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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

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ME/CFS long-term study

Thursday 31 January 2008

Journal of Chronic Fatigue SyndromeDanish researchers have studied a group of ME/CFS patients over a nine-year period and have published the results in the Journal of Chronic Fatigue Syndrome.

The long-term study looked at the patients quality of life at the beginning of their disease and nine years later:

 

Nine-Year Follow-Up of Danish Chronic Fatigue Syndrome (CFS) Patients Impact on Health, Social, Vocational, and Personal Lives

Authors: Mette Marie Andersen, Henrik Permin, Frank Albrecht.

Objective: To determine quality of life (QOL) and health in Danish CFS patients 9 years after diagnosis.

Methods: Thirty-four adults with CFS responded to questions regarding QOL at diagnosis, and again 5 and 9 years later. At 9-year follow-up patients also responded to questions regarding health, fatigue, use of Health Care system, alcohol and exercise.

Results:

• Two patients (6%) had recovered and 3 patients (10%) had received secondary diagnoses.
• Overall, there was no improvement, except with depression/anxiety.
• The order of severity among disabilities remained the same.
• Work had the highest disability score, followed by post-exertional malaise.
• Patients slept and rested 13.6 hours a day (mean).
• Self-reported physical health correlated with hours sleeping and resting.
• Rheumatic symptoms dominated the health symptoms.
• Alcohol consumption was low, and the use of the Health Care system was modest.

Conclusion: After 9 years QOL was the same as at diagnosis, only mental health had improved.

Source: Journal of Chronic Fatigue Syndrome, Vol. 14, No. 2, 2007, pp. 7-23. DOI: 10.1300/J092v14n02_02 by Andersen MM, Permin H, Albrecht F.

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