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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising: The Advocacy Month Part II
Thursday 8 May 2008
Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.
You can subscribe to the newsletter as well as download each issue.
The latest from Cort is The Advocacy Month Part II: The US Federal Advisory Committee Meeting on CFS.
Here is Cort’s introduction to the interview:
This is Part II in our busiest month of the year: the Advocacy/Politics month. Here we provide an overview of the last CFSAC meeting. In these often fascinating meetings we get to watch top CFS professionals and advocates as they try to prod, nudge, cajole and exhort the Federal government to take meaningful action on ME/CFS. We also get insights into how the CDC and other institutions view CFS.
Some of the issue discussed at the last meeting include:
• Why more women than men have chronic fatigue syndrome (ME/CFS).
• Which kind of community does Dr. Reeves' data suggest places women at a higher risk of chronic fatigue syndrome (ME/CFS)?
• Where do more men than women have chronic fatigue syndrome (ME/CFS)?
• Where do the short-term attention problems possibly originate?
• Does child abuse play a big role in chronic fatigue syndrome (ME/CFS)?
• Is there a hormone/female connection?
• How might the Surgeon General Get Involved in this disease?
Click here to read an overview of the last meeting.
Keep your hats on theres alot more coming. We have the founder of the May 12th Awareness day, Tom Hennessey, coming up on May 12th. I will be attending the next one meeting coming up shortly as well as the Congressional Briefing and will report back on how those went. Plus Dr. Friedman will talk on research and advocacy efforts and more.
Yours truly,
Cort Johnson
phoenixcfs@gmail.com
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