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Phoenix Rising: Interview with Dr Ken Friedman

Friday 25 April 2008

CFS Phoenix Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

Once again Phoenix Rising has an interesting interview. This one’s with Dr Ken Friedman.

An Interview With Researcher, Advocate and Author Ken Friedman Ph.D. Part I (external link)

Here is Cort’s introduction to the interview:

Welcome to a special edition of Phoenix Rising. In this edition we begin a very busy month with the first part of a three part interview with Dr. Ken Friedman, researcher, federal advisory committee member, author, reseacher and father of a daughter with chronic fatigue syndrome (ME/CFS)/fibromyalgia. Dr. Friedman, one of our busiest advocates, has his fingers in many pies.

In this first time ever interview with a past federal advisory committee member Part I Dr. Friedman talks bluntly about his time on the panel, the federal response to CFS, the difficulties CFS researchers face and the mindset he and others deal with in trying to change the culture in Washington.

You can find this interview at

Next week with the May CFSAC meeting coming up shortly I’ll pass along a summary of what happened in the last one. In these fascinating meetings we watch CFS professionals and advocates attempt to push, nudge, cajole, prod the federal government into a meaningful response to CFS. They also give us inside shots at what’s going at in the NIH and CDC CFS research programs. Among other tidbits we’ll learn why Dr. Reeves believes so many more women than men get CFS and how the Surgeon General just might get involved in CFS.

On May 12th we’ll have a special edition featuring an interview with the creator of CFS International Awareness Day, Tom Hennessey. Tom Hennessey and his organization RESCIND blazed quite a trail in the late 1980’s and early 1990’s as they fought for recognition for this disease. After a severe relapse that continues to this day Tom had to curtail his efforts. Still as fiery as ever Tom talks about the early days of CFS advocacy, RESCIND and his thoughts on situation today.

After that we’ll pick up with the second and third parts of Dr. Friedman’s interviews as he talks about the research situation, an important publication, advocacy and the future of CFS.

Happy reading,

Yours truly,



Phoenix Rising in the news:

14/09/09: The Conference Edition III
22/07/09: A remarkable story of recovery
29/05/09: March 2009 Edition
17/01/09: December 2008 Edition
15/12/08: The News Edition
17/10/08: The Cortisol Edition
15/09/08: Interview with Dr Ken Friedman Part III
10/09/08: Treating Orthostatic Intolerance
25/08/08: Congressional Briefing etc
15/08/08: The Symposium on Viruses in CFS
06/07/08: Interview with Dr Ken Friedman Part II
18/06/08: Nancy Klimas on the Immune System, Treatment and the Future
24/05/08: Interview with Tom Hennessy
08/05/08: The Advocacy Month Part II
25/04/08: Interview with Dr Ken Friedman
16/04/08: February 2008
26/03/08: Interview with Martha Kilcoyne
12/03/08: January 2008
29/01/08: End of year ‘Story Edition’
22/12/07: 2006 Year in Review
27/11/07: Interview with Dr Suzanne Vernon
02/11/07: Interview with Rik Carlson
15/10/07: The Autonomic Nervous System Edition
25/09/07: The CDC Prevalence Definition Edition
07/07/07: First Advocacy Edition
07/06/07: March/April 2007 issue
21/04/07: Special Edition: Pat Fero interview
10/04/07: January/February 2007 issue
08/03/07: Special Edition: IACFS Conference report, part 2
30/01/07: Special Edition: IACFS Conference
19/01/07: January 2007 edition
05/01/07: The IACFS Conference Edition
14/12/06: Special Edition: Dorothy Wall interview
05/12/06: October 2006 newsletter
25/10/06: September 2006 newsletter
04/10/06: August 2006 newsletter
26/07/06: June 2006 newsletter
16/06/06: May 2006 newsletter
02/06/06: March & April 2006 newsletters
28/03/06: January & February 2006 newsletters
04/02/06: December 2005 newsletter
04/01/06: November 2005 newsletter
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