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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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A Profile of ME/CFS Patients - How Many Years and How Many Doctors?
Friday 5 December 2008
ProHealth conducted a survey in its newsletter to give an overall profile of ME/CFS patients.
The survey was suggested by Dorothy Wall, author of Encounters with the Invisible, and ME/CFS doctor Lily Chu, MD, MPH.
Here are the survey results:
1. How old are you?
The majority (76%) are between ages 30 and 60.
| Under 20 | 17 |
(1%) |
| 20-29 | 76 |
(8%) |
| 30-39 | 189 |
(16%) |
| 40-49 | 329 |
(27%) |
| 50-59 | 401 |
(33%) |
| 60-69 | 173 |
(14%) |
| 70-older | 34 |
(3%) |
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||
Total |
1219 |
(100%) |
2. How long have you been ill with ME/CFS?
One in three have been ill for more than 15 years, and one in five for more than 20.
| Under 1 year | 15 |
(1%) |
| 1-5 years | 258 |
(21%) |
| 6-10 years | 318 |
(26%) |
| 11-15 years | 211 |
(17%) |
| 16-20 years | 188 |
(15%) |
| 20+ years | 227 |
(19%) |
|
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||
Total |
1217 |
(100%) |
3. How long did it take you to be diagnosed with ME/CFS by a healthcare provider?
29% had been ill from 6 to 20-plus years before being diagnosed.
| Under 1 year | 275 |
(23%) |
| 1-5 years | 579 |
(78%) |
| 6-10 years | 171 |
(14%) |
| 11-15 years | 80 |
(7%) |
| 16-20 years | 53 |
(4%) |
| 20+ years | 52 |
(4%) |
|
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Total |
1210 |
(100%) |
4. How many healthcare providers did you see before you were diagnosed?
44% saw from 5 to more than 20 doctors before being diagnosed.
| 1-4 doctors | 679 |
(58%) |
| 5-9 doctors | 336 |
(28%) |
| 10-15 doctors | 110 |
(9%) |
| 16-20 doctors | 34 |
(3%) |
| More than 20 | 53 |
(4%) |
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Total |
1212 |
(100%) |
The full details can be found here:
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Prohealth: A Profile of ME/CFS Patients - How Many Years and How Many Doctors? |
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