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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising: End of year ‘Story Edition’
Tuesday 29 January 2008
Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.
You can subscribe to the newsletter as well as download each issue.
The latest offering from Phoenix Rising is a special edition entitled The Story Edition, or to give its full title: Tales From the Edge: the Chronic Fatigue Syndrome (ME/CFS) Story Edition.
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Phoenix Rising: The Story Edition (external link) |
Here is Cort’s introduction:
Welcome to the end of the year ‘Story Edition’ of Phoenix Rising. The edition, which was delayed because of computer problems, was designed to give ME/CFS patients a chance to ponder the difficulties and opportunities that millions of people across the globe face as we enter the new year. The challenges facing the CFS community are enormous.
These are three remarkably different stories; one involves a Canadian now almost completely disabled but still participating as fiercely as she can, a Nevadan who’s story illustrates the emotional challenges ME/CFS can pose to an entire family, and a ME/CFS patient who emerged in complete health after from many years of suffering. Plus there’s a blog from me about a possible breakthrough that will provide food for thought for some chronic fatigue syndrome (ME/CFS) patients.
You can access these stories at the below URL’s.
Linda’s Story - Linda writes of the ups and downs of a 20 year journey with severe ME/CFS that began in college.
DM’s Story – DM’s family, with their diagnosis by a prominent physician and their well documented immune abnormalities, demonstrate how many different facets - emotional and physical - ME/ CFS can have.
Diana’s Story – Diana’s story of recovery from a chlamydiae pneumoniae infection may be familiar to some. Here she provides a recent update of her startling return to health after many years of suffering.
Corts Blog – A new trigger for CFS? A trip to the dentist has a surprising results with possibly long term results.
As it moves into its third year the Phoenix Rising newsletter will undergo some changes. The issues will be shorter and more theme-oriented and will probably come out more frequently. The advocacy interviews will continue and an attempt will be made to interview physicians as well.
If you’ve attempted to contact me regarding the newsletter or website and I haven’t replied I apologize. About 10% of all subscriptions are automatically returned because of e-mail problems. I’d assumed that e-mail process differentiated between automatically returned messages and actual e-mails but it doesn’t – some e-mails have been buried in the mass of returned e-mails. Please e-mail again if you didn’t receive a reply to a message.
The newsletter has fallen behind because of computer problems and work on upgrading the website. Expect several newsletters to come your way soon as I catch up.
Yours truly,
Cort
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