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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

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(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Phoenix Rising: The Advocacy Month Part II

Thursday 8 May 2008

CFS Phoenix Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.

You can subscribe to the newsletter as well as download each issue.

The latest from Cort is The Advocacy Month Part II: The US Federal Advisory Committee Meeting on CFS.

Here is Cort’s introduction to the interview:

This is Part II in our busiest month of the year: the Advocacy/Politics month. Here we provide an overview of the last CFSAC meeting. In these often fascinating meetings we get to watch top CFS professionals and advocates as they try to prod, nudge, cajole and exhort the Federal government to take meaningful action on ME/CFS. We also get insights into how the CDC and other institutions view CFS.

Some of the issue discussed at the last meeting include:

• Why more women than men have chronic fatigue syndrome (ME/CFS).
• Which kind of community does Dr. Reeves' data suggest places women at a higher risk of chronic fatigue syndrome (ME/CFS)?
• Where do more men than women have chronic fatigue syndrome (ME/CFS)?
• Where do the short-term attention problems possibly originate?
• Does child abuse play a big role in chronic fatigue syndrome (ME/CFS)?
• Is there a hormone/female connection?
• How might the Surgeon General Get Involved in this disease?

Click here to read an overview of the last meeting.

Keep your hats on theres alot more coming. We have the founder of the May 12th Awareness day, Tom Hennessey, coming up on May 12th. I will be attending the next one meeting coming up shortly as well as the Congressional Briefing and will report back on how those went. Plus Dr. Friedman will talk on research and advocacy efforts and more.

Yours truly,

Cort Johnson
phoenixcfs@gmail.com

 


Phoenix Rising in the news:

14/09/09: The Conference Edition III
22/07/09: A remarkable story of recovery
29/05/09: March 2009 Edition
17/01/09: December 2008 Edition
15/12/08: The News Edition
17/10/08: The Cortisol Edition
15/09/08: Interview with Dr Ken Friedman Part III
10/09/08: Treating Orthostatic Intolerance
25/08/08: Congressional Briefing etc
15/08/08: The Symposium on Viruses in CFS
06/07/08: Interview with Dr Ken Friedman Part II
18/06/08: Nancy Klimas on the Immune System, Treatment and the Future
24/05/08: Interview with Tom Hennessy
08/05/08: The Advocacy Month Part II
25/04/08: Interview with Dr Ken Friedman
16/04/08: February 2008
26/03/08: Interview with Martha Kilcoyne
12/03/08: January 2008
29/01/08: End of year ‘Story Edition’
22/12/07: 2006 Year in Review
27/11/07: Interview with Dr Suzanne Vernon
02/11/07: Interview with Rik Carlson
15/10/07: The Autonomic Nervous System Edition
25/09/07: The CDC Prevalence Definition Edition
07/07/07: First Advocacy Edition
07/06/07: March/April 2007 issue
21/04/07: Special Edition: Pat Fero interview
10/04/07: January/February 2007 issue
08/03/07: Special Edition: IACFS Conference report, part 2
30/01/07: Special Edition: IACFS Conference
19/01/07: January 2007 edition
05/01/07: The IACFS Conference Edition
14/12/06: Special Edition: Dorothy Wall interview
05/12/06: October 2006 newsletter
25/10/06: September 2006 newsletter
04/10/06: August 2006 newsletter
26/07/06: June 2006 newsletter
16/06/06: May 2006 newsletter
02/06/06: March & April 2006 newsletters
28/03/06: January & February 2006 newsletters
04/02/06: December 2005 newsletter
04/01/06: November 2005 newsletter
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