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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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CFIDSLink e-newsletter
Monday 15 January 2007
The contents are outlined below: |
In this Issue
From the Desk of Kim McCleary
The CFIDS Association’s President and CEO shares some statistics from 2006 and previews what’s ahead this year in CFS research and advocacy.
See http://www.cfids.org/cfidslink/2007/jan-ftdo.asp.
Reproductive Issues
Though more women than men have CFS, when it comes to understanding the gynecological ramifications of the illness, few definitive answers exist. But the research to date reveals some intriguing aspects of the illness.
See http://www.cfids.org/cfidslink/2007/reproductive.asp.
Treatment Study of Antiviral Drug
Based on promising results from a preliminary study, Roche Pharmaceutical, which manufactures the drug valganciclovir under the brand name Valcyte, has granted $1.3 million to Dr. Jose Montoya to conduct a randomized, placebo-controlled, double-blind study set to begin this quarter at Stanford University Medical Center. The study will assess the effectiveness of the drug in treating a specific subset of CFS patients.
See http://www.cfids.org/cfidslink/2007/valcyte.asp.
Don’t Miss the Brand-New Online Banner Ads for CFS!
As part of the national CFS education and awareness campaign sponsored by the CDC and the CFIDS Association, new online ads are appearing on the websites for Ladies’ Home Journal and Better Homes and Gardens in conjunction with the print ads that are appearing in the magazines themselves. The ads differ from the print ads, so don’t miss your chance to see them and to share the links with others.
See http://www.cfids.org/cfidslink/2007/pac2.asp.
Get Your Copy of the Terrific Media Coverage of CFS
The incredible media response to the press conference announcing the national CFS public awareness campaign is unprecedented. To capture and commemorate this historic moment in the long battle the CFS community has been waging the CFIDS Association has created a DVD with complete press event coverage and resulting broadcast media, and a press clippings packet that contains articles which appeared in the New York Times, Wall Street Journal, the publication of the American Medical Association and other major media outlets. Both are available now at a low price. See http://www.cfids.org/cfidslink/2007/pac1.asp.
CFS Editorial in Nursing Magazine
In the December installment of the New York/New Jersey edition of Nursing Spectrum – a professional publication for registered nurses – senior staff writer and registered nurse Lorraine Steefel shared the challenges she and her daughter face when seeking knowledgeable and compassionate medical care for CFS. We’ve reprinted her editorial here to show some of the CFS dialogue taking place in the health care community. See http://www.cfids.org/cfidslink/2007/upfront.pdf.
Annual Fund Update
So far more than 1,200 Association friends have contributed to the 2006 Annual Fund, raising $277,458 to help in the fight to end CFS. If you’ve not made your gift, please do so today. There’s never been a better time to engage new investigators in the study of CFS, to accelerate the pace of research that offers hope for new treatments and a better understanding of the disease and to provide answers – and progress toward improved health – to people with CFS. Please help us end CFS and the tremendous pain and disability it causes. Contribute today at http://www.cfids.org/ecommerce/online-donations.asp.
Personal Story: Making Music
Chronic fatigue syndrome left Tamara Lewis struggling to piece together her own financial and emotional support and longing for something in her life that would bring her some pleasure. Discovering music has brought harmony into her world, and now into ours as well. See http://www.cfids.org/cfidslink/2007/tamara.asp.
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