ME/CFS AUSTRALIA (SA) INC Registered Charity 698 Mailing address: GPO Box 383, Adelaide, South Australia 5001 Office: 266 Port Road, Hindmarsh, South Australia 5007 Ph: (08) 8346 3237 ('834 MECFS') Office Hours: Wednesdays, 10am-3pm Support Line: (Mondays and Thursdays, 10am-3pm) Ph: (08) 8346 3237 SA country callers: Ph: 1300 128 339 (local call)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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ME Association surveySunday 18 May 2008
To mark ME Awareness Week, The ME Association wants to hear from as many people as possible about their experiences – good or bad – of coping with ME. To do this, we have produced a questionnaire which asks about treatments that work, treatments that don’t work, and what people want when it comes to GP and hospital based services. We also want to build up the biggest-ever picture of what happens when people are given cognitive behaviour therapy or graded exercise therapy – two controversial forms of treatment that have been recommended in a guideline produced by the National Institute for Health and Clinical Excellence. We can then go back to the Department of Health with a really comprehensive nationwide picture of this illness, along with recommendations on how diagnosis and services can be improved. If you have ME, or care for someone with ME, please try and fill in the questionnaire. An electronic version is available on The ME Association website at www.meassociation.org.uk. A paper version will be available later from The ME Association. |
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