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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising Special Edition: Pat Fero interview
Saturday 21 April 2007
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.
You can subscribe to the newsletter as well as download each issue.
A Special Edition featuring an interview with Pat Fero of the Wisconsin CFS Association has been published and is now available for download:
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Phoenix Rising Special Edition: Making a Difference in CFS – An interview with Pat Fero of the WCFSA (PDF, 84KB) |
Here is Cort Johnson’s introduction to the issue:
Making a Difference in CFS – An interview with Pat Fero of the WCFSA
Welcome to a special edition of Phoenix Rising. The edition begins a series of interviews with the difference makers in CFS/FM/ME support and advocacy. Dr Bell has spoken of his fear that the vital cogs of CFS/FM/ME advocacy and support – the local and state support groups that so many have relied up for understanding, advice and advocacy, are fading. In this series Phoenix Rising goes around the world to uncover how these groups are doing, what activities they are engaged in, what challenges and opportunities they face, and what their leaders believe are the vital issues facing them and the CFS/FM/ME community.
I start off this series with an extensive interview with Pat Fero, the leader of perhaps the oldest extant CFS Support/Advocacy group, the Wisconsin CFS Association. Pat, who was awarded the PANDORA Female Advocate of the Year Award at the 8th IACFS conference, has advocated for CFS on both the state and national levels In this interview she tells us how the WCFSA was founded, how it has grown, how its focus has changed over time, its successes and failures, how the tragic death of her son effected her advocacy efforts, her thoughts about CFS advocacy and much more.
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