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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising Special Edition: IACFS Conference
Tuesday 30 January 2007
A special edition of Phoenix Rising by Cort Johnson has been published.
It’s a report of the The 2007 P.A.N.D.O.R.A. International IACFS Conference which was held in Florida on 10-14 January 2007.
Cort’s report is divided into two parts: the Patient Conference; and the Professional Conference.
Here is Cort’s introduction to the report on the Patient Conference:
Welcome to the first part of the IACFS Conference edition of Phoenix. In these two sections we offer overviews of the two days of the Patient Conference which preceded the professional conference. The Patient Conference was a real step up from conferences of the past; they speakers were top notch and they covered a variety of topics from legislation to advocacy to sleep issues to new treatments, etc.
It was exciting to meet all the people I’d heard and read about and the conference really deepened my understanding of the issues facing CFS. I didn’t plan on going – but out of the blue Kim Goolhard broached an idea which eventually ended up in my getting on a plane to fly to Florida. Kim started it off, my Father provided the means and Marly Silverman provided the scholarship - Thank you all!
You can access the overviews in the PDFs provided:
Phoenix Rising Special Edition: A Layman’s Guide to The 2007 P.A.N.D.O.R.A. International IACFS Patient Conference
The Patient Conference: Part I (PDF, 99KB)
The Patient Conference: Part II (PDF, 68KB)
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