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ME/CFS Australia Ltd
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Quote of the week

Wednesday 4 June 2008

Leonard JasonIn what must be the quote of the week, Leonard Jason (pictured), a professor of psychology at DePaul University, talked about the perception some people have about ME/CFS in an interview for The New York Times in a recent article.

During the interview, Jason was asked about the name “chronic fatigue syndrome”:

The name is unfortunate. It’s a terrible name, because fatigue is the focus and that is differently experienced by people who are healthy than by people who have this illness.

I do think if we called bronchitis or emphysema “chronic cough syndrome,” you’d probably have very little respect for those people, but a name that’s more medical sounding changes people’s perceptions.

When you have a more medical-sounding name, you’re saying the illness is not something fluffy, to be downplayed and ignored, and health care personnel think of it as more serious, more debilitating. I hope there will be a new name, but the problem is you don’t change names lightly, even bad names, because people come to recognize an illness by a name. I think changing it will confuse a lot of people, so it better be a new name that has broader acceptability among patients and researchers.

The full article can be found here:

The New York Times: Learning Firsthand About Chronic Fatigue Syndrome (external link)

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