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National Summit photos
Here are a few photos taken at the National ME/CFS Summit on Tuesday, 10 October 2006. |
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One more SA photo before the year’s end
One more South Australia photo before the year’s end. |
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The MCS Report Clock stops ticking
We started the MCS Report Clock way back when we were becoming alarmed – no pun intended – at the government’s lack of progress in implementing the recommendations of State Parliament’s inquiry into Multiple Chemical Sensitivity. |
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And more photos!
In addition to our first batch of photos of South Australia by Mike Ritter, Peter Mitchell and Wendy Begg, we now have more. |
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More Christmas greetings from us Croweaters
We sent the world a Christmas ‘card’ the other day with a bunch of photos of our State taken by our IT coordinator Mike Ritter. |
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A Hummingbirds Guide e-Newsletter – December 2006
The December 2006 issue of Jodi Bassett’s A Hummingbirds Guide e-Newsletter is now available. |
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Dark chocolate eases ME symptoms
IrelandOn-Line reports that “eating small amounts of dark chocolate every day can help combat a chronic illness.” |
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Healthopedia.com
Healthopedia.com is a medical and health consumer information resource containing comprehensive and unbiased information. |
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Christmas greetings from South Australia
ME/CFS is a pretty disgusting condition to live with. But at least we South Australians live, so we believe, in a rather lovely part of the world. |
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National health politics – keep yourself informed
The Consumers’ Health Forum of Australia publishes a bi-monthly newsletter. It’s full of information about what’s going on in the world of health politics and bureaucracy in Australia. |
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Phoenix Rising Special Edition: Dorothy Wall interview
American CFS sufferer Cort Johnson, on his website CFS Phoenix, has produced a Special Edition of Phoenix Rising. It features an interview with fellow CFS sufferer, Dorothy Wall, who has recently published a book entitled Encounters with the Invisible. |
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Car rally photos
Lisi Phillips, a CFS sufferer since 1997, held a social charity rally on Sunday December 10 for her local car clubs with all proceeds from the day going to our Society. |
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RemedyFind: December 2006 CFS Newsletter
RemedyFind’s December 2006 Chronic Fatigue Syndrome newsletter is now available. |
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CFIDS Chronicle
There’s some good stuff in the latest CFIDS Chronicle. |
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CFS Phoenix – October 2006 newsletter
We recommend the online publication, Phoenix Rising. It’s an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. It provides a quirky but in-depth and reliable view of new research in CFS. |
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Nightingale Research Foundation: Definition of ME
Canada’s Nightingale Research Foundation has has updated its definition of ME. |
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Car rally
We’ve had a terrific offer from one of our members to raise money for us and she’d love members to pitch in and enjoy the event. |
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Call for action over ME
The East Anglia Daily Times reports that “a hard-hitting inquiry into a debilitating condition affecting more than 9,000 people in East Anglia has demanded urgent action and a major increase in research.” |
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CDC Launches “Get Informed. Get Diagnosed. Get Help.” Campaign
This is pretty exciting news! The Centers for Disease Control and Prevention (CDC) in Atlanta, Georgia launched the “Get Informed. Get Diagnosed. Get Help” campaign in early November. |
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Gibson Inquiry
In the UK, the Gibson Inquiry (named after its chairman, Dr Ian Gibson MP) has been conducted by the Parliamentary Group on Scientific Research into Myalgic Encephalomyelitis (ME). |
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Volunteers wanted for carnitine study
The Sansom Institute, from within the University of South Australia, is calling for volunteers to help with a study. |
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DisAbility Expo 2006 photos
The DisAbility Expo 2006 was held on Friday November 10 at the Alan Scott Park Morphettville Function Centre. The Society had a stall there. |
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Sufferers fight funding threat
From Britain’s Oxford Mail, an article about the local group’s fight to continue to receive in-home care from a program which they feel has made a tremendous difference to their lives and whose funding is under threat. |
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CFS and childhood trauma
We post the following links with a warning: many of our members may become angry when they read about the research. |
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International Day of People with Disability 2006
Friday December 8 is the International Day of People with Disability 2006. Arts Access SA is organising a number of events around that time. |
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The ME Association: response to the NICE Guideline on ME/CFS
The ME Association has posted a response to clinical guidelines on ME/CFS from the National Institute for Health and Clinical Excellence (NICE). |
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CFS at the CDC
The Centers for Disease Control and Prevention has a large and informative section devoted to Chronic Fatigue Syndrome. |
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Stop Press: big news for Australian ME/CFS research
We told you some months ago about the establishment the Mason Foundation to fund research into ME/CFS and Alzheimer’s Disease. |
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The MCS Reference group creaks into action – but we’re not stopping the clock yet!
Well, shiver our timbers. Department of Health has just announced that it wishes to hold the first meeting of the MCS Reference Group some time in December. |
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Health Consumers Alliance – get to know it
The Health Consumers Alliance Inc of South Australia (HCA) is the not for profit, peak community organisation for health consumers using SA health services. |
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Women With Disabilities Australia
Women With Disabilities Australia is a national advocacy body whose name speaks for itself. Here is its latest bulletin. |
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Patent application
A report from ImmuneSupport.com highlights that there has been a recent patent application from Dr John Gow and his fellow researcher at the University of Glasgow, Dr Abhijit Chaudhuri, to the European Patent Office for “a diagnostic tool for CFS.” |
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Annual General Meeting 2006 photos
Some of our AGMs have been lightly-attended affairs in recent years. So we were delighted to have 23 members join us on Saturday November 4 after braving post-Christmas Pageant traffic snarls. |
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Anyone want a trip to Florida?
Who wouldn’t?! Actually, we’re just letting you know about a major ME/CFS research conference coming up there in January. |
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Chronic Illness booklets
The Royal District Nursing Services of SA inc have a Research Unit who have recently put out some very interesting and readable booklets in a series entitled “Transition in Chronic Illness.” |
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DVD: Learning about CFS
The DVD of our recent Doctors Forum is now available from the office (Wednesdays). |
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CFS campaign press conference video
A press conference announcing Spark! The Campaign To Ignite CFS Awareness, was held on Friday November 3. |
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NBC news item & video
NBC News’ Nightly News TV program broadcast a news item on Thursday November 2 about ME/CFS entitled “Chronic fatigue is a real illness, gov’t says.” |
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ME/CFS Pilot Study Report
Over the last year or so a team of South Australian researchers have run a pilot study for a longer-term database of people with ME/CFS and the history of their condition. |
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Italian CFS website
The Associazione Malati di CFS is an Italian association trying to find new resources for CFS research, and is helping the growth of a CFS project at the University of Pavia. |
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CFS Phoenix – September 2006 newsletter
We recommend the online publication, Phoenix Rising. It’s an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. It provides a quirky but in-depth and reliable view of new research in CFS. |
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October 14 meeting – the doctors speak to a good crowd
Drs Kerry Callaghan and Ian Buttfield addressed an audience of over 60 people at a meeting on Saturday, October 14 at the Disability Information and Resource Centre. |
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School and kids with CFS
Mary Campbell has contributed an article to the Canberra Fibromyalgia and CFS Pages entitled “School and kids with CFS”. |
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Into motor sports?
We’ve had a terrific offer from one of our members, Lisi Phillips, to raise money for us and she’d love members to pitch in and enjoy the event. |
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CFS Phoenix – August 2006 newsletter
We recommend the online publication Phoenix Rising, an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. It provides a quirky but in-depth and reliable view of new research in CFS. |
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Meeting – October 14, 2006
“Experiences with ME/CFS,” presented by Dr Ian Buttfield and Dr Kerry Callaghan, at DIRC, Adelaide. |
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MCS – a good day’s work at Parliament House
The annual Chemical Injury and Sensitivity Day rally was held on Parliament’s steps on September 20. Our biggest crowd ever – 30!! – including five politicians. We were delighted with their attentiveness and support. |
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Canadian Consensus Documents and Overviews
To further assist busy medical practitioners, Dr. Bruce Carruthers, principal author of the ME/CFS Consensus Document and Co-Editor of the FMS Consensus Document, and Marjorie van de Sande, Consensus Coordinator of the Consensus Documents, have written and published Overviews of the Canadian Consensus Documents for ME/CFS and FMS independent of any organisation. |
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CBT and GET: what are the facts?
A new paper has been added to A CBT and GET Database, a section of Jodi Bassett’s website, A Hummingbirds Guide to M.E.. |
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MCS debate on 891 ABC Adelaide
891 ABC Adelaide recently presented a segment on MCS with guests Dr Mark Donohoe, a well-known advocate of environmental medicine, Mr Peter Evans, Convenor of the SA Task Force on MCS, and Dr Jim Fitzgerald from the Department of Health in South Australia. |
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Notice of Annual General Meeting
The Society’s Annual General Meeting will be held on Saturday November 4, 2006. |
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CFS, ME & FM Awareness Postcards
Due to the overwhelming success of the first series of Seasons of Hope Awareness Postcards, the CF-Alliance has debuted Series 2. These postcards were created in a response to raise awareness about CFS, ME, FM and their related illnesses. |
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Reforming Attitudes to Myalgic Encephalomyelitis
Alison Bailey, member of the UK Chief Medical Officer’s Working Group on ME/CFS and founder of YOUNG ME (now the “The Tymes Trust”), has created a website entitled Reforming Attitudes to Myalgic Encephalomyelitis. |
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National Chemical Injury and Sensitivity Day Rally – September 20
The annual rally recognising National Chemical Injury and Sensitivity Day will be held on September 20 at Parliament House steps beginning 12 midday. |
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Laymen’s Guide to RNase L in CFS
Cort Johnson, of CFS Phoenix, has posted an article on RNase L in CFS. It’s a good summary in layman’s terms. |
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New forum: Chronic Fatigue Treatments
Chronic Fatigue Treatments is a forum for people to talk about what treatments have worked for them. |
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Treatments for Multiple Chemical Sensitivity
A US study on the relative effectiveness of treatments for Multiple Chemical Sensitivity using both conventional and alternative therapies was published in the September 2003 edition of Environmental Health Perspectives. |
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Adelaide Dental Hospital notice
Following a complaint to the Human Rights and Equal Opportunity Commission by a patient with multiple chemical sensitivity, the SA Dental Service has agreed to post signage on the notice board at the Adelaide Dental Hospital requesting patients to consider avoiding using fragrances prior to dental appointments. |
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DAIS – good guys in the State Government
The Department of Administrative and Information Services (DAIS) is one of the most important agencies of in the South Australian public sector. |
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The effects of CBT and GET
Jodi Bassett, of A Hummingbirds Guide to M.E., has a new article on the effects of CBT and GET. |
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Our first video!
We’re very pleased to present our first Society-made video clip on this site. It was filmed in 2002 to be shown at a splendidly-organised and well-attended annual Awareness Day public meeting. |
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Redlabs U.S.A.
Those who have been researching ME/CFS will probably be aware of the existence of RED Laboratories. The lab has put in place procedures developed by Prof Kenny De Meirleir and his colleagues. |
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ME/CFS discrimination complaints
Further to our August 28 article on disability complaints (see below), we have some more documents that may be helpful if you need to make a complaint. |
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Business born from love
The Melrose Free Press in Massachusetts reported on CFS patient Pam Gobiel and her 11-year-old niece, Ashley, who has launched Slamdunks Apparel, a web-based business as a way to help find a cure for CFS. |
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Have a disability complaint? How to complain (legally) to the right people
Disability rights lawyer John Steele has an admirable record of fighting for people with MCS. |
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Pesticide Spray Drift Forum in Canberra
Peter Evans recently represented the SA Task Force on MCS at a public forum on pesticide spray drift which was hosted by the national pesticide regulators, the Australian Pesticides and Veterinary Medicines Authority. |
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Testing for Myalgic Encephalomyelitis
ImmuneSupport.com has an article by Jodi Bassett on testing for ME. |
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RemedyFind newsletter
RemedyFind is a website that describes itself as “an independent, unbiased site where you can rate the effectiveness of treatments for specific health problems.” |
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Kenny De Meirleir on CFS
Professor De Meirleir gave a comprehensive – but not easy to digest – survey of his important work on ME/CFS at a public meeting in Adelaide in 2005. |
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ACT ME/CFS Society CFS forum
The ACT ME/CFS Society Inc participated in a forum on CFS on Sunday August 20. |
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Making facilities chemically safer
We’ve come across an excellent and authoritative publication from America for anyone who is negotiating with building managers. |
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CFS dissertation: contributions wanted
Janice Sutton is a student at The Notre Dame University enrolled in a Master of Counselling degree. As part of her course she needs to complete a research project and she have chosen to study Chronic Fatigue Syndrome. |
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MCS Report Clock: Letters from state Ministers
Here are the latest letters from state Ministers in response to our enquiries into the MCS report’s progress. |
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Society Pages: Working Bee photos
Members of the Society met at the Society’s office on Saturday August 5, 2006 for a Working Bee. |
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CFS Phoenix – June 2006 newsletter
We recommend the online publication Phoenix Rising, an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. It provides a quirky but in-depth and reliable view of new research in CFS. |
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Chemical Safety review
The federal Office of Chemical Safety is currently conducting a review of national policy on multiple chemical sensitivity. |
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Herald Sun blog: Cruelty of chronic fatigue
Robyn Riley, a columnist with the Herald Sun, writes a blog (web log) there. Her entry for Sunday July 23 is an article on CFS entitled “Cruelty of chronic fatigue”. |
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From ME Research UK
On Wednesday June 7, 2006 Dr Vance Spence and Dr Neil Abbot travelled to London for a presentation at the third oral hearing of the Group on Scientific Research into ME (Gibson Parliamentary Inquiry) in the Millbank offices of the House of Commons, London. |
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Possible diagnostic testing for CFS
“Waking up to hope: For the first time, a test may be able to identify a mysterious disorder” is the title of an article by Karen van Kampen in the LifeSTYLE section of the Calgary Herald. |
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Both Genetic Relationship and Close Household Contact Possible Risk Factors for CFS
ProHealth’s ImmuneSupport.com website has printed a summary of research which suggest both a genetic and household contact link between some CFS patients. |
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Getting into the workforce
We’re pleased to post here a useful short document for people with CFS who are wanting to get into the workforce or want to go back to work. |
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Vote Molesworth!
Simon Molesworth AM QC, our distinguished national president, is in the running for a prize from Tattersalls lottery. He donated monies he received as a monhtly award winner to the Victorian and national associations. We want him to win the yearly one!! |
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Review of supported accommodation
The State government has announced a review of its arrangements for managing accommodation for people who need some form of support or other in their place of residence. |
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A Hummingbirds Guide to M.E.
A Hummingbirds Guide to M.E. is a website run by Jodi Bassett, and it contains information on severe Myalgic Encephalomyelitis. |
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MCS Report Clock: Letter from Dr Kevin Buckett, Director Public Health
A letter from Dr Kevin Buckett, Director Public Health, in response to our enquiries into the MCS report’s progress. |
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First official death in the UK from chronic fatigue syndrome
New Scientist reports that Sophia Mirza, a 32-year-old Englishwoman, died from what Coroner Veronica Hamilton-Deeley noted as “acute aneuric renal failure (failure to produce urine) due to dehydration as a result of CFS.” |
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CFS Phoenix – May 2006 newsletter
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
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CFIDS Chronicle: 10 Solutions for Daily Life
Due to the overwhelming popularity of an article entitled “10 Solutions for Daily Life” in a previous issue of the CFIDS Chronicle (the publication of the CFIDS Association of America), the Association has decided to make it a regular part of each issue. |
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Two pediatric CFS studies from the UK
The CFIDS Association of America reports that “the vast majority of CFS research focuses on adults; however, earlier this year, two studies out of the United Kingdom explored different elements relating to children with CFS.” |
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MCS: our politicians are working for us
It’s heartening to see that the politicians who have supported us during and after the Inquiry into MCS have keep on the case. |
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A member’s story in parliament
South Australian Democrats Senator Sandra Kanck MLC has moved a motion to toughen our anti-smoking legislation. In doing so she quoted the experience of one of our members. |
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Drug found effective in treating CFS
UK’s The Daily Mail reports that “a drug used to treat herpes infections has produced a dramatic improvement in patients severely affected by ME, or fatigue syndrome.” |
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CFS Phoenix – March & April 2006 newsletters
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
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MCS: we’ve written to the Minister for Health
Our president has been watching our MCS Report Clock for the last month, and when it hit 330 days he decided that it was time to write and ask what is going on. |
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Guidelines for psychiatrists – the Candaians have done it again!
The Canadians have been doing some superb work on developing guidelines of all kinds for the medical profession re CFS and Fibromyalgia. |
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Badge Day
The Society’s annual Badge Day was held on the traditional last Friday in May. A small band of volunteers – and a great group of Annesley College girls – raised just over $1000. |
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New section: Society Pages
The website has a new section entitled Society Pages. It contains photo galleries of Society members out and about. |
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Remember the National Association
We’ve just realised that our growing Links section was missing one vital link – our national association, The ME/Chronic Fatigue Syndrome Association of Australia Limited. |
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Making Catholic schools chemically safer
A delegation from the ME/CFS Society and the SA Task Force on Multiple Chemical Sensitivity met senior officers of the Catholic Education Office on May 17. |
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Fibromyalgia & CFS Self-Management Toolkit Program
This program is two hours, weekly for eight weeks. The course starts June 21, 2006. |
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Seminar: From Research to Practice
A seminar to be held on Wednesday May 24, 2006 for all people involved in the Physical and Neurological Sector, presented by the Physical & Neurological Council of SA. |
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SA Have Your Say Community Forum – a member's feedback
Val McKeown attended an SA Have Your Say Community Forum presented by South Australia’s Strategic Plan in Adelaide on May 8, 2006. |
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MCS sufferers slam reference group delays
ABC News Online reports that the State Government has gone back on its word to help multiple chemical sensitivity sufferers. |
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Got private health insurance? Check this
It looks as if there could be some changes coming to private health insurance in Australia. The Consumers Health Forum is seeking feedback from consumers (you), according to its latest HealthUpdate. |
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Ciao Italia!
Our president has just written to the Butt Littering Trust which has a strong environmental focus. But arguably its work is making it easier for smokers to do their thing and harm our many members who are reactive to cigarette smoke. |
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Butt littering campaigns – good for the environment but what about us?
Our president has just written to the Butt Littering Trust which has a strong environmental focus. But arguably its work is making it easier for smokers to do their thing and harm our many members who are reactive to cigarette smoke. |
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National Awareness Week: May 7-13, 2006
Yes, the annual celebration of Florence Nightingale’s birthday is coming up. (For those of you who don’t know, she’s regarded as one of the more famous people with CFS.) |
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MCS Report clock ticks on…
The Social Development Committee of State Parliament tabled the report of its Inquiry into Multiple Chemical Sensitivity on July 5, 2005. |
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Fruit fly outbreak in the Wingfield area
There has been a recent fruit fly outbreak in the Wingfield area. |
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Comments on the CDC research results
We posted on our website some days ago (April 24 – see below) a media release and related material from the CFIDS Association of America about the results of a big research project funded by the Centers for Disease Control and Prevention (CDC) in the USA. |
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New CFS research from the CDC merits CFIDS Association Director’s help to attract press
The CFIDS Association of America reports that a special issue of the peer-reviewed journal Pharmacogenomics features 14 papers about chronic fatigue syndrome. |
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South Australia’s Strategic Plan: Have your say
South Australia’s Strategic Plan is a website concerned with improving the wellbeing and prosperity of South Australians. |
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American CFS Public Awareness Campaign to Launch in June
The CFIDS Association of America will be launching a $4 million public awareness campaign on chronic fatigue syndrome in June. |
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Schedule of Pharmaceutical Benefits now online
The Department of Health and Ageing will discontinue printing and distributing hard copies of the Pharmaceutical Benefits Schedule from late 2006. |
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Simon Molesworth wins Tattersall’s Award for work in CFS
Simon R. Molesworth, President of both the National Association of ME/CFS and ME/CFS Australia (Victoria), has been given the Tattersall’s Award For Enterprise & Achievement. |
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More evidence that CFS is a legitimate medical condition
Researchers at Georgetown University Medical Center have found that chronic fatigue syndrome (CFS) may be rooted in distinct neurological abnormalities that can be medically tested. |
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CFIDS Chronicle: Special Issue
Great reading from the CFIDS Association of America. |
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CFS Phoenix – January & February 2006 newsletters
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. |
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The Election Washup
Includes CFS lobbying and statements from MPs. |
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New section: Members’ pages
ME/CFS Australia (SA) Inc website has a new section entitled Members’ pages. |
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Treating M.E. – the basics
Jodi Bassett, of A Hummingbirds Guide to M.E., has produced a helpful document entitled Treating M.E. – the basics. |
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HCSCC – they want your complaints!
Here’s the first newsletter of the new Health and Community Services Complaints Commissioner. Our Society encourages its members to use all means available to raise awareness in the public sector of the needs of people with CFS. |
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State Election 2006 Watch
The latest from State Election 2006 is more responses, comments and statements from various political parties. |
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Brain injury linked to chronic fatigue
ABC News Online reports that new research by Australian scientists suggests that CFS “may be caused by temporary brain injuries resulting from a bout of glandular fever.” |
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Sunday Mail letter
Members of the Society have criticised the response to a letter published in the Body + Soul lift-out section of the February 26 edition of the Sunday Mail. |
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Letter 2 to Dr Cindy Pan in response to Sunday Mail letter
Members of the Society have criticised the response to a letter published in the Body + Soul lift-out section of the February 26 edition of the Sunday Mail. This letter was written by Peter Mitchell. |
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Letter 1 to Dr Cindy Pan in response to Sunday Mail letter
Members of the Society have criticised the response to a letter published in the Body + Soul lift-out section of the February 26 edition of the Sunday Mail. This letter was written by Jennifer Tosolini. |
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“Wow! Imagine if…”
That’s how honorary secretary Peter Mitchell wrote in forwarding news to the State committee of the national lobbying blitz that the CFIDS Association of America will conduct in Washington in May. |
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Canadian Consensus Documents Overviews
The Canadians have done outstanding work on developing Consensus Documents, national statements on CFS and fibromyalgia. |
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Is CFS a brain disorder?
A special double issue of The CFIDS Chronicle, the publication of the CFIDS Association of America, is about to mail to subscribers everywhere. |
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De Meirleir Forum presentations available
There was intense interest in the seminar meeting in Adelaide in June 2005 between Australian researchers and clinicians and Professor Kenny De Meirleir. |
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MCS Inquiry
There was intense interest in the seminar meeting in Adelaide in June 2005 between Australian researchers and clinicians and Professor Kenny De Meirleir. |
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CFS Phoenix – December 2005 newsletter
We draw your attention to Phoenix Rising, an e-newsletter put out by Cort Johnson, an American CFS sufferer. |
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The Fundamentals of ME
“The Fundamentals of Myalgic Encephalomyelitis” is an informative page that details various aspects of ME. |
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Mental Health Meeting
The Mental Health Coalition of South Australia will be hosting a mental health meeting on Monday February 13, 2006 at 6:15pm - 7:45pm. |
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Disability Policy Summit
Compass SA and Parent Advocacy will be hosting a Disability Policy Summit on Thursday February 9, 2006 at 7pm. |
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FM/ME/CFS Toolkit Self-Management Program
The Southern Chronic Illness Links Network presents a series of courses beginning in March designed for the special needs of people with complex chronic illnesses such as Fibromyalgia and ME/CFS chronic fatigue syndromes. |
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Ignore the model!
Journalist Lollie Barr has just published an article on ME/CFS. It’s been syndicated in the Sunday Telegraph and other Sunday newspapers around the land. |
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ME Research: Making the Breakthrough
On November 12, 2005, MERGE Chairman Dr Vance Spence gave a talk at the Oak Tree Court Conference Centre, Coventry. |
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CFS Phoenix – November 2005 newsletter
CFS Phoenix publishes a CFS newsletter, “Phoenix Rising,” that can keep you up to date on the latest CFS news and research (including the Paper of the Month) plus patient stories, etc. |
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Oxidative stress levels raised in CFS
A new article entitled “Oxidative stress levels are raised in chronic fatigue syndrome and are associated with clinical symptoms” has been published on the MERGE website. |
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)