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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Multimedia

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YouTube recommendations

Video

Stanford unravels the mysteries of Chronic Fatigue Syndrome
Wednesday 22 October 2014: A video from Stanford University.

Dr Rosamund Vallings ME/CFS lecture
Sunday 28 September 2014: A video of Dr Rosamund Valling giving a talk at the University of Otago in New Zealand.

UK PhD student dumps shoes to raise Chronic Fatigue Syndrome awareness
Friday 26 September 2014: A Newcastle PhD student is raising awareness of a medical syndrome by casting aside his shoes and walking the streets barefoot.

ME versus psychiatric disorders
Thursday 25 September 2014: A video in which Professor Leonard A Jason talks about the differences between ME and psychiatric disorders.

UK Fibromyalgia sufferer to stand as an MP in forthcoming election
Wednesday 24 September 2014: Joe Neilson, who has Fibromyalgia and macular degeneration, is standing as an independent MP for the UK's Brighton Kemptown constituency in the scheduled 2015 general election.

Documentary: Perversely Dark
Friday 8 August 2014: Perversely Dark, a documentary about two of the sickest people in Norway, is now available on demand.

The Surviving ME/CFS Show – "Celebrate the wins"
Friday 1 August 2014: A webacst from ME/CFS sufferer Julian Roath.

I Remember Me documentary
Wednesday 30 July 2014: I Remember Me is a biographical documentary by Kim Snyder about ME/CFS.

"I want to tell people with ME that there is hope"
Wednesday 16 July 2014: UK ME/CFS sufferer Emma Donohoe, 20, is featured on television program ITV Fixers.

Lack of support for ME sufferers makes life even harder
Monday 7 July 2014: A new study by the UK's University of Southampton has found that one third of those affected by the condition ME/CFS have no access to specialist care.

Brief report from Dr. Prigden on the Fibromyalgia antiviral trial
Wednesday 25 June 2014: Antiviral trials in the US for Fibromyalgia may change how the disease is viewed, from a poorly treated central nervous system disorder to a disorder characterized by a potentially treatable herpesvirus infection.

ME/CFS Podcast
Thursday 19 June 2014: Karen, an ME sufferer in Manchester (UK), has created a YouTube channel to share info about ME/CFS.

US woman with medical condition pushes for legalization of marijuana
Wednesday 18 June 2014: New York Fibromyalgia sufferer Sue Kaszynski is pushing for medical marijuane to be legalised in her state.

UK woman handwrites 'lovely letters' to thousands around the world
Friday 13 June 2014: UK ME/CFS sufferer Jodi Ann Bickley pens letters of encouragement to people worldwide.

"Living Hell": ME/CFS documentary from 1993
Sunday 1 June 2014: Living Hell is a 1993 documentary from the US that shows some things don't change after 20 years.

Toronto woman left stranded as EMS reduces non-emergency transfers
Friday 30 May 2014: A Toronto woman who has been bedridden for nearly 11 years due to ME/CFS says she has been unable to attend medical appointments since the city's emergency medical services recently began phasing out non-emergency transfers.

Chronic Fatigue hope
Sunday 18 May 2014: A video segment from ABC television's 7.30 Tasmania program.

My life with severe ME
Saturday 10 May 2014: A YouTube video from UK ME sufferer Ruth Braham.

The Microbe Discovery Project
Sunday 4 May 2014: A call for people to donate to a study involving "a cutting-edge hunt for the causes of ME/CFS in the gut".

With significant advances but little money, CFS research tries crowdfunding
Wednesday 30 April 2014: New findings are encouraging in the fight against Chronic Fatigue Syndrome – but the US Government still provides funding so minimal, one researcher is turning to crowdfunding.

PACE Trial results under scrutiny
Tuesday 29 April 2014: An analysis of the claims by the UK PACE Trial that Cognitive Behaviour Therapy promotes recovery for patients with CFS/ME.

Fibromyalgia sufferer to swim the English Channel
Monday 28 April 2014: A profile of US Fibromyalgia sufferer Katie Pumphrey who plans to swim the English Channel in August 2015.

2014 IACFS/ME Conference summary by Dr. Komaroff
Saturday 19 April 2014: US ME/CFS rsearcher Dr. Anthony Komaroff presents a video summary review of the 2014 IACFSME conference.

Fibromyalgia drug being researched in Tuscaloosa
Monday 7 April 2014: A US-based biotech company is finished with phase two of testing for a drug that could help Fibromyalgia patients.

Pain Management Network
Friday 28 March 2014: A website created by New South Wales Health to help chronic pain patients.

Woman with chemical allergies lives outdoors to avoid illness
Wednesday 19 March 2014: For Vanessa Gaudette, living in a tent brings relief from a nightmare known as Multiple Chemical Sensitivity.

ME/CFS video: "Mom Needs To Lie Down Now"
Tuesday 11 March 2014: This 11-minute video from Canada, featuring a doctor and three patients, might be ideal to help your family and friends understand Chronic Fatigue Syndrome a bit better.

How Fibromyalgia is often undertreated
Sunday 2 March 2014: A video in which Dr. Kevin White explains how many doctors undertreat Fibromyalgia as well as why they should be much more vigilant with their FM patients.

HealClick.com: New patient community seeks to turn patient sharing into a tool for research
Tuesday 18 February 2014: A profile of HealClick, an online resource for chronic pain sufferers.

British doctor wants to rescue ME patient held at Danish hospital
Thursday 13 February 2014: British doctor, Nigel Speight, who specializes in the devastating disease Myalgic Encephalomyelitis (ME) has joined an international bid to free a young ME patient who was incarcerated in a Danish hospital a year ago.

The Low FODMAP Diet app
Sunday 9 February 2014: A YouTube video featuring Monash University's Low FODMAP Diet iPhone app.

Superfish suffering from chronic fatigue
Thursday 30 January 2014: Just days after being named Young Australian of the Year, Paralympic swimmer Jacqueline Freney has revealed she is battling Chronic Fatigue Syndrome.

Fundraising for ME/CFS Alert
Friday 17 January 2014: Llewellyn King, journalist and creator the ME/CFS Alert series of YouTube videos, is asking for donations to help him continue making the videos.

Online support for chronic illness sufferers
Monday 13 January 2014: A University of Wisconsin-Eau Claire student hopes a website she's part of launching will help people living with chronic illnesses manage their symptoms better and potentially help find a cure.

Medical Edge: Fibromyalgia study
Friday 27 December 2013: Dr. Lesley Arnold is one of a handful of researchers in a US study trying to find out what's happening in the brain and the body when people experience symptoms from Fibromyalgia pain.

UK woman with ME/CFS begins 'Share A Star' charity
Friday 20 December 2013: A UK woman who has spent years bed-ridden with ME/CFS has set up a charity to support children who spend life indoors due to illness.

Fibromyalgia patient discovers new talent after diagnosis
Wednesday 18 December 2013: A profile of US singer-songwriter and Fibromyalgia sufferer Lisa Adrian.

ME/CFS and palpitations
Thursday 21 November 2013: As part of an ongoing series of ME/CFS video seminars sponsored by the Dutch ME/CFS Association, Dr. Frans C. Visser, cardiologist, speaks about heart symptoms in Chronic Fatigue Syndrome and ME.

Earlier symptoms symptoms predicted Fibromyalgia in elderly women
Saturday 16 November 2013: The number and severity of symptoms measured 17 years before diagnoses were predictive of Fibromyalgia in elderly women, according to research presented at the American College of Rheumatology annual meeting.

Woman felled by 'devastating disease doctors have never heard of'
Friday 1 November 2013: A profile of ME/CFS sufferer Jennifer Brea and her documentary film project, Canary in A Coalmine.

Canary In A Coalmine: Kickstarter campaign
Sunday 27 October 2013: A Kickstarter "crowdfunding" campaign to help finalise the publication of the ME/CS documentary, Canary In A Coalmine.

Noted British composer John Rutter talks about his battle with ME/CFS
Sunday 20 October 2013: British composer of choral music, John Rutter, was recently interviewed by BBC 3 Radio about his new piece of music for the Royal Wedding of Prince William/Catherine Middleton, and his battle with ME/CFS.

Complex chronic diseases clinic opens in Canadian hospital
Saturday 5 October 2013: The Complex Chronic Disease Clinic, which recently opened at British Columbia's BC Women's Hospital & Health Clinic, is designed specifically for patients suffering from diseases such as Chronic Fatigue Syndrome, Fibromyalgia, and Lyme disease.

Goat's milk and God helping people
Monday 16 September 2013: Lynette “Nettie” Patterson, who started her own business out of her barn in Troup, Texas in 2012, says God and goat's milk has helped her.

WHAT ABOUT ME? documentary
Thursday 15 August 2013: Details about the upcoming documentary What About ME?.

Marine who fought Taliban, illness, and depression releases record
Wednesday 24 July 2013: A British Royal Marines bugler who battled with physical and mental health problems has released an album to support forces charities.

ME/CFS and blood circulation
Tuesday 18 June 2013: An article by Cort Johnson, with an accompanying video featuring Dr. Kenny De Meirleir, that discusses blood circulation in ME/CFS patients.

Rain and pain in Fibromyalgia
Thursday 6 June 2013: A study has found that Fibromyalgia pain and fatigue are not affected by weather conditions.

Doctors offer hyperbaric therapy to ease pain
Thursday 30 May 2013: In the US, more doctors are now offering hyperbaric therapy in their offices.

Video: Mind the Abyss (part 1)
Wednesday 24 April 2013: Mind the Abyss - Prodrome is the first part of a video series called Mind the Abyss, which is based on the ME/CFS experience of the filmmaker.

New psych disorder could mislabel sick as mentally ill
Sunday 14 April 2013: A newly-labeled psychiatric disorder has fueled a debate among patients and advocacy groups who fear that broader and "looser" criteria may make it easier for doctors to dismiss patients as mentally ill when in fact they have a physical illness.

UniSA's Ride for Pain
Friday 29 March 2013: The University of South Australia's Ride for Pain is a community cycling event that aims to raise awareness of the frequently overlooked issues of chronic pain.

ME/CFS Alert Episode 40
Sunday 3 February 2013: The latest episode of Llewellyn King's video series ME/CFS Alert features an interview with ME/CFS researcher Dr. John Chia.

Video: Panel of women with ME/CFS who have experienced pregnancy
Tuesday 22 January 2013: A presentation that provides a synopsis of expert opinion and the current scientific evidence, albeit scant, that addresses the experience of childbirth in women with Chronic Fatigue Syndrome.

Psychiatrist and journalist win prize for defending science
Tuesday 20 November 2012: In recognition of their efforts to champion science despite extreme opposition, a science journalist and psychiatrist have both received the 2012 John Maddox prize.

Michigan man walks to raise ME/CFS awareness
Monday 12 November 2012: Koerner Gray Buchta's 291-km trek across Michigan was done to raise awareness for ME/CFS, a syndrome he has. But it also acquainted him with the state and its people.

Walking across Michigan for Chronic Fatigue Syndrome
Saturday 27 October 2012: A West Michigan man is halfway through his journey walking across the state.

CFS Alert video: lacklustre response to CFSAC recommendations
Sunday 14 October 2012: A video in which CFS Alert co-hosts Llewellyn King and Deborah Waroff discuss GC-MAF (a treatment by Dr. Derek Enlander that is helping Deborah now) and the lack of HHS response to the CFS Advisory Committee’s recommendations.

Clinical exercise testing in ME/CFS research and treatment
Tuesday 9 October 2012: A video of a presentation by exercise physiologist Prof. Christopher Snell who makes the case for ME/CFS post-exercise testing.

Barbara Lewis allergic to modern life
Monday 1 October 2012: A profile of Barbara Lewis, a sufferer of hemical and electrical sensitivity, as well as others suffering from Multiple Chemical Sensitivity.

'No connection' between ME and two specific viruses
Wednesday 19 September 2012: Two particular viruses, XMRV and pMLV, have nothing to do with Chronic Fatigue Syndrome, despite earlier evidence of a link, a study has shown.

Smiling through pain: living on-air with Fibromyalgia
Saturday 28 July 2012: A profile of Susan Solovic, a successful entrepeneur, best-selling author, and television personality who also endures the chronic pain of Fibromyalgia.

In the end, it all came down to John Roberts
Saturday 30 June 2012: An article by Llewellyn King about the US's Affordable Care Act ("Obamacare") and what it may mean for Chronic Fatgue Syndrome sufferers.

Desperate, determined husband, caregiver launches effort to unite those affected by Fibromyalgia
Sunday 24 June 2012: John Obenchain is on a mission to unite Fibromyalgia sufferers, caregivers, and their families throughout the world.

Fibromyalgia: kicking the sugar habit
Friday 22 June 2012: An article by Dr. Jacob Teitelbaum about the benefits of reducing sugar intake for Fibromyalgia sufferers.

Fibromyalgia explained
Wednesday 20 June 2012: A video from US TV program Sonoran Living's House Calls (via YouTube).

Charges against Chronic Fatigue Syndrome researcher dropped
Saturday 16 June 2012: Criminal charges filed against Judy Mikovits, PhD, the lead researcher of now-retracted studies linking a mouse virus to Chronic Fatigue Syndrome, have been dropped.

Kayla Stewart turns to home-schooling to avoid bullies
Sunday 27 May 2012: A profile of Fibromyalgia and juvenile arthritis sufferer Kayla Stewart.

Multiple Chemical Sensitivity – Deborah's story
Friday 11 May 2012: A profile of MCS sufferer Deborah.

Cognition and CFS: What do we know?
Sunday 22 April 2012: A two-hour webinar on "Cognition & CFS: What Do We Know?", hosted by The CFIDS Association of America, and filmed on April 11, 2012.

Llewellyn won't snooze through tiresome disease
Saturday 14 April 2012: White House Chronicle host Llewellyn King has a fierce new interest: He has become a voice for people who suffer from an incurable disease, myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome.

Don't worry Jessica, we got it on film!
Wednesday 11 April 2012: A teenage girl with chronic fatigue syndrome will get to see her friend perform after all.

Petition regarding ME/CFS presented to NZ government
Wednesday 4 March 2012: A petition regarding ME/CFS was presented to the government in New Zealand.

A look at Chronic Fatigue Syndrome
Tuesday 27 March 2012: US TV station KHAS-TV News 5 takes a look at CFS.

Weekend House Call: Fibromyalgia
Sunday 11 March 2012: A video from US TV station WDSU New Orleans featuring Medical Editor Dr. Corey Hebert explaining Fibromyalgia.

Lyme disease victims ignored
Thursday 16 February 2012: South Australian current affairs television program Today Tonight has a story on Lyme disease.

ME sufferers call for help
Monday 13 February 2012: Thousands of people across Northern Ireland suffer from ME, also known as Chronic Fatigue Syndrome, but they say there is not enough medical help in the region.

Former YSU recruit Kaitlin Rohrs battles rare disease head on
Tuesday 3 January 2012: A profile of US basketballer and ME/CFS sufferer, Kaitlin Rohrs.

Interview with Katya Meyers
Tuesday 6 December 2011: An interview with professional triathlete Katya Meyers shown on American television program ABC News.

Voices from the Shadows – world premiere and discussion
Monday 28 November 2011: "Voices from the Shadows," a one-hour documentary about the commonplace abuse and neglect of gravely ill ME patients by the British government and medical establishment, premiered at the Mill Valley Film Festival.

Building compassion
Friday 18 November 2011: Thanks to good Samaritans, students and staff from Milwaukee's Community High School are working with the NARI Foundation to renovate Jacquelyn Windom's home.

Dr. Ian Lipkin and Dr. Mady Hornig use deep sequencing and proteomics to hunt CFS viruses
Saturday 12 November 2011: An article about research performed by Drs. Ian Lipkin and mady Horning.

18 very gentle stretches for Fibromyalgia & ME
Saturday 29 October 2011: Get Well From ME host Giles Meehan provides an easy-paced, conversational demonstration of gentle movements and stretches that he believes help him ease muscle tensions and improve tone.

Healthshare
Saturday 8 October 2011: Details about an Australia online social health network.

Body painter fights to overcome pain
Saturday 1 October 2011: A profile of Sam Wheeler, a New Zealand body artist with Fibromyalgia.

Bringing new life to comedy
Sunday 28 August 2011: A profile of New Zealand comedian Pauline Toye.

Chronic pain is no laughing matter, says comedian
Friday 26 August 2011: A profile of Kathy Buckley, a successful comedian who has guest starred on television shows like "Good Morning America" and "Touched By an Angel".

What might cause ME/CFS?
Monday 22 August 2011: An articulate summary of possible causes or triggers involved in this real, multi-system disease, by Giles Meehan.

Video: Exercise & ME-CFS Parts 1 and 2 by Dr. Klimas
Wednesday 3 August 2011: Dr. Nancy Klimas, MD, director of the CFS Clinic in Miami, has developed a three-part video series to help people at risk of post-exercise malaise (what the new International Consensus Criteria for ME call ‘post-exertional neuroimmune exhaustion’.

One on One: Kaitlin Rohrs
Friday 15 July 2011: A profile of US basketballer Kaitlin Rohrs whose sporting career was cut short due to ME/CFS.

Webcast of Dr. W. Ian Lipkin's WPI presentation
Sunday 10 July 2011: Mark O’Sullivan, who suffers from ME, looks at acquired brain injury in his latest novel.

"ME/CFS Alert" TV show debuts with Dr. Enlander
Wednesday 29 June 2011: The first segment of a new Web-based TV show – "ME/CFS Alert", hosted by Llewellyn King and Deborah Waroff – is an interview with Dr. Derek Enlander, MD.

Dr Bell's 25-year follow-up on Lyndonville Outbreak patients
Wednesday 1 June May 2011: Two videos of the Massachusetts CFIDS/ME & FM Association's 16 April event that feature ME/CFS specialist Dr. David Bell.

Elliot Krane: The mystery of chronic pain
Tuesday 31 May 2011: Pediatrician Elliot Krane talks about the complex mystery of chronic pain, and reviews the facts we're just learning about how it works and how to treat it.

Last day for voting in the Chase Community Giving Contest
Wednesday 25 May 2011: A reminder on how to vote in the Chase Community Giving Contest.

Entering the Chase Community Giving Contest
Thursday 19 May 2011: Instructions for entering the Chase Community Giving Contest.

ME/CFS State of the Knowledge Workshop: videos
Tuesday 19 April 2011: Both days (7 and 8 April 2011) of the ME/CFS State of the Knowledge Workshop are now available on video.

Stanford Medical Minutes: Chronic Fatigue Syndrome
Monday 18 April 2011: Stanford Medical Minutes are short interviews with clinical doctors and researchers from Stanford Hospital and Clinics discussing current topics in medicine.

Key moments of XMRV controversy at ME/CFS State of the Knowledge Workshop
Tuesday 12 April 2011: YouTube highlights of statements, debates, Q&As, presentations from the XMRV & Contamination segment of the NIH's 'chronic fatigue syndrome' (ME/CFS) State of the Knowledge workshop held in Bethesda, Maryland, April 7&8.

US singer Tony Terry talks about Fibromyalgia
Thursday 7 April 2011: The Fox network's MyFox Houston has a video (with accompanying text) featuring US singer Tony Terry who talks about how both he and his wife struggle with Fibromyalgia.

Video of Dr Jose Montoya speaking on CFS at Stanford University
Wednesday 16 March 2011: Dr Jose Montoya is seen discussing CFS and current research on diagnosis and treatment at a conference held at Stanford University’s alumni centre in California on 3 March 2011.

Study: Chronic Fatigue Syndrome is actual disease
Thursday 3 March 2011: Fox News reports on the recent discovery of unique proteins in the spinal fluid of people with ME/CFS.

The Music Works
Sunday 27 February 2011: The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. It's organised by and for people with disabilities.

Research breaks CFS stereotypes
Saturday 26 February 2011: Following on from yesterday's news item about unique proteins found in spinal fluid, CBS Evening News with Katie Couric featured a story on CFS.

Press coverage and responses to The Lancet PACE article
Monday 21 February 2011: The PACE Trial results published in The Lancet has resulted in major press coverage, along with strong responses.

Rapper hopes to raise awareness of CFS
Sunday 20 February 2011: Manuals of treatments used in the PACE trial have now been published online.

Unity, disagreement, and respect
Thursday 17 February 2011: An opinion piece by Mary Schweitzer.

Alison Johnson speaks at the NIEHS
Wednesday 12 January 2011: Alison Johnson, who has dedicated her life's work to bringing about full recognition of Multiple Chemical Sensitivity, gave a talk to officials at the National Institute of Environmental Health Sciences.

Brenton Brown wrote 'Everlasting God' amid Chronic Fatigue
Wednesday 22 December 2010: Popular Christian song Everlasting God arose out of Christian songwriter and worship leader Brenton Brown’s personal experience of God’s inexhaustible strength amid his chronic fatigue.

Five office visits
Tuesday 21 December 2010: A Christmas-themed CFS video on YouTube.

Delay in diagnosis significantly impact lives of patients with Fibromyalgia, new survey reports
Friday 3 December 2010: National findings reveal greater awareness, earlier diagnosis, and support help reduce daily life challenges.

CFS patients grow weary of doubt
Thursday 2 December 2010: Doctors and patients are roiled by a CDC study linking personality disorders to Chronic Fatigue Syndrome.

Laura Hillenbrand interview on MSNBC's Today Show
Tuesday 23 November 2010: MSNBC's Today Show has an interview with Laura Hillenbrand, author of her new book Unbroken, who talks about the book as well as her CFS.

Countess of Mar question on ME lifetime blood ban
Tuesday 16 November 2010: A video in YouTube featuring the Countess of Mar asking a question in the House of Lords about the UK band on blood donations from people with ME/CFS.

University researcher will receive millions for Fibromyalgia study
Thursday 11 November 2010: The CFIDS Associations of America is hosting a series of seminars broadcast over the web, “webinars,” on topics of high interest to people with CFS, loved ones and health care professionals.

UK sufferers banned from donating blood
Thursday 4 November 2010: A demonstration was held in London on Monday 1 November protesting the banning of UK ME sufferers from donating blood.

Fibromyalgia sufferer on The Dr Oz Show
Wednesday 6 October 2010: Audience member Mary Louise was diagnosed with fibromyalgia and has the Epstein Bar Virus [sic].

Dr Anne McIntyre interview with Ean Proctor
Thursday 12 August 2010: Dr Anne McIntyre interviewed ME/CFS sufferer Ean Proctor for a segment on the UK's Channel Four program Frontline.

Video of lecture by Dr Anthony Komaroff
Wednesday 23 June 2010: The Massachusetts CFIDS/ME & FM Association is pleased to present the video of Dr. Komaroff's recent lecture to its Association.

Documentary interview with two girls with CFS
Saturday 8 May 2010: There is a video on YouTube of an interview with two women who talk about having ME/CFS.

What's old is new again?
Saturday 13 March 2010: R.E.S.C.I.N.D. has an interesting video from 1996.

Theda's desperate fight against a chronic killer
Wednesday 3 March 2010: Western Australian newspaper WA Today has a profile of ME/CFS sufferer Theda Myint.

New YouTube channel: Waking The World Up To M.E.
Thursday 21 January 2010: David Foxen is a young man from the UK who has set up a YouTube channel called Waking The World Up To M.E. in order to highlight the disease.

Wilhelmina Jenkins
Tuesday 13 October 2009: Wilhelmina Jenkins, a spokesperson for the "The Faces of CFS" exhibit, appears in a video talking about life with ME/CFS.

Video on ABC News
Wednesday 30 September 2009: ABC News on its Good Morning America: Health program has an interview with Donnica Moore MD.

Open Door: ME
Tuesday 22 September 2009: Open Door is a New Zealand television program that consists of a series of documentaries made by members of the community.

Fibromyalgia discussed on "The Doctors"
Saturday 23 May 2009: US TV program The Doctors discussed Fibromyalgia on a recent episode.

IACFS/ME Conference videos
Monday 27 April 2009: The Chronic Fatigue Syndrome Support Group blog at DailyStrength has provided a list of all available videos from the 9th IACFS/ME Conference.

Sleepydust video
Friday 24 April 2009: Sleepydust has produced a video of an overview of ME/CFS.

Low-dose naltrexone
Thursday 23 April 2009: WebMD reports on successful trials involving naltrexone, a drug used for easing the effects of heroin and alcohol withdrawal.

Whittemore Peterson Institute claims they can reverse CFIDS/ME
Wednesday 22 April 2009: “TeaBisqit”, a poster on the ProHealth Message Boards, has alerted people to two videos of some promising claims made by the Whittemore Peterson Institute for Neuro-Immune Dsiease.

NHS Choices videos
Friday 10 April 2009: The UK’s NHS Choices website has two videos on its website – one from a patient’s perspective in its section on Chronic Fatigue Syndrome, and one from a doctor’s perspective.

Documentary interview on YouTube
Thursday 9 April 2009: An interview involving two young women with ME/CFS was filmed for an upcoming CFS documentary by Dr Franky Dolan and is available on YouTube.

M.E. on UK television
Monday 5 January 2009: M.E. was recently featured on the UK television program Meridian Tonight.

The Scientific Basis of CFS/CFIDS/ME
Sunday 4 January 2009: Here’s a video for anyone you still doubts that ME/CFS is a physical illness.

Diagnostic blood test for ME/CFS coming
Thursday 18 December 2008: KTVN Channel 2 reports on the development of the first possible diagnostic test for ME/CFS.

Living with Fibromyalgia documentary DVD
Tuesday 23 September 2008: Living with Fibromyalgia is a feature-length documentary that has just been released on DVD.

TV report on Sophia Mirza
Tuesday 16 September 2008: The UK’s Meridian Tonight has a news item on Sophia Mirza.

International Symposium video
Tuesday 5 August 2008: A video is available of a Microarray Studies Session from the International Symposium on Viruses in Chronic Fatigue Syndrome and Post-Viral Fatigue held on 22 and 23 June 2008 in the US.

Scientific evidence for chronic fatigue syndrome
Thursday 26 June 2008: One enterprising individual has created a YouTube video for all the naysayers who believe that ME/CFS is an imaginary disease..

“Not In My Head” Radio Public Service Announcement
Thursday 26 June 2008: Although it’s now a couple of years old (it was part of a 2006 awareness campaign implemented by the CFIDS Association of America), we’ve only just found this US radio Public Service Announcement via the wonders of YouTube.

Interview on 9am with David & Kim
Friday 16 May 2008: Channel 10’s weekday morning TV program 9am with David & Kim featured an interview yesterday (Thursday 15 May) with ME/CFS sufferer Imogen Newhouse and Dr Don Lewis.

New YouTube recommendation
Wednesday 20 February 2008: This YouTube video was recommended by Vicki Ryan.

More YouTube recommendations
Thursday 14 February 2008: In what is possibly a YouTube recommendation frenzy this week, here are a few more we think you might find interesting.

New YouTube recommendations
Wednesday 13 February 2008: We have two new YouTube videos for your delectation.

The wonders of YouTube
Friday 8 February 2008: YouTube is now enormously popular as a place for people to both post and view video clips on the Internet.

ABC News OnCall+ Pain Management
Friday 18 January 2008: ABC News has an informative health section on its website entitled OnCall+ Pain Management.

CBS3 news article and video on CFS
Wednesday 16 January 2008: CBS3 has a news item and an accompanying video on Chronic Fatigue Syndrome on its website.

New York Times article on drug approved for Fibromyalgia
Tuesday 15 January 2008: This page contains a link to a video commercial for a new drug, Lyrica, which was recently approved for use in the US in dealing with Fibromyalgia.

Mayo Clinic: Fibromyalgia Tips video
Sunday 6 January 2008: The Mayo Clinic has a short video on managing Fibromyalgia.

My favourite poem: “Pointy Birds”
Wednesday 31 October 2007: The poem “Pointy Birds” appears in the 1983 movie, The Man with Two Brains.

Are you right-brained, left-brained – or just fogged-brained?
Thursday 11 October 2007: Actually, this is a neat little test of the old right brain/left brain theory. It’s nothing to do with ME/CFS. But you might like to try it.

National Invisible Chronic Illness Awareness Week video
Wednesday 12 September 2007: National Invisible Chronic Illness Awareness Week runs from 10-16 September 2007.

Encounters with the Invisible, by Dorothy Wall
Tuesday 10 July 2007: Dorothy Wall is the author of a new book, Encounters with the Invisible. Dorothy has made a video presentation of her book.

Video contest winners announced
Tuesday 5 June 2007: Winners of the P.A.N.D.O.R.A. International Advocacy Video Contest have been announced.

JTV segment on ME/CFS
Saturday 12 May 2007: An article on ME/CFS appeared on JTV at 11:30pm last night (Friday 11 May) on ABC TV.

DVD now available
Wednesday 2 May 2007: The DVD of the 25 March 2007 public meeting entitled “ME/Chronic Fatigue Syndrome: The breaking news from around the world” held at Norwood Concert Hall is now available from ME/CFS Australia (SA) Inc office.

Norwood Concert Hall meeting DVD
Wednesday 4 April 2007: We have had a professionally produced DVD made of the recent public meeting at Norwood Concert Hall.

P.A.N.D.O.R.A. International Advocacy Video Contest
Monday 5 March 2007: P.A.N.D.O.R.A., Inc (The Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy) has created an international advocacy video contest.

TV ad campaign for CFS in the US
Monday 26 February 2007: The Centers for Disease Control and Prevention has funded a new ad campaign for CFS to be shown on US television.

Audio

ABC's Radio National discusses Fibromyalgia
Thursday 10 July 2014: Dr. Norman Swan talks about Fibromyalgia on ABC's Radio National.

Spenser Inwood: the chronic fatigue of circus life
Saturday 31 May 2014: A profile of Circus Oz performer, Spenser Inwood.

Lyme: a four letter word
Wednesday 8 January 2014: A broadcast on ABC National Radio's Background Briefing program about the prevalence of Lyme disease in Australia.

New facility searches for Chronic Fatigue cure
Friday 6 December 2013: A radio interview with Sonya Marshall-Gradisnik, one of the team members of Griffith University's new National Centre for Neuroimmunology and Emerging Diseases.

Exciting news for Islanders with Fibromyalgia as research project gets underway
Wednesday 4 December 2013: A brand new neuroscience research project is about to get underway on the Isle of Wight that will focus its attention on the debilitating chronic pain condition, Fibromyalgia.

ABC radio interview with Dr. Nicole Phillips
Sunday 29 September 2013: A radio interview with psychiatrist, medical advisor, and educator, Dr Nicole Phillips about ME/CFS in Australia.

Providence woman campaigning for more Fibromyalgia research
Tuesday 28 May 2013: Patients should take more responsibility for their overall health according to Jan Chambers, founder and president of the National Fibromyalgia and Chronic Pain Association.

Lyme: a four letter word
Tuesday 14 May 2013: Australian GPs reveal why they are risking their reputations by diagnosing patients with Lyme disease – from bacteria that are not even supposed to be in Australia.

Radio interview with Dr David Mitchell
Tuesday 7 May 2013: Adelaide radio station 5RPH recently broadcast an interview with Dr. David Mitchell, a South Australian GP with expertise in ME/CFS.

Radio interview with Dr Rosamund Vallings
Sunday 5 May 2013: Dr Rosamund Vallings spoke to Belinda Heggen on South Australian radio station 5AA about Chronic Fatigue Syndrome.

Looking at muscle cells in Chronic Fatigue Syndrome
Sunday 10 June 2012: A radio interview with Professor Julia Newton from Newcastle University about the causes of various symptoms associated with Chronic Fatigue Syndrome.

Living with Chronic Fatigue Syndrome
Friday 11 May 2012: Interviews on Australian radio station 612 ABC Brisbane.

Linley Frame: Olympian and Chronic Fatigue Syndrome sufferer
Saturday 5 May 2012: Linley Frame talks to Lindy Burns ahead of International ME/CFS Week.

Fibromyalgia's effects
Friday 20 April 2012: A US radio show in which Dr. Gracer interviews Dr. Beth Hodges concerning new surveys that show how severely sufferers of Fibromyalgia are affected and how much the general public knows about this problem.

Radio show: Treating Chronic Fatigue Syndrome
Wednesday 18 April 2012: An episode of the Internet radio program Health Matters Show that focuses on CFS.

New research raises question – is CFS an autoimmune disease?
Saturday 7 April 2012: Tina Marie Miller Tidmore and Dr. Kenneth Friedman joined Leslie Carol Botha on US radio program Holy Hormones Honey! to discuss the latest research on ME/CFS.

Radio interview with Jessica Philby
Friday 5 April 2013: Adelaide radio station 5RPH recently broadcast an interview with Jessica Philby, an ME/CFS sufferer who is studying a Bachelor of Interior Architecture at the University of South Australia and is the recipient of a Sir Charles Bright Scholarship.

Michael Crawford talks about ME
Thursday 29 March 2012: A radio interview with English actor Michael Crawford who moved to New Zealand to help recover from ME.

Web-based therapy for chronic fatigue
Tuesday 6 March 2012: Treatment programs via the internet are now used in a variety of health conditions.

Radio show podcast: CFS infection and research
Wednesday 22 February 2012: An episode of the Health Matters Show that focuses on CFS infection and research.

CFS or ME: more than just tired
Thursday 19 January 2012: Red Symons talks to psychiatrist Dr Nicole Phillips about Chronic Fatigue Syndrome, including some of the misconceptions surrounding the disease also known as Myalgic Encephalomyelitis.

CFS news: what's happening?
Sunday 11 December 2011: A US radio program with the latest news in ME/CFS.

Science with Chris Smith: chronic fatigue and lymphoma cancer
Monday 31 October 2011: The latest news from the world of science with Chris Smith.

Adelaide entrepreneur goes global with Speed Striker
Thursday 27 October 2011: An Adelaide entrepreneur has struck a deal with a major global distributor for his agility training invention, which he developed while suffering a long-term illness.

Radio interview with Dr. Ken Friedman
Tuesday 11 October 2011: A radio interview (and transcript) with Dr. Ken Friedman on his thoughts from the IAME conference about future for Chronic Fatigue Syndrome research and treatment.

Triple J Hack story on living with chronic pain
Saturday 20 August 2011: A report on chronic pain.

Looking for new ways to ease the pain of Fibromyalgia
Saturday 6 August 2011: Audio and transcript of an episode of the Voice of America's Science in the News radio program.

Diseases That Get No Respect Show
Thursday 9 June 2011: An episode of a US radio show that focuses on "diseases that get no respect", such as Fibromyalgia.

Comparison of treatments for CFS - the PACE trial
Tuesday 19 April 2011: A radio feature on the PACE trial.

Radio interview with Kay Gilderdale
Sunday 17 April 2011: Kay Gilderdale, author of One Last Goodbye, was interviewed on RTÉ Radio 1, Thursday 14 April 2011.

How mindfulness can add to your well being
Wednesday 13 April 2011: An interview with "mindfulness" expert Diana Winston on ABC Radio National's New Dimensions program.

Delay in diagnosis significantly impact lives of patients with Fibromyalgia, new survey reports
Friday 3 December 2010: National findings reveal greater awareness, earlier diagnosis, and support help reduce daily life challenges.

Top award for top scientist
Thursday 18 November 2010: Professor Warren Tate has been awarded the Rutherford Medal for his work in cell biology.

'The Sound Of A Snail': A Patient's Greatest Comfort
Wednesday 17 November 2010: US public broadcaster NPR has an audio interview with Elisabeth Tova Bailey, author of The Sound of a Wild Snail Eating.

Esther Rantzen talks ME and the blood ban with Dr Charles Shepherd on BBC Radio Berkshire
Friday 5 November 2010: Esther Rantzen discussed ME/CFS and the new UK ban on blood donation by everyone with the illness with MEA medical adviser, Dr Charles Shepherd, on BBC Radio Berkshire on Monday 1 November.

BBC Radio 4 Today programme: transcript of interview with Dr Charles Shepherd
Sunday 10 October 2010: A radio interview with Dr Charles Shepherd about blood donation in the UK.

Radio program to highlight ME/CFS
Saturday 21 August 2010: Our friends across the border in Victoria tell us that ME/CFS Australia (Victoria) has been successful in securing time on ABC radio program Nightlife with Tony Delroy on Monday 23 August, between 10-11pm (Eastern Standard time).

Seminar speaker radio interview
Friday 13 August 2010: Brenda McHugh-Wilkinson, the speaker for the Society's upcoming seminar, will be interviewed by Peter Greco on radio station 1197am RPH Adelaide tomorrow afternoon (Saturday 14 August) at approximately 6PM.

Radio program features Whittemore Peterson Institute
Monday 9 August 2010: Dan Erwine looks at research into the causes of chronic fatigue syndrome being conducted in Reno by the Whittemore-Peterson Institute.

Kay Gilderdale radio interview
Friday 14 May 2010: The UK's BBC Radio 2 with Jeremy Vine interviewed Kay Gilderdale on Tuesday 11 May.

BMJ podcast
Thursday 18 March 2010: The British Medical Journal has a podcast that features the latest in ME/CFS research, focusing on XMRV.

Shelly Quarmby
Thursday 18 February 2010: UK singer/songwriter Shelly Quarmby has released a six-song EP entitled Change and proceeds from the sale of one of the tracks will go towards Fibromyalgia Association of the United Kingdom.

XMRV in the news
Monday 12 October 2009: News about the XMRV retrovirus has flooded both print and online media.

Marg Purcell radio interview
Saturday 16 May 2009: 774 ABC Melbourne radio host Richard Stubbs interviewed Marg Purcell, a former Masters Athlete who has ME/CFS and has written a book, Chronic Fatigue Syndrome: A Journey I'm Still On.

Neil Blyth radio interview
Friday 15 May 2009: 774 AESSRA's International Chemical Sensitivity Seminar is being held in Melbourne today.

Ride for CFS on the radio
Tuesday 14 April 2009: The Society’s president, Peter Cahalan, was interviewed on 639 ABC North and West, an AM radio station in the Flinders Ranges yesterday morning (at 7:15!).

Internet radio show to feature Fibromyalgia in upcoming episode
Wednesday 1 April 2009: Internet radio talk show website Winning Life Through Pain will be featuring Fibrombyalgia in an upcoming episode.

More chronic illness in young people
Sunday 11 January 2009: Marketplace from American Public Media has an audio broadcast about an increase in young people with chronic diseases.

Chronically ill? Dental problems? Beware…
Friday 19 December 2008: The ABC radio program Life Matters reports on what may be an undesirable move by the Government for those with disabilities.

Singer/songwriter Tamara Lewis
Sunday 6 September 2008: Tamara Lewis is a singer/songwriter from Seattle who has spent 10 years living with ME/CFS.

“Everybody Knows About Me”
Thursday 21 August 2008: US band Cinder Bridge has released a song about Myalgic Encephalomyelitis entitled “Everybody Knows About Me”.

ME/CFS on the radio
Thursday 21 August 2008: Dr Stephen Graves, Director of Hunter Area Pathology and the Australian Rickettsial Reference Laboratory, spoke about ME/CFS with presenter Ian Woolf on Diffusion Science Radio, a program broadcast on 2ser in New South Wales.

“Not In My Head” Radio Public Service Announcement
Thursday 26 June 2008: Although it’s now a couple of years old (it was part of a 2006 awareness campaign implemented by the CFIDS Association of America), we’ve only just found this US radio Public Service Announcement via the wonders of YouTube.

Support our friendly Radio 5RPH
Thursday 22 May 2008: 1197am RPH Adelaide has been a great supporter of the Society.

Radio interview
Thursday 22 May 2008: The Society’s president, Peter Cahalan, was interviewed on 1197am RPH Adelaide last night.

Radio interview tonight
Wednesday 21 May 2008: Society president Peter Cahalan speaks on radio station 1197am RPH Adelaide at 7:30 tonight.

Multiple Chemical Sensitivity on The Health Report
Monday 5 May 2008: Norman Swan of ABC Radio National’s The Health Report interviews Professor Gail McKeown-Eyssen, a Canadian cancer researcher who has found out interesting things about the body’s pathways for people with MCS.

The president speaks
Saturday 9 February 2008: The Society’s president, Peter Cahalan, is interviewed from time to time on 1197am RPH Adelaide.

We get a free radio commercial
Tuesday 4 September 2007: We’ve scored a free radio commercial.

Jo Hicks update
Wednesday 11 July 2007: Jazz vocalist Jo Hicks has been having difficulties with her email address but can now be contacted via email again.

ABC Radio National: All In The Mind
Sunday 10 June 2007: ABC Radio National’s Saturday afternoon program All In The Mind featured Chronic Fatigue Syndrome yesterday (Saturday 9 June).

CFS feature on Nightlife with Tony Delroy
Tuesday 5 June 2007: The ABC’s Nightlife with Tony Delroy featured ME/CFS last night (Monday 4 June).

774 ABC Melbourne radio segment on CFS
Monday 21 May 2007: 774 ABC Melbourne’s Saturday morning segment, Fitness, Health and Nutrition with Tonya Roberts, had a feature on CFS on 19 May.

Radio interview with Peter Cahalan
Thursday 17 May 2007: Peter Cahalan, President of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide.

Jo Hicks
Wednesday 2 May 2007: Society member, Jo Hicks, is a jazz singer who has released All Of Me, a CD of popular and jazz standards.

Radio interview with Peter Cahalan
Sunday 1 April 2007: Peter Cahalan, president of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide.

Dr Dan Peterson speaks to the ABC
Thursday 29 March 2007: Dan Peterson was one of the four international participants in a two-day forum on ME/CFS at The University of Adelaide on 26-27 March.

Radio interview
Thursday 8 March 2007: Carole Whitelock presents 891 Afternoons, a radio program broadcast weekdays from 1 till 4pm on 891 ABC Adelaide.

Photos

Society AGM photos
Sunday 9 November 2008: Photos from the yesterday’s Annual General Meeting are now available.

Society 4 October 2008 meeting photos
Monday 6 October 2008: Photos are now available from the Society’s 4 October 2008 meeting held at the Disability Information and Resource Centre in Adelaide.

Riverland ME/CFS Support group meeting photos and report
Thursday 14 August 2008: The Riverland ME/CFS Support Group held a meeting at 1:30pm on Friday 1 August at the Riverland Resource Centre in Berri.

Society 2 August 2008 meeting photos
Saturday 2 August 2008: Photos are now available from Society’s 2 August 2008 meeting held at the Disability Information and Resource Centre in Adelaide.

Phone sheep
Friday 1 August 2008: Although this has absolutely nothing to do with ME/CFS, here’s something unusual we’ve found on the Internet (where else?) that you might find interesting: Phone sheep.

Photos from the Riverland CFS Support Group’s 26 October meeting
Wednesday 31 October 2007: Photos are now available from the Riverland CFS Support Group’s very first meeting held on Friday 26 October at Berri Library Multi Media Room, Berri.

Photos from the MCS Rally
Tuesday 9 October 2007: Twenty people – including a very cute little girl and a good Aussie cattle dog – rallied outside the offices of the Commonwealth Department of Health and Ageing on Monday 8 October.

Meet Millie, the Only Kangaroo in the Whole ME/CFS Universe!
Friday 21 September 2007: The South Australian State Committee has the frequent pleasure of being joined at meetings by Emma Wing’s joey, Millie.

Photos from the Society’s 8 September 2007 meeting
Saturday 8 September 2007: Photos are now available from the Society’s meeting held on Saturday 8 September at the Ellangowan Hall in the St Peters Holy Name Church, Stepney.

Photos from the Society’s 4 August 2007 meeting
Tuesday 7 August 2007: Photos are now available from the Society’s meeting held on Saturday 4 August at DIRC, 195 Gilles St, Adelaide.

Photos from the Society’s 7 July 2007 meeting
Sunday 8 July 2007: Photos are now available from the Society’s meeting held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide.

Badge Day photos
Tuesday 26 June 2007: The Society’s Badge Day was held on Friday 1 June 2007 in Adelaide.

Photos from the Society’s 25 March meeting
Wednesday 28 March 2007: Here are photos from the 25 March meeting entitled “ME/CFS: breaking news from around the world”, held at Norwood Concert Hall.

National Summit photos
Sunday December 31, 2006: Here are a few photos taken at the National ME/CFS Summit on Tuesday, 10 October 2006.

And more photos!
Saturday December 23, 2006: In addition to our first batch of photos of South Australia by Mike Ritter, Peter Mitchell and Wendy Begg, we now have more.

More Christmas greetings from us Croweaters
Friday December 22, 2006: We sent the world a Christmas ‘card’ the other day with a bunch of photos of our State taken by our IT coordinator Mike Ritter.

Car rally photos
Tuesday December 12, 2006: Lisi Phillips, a CFS sufferer since 1997, held a social charity rally on Sunday December 10 for her local car clubs with all proceeds from the day going to our Society.

DisAbility Expo 2006 photos
Friday November 24, 2006: The DisAbility Expo 2006 was held on Friday November 10 at the Alan Scott Park Morphettville Function Centre. The Society had a stall there.

Annual General Meeting 2006 photos
Friday November 10, 2006: Some of our AGMs have been lightly-attended affairs in recent years. So we were delighted to have 23 members join us on Saturday November 4 after braving post-Christmas Pageant traffic snarls.

Society Pages: Working Bee photos
August 7, 2006: Members of the Society met at the Society’s office on Saturday August 5, 2006 for a Working Bee.

YouTube recommendations

Health

Humour

Music

Unclassifiable (i.e., just plain weird)

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