ME/CFS South Australia Inc: Campaign for a Fair Name

ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Campaign for a Fair Name

Friday 1 February 2008

Campaign for a Fair Name has launched a new website:

•

aFairName.org (external link)

Rich Carson, the website’s creator, is attempting to effect a worldwide change of name from “CFS” to “ME/CFS”, and is asking people to help:

Campaign for a Fair Name announced the launch this week of its website, aFairName.org. The campaign is the grassroots patient and physician effort to change ‘chronic fatigue syndrome’ to the acronym ME/CFS. ‘ME’ is considered by most physicians and patients to be historically and diagnostically correct, and it has been used worldwide to describe the disease for close to 50 years.

The Campaign’s website presents the history of the name change effort, along with the rationale for the selection of ‘ME/CFS’. The website also offers additional information and resources, including:

• A petition to support the name change
• Campaign activities and our cause
• Message Board exchanges
• Name Change Advisory Board members
• Fair Name Implementation Committee (FNIC) members
• The upcoming name change ratification Vote and how you can help make a difference.

This effort could die without your support and participation. I am calling on you, your friends and family members, and healthcare providers, to help us make the name change a reality. Sign the name change petition, join the conversation on the Message Board, help us spread the word. The demeaning label ‘chronic fatigue syndrome’ is about to disappear forever. But now it is up to you.

Please do your part.

Yours with passionate determination,

Rich Carson
Patient Advocate