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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
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10am-3pm)
Ph: (08) 8346 3237
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FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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The MCS Research Report – here’s a form letter for you
Wednesday 10 December 2008
We alerted you on 11 and 12 November that the Office of Chemical Safety had released a draft report on MCS issues. We’re urging you to send your comments in on the report.
If you find it too hard to do from scratch, here’s a form letter which might help.
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Letter to Sen McLucas (Word document, 32KB) |
It’s been put together by campaigners in Queensland. Our thanks to them.
PS: see if you can add a paragraph or two which gives your personal story.
Good hunting!
Comments
10/12/2008: Peter Evans, Convenor of the South Australian Task Force on MCS, said…
CAMPAIGN FOR UNBIASED INFORMATION ON MCS
As reported previously on this site, the Office of Chemical Safety in Australia has been conducting a scientific review of multiple chemical sensitivity. They have recently published a draft report which is now open for public submissions. The report can be found at www.ocs.gov.au.
The agreed opinion amongst national MCS community representatives is that the draft review is biased towards psychological explanations of MCS and will do more harm than good by perpetuating misinformation and discrimination against people with MCS.
MCS community groups have started a letter writing campaign to the Hon Jan McLucas, the federal Senator responsible for overseeing the Office of Chemical Safety, calling for the psychological bias in the draft report to be removed. A copy of the letter is here.
Please show your support for an unbiased and proper review of MCS by signing and posting the letter. Feel free to alter the wording of the letter to reflect your own concerns if you wish.
Also, please write your own submission to the Office of Chemical Safety and provide them with whatever scientific data you think may be relevant to the review. An information sheet on the submission process is here.
The problem of MCS can no longer be swept under the carpet by Australian governments. There is an urgent need to recognise the serious public health and disability access issues caused by MCS. But without a proper and unbiased review of the scientific data, it is likely that the suffering of people with MCS will continue be ignored.
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