ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
GPO Box 383,
South Australia 5001
266 Port Road,
South Australia 5007
Ph: (08) 8346 3237
(Mondays and Thursdays,
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
The ME Association: response to the NICE Guideline on ME/CFS
Thursday November 23, 2006
The ME Association in the UK has had to fight a battle against a health bureaucracy promoting a psychiatric approach to ME/CFS. This has involved using cognitive behaviour therapy and graded exercise therapy (CBT and GET) as their front-line treatments.
This has been complicated by a very vague definition of the illness, which allows researchers to include almost any chronically fatigued patient in their cohort (and of course, many of those don’t have CFS, and are then “cured” by CBT and GET).
The latest round is this. NICE is the National Institute for Health and Clinical Excellence, “an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health” – but while “independent” they have had a remit to prepare these guidelines by April 2007. The rebuttal by The ME Association, posted on their News From The ME Association blog, is fiery and worth a read.