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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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The Down Side of Fibromyalgia & CFS Awareness
Sunday 15 February 2009
About.com’s Adrienne Dellwo makes an interesting point about the increasing awareness of ME/CFS/Fibromyalgia in the media:
“With drug approvals for fibromyalgia came advertisements for drugs and PSAs about the condition itself. Awareness went up. That's good, right? Well ... yes, except that it makes us a higher-profile target.
Just as there are two sides to every coin, increased awareness of fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) has a down side. An example of the down side is an Associated Press (AP) report accusing pharmaceutical companies of 'disease mongering' and bringing up the tired old debate about whether FMS is 'real.'”
The full article is here:
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About.com: The Down Side of Fibromyalgia & Chronic Fatigue Syndrome Awareness |
If, after reading Adrienne’s article, you doubt the media could be that unhelpful, here’s a recent news item from CBS News that proves Adrienne’s point:
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The article begins rather provocatively (those of a sensitive disposition may wish to look away):
“Two drugmakers spent hundreds of millions of dollars last year to raise awareness of a murky illness, helping boost sales of pills recently approved as treatments and drowning out unresolved questions - including whether it's a real disease at all.”
Fibromyalgia has been called a lot of things, but we’ve never heard it called “murky” before…
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