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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

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CFS symptom survey results

Monday 7 September 2009

SurveyThe CFIDS Association of America asked CFS patients to respond to a questionnaire about their CFS symptoms. The results were published in two parts. Part one begins:

Survey Responses Reflect Multi-Factor Nature of CFS

By Suzanne D. Vernon, PhD

In May we asked CFIDSLink readers, donors and members to respond to a detailed 15-item questionnaire to examine family history and patterns of symptoms and factors at onset of illness and that may worsen symptoms over time. We capped survey responses at 1,200 and we have tallied the responses for a few of the survey questions to share with you.

To the question, “Select one or more factors that you believe contributed to your GETTING CFS,” 1,086 answered and their results are shown in the bar graph directly below. There were 247 (23%) people that noted “Infection” for getting CFS (blue bar); 821 people said that “Infection” plus one or more of the other factors contributed to their getting CFS (red bar). Twenty people (2%) indicated that “toxic or environmental exposure” contributed to getting CFS and 266 indicated it was this factor plus others. Only 8 (0.5%) people selected “vaccination” for getting CFS and 85 selected “vaccination” plus other factors. “Physical trauma” was selected by 21 (2%) people and 188 selected “physical trauma” plus other factors. “Emotional trauma” was selected by 73 (7%) people who indicated this was the only contributing factor to getting CFS, whereas 188 selected “emotional trauma” plus other factors. Sixty five (6%) people selected “other stressors” while 454 selected “other stressors” plus additional factors. Interestingly, the majority of people – 700 (66%) – indicated that a combination of factors contributed to their getting CFS.

The rest of the article can be found here.

And the second part begins:

Symptom Survey Responses Indicate Cardinal Symptoms of CFS

In May we asked CFIDSLink readers, donors and members to respond to a detailed 15-item questionnaire to examine family history and patterns of symptoms and factors at onset of illness and that may worsen symptoms over time. In August we reported a preliminary analysis; this month we have more closely analyzed the symptom patterns you reported. Of the 1,200 survey responses, 1,100 were completed accurately for the analysis.

The respondents were broken down into four age groups and the age at the date of the survey was calculated, as well as duration of illness. The age groups, numbers of women and men in each group as well as average age and age range for each group are shown in the table below.

The rest of the article can be found here.

 


 

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