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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')

Office Hours:
Wednesdays, 10am-3pm

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237

SA country callers:
Ph: 1300 128 339
(local call)


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711



ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.



Charity Direct

ME/CFS Australia (SA) Inc is a member of Charity Direct.



ourcommunity.com.auDonate online

Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

Read more…



Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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People

Multimedia

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Video
Audio
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YouTube recommendations

Health

Humour

Music

Unclassifiable (i.e., just plain weird)

Video

Dr Anne McIntyre interview with Ean Proctor
Thursday 12 August 2010: Dr Anne McIntyre interviewed ME/CFS sufferer Ean Proctor for a segment on the UK's Channel Four program Frontline.

Video of lecture by Dr Anthony Komaroff
Wednesday 23 June 2010: The Massachusetts CFIDS/ME & FM Association is pleased to present the video of Dr. Komaroff's recent lecture to its Association.

Documentary interview with two girls with CFS
Saturday 8 May 2010: There is a video on YouTube of an interview with two women who talk about having ME/CFS.

What's old is new again?
Saturday 13 March 2010: R.E.S.C.I.N.D. has an interesting video from 1996.

Theda's desperate fight against a chronic killer
Wednesday 3 March 2010: Western Australian newspaper WA Today has a profile of ME/CFS sufferer Theda Myint.

New YouTube channel: Waking The World Up To M.E.
Thursday 21 January 2010: David Foxen is a young man from the UK who has set up a YouTube channel called Waking The World Up To M.E. in order to highlight the disease.

Wilhelmina Jenkins
Tuesday 13 October 2009: Wilhelmina Jenkins, a spokesperson for the "The Faces of CFS" exhibit, appears in a video talking about life with ME/CFS.

Video on ABC News
Wednesday 30 September 2009: ABC News on its Good Morning America: Health program has an interview with Donnica Moore MD.

Open Door: ME
Tuesday 22 September 2009: Open Door is a New Zealand television program that consists of a series of documentaries made by members of the community.

Fibromyalgia discussed on "The Doctors"
Saturday 23 May 2009: US TV program The Doctors discussed Fibromyalgia on a recent episode.

IACFS/ME Conference videos
Monday 27 April 2009: The Chronic Fatigue Syndrome Support Group blog at DailyStrength has provided a list of all available videos from the 9th IACFS/ME Conference.

Sleepydust video
Friday 24 April 2009: Sleepydust has produced a video of an overview of ME/CFS.

Low-dose naltrexone
Thursday 23 April 2009: WebMD reports on successful trials involving naltrexone, a drug used for easing the effects of heroin and alcohol withdrawal.

Whittemore Peterson Institute claims they can reverse CFIDS/ME
Wednesday 22 April 2009: “TeaBisqit”, a poster on the ProHealth Message Boards, has alerted people to two videos of some promising claims made by the Whittemore Peterson Institute for Neuro-Immune Dsiease.

NHS Choices videos
Friday 10 April 2009: The UK’s NHS Choices website has two videos on its website – one from a patient’s perspective in its section on Chronic Fatigue Syndrome, and one from a doctor’s perspective.

Documentary interview on YouTube
Thursday 9 April 2009: An interview involving two young women with ME/CFS was filmed for an upcoming CFS documentary by Dr Franky Dolan and is available on YouTube.

M.E. on UK television
Monday 5 January 2009: M.E. was recently featured on the UK television program Meridian Tonight.

The Scientific Basis of CFS/CFIDS/ME
Sunday 4 January 2009: Here’s a video for anyone you still doubts that ME/CFS is a physical illness.

Diagnostic blood test for ME/CFS coming
Thursday 18 December 2008: KTVN Channel 2 reports on the development of the first possible diagnostic test for ME/CFS.

Living with Fibromyalgia documentary DVD
Tuesday 23 September 2008: Living with Fibromyalgia is a feature-length documentary that has just been released on DVD.

TV report on Sophia Mirza
Tuesday 16 September 2008: The UK’s Meridian Tonight has a news item on Sophia Mirza.

International Symposium video
Tuesday 5 August 2008: A video is available of a Microarray Studies Session from the International Symposium on Viruses in Chronic Fatigue Syndrome and Post-Viral Fatigue held on 22 and 23 June 2008 in the US.

Scientific evidence for chronic fatigue syndrome
Thursday 26 June 2008: One enterprising individual has created a YouTube video for all the naysayers who believe that ME/CFS is an imaginary disease..

“Not In My Head” Radio Public Service Announcement
Thursday 26 June 2008: Although it’s now a couple of years old (it was part of a 2006 awareness campaign implemented by the CFIDS Association of America), we’ve only just found this US radio Public Service Announcement via the wonders of YouTube.

Interview on 9am with David & Kim
Friday 16 May 2008: Channel 10’s weekday morning TV program 9am with David & Kim featured an interview yesterday (Thursday 15 May) with ME/CFS sufferer Imogen Newhouse and Dr Don Lewis.

New YouTube recommendation
Wednesday 20 February 2008: This YouTube video was recommended by Vicki Ryan.

More YouTube recommendations
Thursday 14 February 2008: In what is possibly a YouTube recommendation frenzy this week, here are a few more we think you might find interesting.

New YouTube recommendations
Wednesday 13 February 2008: We have two new YouTube videos for your delectation.

The wonders of YouTube
Friday 8 February 2008: YouTube is now enormously popular as a place for people to both post and view video clips on the Internet.

ABC News OnCall+ Pain Management
Friday 18 January 2008: ABC News has an informative health section on its website entitled OnCall+ Pain Management.

CBS3 news article and video on CFS
Wednesday 16 January 2008: CBS3 has a news item and an accompanying video on Chronic Fatigue Syndrome on its website.

New York Times article on drug approved for Fibromyalgia
Tuesday 15 January 2008: This page contains a link to a video commercial for a new drug, Lyrica, which was recently approved for use in the US in dealing with Fibromyalgia.

Mayo Clinic: Fibromyalgia Tips video
Sunday 6 January 2008: The Mayo Clinic has a short video on managing Fibromyalgia.

My favourite poem: “Pointy Birds”
Wednesday 31 October 2007: The poem “Pointy Birds” appears in the 1983 movie, The Man with Two Brains.

Are you right-brained, left-brained – or just fogged-brained?
Thursday 11 October 2007: Actually, this is a neat little test of the old right brain/left brain theory. It’s nothing to do with ME/CFS. But you might like to try it.

National Invisible Chronic Illness Awareness Week video
Wednesday 12 September 2007: National Invisible Chronic Illness Awareness Week runs from 10-16 September 2007.

Encounters with the Invisible, by Dorothy Wall
Tuesday 10 July 2007: Dorothy Wall is the author of a new book, Encounters with the Invisible. Dorothy has made a video presentation of her book.

Video contest winners announced
Tuesday 5 June 2007: Winners of the P.A.N.D.O.R.A. International Advocacy Video Contest have been announced.

JTV segment on ME/CFS
Saturday 12 May 2007: An article on ME/CFS appeared on JTV at 11:30pm last night (Friday 11 May) on ABC TV.

DVD now available
Wednesday 2 May 2007: The DVD of the 25 March 2007 public meeting entitled “ME/Chronic Fatigue Syndrome: The breaking news from around the world” held at Norwood Concert Hall is now available from ME/CFS Australia (SA) Inc office.

Norwood Concert Hall meeting DVD
Wednesday 4 April 2007: We have had a professionally produced DVD made of the recent public meeting at Norwood Concert Hall.

P.A.N.D.O.R.A. International Advocacy Video Contest
Monday 5 March 2007: P.A.N.D.O.R.A., Inc (The Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy) has created an international advocacy video contest.

TV ad campaign for CFS in the US
Monday 26 February 2007: The Centers for Disease Control and Prevention has funded a new ad campaign for CFS to be shown on US television.

Audio

Radio program to highlight ME/CFS
Saturday 21 August 2010: Our friends across the border in Victoria tell us that ME/CFS Australia (Victoria) has been successful in securing time on ABC radio program Nightlife with Tony Delroy on Monday 23 August, between 10-11pm (Eastern Standard time).

Seminar speaker radio interview
Friday 13 August 2010: Brenda McHugh-Wilkinson, the speaker for the Society's upcoming seminar, will be interviewed by Peter Greco on radio station 1197am RPH Adelaide tomorrow afternoon (Saturday 14 August) at approximately 6PM.

Radio program features Whittemore Peterson Institute
Monday 9 August 2010: Dan Erwine looks at research into the causes of chronic fatigue syndrome being conducted in Reno by the Whittemore-Peterson Institute.

Kay Gilderdale radio interview
Friday 14 May 2010: The UK's BBC Radio 2 with Jeremy Vine interviewed Kay Gilderdale on Tuesday 11 May.

BMJ podcast
Thursday 18 March 2010: The British Medical Journal has a podcast that features the latest in ME/CFS research, focusing on XMRV.

Shelly Quarmby
Thursday 18 February 2010: UK singer/songwriter Shelly Quarmby has released a six-song EP entitled Change and proceeds from the sale of one of the tracks will go towards Fibromyalgia Association of the United Kingdom.

XMRV in the news
Monday 12 October 2009: News about the XMRV retrovirus has flooded both print and online media.

Marg Purcell radio interview
Saturday 16 May 2009: 774 ABC Melbourne radio host Richard Stubbs interviewed Marg Purcell, a former Masters Athlete who has ME/CFS and has written a book, Chronic Fatigue Syndrome: A Journey I'm Still On.

Neil Blyth radio interview
Friday 15 May 2009: 774 AESSRA's International Chemical Sensitivity Seminar is being held in Melbourne today.

Ride for CFS on the radio
Tuesday 14 April 2009: The Society’s president, Peter Cahalan, was interviewed on 639 ABC North and West, an AM radio station in the Flinders Ranges yesterday morning (at 7:15!).

Internet radio show to feature Fibromyalgia in upcoming episode
Wednesday 1 April 2009: Internet radio talk show website Winning Life Through Pain will be featuring Fibrombyalgia in an upcoming episode.

More chronic illness in young people
Sunday 11 January 2009: Marketplace from American Public Media has an audio broadcast about an increase in young people with chronic diseases.

Chronically ill? Dental problems? Beware…
Friday 19 December 2008: The ABC radio program Life Matters reports on what may be an undesirable move by the Government for those with disabilities.

Singer/songwriter Tamara Lewis
Sunday 6 September 2008: Tamara Lewis is a singer/songwriter from Seattle who has spent 10 years living with ME/CFS.

“Everybody Knows About Me”
Thursday 21 August 2008: US band Cinder Bridge has released a song about Myalgic Encephalomyelitis entitled “Everybody Knows About Me”.

ME/CFS on the radio
Thursday 21 August 2008: Dr Stephen Graves, Director of Hunter Area Pathology and the Australian Rickettsial Reference Laboratory, spoke about ME/CFS with presenter Ian Woolf on Diffusion Science Radio, a program broadcast on 2ser in New South Wales.

“Not In My Head” Radio Public Service Announcement
Thursday 26 June 2008: Although it’s now a couple of years old (it was part of a 2006 awareness campaign implemented by the CFIDS Association of America), we’ve only just found this US radio Public Service Announcement via the wonders of YouTube.

Support our friendly Radio 5RPH
Thursday 22 May 2008: 1197am RPH Adelaide has been a great supporter of the Society.

Radio interview
Thursday 22 May 2008: The Society’s president, Peter Cahalan, was interviewed on 1197am RPH Adelaide last night.

Radio interview tonight
Wednesday 21 May 2008: Society president Peter Cahalan speaks on radio station 1197am RPH Adelaide at 7:30 tonight.

Multiple Chemical Sensitivity on The Health Report
Monday 5 May 2008: Norman Swan of ABC Radio National’s The Health Report interviews Professor Gail McKeown-Eyssen, a Canadian cancer researcher who has found out interesting things about the body’s pathways for people with MCS.

The president speaks
Saturday 9 February 2008: The Society’s president, Peter Cahalan, is interviewed from time to time on 1197am RPH Adelaide.

We get a free radio commercial
Tuesday 4 September 2007: We’ve scored a free radio commercial.

Jo Hicks update
Wednesday 11 July 2007: Jazz vocalist Jo Hicks has been having difficulties with her email address but can now be contacted via email again.

ABC Radio National: All In The Mind
Sunday 10 June 2007: ABC Radio National’s Saturday afternoon program All In The Mind featured Chronic Fatigue Syndrome yesterday (Saturday 9 June).

CFS feature on Nightlife with Tony Delroy
Tuesday 5 June 2007: The ABC’s Nightlife with Tony Delroy featured ME/CFS last night (Monday 4 June).

774 ABC Melbourne radio segment on CFS
Monday 21 May 2007: 774 ABC Melbourne’s Saturday morning segment, Fitness, Health and Nutrition with Tonya Roberts, had a feature on CFS on 19 May.

Radio interview with Peter Cahalan
Thursday 17 May 2007: Peter Cahalan, President of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide.

Jo Hicks
Wednesday 2 May 2007: Society member, Jo Hicks, is a jazz singer who has released All Of Me, a CD of popular and jazz standards.

Radio interview with Peter Cahalan
Sunday 1 April 2007: Peter Cahalan, president of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide.

Dr Dan Peterson speaks to the ABC
Thursday 29 March 2007: Dan Peterson was one of the four international participants in a two-day forum on ME/CFS at The University of Adelaide on 26-27 March.

Radio interview
Thursday 8 March 2007: Carole Whitelock presents 891 Afternoons, a radio program broadcast weekdays from 1 till 4pm on 891 ABC Adelaide.

Photos

Society AGM photos
Sunday 9 November 2008: Photos from the yesterday’s Annual General Meeting are now available.

Society 4 October 2008 meeting photos
Monday 6 October 2008: Photos are now available from the Society’s 4 October 2008 meeting held at the Disability Information and Resource Centre in Adelaide.

Riverland ME/CFS Support group meeting photos and report
Thursday 14 August 2008: The Riverland ME/CFS Support Group held a meeting at 1:30pm on Friday 1 August at the Riverland Resource Centre in Berri.

Society 2 August 2008 meeting photos
Saturday 2 August 2008: Photos are now available from Society’s 2 August 2008 meeting held at the Disability Information and Resource Centre in Adelaide.

Phone sheep
Friday 1 August 2008: Although this has absolutely nothing to do with ME/CFS, here’s something unusual we’ve found on the Internet (where else?) that you might find interesting: Phone sheep.

Photos from the Riverland CFS Support Group’s 26 October meeting
Wednesday 31 October 2007: Photos are now available from the Riverland CFS Support Group’s very first meeting held on Friday 26 October at Berri Library Multi Media Room, Berri.

Photos from the MCS Rally
Tuesday 9 October 2007: Twenty people – including a very cute little girl and a good Aussie cattle dog – rallied outside the offices of the Commonwealth Department of Health and Ageing on Monday 8 October.

Meet Millie, the Only Kangaroo in the Whole ME/CFS Universe!
Friday 21 September 2007: The South Australian State Committee has the frequent pleasure of being joined at meetings by Emma Wing’s joey, Millie.

Photos from the Society’s 8 September 2007 meeting
Saturday 8 September 2007: Photos are now available from the Society’s meeting held on Saturday 8 September at the Ellangowan Hall in the St Peters Holy Name Church, Stepney.

Photos from the Society’s 4 August 2007 meeting
Tuesday 7 August 2007: Photos are now available from the Society’s meeting held on Saturday 4 August at DIRC, 195 Gilles St, Adelaide.

Photos from the Society’s 7 July 2007 meeting
Sunday 8 July 2007: Photos are now available from the Society’s meeting held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide.

Badge Day photos
Tuesday 26 June 2007: The Society’s Badge Day was held on Friday 1 June 2007 in Adelaide.

Photos from the Society’s 25 March meeting
Wednesday 28 March 2007: Here are photos from the 25 March meeting entitled “ME/CFS: breaking news from around the world”, held at Norwood Concert Hall.

National Summit photos
Sunday December 31, 2006: Here are a few photos taken at the National ME/CFS Summit on Tuesday, 10 October 2006.

And more photos!
Saturday December 23, 2006: In addition to our first batch of photos of South Australia by Mike Ritter, Peter Mitchell and Wendy Begg, we now have more.

More Christmas greetings from us Croweaters
Friday December 22, 2006: We sent the world a Christmas ‘card’ the other day with a bunch of photos of our State taken by our IT coordinator Mike Ritter.

Car rally photos
Tuesday December 12, 2006: Lisi Phillips, a CFS sufferer since 1997, held a social charity rally on Sunday December 10 for her local car clubs with all proceeds from the day going to our Society.

DisAbility Expo 2006 photos
Friday November 24, 2006: The DisAbility Expo 2006 was held on Friday November 10 at the Alan Scott Park Morphettville Function Centre. The Society had a stall there.

Annual General Meeting 2006 photos
Friday November 10, 2006: Some of our AGMs have been lightly-attended affairs in recent years. So we were delighted to have 23 members join us on Saturday November 4 after braving post-Christmas Pageant traffic snarls.

Society Pages: Working Bee photos
August 7, 2006: Members of the Society met at the Society’s office on Saturday August 5, 2006 for a Working Bee.

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