 |
Email the Society |
 |
Donations |
ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
|
Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
| Become a Member | |||
|
Post-polio case misdiagnosed as ME
Saturday 20 June 2009
A woman with post-polio syndrome (PPS) who was misdiagnosed years ago as having ME has taken up the fight to raise awareness of PPS.
Sandy Yarrow (pictured with husband Eric), has joined a campaign by the British Polio Fellowship to highlight the disease.
UK newspaper the Henley Standard has an article about Mrs Yarrow's experiences:
In 1992, she was incorrectly diagnosed with myalgic encephalomyelitis. It was only when she came across an article in the ME Association’s members magazine that she found out about PPS, a condition few GPs know about.
“It was a flash of realisation for me,” said Mrs Yarrow. “I contacted the consultant who wrote the article and he felt that I definitely had PPS and provided me with information to take to my GP.
“At first they wouldn’t believe that my shoulder was hurting and that I had a breathing problem.”
She was referred to a series of specialists until finally in 2001, with her condition having seriousy deteriorated, she saw a respiratory specialist who confirmed PPS.
The full article can be found here.
The National ME/FM Action Network has an article about PPS on its website that discusses similarities and differences between the two diseases.
If you feel there's a chance that you, too, may have PPS instead of ME/CFS/Fibromyalgia, please bear in mind that to have PPS you must have contracted polio at some stage earlier in your life.
blog comments powered by Disqus
Previous Page |
