|
ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
| Become a Member | ||||
|
||||
ME Association survey
Sunday 18 May 2008
The ME Association is calling on people with ME/CFS to help them with a survey on how well they cope with the disease:
To mark ME Awareness Week, The ME Association wants to hear from as many people as possible about their experiences – good or bad – of coping with ME.
To do this, we have produced a questionnaire which asks about treatments that work, treatments that don’t work, and what people want when it comes to GP and hospital based services.
We also want to build up the biggest-ever picture of what happens when people are given cognitive behaviour therapy or graded exercise therapy – two controversial forms of treatment that have been recommended in a guideline produced by the National Institute for Health and Clinical Excellence.
We can then go back to the Department of Health with a really comprehensive nationwide picture of this illness, along with recommendations on how diagnosis and services can be improved.
If you have ME, or care for someone with ME, please try and fill in the questionnaire. An electronic version is available on The ME Association website at www.meassociation.org.uk.
A paper version will be available later from The ME Association.
Previous Page |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)