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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
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Hindmarsh,
South Australia 5007
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FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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CFSAC meeting to be videocast
Tuesday 27 October 2009
ProHealth reports on an upcoming meeting of the US Government's Chronic Fatigue Syndrome Advisory Committee that will be videocast:
Don't Miss this Week's CFS Advisory Committee Meeting - Live Online Oct 29-30
HHS has posted an agenda for the CFSAC meeting in Washington DC, this Thursday & Friday, Oct 29 & 30. Many suggest this event may mark a new chapter in ME/CFS research, and the world is invited to watch it all, live.
To Access and Print the Agenda… www.hhs.gov/advcomcfs/meetings/agendas/cfsac091029_agenda.html
The Event Will be Videocast Live on the Web…
Starting at 9:00 Thursday EDT (at http://videocast.nih.gov/)
For the time where you live, use the World Clock Time Zone Converter
To Prepare in Advance for Viewing the Two-Day Videocast…
• You will need to have RealPlayer installed, and you can download the latest version in advance at http://videocast.nih.gov/faq/#software
• You can test your computer and network connection at http://videocast.nih.gov/BrowserTest/
Topics Clearly Indicated in the Agenda…
• Dr. Daniel Peterson, MD, from the Whittemore-Peterson Institute, will give a presentation starting at 10:15 am on Oct 29 on “XMRV Association with CFS.”
• Dr. David S. Bell, MD, will Speak on “CFS and FII/MBP” – the issue of suspected “fabricated and/or induced illness in children/Munchausen by Proxy” as it relates to ME/CFS - at 3:30 pm
• There will be three public comment time slots, two on day 1, the third on day 2.
Several Time Slots for “Committee Discussion” are Listed for Both Days…
Though no topics are listed in the agenda, the focus will certainly be the CDC’s 5-year CFS research plan, finally published online Oct 23. As Dr. Fred Friedberg, President of the IACFS/ME, has stated "This is a critical meeting because the future of $25 million in public funding for CFS research at the Centers for Disease Control will be discussed." (See his message underscoring the need for a show of community involvement.)
Also expected in this meeting is announcement of new CFSAC members selected to replace members who will step down in January. The retiring members are scheduled to make brief comments at the close of day 2.
The above originally appeared here.
And here are all the relevant links:
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