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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising: The Symposium on Viruses in CFS
Friday 15 August 2008
Phoenix Rising is an informative newsletter put out monthly by American CFS suffererCort Johnsonon his website CFS Phoenix.
You can subscribe to the newsletter as well as download each issue.
The latest from Cort is entitled “The Symposium on Viruses in Chronic Fatigue Syndrome”.
Here is Cort’s introduction:
Welcome to a special edition of Phoenix Rising. In this edition we cover the first conference ever devoted specifically to viruses in chronic fatigue syndrome (ME/CFS): the Symposium on Viruses in CFS. The Symposium took place directly after the International HHV-6 Conference in Baltimore, Md. in May of this year. It featured a who-who's lineup of speakers in CFS research including Dr. Montoya, Dr. Kerr, Dr. Klimas, Dr. Vernon, Dr. Lloyd, Dr. Peterson, Dr. Chia, Dr. De Meirleir and others.
ME/CFS patients also turned out in force. By the time the 'Symposium' was underway the room was as full as it ever was during the three day HHV-6 'Conference'. Dr. Vollmer-Conna marvelled at all the patients present stating she'd never seen anything like it at a scientific conference.
The infectious side of the research community may be the most innovative and creative of all. During the conference we got introduced to intriguing questions such as
• Is a difficult to detect central nervous infection responsible for the mood disorders in ME/CFS?
• Could an endogenous retrovirus residing in ME/CFS patients DNA somehow have sprung to life?
• Could a smoldering infection in the heart be causing the fatigue in ME/CFS?
• Is there a distinct neuro-immune fatigue subset in this disease?
• Are we close to finding an immune biomarker for this disease?
• Has the Dubbo team figured out what happens as people come down with ME/CFS during an infection?
• How well do antiviral drugs work and what kinds of drugs are in the pipeline?
• Are entire networks of cells acting strangely in ME/CFS?
The overview of the conference comes in two parts.
Part I http://phoenix-cfs.org/ConHHV6PtI.html
Part II http://phoenix-cfs.org/ConHHV6PtII.html
Next up an interview with Dr. Chia.
Cort
phoenixcfs@gmail.com
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