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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Phoenix Rising – Cort Johnson does it again!
Monday 15 December 2008
Once again the amazing AmericanCort Johnsonhas put out a snappy and information-packed issue of Phoenix Rising .
You must read this one, especially for his review of the important new Whittemore-Peterson Institute in Nevada, a privately-endowed ME/CFS-focused research centre. (Dr Dan Peterson was in Adelaide in 2007 – great bloke.)
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Here’s Cort’s introduction to the November News Edition:
We start off a News Edition of Phoenix Rising with three hot stories
CAA vs CDC - In the hottest story in years at the last CFSAC meeting Kim McCleary of the CFIDS Association of America effectively called for Dr. William C. Reeves to be ousted as head of the CDC CFS research program after a 2-year investigation suggested Dr. Reeves is running a program that is low on accountability and bankrupt of ideas.
The First Approved Drug For ME/CFS? - As Ampligen nears the end of its road at the FDA tensions are surely growing at its manufacturer, Hemispherx Biopharma. This looks like its make it or break it time for the drug. Oddly enough, given all the problems at Hemispherx over the years, they seem strangely confident. Will Ampligen be our first federally approved drug?
The WPI Comes Out of the Closet - Annette Whittemore said the Whittemore-Peterson Neuro-Immune Institute would be different, that they would bring a new focus to this disease. Are they? In this edition we take a close look at their website to see how new of a player this new addition to the research scene really is.
Check it all out in the Nov Edition of Phoenix Rising:
• http://phoenix-cfs.org/PRNov08.html
You can also subscribe to the newsletter as well as download each issue.
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