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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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A Profile of ME/CFS Patients - How Many Years and How Many Doctors?

Friday 5 December 2008

ProHealthProHealth conducted a survey in its newsletter to give an overall profile of ME/CFS patients.

The survey was suggested by Dorothy Wall, author of Encounters with the Invisible, and ME/CFS doctor Lily Chu, MD, MPH.

Here are the survey results:

 

1. How old are you?
The majority (76%) are between ages 30 and 60.

Under 20
17
(1%)
20-29
76
(8%)
30-39
189
(16%)
40-49
329
(27%)
50-59
401
(33%)
60-69
173
(14%)
70-older
34
(3%)

Total

1219

(100%)

 

2. How long have you been ill with ME/CFS?
One in three have been ill for more than 15 years, and one in five for more than 20.

Under 1 year
15
(1%)
1-5 years
258
(21%)
6-10 years
318
(26%)
11-15 years
211
(17%)
16-20 years
188
(15%)
20+ years
227
(19%)

Total

1217

(100%)

 

3. How long did it take you to be diagnosed with ME/CFS by a healthcare provider?
29% had been ill from 6 to 20-plus years before being diagnosed.

Under 1 year
275
(23%)
1-5 years
579
(78%)
6-10 years
171
(14%)
11-15 years
80
(7%)
16-20 years
53
(4%)
20+ years
52
(4%)

Total

1210

(100%)

 

4. How many healthcare providers did you see before you were diagnosed?
44% saw from 5 to more than 20 doctors before being diagnosed.

1-4 doctors
679
(58%)
5-9 doctors
336
(28%)
10-15 doctors
110
(9%)
16-20 doctors
34
(3%)
More than 20
53
(4%)

Total

1212

(100%)

 

The full details can be found here:

Prohealth: A Profile of ME/CFS Patients - How Many Years and How Many Doctors?

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