 |
Email the Society |
 |
Donations |
ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
|
Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
| Become a Member | |||
|
Comments on the CDC research results
April 26, 2006
We posted on our website some days ago (April 24 – see here) a media release and related material from the CFIDS Association of America about the results of a big research project funded by the Centers for Disease Control and Prevention (CDC) in the USA.
Since then we’ve received a strong attack on the CFIDS Association and the CDC from Jodi Bassett. Jodi is a CFS activist who runs a very good website, A Hummingbirds Guide to M.E.. It’s certainly worth bookmarking. She believes that the CDC has been a dark force in the politics of CFS research and Hilary Johnson’s seminal book Osler’s Web is scathing about its role. There are those too who argue that the CFIDS Association has got too close to the CDC and therefore has not fought the battle as well as it should for more and better research. They believe that we should not give prominence to the CDC and CFIDS Association.
As you’d probably know, the SA Society’s approach has been to bring all its members more into the flow of vital information about CFS research and other matters via our website, bulletin, telephone service and snail mail (for those not on the Internet). In this case we’ve decided that we’ll keep the CDC research item posted on our website. We’ve also posted Jodi’s comments and as well the response to them of Peter Mitchell (see below). Peter agrees in substance with Jodi about the past history of the CDC but argues that it is better to accept any progress and move on.
You might be interested in the debate and the way in which it throws light on what might otherwise seem to be just a ‘good news’ story. We know from the Australian scene that a few senior researchers who have gained prominence on CFS matters have themselves arguably been dark forces hindering useful and practical research and lending credence to the idea that this is a psychosomatic condition.
We gave Jodi an opportunity to respond to Peter’s views, with the knowledge that each of those articles would be published here. Jodi has taken that opportunity. Both of her messages are published below:
• |
|
• |
Comment by Peter Mitchell |
• |
Right of reply by Jodi Bassett |
And here’s a further contribution from an American CFS activist, Mary Schweitzer, forwarded to us by Christine Hunter of the Alison Hunter Memorial Foundation. It’s a reminder that the devil is often there in the detail:
• |
Previous Page |
