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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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ME/CFS long-term study
Thursday 31 January 2008
Danish researchers have studied a group of ME/CFS patients over a nine-year period and have published the results in the Journal of Chronic Fatigue Syndrome.
The long-term study looked at the patients quality of life at the beginning of their disease and nine years later:
Nine-Year Follow-Up of Danish Chronic Fatigue Syndrome (CFS) Patients Impact on Health, Social, Vocational, and Personal Lives
Authors: Mette Marie Andersen, Henrik Permin, Frank Albrecht.
Objective: To determine quality of life (QOL) and health in Danish CFS patients 9 years after diagnosis.
Methods: Thirty-four adults with CFS responded to questions regarding QOL at diagnosis, and again 5 and 9 years later. At 9-year follow-up patients also responded to questions regarding health, fatigue, use of Health Care system, alcohol and exercise.
Results:
• Two patients (6%) had recovered and 3 patients (10%) had received secondary diagnoses.
• Overall, there was no improvement, except with depression/anxiety.
• The order of severity among disabilities remained the same.
• Work had the highest disability score, followed by post-exertional malaise.
• Patients slept and rested 13.6 hours a day (mean).
• Self-reported physical health correlated with hours sleeping and resting.
• Rheumatic symptoms dominated the health symptoms.
• Alcohol consumption was low, and the use of the Health Care system was modest.
Conclusion: After 9 years QOL was the same as at diagnosis, only mental health had improved.
Source: Journal of Chronic Fatigue Syndrome, Vol. 14, No. 2, 2007, pp. 7-23. DOI: 10.1300/J092v14n02_02 by Andersen MM, Permin H, Albrecht F.
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