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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Campaign for a Fair Name
Friday 1 February 2008
Campaign for a Fair Name has launched a new website:
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aFairName.org (external link) |
Rich Carson, the website’s creator, is attempting to effect a worldwide change of name from “CFS” to “ME/CFS”, and is asking people to help:
Campaign for a Fair Name announced the launch this week of its website, aFairName.org. The campaign is the grassroots patient and physician effort to change ‘chronic fatigue syndrome’ to the acronym ME/CFS. ‘ME’ is considered by most physicians and patients to be historically and diagnostically correct, and it has been used worldwide to describe the disease for close to 50 years.
The Campaign’s website presents the history of the name change effort, along with the rationale for the selection of ‘ME/CFS’. The website also offers additional information and resources, including:
• A petition to support the name change
• Campaign activities and our cause
• Message Board exchanges
• Name Change Advisory Board members
• Fair Name Implementation Committee (FNIC) members
• The upcoming name change ratification Vote and how you can help make a difference.
This effort could die without your support and participation. I am calling on you, your friends and family members, and healthcare providers, to help us make the name change a reality. Sign the name change petition, join the conversation on the Message Board, help us spread the word. The demeaning label ‘chronic fatigue syndrome’ is about to disappear forever. But now it is up to you.
Please do your part.
Yours with passionate determination,
Rich Carson
Patient Advocate
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