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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Multiple Chemical Sensitivity & the hospital environment – a recent experience
Tuesday 17 June 2008
Society member Colin Northey has sent us a letter telling us about a positive experience he and his wife had when she had to stay in hospital recently:
MULTIPLE CHEMICAL SENSITIVY & THE HOSPITAL ENVIRONMENT - A RECENT EXPERIENCE
My wife suffers from Chronic Fatigue and Multiple Chemical Sensitivity and, after delaying the inevitable for about four years, recently needed to be hospitalised for surgery.
Fortunately, she was able to restrict her admission to just one night, but still we were filled with dread because of previous bad experiences that arose simply visiting a relative in hospital. On those occasions the chemical laden air within the wards had made her ill and we had been forced to leave after about twenty minutes.
Mindful of her intolerance, we set up a meeting with a hospital representative two weeks before the scheduled admission to discuss what measures could be adopted to minimise the anticipated effects.
We requested a number of strategies, all of which were received with an open mind and which subsequently were implemented for us, resulting in a safe overnight stay more comfortable than my wife could have hoped for.
Among the specific actions implemented were the following:
• Private room with ensuite, located as far away as possible from ward reception and work rooms generating cleaning smells (disinfectants, etc)
• Kept the room door closed as much as possible
• Cleaned the room with clean water only-no chemicals
• Supplied our own bed linen and soap
• The catering manager personally prepared meals after consulting with my wife to ensure she could tolerate all food presented
• One ward nurse was allocated as my wife’s dedicated carer after surgery and she made a point of not wearing any perfumed personal products
The hospital is The North-Eastern Community Hospital on Lower NE Road, Campbelltown SA and we think their efforts should be acknowledged. We are very grateful for their efforts.
Colin Northey
June 2008
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