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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising: The CDC Prevalence Definition Edition
Tuesday 25 September 2007
Phoenix Rising is an informative newsletter put out monthly by American CFS sufferer Cort Johnson on his website CFS Phoenix.
You can subscribe to the newsletter as well as download each issue.
The latest issue of Phoenix Rising is now available:
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Phoenix Rising: The CDC Prevalence Definition Edition (July/August 2007) (PDF, 75KB) |
Here is Cort Johnson’s introduction to the issue:
Welcome to Phoenix Rising . Phoenix Rising has been on something of a hiatus as I’ve (attempted to) reformat the website. The CDC recently released a study positing that 6-10x’s as many people have CFS than has previously been thought. An increase in prevalence rates would ordinarily be a cause for celebration; they should, after all, help us lobby for funding we desperately need. This paper was not, however, greated with enthusiasm by all quarters of the CFS community. The increased prevalence rates were largely due to a new and controversial definition of CFS recently created by the CDC. In this edition we examine the new definition closely; how it came about, what it consists of, what the controversy is about and how it may affect the future of CFS research.
Accompanying the newsletter is an interview with Dr. Leonard Jason, the foremost CFS epidemiologist and a very active advocate for CFS regarding the new CFS definition.
You can find the newsletter at the PDF file provided.
You can find the interview with Dr. Jason at www.phoenix-cfs.org/Interview Jason Aug 2007.htm.
Be ready for something of a deluge of information in the next couple of months. The next edition of Phoenix Rising – on nervous system dysfunction in CFS – will appear soon, as will a complete overview of the last CFSAC Meeting, an interview with Dr. Kenneth Friedman, a paper on Epstein Barr virus and several on the NIH.
In good health,
Cort.
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