.

Drug3k

Energy Meltdown
This website, by Pippa Kearnes, contains miscellaneous contributions from ME/CFS sufferers.

Energy Meltdown

The Environmental Illness Resource
This website, by Matthew Hogg, provides information and resources for sufferers of Multiple Chemical Sensitivity, ME/CFS, and Fibromyalgia.

The Environmental Illness Resource

Health Consumers Alliance South Australia
The Health Consumers Alliance Inc of South Australia (HCA) is the not for profit, peak community organisation for health consumers using SA health services.

HCA

Healthline: Fibromyalgia Learning Center
As consumers increasingly migrate online to self-manage their health, more companies are realizing the importance of delivering rich, contextually relevant health information to help their customers make better decisions. Healthline Networks powers intelligent health search, advertising and content services to a growing network of publishers, advertisers, destination sites and health plans.

Healthline

Healthopedia.com
Healthopedia.com is a medical and health consumer information resource containing comprehensive and unbiased information in patient-friendly language from trusted sources on over 1,500 health topics (including Chronic Fatigue Syndrome), 70 focussed health centers, and more than 11,000 drugs and medications.

Healthopedia.com

Help-With-Arthritis-Pain.com
A website designed to help with the pain of arthritis and other joint diseases such as bursitis, gout and fibromyalgia.

Human Services Finder

Human Services Finder
The Human Services Finder is the place to access information about health, housing, family and community services from the private, public and community sectors in South Australia.

Human Services Finder

Irritable Bowel Tales
Information on the range of treatments available for IBS, from drugs to alternative therapies.

IBS Tales

The Long-term Medical Conditions Alliance
LMCA is the umbrella body for national voluntary organisations working to meet the needs of people with long-term health conditions.

The Long Term Medical Conditions Alliance

MCS-Aware
MCS Aware was started by Nicki Greenham as a support network for people living with chemical, food, and electro-sensitivities.

MCS Global Awareness

MCS Global Awareness
A website by Diane Drayton Buckland that focuses on raising awareness about global chemical pollution.

MCS Global Awareness

The ME Tips Collection
Zoë Williams maintains this site which contains some great tips on living with ME/CFS.

 

National Welfare Rights Network
Australia's National Welfare Rights Network provides free and independent information, advice and representation about Social Security law and its administration.

National Welfare Rights Network
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