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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
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South Australia 5007
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FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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A NICE dilemma?
Monday 22 December 2008
Margaret Williams has written an article for
MEActionUK centering on the UK’s NICE Guidelines:
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The article discusses quite a few topics, including:
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ME/CFS in the US |
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ME/CFS in the UK |
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CBT/GET does not prevent death from ME/CFS |
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NICE “Guidelines” are to become legally enforceable in 2009 |
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Some failures by NICE to adhere to its own Guideline Development Manual |
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Introduction of “Consensus” for CG53 |
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Failure of NICE to adhere to the Guideline Development Manual in the selection of GDG members |
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Consideration of the known views of members of the Guideline Development Group (GDG) |
Peter Mitchell, the Society’s Honorary Secretary, offers a comment on Margaret’s article:
The article almost needs a health warning: “Please be aware that you are likely to feel raised blood pressure and angry flushes as you read this letter.”
It is printed without prejudice, and assumes that the original writer, Margaret Williams, and the publisher MEActionUK have taken responsibility to check all claims.
What she claims would be great fodder for a defamation case if not provable, so one assumes she is confident of it all – which would appear to make the actions of those concerned (eg in the ‘selection’ of the GDG) all the more scandalous.
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