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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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ME/CFS book available for download
Thursday 19 February 2009
Dr Sarah Myhillhas graciously given us permission to make her book, Diagnosing and Treating Chronic Fatigue Syndrome, available for download:
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Diagnosing and Treating Chronic Fatigue Syndrome (PDF, 6.33MB) |
The book is 114 pages and very informative and helpful. Here’s an excerpt:
“Since 1982 I estimate I have seen and treated over 4,500 patients with CFS. I now know that there is only one way to get well and that entails a whole package of treatment. That package of treatment has to be done in the right order – it is a little bit like building a house – there is no point putting the upstairs windows in until the foundations and walls are in place. Many patients come to me having tried thyroid or B12 injections or whatever, but unless the diet, sleep, pacing and micronutrients are in place and correct, they won’t see benefit. I ask all my patients to tread this hard path because I know of no other way to get better. This requires a complete change in lifestyle and changes are hard to make, especially when the poor patient lacks the physical, mental and emotional energy to make these changes at all! Each patient has to become his own doctor, detective and psychotherapist to work out the best strategies for recovery. I can point patients in the right direction, provide the tests, information and therapies to get sufferers better, but there is only one person who can actually walk that path.
The basic package of treatment and approach to treatment is the same for everybody, but each person discovers a vital key or keys which really give them a quantum leap in improvement and may even be unique to them. For some people who are poisoned it is the detox regime that makes them better. For others, removing mercury amalgam opens the floodgates to recovery; thyroid hormones for many are an important factor. But there is no point putting the esoterics in place until the basics are done.
Recovery is never a smooth ride because life has a habit of getting in the way and throwing in extra stresses that you can do without. Whenever a hiccup occurs, always go back to the basics. People recover from CFS, firstly by getting their regime as tight as possible (with respect to diet, supplements, pacing, sleep and detox), then they start to feel better and only then should they start to increase their levels of activity. BUT if they get delayed fatigue, then reduce activity. Most people end up with a juggling act between how strict their regime is, how well they feel and how much they can do. The regime is for life – but once in place it substantially reduces risk of heart disease, cancer and degenerative conditions.”
In addition to the book, we encourage interested members to look at Dr Myhill’s website where there is an abundance of resource material available for download. For example, search for “fatigue” and you’ll find a whole heap of information and advice: www.drmyhill.co.uk/articles.cfm?subject=Fatigue.
Many who attended our public sessions with international experts in Norwood would recognise Dr Myhill’s name from references to her work by our speakers.
It’s also reassuring to see a medical expert advising viewers of the circumstances when it is best NOT to use her website!
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