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ME/CFS SOUTH AUSTRALIA INC

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Phoenix Rising: The CDC Prevalence Definition Edition

Tuesday 25 September 2007

CFS Phoenix Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

The latest issue of Phoenix Rising is now available:

PDF

Phoenix Rising: The CDC Prevalence Definition Edition (July/August 2007) (PDF, 75KB)

Here is Cort Johnson’s introduction to the issue:

Welcome to Phoenix Rising . Phoenix Rising has been on something of a hiatus as I’ve (attempted to) reformat the website. The CDC recently released a study positing that 6-10x’s as many people have CFS than has previously been thought. An increase in prevalence rates would ordinarily be a cause for celebration; they should, after all, help us lobby for funding we desperately need. This paper was not, however, greated with enthusiasm by all quarters of the CFS community. The increased prevalence rates were largely due to a new and controversial definition of CFS recently created by the CDC. In this edition we examine the new definition closely; how it came about, what it consists of, what the controversy is about and how it may affect the future of CFS research.

Accompanying the newsletter is an interview with Dr. Leonard Jason, the foremost CFS epidemiologist and a very active advocate for CFS regarding the new CFS definition.

You can find the newsletter at the PDF file provided.

You can find the interview with Dr. Jason at www.phoenix-cfs.org/Interview Jason Aug 2007.htm.

Be ready for something of a deluge of information in the next couple of months. The next edition of Phoenix Rising – on nervous system dysfunction in CFS – will appear soon, as will a complete overview of the last CFSAC Meeting, an interview with Dr. Kenneth Friedman, a paper on Epstein Barr virus and several on the NIH.

In good health,

Cort.

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