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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Pediatric Case Definition for ME/CFS
Wednesday 26 March 2008
DePaul University’s Center for Community Research is currently conducting a study about the new Pediatric Case Definition for ME/CFS.
This case definition and a pediatric ME/CFS assessment tool called the DePaul Pediatric Health Questionnaire were developed in 2006 by the International Association for Chronic Fatigue Syndrome (IACFS).
The aim of the study is to assess the efficacy of this case definition in correctly diagnosing ME/CFS in children in comparison to current diagnostic tools.
Consequently, the Research Center is asking for assistance in helping them gather participants for this study:
Pediatric ME/CFS
The Center for Community Research at DePaul University is studying ME/CFS in children and adolescents. We are looking for children and adolescents ages 10-17 and their parents/guardians to complete the DePaul Pediatric Health Questionnaire (DPHQ).
• The DPHQ is a short questionnaire and will take about 30 minutes to complete
• Participants’ identities and answers will be kept confidential
• Please contact us to receive a copy of the questionnaire and with any questions you may have
Your time and voluntary assistance are needed and appreciated.
If you and your child are interested in volunteering, please contact:
Nicole Porter, Ph.D.
Email: nporter@depaul.edu
Telephone: (773) 325-4923
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)