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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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BBC profiles Fibromyalgia
Tuesday 8 September 2009
BBC Northern Ireland has an article, with an accompanying video, about Fibromyalgia. The article focuses on two sufferers, Lorraine Smyth (pictured) and Margaret Peacock:
Hidden disorder 'stripped me of life'
Around 70,000 people in Northern Ireland are affected by a chronic disorder which many say is not being properly recognised by health professionals. Fibromyalgia can cause severe pain and fatigue but sufferers say it can take years to be diagnosed.
BBC Northern Ireland health correspondent Marie-Louise Connolly looks at the disorder and the calls for more research and a better understanding of the illness.
At her home in Portstewart, Lorraine Smyth sits on the sofa. At her side lie her crutches and in the family car, her wheel chair which allows her some freedom.
Three years ago when she was 30, Lorraine was diagnosed with fibromyalgia.
What started off as back pain a decade ago has progressed into a syndrome for which there is no cure.
She has short blond hair, no trace of make-up and her face is etched with pain.
"I'm in agony sitting up, even lying down in bed. It feels as though my skin is burning, crawling with insects or something inside. It feels like a burning torch is on my shoulders or at its worst, as if I'm being stabbed. There are days I want to cut my arms off they are so sore," said Louise.
Fibromyalgia, or FMS, is a complex chronic pain disorder that affects around 70,000 people here.
It can grip a person physically, mentally and when they are confined to home, socially.
The full article can be found here.
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