ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
May 12: ME/CFS International Awareness Day
Monday 12 May 2008
Today is ME/CFS International Awareness Day.
12 May was chosen as it is the birthday of Florence Nightingale who, many believe, may have had ME/CFS.
To commemorate ME/CFS International Awareness Day, our friends at The ME/CFS Society of NSW Inc. are encouraging people to “break the isolation of those affected by ME/CFS through an awareness campaign and fundraising for support and research”:
Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), affects 140,000 Australians. This poorly understood illness, not only by the general public but unfortunately by some within the medical community as well, places severe limitations on the daily lives of those affected by it. It is estimated that 25% of people affected by it are permanently bed or house-bound. Currently there is no known cause for ME/CFS and no cure.
ME/CFS is a serious, very debilitating and complex physical illness that affects multiple systems of the body. Since 1969, the World Health Organization’s International Classification of Diseases has listed ME/CFS as a disorder of the neurological system in code G93.3 (and not under the mental health code F48.0). Studies from researchers, such as Professor Denis Wakefield from UNSW, have confirmed the biological basis for the disease. The absence of a link to psychological illness was a 2004 finding from the large scale Dubbo (NSW) Infection Outcomes Study funded by the Aust./U.S. Governments. The strongest predictor of development of ME/CFS following infection is the severity of the acute illness at onset.
Monday 12 May 2008 is International ME/CFS Awareness Day. The Wollongong ME/CFS Support Group is encouraging the community to break the isolation of those affected by ME/CFS through an awareness campaign and fundraising for support and research, during ME/CFS Awareness Week from 11-17 May this year. We are having a Library display all week at the Wollongong City Library and Information kits will be available there and at the 7 Branch Libraries as well as at Wollongong TAFE and UOW. Also we will be holding a BYO Picnic at Belmore Basin on Saturday 17 May at 12:00pm, and people with CFS, carers, family and friends are all welcome.
“Most of us know, directly or indirectly, someone who has Chronic Fatigue Syndrome. It is important that we, as their friends, family and community, reach out to these people and break the isolation and disability of their disease,” said Mr John Stephenson, Coordinator of the Wollongong ME/CFS Support Group.
People with ME/CFS have symptoms such as profound exhaustion, memory and concentration impairment, digestion difficulties, muscle pain, sleep disturbance, headaches and other flu-like symptoms. In some cases the illness causes persistent disability while for others it follows a relapsing and remitting course.
“Many sufferers of ME/CFS not only face months of tests for diagnosis and a life of daily limitations but a world of stigma and misunderstanding,” Mr Stephenson said.
Help us show support for those affected by ME/CFS. Donate by calling (02) 4284 8890 or put someone you know in touch with the Wollongong ME/CFS Support Group on the above phone number or email email@example.com.
The ME/CFS Society of NSW Inc. provides support, information and advocacy for people affected by the illness. It provides support services to its members such as self-help courses and support groups, as well as access to a support worker and telephone information support service. The Society also provides information to patients, medical practitioners and the public; and promotes research. For more information visit the website at www.mecfsnsw.org or email at firstname.lastname@example.org.