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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
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266 Port Road,
Hindmarsh,
South Australia 5007
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FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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Judicial Review – summary of High Court proceedings
Monday 16 February 2009
In addition to our earlier news item about the UK’s High Court challenge to the NICE Guidelines, Dr Charles Shepherd has now provided The ME Association with a report of the proceedings last Wednesday and Thursday (11 and 12 February):
“The Judicial Review of the NICE guideline on ME/CFS took place on Wednesday and Thursday, 11th and 12th February, at the Royal Courts of Justice in London. The hearing was held in Court 76 - a large modernised courtroom tucked away on the third floor of this historic maze of legal activity.
Unlike the preliminary hearing in June last year, there was plenty of room to move around along with comfortable non-squeaking seats and wheelchair access - although it was difficult at times for those at the back to hear precisely what was being said by barristers representing the two sides.
Around 50 members of the public, along with occasional brief visits from journalists, packed Court 76 to witness the proceedings. At times, a 'Court Full' sign had to be posted up. Not surprisingly, there did not appear to be a single person with ME/CFS who had come up to London to support the NICE guideline.
Outside the main entrance in The Strand, where all the TV news bulletin shots of the High Court are taken, a small peaceful demonstration against the NICE guideline took place over lunch. This managed to attract quite a lot of legal and public interest.”
You can read the full report here:
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The ME Association: Judicial Review – summary of High Court proceedings |
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