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ME/CFS Australia Ltd
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Phoenix Rising: End of year ‘Story Edition’

Tuesday 29 January 2008

CFS Phoenix Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

The latest offering from Phoenix Rising is a special edition entitled The Story Edition, or to give its full title: Tales From the Edge: the Chronic Fatigue Syndrome (ME/CFS) Story Edition.

Phoenix Rising: The Story Edition (external link)

Here is Cort’s introduction:

Welcome to the end of the year ‘Story Edition’ of Phoenix Rising. The edition, which was delayed because of computer problems, was designed to give ME/CFS patients a chance to ponder the difficulties and opportunities that millions of people across the globe face as we enter the new year. The challenges facing the CFS community are enormous.

These are three remarkably different stories; one involves a Canadian now almost completely disabled but still participating as fiercely as she can, a Nevadan who’s story illustrates the emotional challenges ME/CFS can pose to an entire family, and a ME/CFS patient who emerged in complete health after from many years of suffering. Plus there’s a blog from me about a possible breakthrough that will provide food for thought for some chronic fatigue syndrome (ME/CFS) patients.

You can access these stories at the below URL’s.

Linda’s Story - Linda writes of the ups and downs of a 20 year journey with severe ME/CFS that began in college.

DM’s Story – DM’s family, with their diagnosis by a prominent physician and their well documented immune abnormalities, demonstrate how many different facets - emotional and physical - ME/ CFS can have.

Diana’s Story – Diana’s story of recovery from a chlamydiae pneumoniae infection may be familiar to some. Here she provides a recent update of her startling return to health after many years of suffering.

Corts Blog – A new trigger for CFS? A trip to the dentist has a surprising results with possibly long term results.

As it moves into its third year the Phoenix Rising newsletter will undergo some changes. The issues will be shorter and more theme-oriented and will probably come out more frequently. The advocacy interviews will continue and an attempt will be made to interview physicians as well.

If you’ve attempted to contact me regarding the newsletter or website and I haven’t replied I apologize. About 10% of all subscriptions are automatically returned because of e-mail problems. I’d assumed that e-mail process differentiated between automatically returned messages and actual e-mails but it doesn’t – some e-mails have been buried in the mass of returned e-mails. Please e-mail again if you didn’t receive a reply to a message.

The newsletter has fallen behind because of computer problems and work on upgrading the website. Expect several newsletters to come your way soon as I catch up.

Yours truly,



Phoenix Rising in the news:

14/09/09: The Conference Edition III
22/07/09: A remarkable story of recovery
29/05/09: March 2009 Edition
17/01/09: December 2008 Edition
15/12/08: The News Edition
17/10/08: The Cortisol Edition
15/09/08: Interview with Dr Ken Friedman Part III
10/09/08: Treating Orthostatic Intolerance
25/08/08: Congressional Briefing etc
15/08/08: The Symposium on Viruses in CFS
06/07/08: Interview with Dr Ken Friedman Part II
18/06/08: Nancy Klimas on the Immune System, Treatment and the Future
24/05/08: Interview with Tom Hennessy
08/05/08: The Advocacy Month Part II
25/04/08: Interview with Dr Ken Friedman
16/04/08: February 2008
26/03/08: Interview with Martha Kilcoyne
12/03/08: January 2008
29/01/08: End of year ‘Story Edition’
22/12/07: 2006 Year in Review
27/11/07: Interview with Dr Suzanne Vernon
02/11/07: Interview with Rik Carlson
15/10/07: The Autonomic Nervous System Edition
25/09/07: The CDC Prevalence Definition Edition
07/07/07: First Advocacy Edition
07/06/07: March/April 2007 issue
21/04/07: Special Edition: Pat Fero interview
10/04/07: January/February 2007 issue
08/03/07: Special Edition: IACFS Conference report, part 2
30/01/07: Special Edition: IACFS Conference
19/01/07: January 2007 edition
05/01/07: The IACFS Conference Edition
14/12/06: Special Edition: Dorothy Wall interview
05/12/06: October 2006 newsletter
25/10/06: September 2006 newsletter
04/10/06: August 2006 newsletter
26/07/06: June 2006 newsletter
16/06/06: May 2006 newsletter
02/06/06: March & April 2006 newsletters
28/03/06: January & February 2006 newsletters
04/02/06: December 2005 newsletter
04/01/06: November 2005 newsletter


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