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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising: Interview with Tom Hennessy
Saturday 24 May 2008
Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.
You can subscribe to the newsletter as well as download each issue.
The latest from Cort is an interview with ME/CFS advocate Tom Hennessy.
Cort is also asking for suggestions as he is thinking about changing the name of his website.
Here is Cort’s introduction:
Welcome to a special edition of Phoenix Rising. In this edition we interview Tom Hennessy, a dynamic advocate who indelibly changed the face of the CFS community. An in-your-face advocate, Tom Hennessy cut a wide swath in the late 1980's and 1990's as he demanded that the medical establishment respond to the needs of ME/CFS patients. Originator of International CFIDS Awareness Day and founder of RESCIND, Tom's activities were curtailed were by worsening illness. In this interview, Tom, a great storyteller, talks about the heady days of the past and the issues CFS patients confront today.
Coming up shortly we return to our regular programing with a newsletter focused on Dr. Nancy Klimas, the immune system and the future of CFS. After that we'll wrap up our advocacy month with an overview of the last CFSAC meeting, the Congressional Briefing and 'Lobby Day' and an interview with our patient representative on the CFSAC, Rebecca Artmann.
I'm considering changing the name of the website to something that better clues people in to what the website is all about; chronic fatigue syndrome (me/cfs), fibromyalgia and the diseases associated with them. I'm looking for something that's informative and catchy at the same time. Any suggestions? Please let me know.
Yours truly,
Cort
phoenixcfs@gmail.com
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