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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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In the News

2007

December

New Zealand’s leading authority on CFS rewarded in New Year’s Honours
Monday 31 December 2007: Dr Ros Vallings has been awarded The Order of New Zealand, MNZM.

Victorian News:
“Doc Talk” phone link-up

Sunday 23 December 2007: On Tuesday 27 November 2007, a two-hour teleconference for General Practitioners was convened by ME/CFS Australia (Victoria).

Merry Christmas from the Society
Sunday 23 December 2007: ME/CFS Australia (SA) Inc wishes you and your loved ones a very merry Christmas and a happy New Year.

Advertising campaign – funny or cruel?
Sunday 23 December 2007: An advertising campaign for ninemsn’s The Fix has been brought to the Society’s attention by a member who feels that it is insensitive and an insult to those suffering from CFS.

Phoenix Rising: 2006 Year in Review
Saturday 22 December 2007: The latest offering from Phoenix Rising is a special edition entitled ME/CFS Research 2006: The Year in Review.

Polio vaccine and ME/CFS link?
Saturday 22 December 2007: The following is a Q&A session with Dr Richard L Bruno who is Chairperson of the International Post-Polio Task Force and Director of The Post-Polio Institute and International Centre.

Office server back online
Wednesday 19 December 2007: The Society’s office server is back online and fully functional.

Office server offline
Wednesday 19 December 2007: The Society’s office server is currently offline and has been for a couple of weeks.

Making Adelaide a smoke-free city (for a day)
Monday 17 December 2007: The Liberal Party’s The Hon David Ridgeway MLC is moving for Adelaide to be declared smokefree for two days in 2008.

Victorian News:
Victorian Companion Card

Monday 17 December 2007: Victorians with a disability may be eligible for a Victorian Companion Card.

A Survey of ME/CFS Patients to Provide Data for Public Education
Friday 14 December 2007: ProHealth’s ImmuneSupport.com is conducting an online survey.

Federal Election Watch:
Lobbying the new Federal Government on MCS

Friday 14 December 2007: Dorothy Bowes, President of the Allergy Sensitivity and Environmental Health Association of Qld, has commenced a letter writing campaign to lobby the new federal Labor government for recognition of MCS and completion of the promised review of MCS by the Office of Chemical Safety.

Feeling left out? An interesting new Australian study
Thursday 13 December 2007: The final report of a major project addressing the broader issues of poverty, led by Professor Peter Saunders from the Social Policy Research Centre of the University of New South Wales, has now been released.

Federal Election Watch:
National health reform – an interesting approach by the AMA

Monday 10 December 2007: The Australian Medical Association has written a pithy letter to the new Minister for Health, Nicola Roxon.

Riverland ME/CFS Support Group meeting
Thursday 6 December 2007: The Riverland ME/CFS Support Group’s next meeting will be held on Friday 28 March 2008 at the Riverland Resource Centre, Berri.

Victorian News:
By Laws for Victorian Society

Monday 3 December 2007: Victorian members will realise that as part of the Constitutional changes, Rule 37 enables the Committee to develop By Laws to give better effect to the rules and for the proper and effective administration of the Society.

November

AGM Minutes
Friday 30 November 2007: The Minutes of the Society’s Annual General Meetings are now available.

Federal Election Watch:
Polly Chaser Tim Hill on chasing the pollies

Friday 30 November 2007: Polly Chaser Dr Timothy Hill (PhD) has provided us with his latest letters to politicians and their responses, and offers analysis of it all.

Charity calendar to raise awareness of Fibromyalgia
Thursday 29 November 2007: A calendar is being produced to raise awareness of Fibromyalgia.

Dr Sarah Myhill writes to the media about the NICE Guidelines
Tuesday 27 November 2007: Dr Sarah Myhill has written an open letter in support of an article published in The Daily Telegraph.

Phoenix Rising: Interview with Dr Suzanne Vernon
Tuesday 27 November 2007: The latest offering from Phoenix Rising is an interview with Dr Suzanne Vernon, the new Scientific Director of the CFIDS Association of America.

Response from the ALP’s Nicola Roxon MP
Monday 26 November 2007: Polly Chaser Dr Tim Hill (PhD) emailed Nicola Roxon MP and received a reply.

Photos from the Annual General Meeting
Friday 23 November 2007: The Society held its Annual General Meeting on Saturday 17 November 2007 at the Disability Information and Resource Centre in Adelaide.

Vote against smoking
Thursday 22 November 2007: The South Australian Democrats are campaigning to have smoking banned in playgrounds.

Riverland ME/CFS Support Group meeting
Thursday 22 November 2007: The Riverland ME/CFS Support Group’s next meeting will be held on Friday 30 November 2007 at the Berri Resource Centre, Berri.

Federal Election Watch:
Another candidate responds – positively

Wednesday 21 November 2007: Polly Chaser Dr Russell Pace lobbied David Wright, the independent candidate for the seat of Grey. Mr Wright responded. He has a personal connection with ME/CFS.

Federal Election Watch:
Letter to the Libs

Tuesday 20 November 2007: Polly Chaser Patsy Harmsen wrote to the Liberal Party yesterday and is now awaiting a response.

Annual Reports
Monday 19 November 2007: The president delivered the 2007 annual report at the Society’s AGM on Saturday 17 November.

Professor Kenny De Meirleir’s Presentation in Perth
Sunday 18 November 2007: Professor Kenny De Meirleir gave a presentation in Perth, Western Australia, on 3 November 2007.

CFS Heart Rate Dysfunction Persists In Sleep
Sunday 18 November 2007: The CFIDS Association of America reports that “A study published in Autonomic Neuroscience found that increased heart rate and reduced heart rate variability in CFS patients was also present during sleep, suggesting an ongoing state of sympathetic autonomic dysfunction”.

Federal Election Watch:
The Official List of Polly Chasers

Saturday 17 November 2007: We’ve now compiled a list of all our Polly Chasers.

Federal Election Watch:
Comment on Kate Ellis MP

Saturday 17 November 2007: Polly Chaser Julie Gilbert wrote to the ALP’s Federal Member for Adelaide, Kate Ellis MP, but didn’t receive much of a reply.

Federal Election Watch:
Postal votes

Friday 16 November 2007: If you can’t make it to a polling booth on Election day you can cast your vote by post.

Reminder: AGM
Thursday 15 November 2007: A reminder that the Society’s Annual General Meeting for this year will be held this coming Saturday, 17 November 2007.

Transcript of live chat Q&A with Dr David S Bell
Thursday 15 November 2007: ProHealth’s ImmuneSupport.com hosted a live chat Q&A with Dr David S Bell MD (pictured) at 3pm on Friday 2 November in the US (7:30am on Saturday 3 November, South Australian time).

The Chookhouse Summit
Wednesday 14 November 2007: A group of key ME/CFS medical practitioners met on 18 October to discuss ways and means of strengthening the medical networks for people with ME/CFS in South Australia.

Victorian News:
Part-time position vacant

Tuesday 13 November 2007: A position is vacant for the part-time Community Development Officer for the Care and Crisis Support Service based in Burwood.

Federal Election Watch:
The Coalition on the Office of Chemical Safety – not much, but better than nothing

Tuesday 13 November 2007: MCS Task Force convenor Peter Evans wrote to the Coalition regarding the huge inertia surrounding a review by the Office of Chemical Safety of the needs of people with MCS.

Judicial Review – no more pledges needed
Saturday 10 November 2007: The One Click Group has announced that no more pledges are necessary in the Judicial Review of the NICE Guidelines.

Federal Election Watch:
Second response from Dr Andrew Southcott MP

Friday 9 November 2007: Dr Andrew Southcott MP has responded again to Polly Chaser Lynda Brett after she wrote to him about his first reply.

Judicial Review – a different perspective
Thursday 8 November 2007: Yesterday we ran an article about a call for help with legal action on a judicial review of the NICE Guidelines. The ME Association has published its own views on the legal action.

CFS/ME NICE Guidelines Judicial Review
Wednesday 7 November 2007: The Society has received a flyer from The One Click Group about a judicial review of the NICE Guidelines.

Victorian News:
Link Up Plus Project

Tuesday 6 November 2007: This project has been running for almost 12 months and is about to come to an end. Again it has proved a valuable communication tool for members who are housebound and feel isolated.

Victorian News:
1400 Victorian GPs to receive the Canadian Overview document

Tuesday 6 November 2007: ME/CFS Australia (Victoria) has funded the printing and distribution of the Canadian Overview document to be included into the Satchel which is distributed to every GP who attends the GPCE over the weekend of the 16-18 November in Melbourne.

Victorian News:
Victorian funding update

Tuesday 6 November 2007: Over the past 12 months ME/CFS Australia (Victoria) has been successful in obtaining funds from philanthropic trusts and others to assist the Society in providing much needed assistance to those with ME/CFS.

Federal Election Watch:
Update on MPs’ response to letters sent by Victoria

Tuesday 6 November 2007: Since sending letters to the Victorian and Tasmanian Federal members of Parliament – and the Ministers involved – an election has been called.

Health Consumers Alliance e-bulletin
Tuesday 6 November 2007: The Health Consumers Alliance of SA Inc (HCA) is the not-for-profit, peak community organisation for health consumers using SA health services.

Victorian News:
Victorian Society has a new operating name

Monday 5 November 2007: Following the Special General Meeting held on 28 October 2007 and the subsequent approval being received from Consumer Affairs Victoria, the Victorian Society will now operate as “ME/CFS Australia (Victoria)”.

Federal Election Watch:
Response to Dr Andrew Southcott MP

Monday 5 November 2007: Polly Chaser Lynda Brett replied to the response she received from Dr Andrew Southcott MP.

Phoenix Rising: Interview with Rik Carlson
Friday 2 November 2007: The latest offering from Phoenix Rising is an interview with Rik Carlson, founder of the Vermont CFIDS Association.

Free training for volunteers
Friday 2 November 2007: The Government of South Australia’s Office for Volunteers is funding free training for volunteers during November and December.

Federal Election Watch:
Response from the Lib’s Dr Andrew Southcott MP

Friday 2 November 2007: Polly Chaser Lynda Brett wrote some time ago to the Dr Andrew Southcott MP, the Federal member for her electorate of Boothby.

Federal Election Watch:
Response from the ALP’s Tanya Plibersek MP

Friday 2 November 2007: Polly Chaser Dr Timothy Hill (PhD) has had a response from the ALP’s Tanya Plibersek to an email he sent her.

Reminder: Live chat Q&A with Dr David S Bell
Friday 2 November 2007: A reminder that ProHealth’s ImmuneSupport.com will be hosting a live chat Q&A with Dr David S Bell MD tomorrow morning at 7:30am (South Australian time).

Federal Election Watch:
Comment on Kate Ellis’s response

Thursday 1 November 2007: Dr Timothy Hill (PhD) has sent us a comment on the ALP’s Kate Ellis’s response to a query on ME/CFS funding.

ME/CFS Gets the Nod
Thursday 1 November 2007: ProHealth’s ImmuneSupport.com reports that “The CFS Name Change Advisory Board has amended its initial proposal and now recommends that the name for ‘chronic fatigue syndrome’ be changed to the acronym ME/CFS.”

CFS information from the Mayo Clinic
Thursday 1 November 2007: The Women’s Health section of the MayoClinic.com website has a comprehensive overview of CFS.

October

Photos from the Riverland CFS Support Group’s 26 October meeting
Wednesday 31 October 2007: Photos are now available from the Riverland CFS Support Group’s very first meeting held on Friday 26 October at Berri Library Multi Media Room, Berri.

New favourite poems for the week
Wednesday 31 October 2007: “On Commissary Goldie’s Brains” by Robert Burns; and “Pointy Birds” by John Lillison.

The Environmental Illness Resource
Tuesday 30 October 2007: The Environmental Illness Resource is a website that provides information, news and research updates, doctor-authored articles, forums, and other resources for sufferers of environmental illnesses such as MCS, CFS, and fibromyalgia.

Federal Election Watch:
Response from the ALP’s Kate Ellis MP

Monday 29 October 2007: One of our Polly Chasers, Suzanne McCusker, has had a response from the ALP’s Federal Member for Adelaide, Kate Ellis MP.

Federal Election Watch:
Simon Molesworth letter to MPs

Monday 29 October 2007: On Tuesday 9 October 2007 the Victorian President, Simon Molesworth, sent this letter and attachment to 66 Federal MPs in Victoria and Tasmania in the Senate and House of Representatives.

New section: My favourite…
Friday 26 October 2007: Further to our article yesterday, we have a new section on the website devoted to “a few of our favourite things…” (to paraphrase a fairly well-known nun).

Your favourite poem – a new feature
Thursday 25 October 2007: We’re starting a new feature. It springs from one of the many interchanges between the team responsible for feeding this website’s voracious appetite. We started swapping favourite poems, and decided to bring everyone in on it.

Live chat Q&A with Dr David S Bell
Thursday 25 October 2007: ProHealth’s ImmuneSupport.com will be hosting a live chat Q&A with Dr David S Bell MD (pictured) on Friday 2 November 2007 from 3 to 4pm Pacific Standard Time in the US.

New joke: Wedding invitation
Wednesday 24 October 2007: We have a new joke for our Humour section.

Reminder: Is Your House Killing You?
Wednesday 24 October 2007: The second episode of Is Your House Killing You? will air tonight at 7:30pm on SBS.

Social Support and Fibromyalgia Research
Tuesday 23 October 2007: A new research study focusing on fibromyalgia is underway at Victoria University.

Phoenix Rising: The Autonomic Nervous System Edition
Monday 15 October 2007: Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

Is Your House Killing You? – the full details
Friday 12 October 2007: We announced recently that a great new TV series was starting shortly on SBS, Is Your House Killing You?. The program deals with something that most people with ME/CFS know all too much about: the toxic impacts of chemicals and moulds.

Are you right-brained, left-brained – or just fogged-brained?
Thursday 11 October 2007: Actually, this is a neat little test of the old right brain/left brain theory. It’s nothing to do with ME/CFS. But you might like to try it.

The MCS rally: how’s this for fast action?
Wednesday 10 October 2007: Only one good politician attended the MCS rally on 8 October. But Sandra Kanck MLC was enough.

Riverland Support Group – first meeting
Wednesday 10 October 2007: The Riverland CFS Support Group will be holding its first meeting on Friday 26 October 2007.

Society AGM
Wednesday 10 October 2007: A reminder that the Society’s Annual General Meeting will be held on Saturday 17 November 2007 at the Disability Information and Resource Centre, 195 Gilles Street, Adelaide.

Photos from the MCS Rally
Tuesday 9 October 2007: Twenty people – including a very cute little girl and a good Aussie cattle dog – rallied outside the offices of the Commonwealth Department of Health and Ageing on Monday 8 October.

CBT for ME doesn’t work according to psychiatrists
Tuesday 9 October 2007: THE NICEGUIDELINES BLOG reports that an article recently published in The World Journal of Biological Psychiatry refutes claims that CFS/ME is a disease with a psychological basis and that CBT is effective in treating it.

Federal Election Watch:
Key Issues in ME/CFS in Australia

Tuesday 9 October 2007: This paper has been developed over the past twelve months by Jim Chambers, Pres of the Victorian Society, as a document to send to the Federal Health Minister on behalf of the national body.

Rickettsia article
Saturday 6 October 2007: The following news article will possibly be of interest to those members who have tested positive to Rickettsia.

Remember the MCS Rally
Friday 5 October 2007: We’re calling on you to attend the rally outside the offices of the Commonwealth Department of Health and Ageing.

Promoting the accommodation needs of people with ME/CFS and MCS
Thursday 4 October 2007: We advertised on 28 September a coming forum on housing for people with special needs. We’ve since liaised with the organisers and have had a positive response.

CFS Toolkit
Thursday 4 October 2007: The Centers for Disease Control and Prevention has published a “CFS Toolkit”.

September

Chemically sensitive and concerned about fluoride?
Saturday 29 September 2007: We’ve been sent an alert from the national network of MCS campaigners regarding a pending approval to use a fluoride-based substance as a food fumigant.

Is Your House Killing You?
Friday 28 September 2007: That’s the title of a coming series on SBS. It’s a beauty of a consciousness raiser for the cause of people with chemical sensitivities.

Housing forum – get along and say something
Friday 28 September 2007: The Minister’s Strategic Housing Advisory Committee, along with Shelter SA, is presenting an information forum being held to give an update on the many changes that have occurred in housing over the past 12 to 15 months.

Help-With-Arthritis-Pain.com
Tuesday 25 September 2007: A website that may be of interest to those with pain associated with ME/CFS or fibromyalgia is Help-With-Arthritis-Pain.com.

Phoenix Rising: The CDC Prevalence Definition Edition
Tuesday 25 September 2007: Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

New virus in CFIDS, MS, and epilepsy
Tuesday 25 September 2007: According to a press release by the National CFIDS Foundation, Inc (NCF), “Recent independent scientific research funded by NCF of Needham, MA provided preliminary confirmation of a new virus identified in patients with Chronic Fatigue Syndrome.”

Women and Fibromyalgia
Monday 24 September 2007: Author Barbara A Keddy, RN, PhD, has published a book entitled Women and Fibromyalgia: Living with an Invisible Dis-ease.

Meet Millie, the Only Kangaroo in the Whole ME/CFS Universe!
Friday 21 September 2007: The South Australian State Committee has the frequent pleasure of being joined at meetings by Emma Wing’s joey, Millie.

MCS Reference Group meeting report
Friday 21 September 2007: Peter Evans, Convenor of the SA Task Force on MCS, has a report of the 20 September MCS Reference Group meeting.

Photo exhibit tells story of chronic-fatigue syndrome
Thursday 20 September 2007: The Dallas Morning News has an article by Nancy Churnin about a photo exhibition entitled “The Faces of Chronic Fatigue Syndrome”.

Name Change Campaign - The Choice Is Yours!
Sunday 16 September 2007: ProHealth’s ImmuneSupport.com has a campaign underway to change the name ‘Chronic Fatigue Syndrome’ to ‘ME/CFS’.

Outdoor smoking: the minor parties fight for us
Friday 14 September 2007: Family First and the South Australian Democrats have joined in Parliament of South Australia to get our feet-dragging State government to catch up to Queensland and other places when it comes to banning smoking in outdoor eating places.

Riverland Support Group
Thursday 13 September 2007: We’re delighted to learn that the Riverland is about to get a support group for people with ME/CFS.

MCS Public Health Rally
Wednesday 12 September 2007: A Public Health Rally recognising Multiple Chemical Sensitivity will be held on Monday 8 October 2007 at the Department of Health and Ageing, 11 Waymouth Street, Adelaide.

Response to MCS Clinical Review
Wednesday 12 September 2007: The Allergy, Sensitivity & Environmental Health Association Qld Inc has published a response to the Office of Chemical Safety’s MCS Clinical Review.

NICE Guideline on ME/CFS – MEA statement
Wednesday 12 September 2007: Britain’s ME Association has responded to the recently published NICE Guideline on CFS/ME.

“Original Sin” – article by Cort Johnson
Wednesday 12 September 2007: Cort Johnson, of CFS Phoenix, has written an article about the after-effects of an outbreak of CFS in Incline Village.

National Invisible Chronic Illness Awareness Week video
Wednesday 12 September 2007: National Invisible Chronic Illness Awareness Week runs from 10-16 September 2007.

Nutrition information
Tuesday 11 September 2007: Dietitian Melanie Reid, speaker at our recent meeting, has kindly provided us with nutrition-related information available to download.

Federal Election Watch:
Become an ME/CFS Polly Chaser

Monday 10 September 2007: No, we’re not asking you to risk imprisonment by piercing APEC-level security systems. But how about joining our own campaign to pursue those Federal politicians during the coming election?

Photos from the Society’s 8 September 2007 meeting
Saturday 8 September 2007: Photos are now available from the Society’s meeting held on Saturday 8 September at the Ellangowan Hall in the St Peters Holy Name Church, Stepney.

New website section: Humour
Friday 7 September 2007: The website has a new Humour section.

Our coming meeting is on that big topic – diet
Wednesday 5 September 2007: Dietitian Melanie Reid speaks on this key issue and its many ramifications for people with ME/CFS.

We get a free commercial
Tuesday 4 September 2007: We’ve scored a free radio commercial.

Ayurvedic seminars
Monday 3 September 2007: Member Spen Langman has drawn our attention to two seminars.

August

Flu vaccines
Thursday 30 August 2007: Some members have contacted us regarding influenza vaccines, given the current number and severity of flu cases in Adelaide.

Federal Election Watch:
Letter to the Federal Health Minister

Tuesday 28 August 2007: Here’s an excellent letter written by WA president, Colin Neathercoat, to the Federal Minister for Health.

Federal Election Watch:
Electorates

Tuesday 28 August 2007: Member James Hackett has helped us to put together data on where our members are across the eleven SA electorates.

Keep up with the national health agenda
Tuesday 28 August 2007: Here’s the latest issue of the Consumers’ Health Forum of Australia newsletter HealthUpdate.

Support your local president
Monday 27 August 2007: Our President Peter Cahalan has been nominated as a local hero in the My Local Hero scheme. This is a great opportunity to generate publicity for the Society and the cause of ME/CFS.

Healthy female volunteers needed for research project
Thursday 23 August 2007: Dr Richard Burnet, Deputy Director of Enocrinology at Royal Adelaide Hospital, is researching the topic of “Autonomic dysfunction in people with ME/CFS”.

Live chat: The Hot Issues Surrounding CFS
Sunday 19 August 2007: ImmuneSupport.com hosted a live chat Q & A that was conducted with Dr Leonard A Jason, PhD, a Chronic Fatigue Syndrome researcher and policy leader.

Reproductive Issues
Sunday 19 August 2007: In a disease that affects three to five times more women than men, relatively little direct research has focused on the gynecological implications of CFS.

Recall of Prexige
Friday 17 August 2007: The federal Therapeutic Goods Administration has just recalled the drug Prexige because of its side effects.

Thank you to our Patron
Thursday 16 August 2007: We’d like to wish our immediate past patron, Mrs Marjorie Jackson-Nelson AC CVO MBE all the best in her recent retirement from the Governorship of SA.

Arts and science event at Flinders Medical Centre
Wednesday 15 August 2007: There’s an interesting event coming up at Flinders Medical Centre (FMC) this Sunday 19 August.

Get up to date on disability issues
Tuesday 14 August 2007: The Julia Farr Group and partners are organising a roadshow with key speakers on disability issues.

New website: ME agenda
Tuesday 14 August 2007: We recently highlighted a new website, Read ME UK. Since then, we have had a message from its creator, Suzy Chapman, who says that she also has a parallel site called ME agenda which carries the same content.

CFIDS & Fibromyalgia Self-Help website
Monday 13 August 2007: CFIDS & Fibromyalgia Self-Help is a US non-profit organisation dedicated to improving the quality of life for people with Chronic Fatigue Syndrome and fibromyalgia.

Australian ME/CFS Research
Saturday 11 August 2007: A study into ME/CFS is currently underway at The Australian National University.

New website section: Multimedia
Wednesday 8 August 2007: ME/CFS Australia (SA) Inc website has a new section focussing on its multimedia content.

An interesting issue of HealthUpdate
Tuesday 7 August 2007: The Consumers’ Health Forum of Australia, a national advocacy body, sends out a regular newsletter. With the Federal election looming it’s been on the trail meeting politicians.

Photos from the Society’s 4 August 2007 meeting
Tuesday 7 August 2007: Photos are now available from the Society’s meeting held on Saturday 4 August at DIRC, 195 Gilles St, Adelaide.

Family Medical History of Persons with Chronic Fatigue Syndrome
Monday 6 August 2007: ProHealth’s ImmuneSupport.com has an article about the possibility of Chronic Fatigue Syndrome and related diseases running in families.

New link: East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre
Friday 3 August 2007: The East Midlands Chronic Fatigue / ME Clinical Network Coordinating Centre is a UK site that aims to provide useful information about specialist CFS services.

Chronic fatigue syndrome finally gains official respect
Thursday 2 August 2007: The International Herald Tribune has published an article on CFS entitled “Chronic fatigue syndrome finally gains official respect”.

DisAbility Expo 2007
Wednesday 1 August 2007: DisAbility Expo is a fun day for persons with a disability, family, parents, friends and carers. Look, learn, be inspired and celebrate your ability and your potential.

July

American Family Physician: Fibromyalgia
Tuesday 31 July 2007: The latest issue of American Family Physician has a comprehensive article on Fibromyalgia.

MCS meeting
Wednesday 25 July 2007: Members who have expressed interest in being part of our lobbying activities on chemical sensitivity issues may be interested in a meeting coming up this Friday 27 July.

Next Society meeting
Wednesday 25 July 2007: The next Society meeting will be on Saturday 4 August, 12pm at DIRC. The topic is “A Guide to Managing CFS” and will be presented by psychologist Liana Taylor.

ME, CFS and disability pensions: a British saga
Wednesday 25 July 2007: If you’re interested in the politics of how our condition is shaped and framed by health and bureaucratic establishments, then read on about recent developments in Britain.

ME Research UK Christmas cards
Monday 23 July 2007: ME Research UK has Christmas cards for sale. There are 12 designs available.

Fatigue study
Saturday 21 July 2007: A fatigue study is currently underway at the Centre for Postgraduate Nursing at Otago University in New Zealand.

OzME Internet Mailing List
Thursday 19 July 2007: OzME is an Internet mailing list for people with CFS/CFIDS/ME, FMS, MPS, or any other related illness like MCS.

SAYME meeting
Wednesday 18 July 2007: There will be a SAYME (South Australian Youth with ME) meeting this Sunday, 22 July 2007, from 12 noon to 3pm.

New York Times article on CFS
Wednesday 18 July 2007: The New York Times has published an article on CFS entitled “Chronic Fatigue No Longer Seen as ‘Yuppie Flu’”.

Fibromyalgia information session
Monday 16 July 2007: Fibromyalgia SA is providing an information session on Sunday 5 August 2007 at the Arthritis Foundation in Fullarton.

New State Health Care Bill – they’re asking for our comment
Sunday 15 July 2007: The State government is restructuring the health system – again.

Funding for chronic fatigue syndrome research should be increased
Friday 13 July 2007: South Florida’s online newspaper, Sun-Sentinel.com, has an opinion piece by Dorothy Wall and Kenneth Friedman about funding in US for Chronic Fatigue Syndrome.

Telecross
Thursday 12 July 2007: Telecross is a service by the Australian Red Cross that provides the elderly and housebound with a reassuring daily phone call to ensure that they are safe and well.

Dr Andrew Barrie’s talk on bioresonance
Thursday 12 July 2007: For those of you who missed our 7 July meeting, here are Dr Barrie’s notes of his talk.

Jo Hicks update
Wednesday 11 July 2007: Jazz vocalist Jo Hicks has been having difficulties with her email address but can now be contacted via email again.

CFIDSLink July 2007 e-newsletter
Thursday 3 May 2007: The July 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available.

Gene cluster linked to chronic fatigue
Wednesday 11 July 2007: A news item by The Advertiser on Thursday 5 July reported that “Australian researchers have identified a cluster of genes linked to chronic fatigue syndrome which may help finally explain the mysterious condition.”

Encounters with the Invisible, by Dorothy Wall
Tuesday 10 July 2007: Dorothy Wall is the author of a new book, Encounters with the Invisible. Dorothy has made a video presentation of her book.

Funding cuts
Monday 9 July 2007: Arthritis SA has sent a letter to members and others. The letter outlines funding cuts, and the figures that they quote are astonishing in terms of cuts to a service that many of our members (particularly those with Fibromyalgia) use currently.

Photos from the Society’s 7 July 2007 meeting
Sunday 8 July 2007: Photos are now available from the Society’s meeting held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide.

Phoenix Rising: first Advocacy Edition
Thursday 7 July 2007: Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

Campaigning for a better Access to Buildings Standard
Monday 2 July 2007: Australian building codes on disabled access are deficient in many areas, and the building industry has been campaigning against a range of improvements to them.

International award for CFS researcher
Sunday 1 July 2007: The Honolulu Advertiser reports that “Pathology professor Yoshitsugi Hokama, at the University of Hawai’i’s John A. Burns School of Medicine, has received a national award for his research connecting ciguatera poisoning to CFIDS.

June

Next Society meeting
Saturday 30 June 2007: The Society’s next meeting will be held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide.

The best new pain cures, with a focus on women
Wednesday 27 June 2007: Although not specifically about ME/CFS, this article from CNN’s Health Magazine provides helpful strategies on pain management.

Badge Day photos
Tuesday 26 June 2007: The Society’s Badge Day was held on Friday 1 June 2007 in Adelaide.

The national health agenda – keep informed
Monday 25 June 2007: The Consumers’ Health Forum of Australia is a key national body which ensures that users of the health system are represented on all kinds of committees and reviews.

Next Society meeting
Saturday 23 June 2007: The Society’s next meeting will be held on Saturday 7 July at DIRC, 195 Gilles St, Adelaide.

Ten Discoveries about the Biology of CFS
Thursday 21 June 2007: Ten Discoveries about the Biology of CFS is a “print-and-go” handout listing 10 key discoveries, as described by Anthony Komaroff, MD.

CFIDSLink 20th Anniversary Special Edition e-newsletter
Thursday 21 June 2007: The CFIDS Association of America has published a special edition of their e-newsletter, CFIDSLink, commemorating the 20th year of the Association’s service and honoring the many people and events that have shaped two decades of collective CFS history.

ABC Radio National: All In The Mind
Sunday 10 June 2007: ABC Radio National’s Saturday afternoon program All In The Mind featured Chronic Fatigue Syndrome yesterday (Saturday 9 June).

Safer Solutions – a manual for chemically safe living
Sunday 10 June 2007: Here’s an excellent new Australian website devoted to pulling together practical ideas for managing one’s home and garden with minimal use of toxic chemicals.

Phoenix Rising: March/April 2007 issue
Thursday 7 June 2007: Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

New ME/CFS website
Tuesday 5 June 2007: ME/CFS Helpful Hints for Daily Living is a new website that contains a collection of practical hints for those suffering from ME/CFS.

CFS feature on Nightlife with Tony Delroy
Tuesday 5 June 2007: The ABC’s Nightlife with Tony Delroy featured ME/CFS last night (Monday 4 June).

Video contest winners announced
Tuesday 5 June 2007: Winners of the P.A.N.D.O.R.A. International Advocacy Video Contest have been announced.

May

Canadian newspaper article on CFS
Thursday 31 May 2007: Montreal’s The Gazette newspaper has published an article on CFS.

CFS feature on Nightlife with Tony Delroy
Wednesday 30 May 2007: The ABC’s Nightlife with Tony Delroy will be featuring ME/CFS in a segment on Monday 4 June around 9:40pm (SA) time.

National CFIDS Foundation award
Wednesday 30 May 2007: The National CFIDS Foundation has presented its first “Outstanding Researcher Award”.

Professor Marmion’s talk on Q Fever
Tuesday 22 May 2007: Committee member Melanie Cocker reports on Professor Barrie Marmion’s lecture of 12 May on Q Fever, Rickettsia and ME/CFS.

Q Fever vaccine – good news on the preventive front
Monday 21 May 2007: There’s good news re the production of a Q Fever vaccine.

CFS Advisory Committee testimony
Monday 21 May 2007: Mary Schweitzer has given testimony to the Chronic Fatigue Syndrome Advisory Committee of the US Department of Health & Human Services.

774 ABC Melbourne radio segment on CFS
Monday 21 May 2007: 774 ABC Melbourne’s Saturday morning segment, Fitness, Health and Nutrition with Tonya Roberts, had a feature on CFS on 19 May.

CFS and diet
Saturday 19 May 2007: The British Dietetic Association has produced a booklet on CFS and diet.

CFS in Nigeria
Friday 18 May 2007: Sage Journals Online has published a study on the prevalence of CFS in Nigeria.

Radio interview with Peter Cahalan
Thursday 17 May 2007: Peter Cahalan, President of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide.

Support sought for US Bill – update
Sunday 13 May 2007: Further to our earlier report on a call to support a US Bill for funding of the Nevada CFS Research Center, CFS Phoenix’s Cort Johnson has sent us another message.

JTV segment on ME/CFS
Saturday 12 May 2007: An article on ME/CFS appeared on JTV at 11:30pm last night (Friday 11 May) on ABC TV.

Adelaide ME/CFS Research Forum report
Saturday 12 May 2007: A report by Colin Neathercoat of the ME/CFS Research Forum, The University of Adelaide, 26-27 March 2007.

Federal inaction on the MCS Review – take action!!
Saturday 12 May 2007: Three years ago the Federal Office of Chemical Safety promised to review MCS issues.

The Federal budget and ME/CFS
Thursday 10 May 2007: The Federal Treasurer has delivered the 2007 Budget.

Support sought for US Bill
Tuesday 8 May 2007: Cort Johnson, of CFS Phoenix, has alerted us to difficulties facing the Nevada CFS Research Center.

A happy Awareness Week for our Victorian colleagues
Tuesday 8 May 2007: We’re delighted to hear that ME/CFS Australia (Victoria) has just learned that it’s received a major grant.

MJA editorial
Tuesday 8 May 2007: The Medical Journal of Australia, in a recent editorial, discussed the “Blame Game” currently being played around Australia between the states and territories whenever health funding is mentioned.

New Maltese website
Monday 7 May 2007: A new website has been created: M.E Sufferers Malta.

JTV segment on ME/CFS
Monday 7 May 2007: The Australian youth TV show JTV is presenting a short story on ME/CFS to be aired on Friday 11 May 2007 at 11:30pm on ABC TV.

CFIDSLink May 2007 e-newsletter
Thursday 3 May 2007: The May 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available.

Q Fever, Rickettsia and ME/CFS – hear our local world figure
Thursday 3 May 2007: Emeritus Professor Barrie Marmion AM has carried out work on Q Fever and Rickettsia – known triggers for ME/CFS – for many years.

Jo Hicks
Wednesday 2 May 2007: Society member, Jo Hicks, is a jazz singer who has released All Of Me, a CD of popular and jazz standards.

DVD now available
Wednesday 2 May 2007: The DVD of the 25 March 2007 public meeting entitled “ME/Chronic Fatigue Syndrome: The breaking news from around the world” held at Norwood Concert Hall is now available from ME/CFS Australia (SA) Inc office.

Fibromyalgia Well Spring Foundation to supply housing to FM/ME/CFS sufferers
Wednesday 2 May 2007: The Fibromyalgia Well Spring Foundation is planning to create subsidized housing estates in various locales.

April

World Health Organization to update International Classification of Diseases
Monday 30 April 2007: VOA News reports that “Medical professionals from around the world are working together under the World Health Organization to update the International Classification of Diseases.”

Health updates – are there devils (or angels) in the detail?
Friday 27 April 2007: Here’s the latest HealthUpdate from the Consumers’ Health Forum of Australia.

Smoke-free local places – strike a blow for your health and civic rights
Thursday 26 April 2007: Messenger Community Newspapers is running an online poll.

DIRC wants you to tell your story
Thursday 26 April 2007: The Disability Information and Resource Centre (DIRC) is calling on people with disabilities to “tell their stories and share their experiences.”

Phoenix Rising Special Edition: Pat Fero interview
Saturday 21 April 2007: Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

CFS Awareness Bracelets
Friday 20 April 2007: On the back of the current craze for bracelets for worthy causes like Live 8’s Make Poverty History, a member of the Notcrazy CFS forum came up with the idea of a CFS Awareness bracelet.

Public invited to Advisory Committee meeting
Friday 20 April 2007: The public will be invited to give witness testimonies during the CFS Advisory Committee meeting to be held on May 16 - 17 in Washington, DC.

Community Carers Service
Wednesday 18 April 2007: Are you caring for someone with ME/CFS and would like respite assistance? Here’s information about an Australian Red Cross program which might help you.

Dr Ian Buttfield speaks at Kadina
Tuesday 17 April 2007: Dr Ian Buttfield will address a meeting at the Kadina Town Hall on Saturday 21 April at 2pm.

Vision magazine now online
Sunday 15 April 2007: The Young ME Sufferers Trust publishes Vision, a magazine for young people, families and professionals.

The International IiME ME/CFS Conference 2007
Sunday 15 April 2007: Invest in ME (IiME) is hosting The International IiME ME/CFS Conference 2007 in London, beginning ME Awareness Month 2007.

CFIDSLink April 2007 e-newsletter
Friday 13 April 2007: The April 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available.

Sydney Morning Herald article on CFS
Thursday 12 April 2007: The Sydney Morning Herald has an article on Chronic Fatigue Syndrome.

We’re postponing our next meeting
Tuesday 10 April 2007: We were planning to have a meeting on 21 April to outline some of the discussions at the March research forum held here in Adelaide.

Phoenix Rising: January/February 2007 issue
Tuesday 10 April 2007: Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

National Health Card community consultation – be alert!
Thursday 5 April 2007: The latest issue of the Consumers’ Health Forum of Australia newsletter draws our attention to the looming introduction of a health and social services access card.

Norwood Concert Hall meeting DVD
Wednesday 4 April 2007: We have had a professionally produced DVD made of the recent public meeting at Norwood Concert Hall.

M.E India
Tuesday 3 April 2007: M.E India is a new website dedicated to providing information on ME/CFS.

Radio interview with Peter Cahalan
Sunday 1 April 2007: Peter Cahalan, president of ME/CFS Australia (SA) Inc, was interviewed yesterday on 1197am RPH Adelaide.

March

ME/CFS Guidelines from The University of York
Friday 30 March 2007: A British survey of a certain part of the literature has just been just released by The University of York.

Dr Dan Peterson speaks to the ABC
Thursday 29 March 2007: Dan Peterson was one of the four international participants in a two-day forum on ME/CFS at The University of Adelaide on 26-27 March.

Photos from the 25 March meeting
Wednesday 28 March 2007: Here are photos from the 25 March meeting entitled “ME/CFS: breaking news from around the world”, held at Norwood Concert Hall.

Family health and chemicals
Thursday 22 March 2007: For anyone interested in the two issues of how chemical additives to food and vaccinations can affect our health, here’s an evening seminar coming very soon.

Chronic Fatigue Syndrome and diet
Tuesday 20 March 2007: Well Woman Blog has an article about CFS and diet. As the article quotes: “Eating Healthy Won’t Cure Your CFS, But Eating Poorly Will Make It Worse.”

Support our salaried colleagues
Thursday 15 March 2007: It’d be nice for us to be able to employ staff. We don’t – courtesy of inequitable government policies which make it hard for smaller and new disability groups such us our Society. But supporting everyone struggling with ill health, disability or social disadvantage is a common cause.

MCS America Seeks Recognition for Environmental Illness
Monday 12 March 2007: Express-Press-Release.com reports that “MCS America is seeking to clarify the many contradictions in the medical, scientific, legal, and social communities so that MCS may be granted the same recognition that the Centers for Disease Control recently granted to Chronic Fatigue Syndrome.”

High Beam Festival – celebrate after the big event!
Sunday 11 March 2007: If you’re going to the public meeting on 25 March, you might just be too tuckered out to join in SA’s disability arts festival High Beam Global.

From our mates in Wollongong
Sunday 11 March 2007: Wollongong hosts an active ME/CFS society which puts out a regular newsletter.

What’s in a name?
Friday 9 March 2007: Lois Ventura, from the National Alliance for Myalgic Encephalomyelitis, has written an article about the various names given to ME/CFS.

Radio interview
Thursday 8 March 2007: Carole Whitelock presents 891 Afternoons, a radio program broadcast weekdays from 1 till 4pm on 891 ABC Adelaide.

Phoenix Rising Special Edition: IACFS Conference report, part 2
Thursday 8 March 2007: Part 2 of a special edition of Phoenix Rising by Cort Johnson has been published.

P.A.N.D.O.R.A. International Advocacy Video Contest
Monday 5 March 2007: P.A.N.D.O.R.A., Inc (The Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy) has created an international advocacy video contest.

New website: Energy Meltdown
Monday 5 March 2007: Pippa Kearnes, with the help of a few friends, has created a website entitled Energy Meltdown.

February

TV ad campaign for CFS in the US
Monday 26 February 2007: The Centers for Disease Control and Prevention has funded a new ad campaign for CFS to be shown on US television.

MCS Public Health Rally update
Saturday 24 February 2007: Peter Evans, Convenor of the South Australian Task Force on Multiple Chemical Sensitivity, has an update on the MCS Public Health Rally to be held on Thursday 1 March 2007.

Taskforce on Care Costs: “Who Cares?” campaign
Saturday 24 February 2007: The Taskforce on Care Costs has been lobbying for the past three years for greater recognition, respect and remuneration for carers.

ME/CFS meeting: The breaking news from around the world
Sunday 18 February 2007: There will be a meeting in Norwood Concert Hall on Sunday 25 March, 2007 featuring international speakers.

A Public Pain Symposium
Friday 16 February 2007: Arthritis SA will be presenting A Public Pain Symposium on Sunday April 1, 2007.

IACFS Conference report
Monday 12 February 2007: A report of The 2007 P.A.N.D.O.R.A. International IACFS Patient Conference, which was held in Florida on 10-14 January 2007, has been published by Dr Rosamund Vallings, MB BS.

The Carnitine Study – we can do better
Thursday 8 February 2007: We’ve twice posted information about an interesting study being conducted at the Sansom Institute within the University of South Australia.

MCS: our first rally for 2007
Wednesday 7 February 2007: Peter Evans, convenor of the SA Task Force on MCS, sends news of our first public action for people with MCS for the year.

Experts Recommend New Name For CFS
Monday 5 February 2007: ImmuneSupport.com has reported a meeting in January where they say a decision was taken to recommend a name change in the US.

A good deal at the Adelaide Zoo
Sunday 4 February 2007: Our links with other disability groups have put us on their distribution lists for the occasional special deal.

Anna Jacobs
Saturday 3 February 2007: Anna Jacobs is a novelist who has had 36 novels published and won the 2006 “Romantic Book of the Year” award in Australia.

January

Phoenix Rising Special Edition: IACFS Conference
Tuesday 30 January 2007: A special edition of Phoenix Rising by Cort Johnson has been published.

Drained by the brain
Monday 29 January 2007: The Australian newspaper has an article on chronic fatigue syndrome entitled “Drained by the brain”.

Fatigue syndrome is not all in the mind
Saturday 27 January 2007: The UK’s Times Online recently published in its Health features section an interesting summary of CFS and the current state of research and treatment.

A Hummingbirds Guide e-Newsletter – January 2007
Thursday 26 January 2007: The January 2007 issue of Jodi Bassett’s A Hummingbirds Guide e-Newsletter is now available.

Phoenix Rising: January 2007 edition
Friday 19 January 2007: We have received the latest edition of Phoenix Rising by Cort Johnson in Arizona. We always look forward to reading Cort’s newsletters, because he reports on the very latest research in the CFS field.

The Carnitine Study – roll up your sleeves and help
Thursday 18 January 2007: We advised you some time ago that the Sansom Institute at the University of South Australia was calling for volunteers to participate in a study of the blood levels of a naturally occurring substance called carnitine in people with CFS.

New DWP medical guidance – the actual document
Wednesday 17 January 2007: The January 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available.

CFIDSLink January 2007 e-newsletter
Monday 15 January 2007: The January 2007 issue of CFIDSLink, the e-newsletter of the CFIDS Association of America, is now available.

US petition for recognition of MCS
Saturday 13 January 2007: The community-based group MCS America is gathering signatures for a petition to US authorities for recognition of MCS.

New therapy for chronic fatigue syndrome to be tested at Stanford
Tuesday 9 January 2007: A preliminary study suggests there may be hope in the offing for some sufferers of chronic fatigue syndrome with a new therapy being tested by researchers at the Stanford University School of Medicine.

Newly revised guideline booklet on ME/CFS
Monday 8 January 2007: News from the ME Association reports that The Sussex & Kent ME/CFS Society – this year marking the 20th anniversary of its foundation – is distributing the very latest guideline booklet on ME/CFS.

Calendar 2007
Saturday 6 January 2007: Regina Clos, a good friend of ours from Germany, has passed on a calendar from Michael Sobetzko, a talented German artist.

Phoenix Rising: The IACFS Conference Edition
Friday 5 January 2007: We recommend the online publication, Phoenix Rising. It’s an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix. It provides a quirky but in-depth and reliable view of new research in CFS.


In the News – 2006

In the News – 2005 and earlier

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