ME/CFS AUSTRALIA (SA) INC Registered Charity 698 Mailing address: GPO Box 383, Adelaide, South Australia 5001 Office: 266 Port Road, Hindmarsh, South Australia 5007 Ph: (08) 8346 3237 ('834 MECFS') Office Hours: Wednesdays, 10am-3pm Support Line: (Mondays and Thursdays, 10am-3pm) Ph: (08) 8346 3237 SA country callers: Ph: 1300 128 339 (local call)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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Polly Chaser Tim Hill on chasing the polliesFriday 30 November 2007
After writing to key members of theLiberal Partyprior to the election and key members of the Labor Party during it, the responses I have received have given cause for some reflection. The response I received from the Department of Health and Ageing, on behalf of the former government left me feeling in some instances insulted but generally disillusioned, like I was banging my head against a brick wall. It is readily apparent from their response (and similar responses others have received) that they have not listened to patients with this medical condition. Mercifully, the late Bernie Banton has campaigned strongly highlighting the callous nature of the former government and I feel it is self evident in their response. The response, however, of the ALP has in my opinion been mixed thus far, ranging from less impressive (Kate Ellis MP [response here] and the ALP Campaign Office) to one of preparedness to listen to our plight (Tanya Plibersek MP [response here] and Nicola Roxon MP [response here]). The impending swearing in of the new government poses some new challenges to patients and the ME/CFS societies. 1) The need (in general) to educate new MPs and, more particularly, new ministers to our plight. 2) The need to raise our concerns in the context of the ALP’s apparent openness to our situation but more particularly in the context of their policy “New Directions for Australia’s Health” [PDF, 488KB], which they have a clear mandate to implement. One could also think of raising our plight in the context of other catch phrases from the campaign: new leadership; ending the blame game; and health care revolution spring to mind. 3) Potentially to highlight our concerns in the context of the inadequate responses we have received from the Department of Health and Ageing. Sincerely
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