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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc is a member of Charity Direct.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Self-pacing in CFS
Sunday 21 February 2010
The Ninety-One Outcomes blog has an article about the results of a study into self-pacing in CFS:
Self-Pacing in chronic fatigue may provide modest symptom, daily functioning improvements
Written by Anthony Hardie, 91outcomes
(91outcomes.blogspot.com) -- A new Belgian scientific study suggests that patients with Chronic Fatigue Syndrome/Myalgic Encepholopathy (CFS/ME) may feel slightly better by pacing their daily activities.
The study by J. Nijs of the Vrije Universiteit Brussel in Brussles, Belgium and colleagues found that 3 weeks of pacing self-management was accompanied by a modest improvement in symptom severity and daily functioning.
The authors of the study, Can pacing self-management alter physical behavior and symptom severity in chronic fatigue syndrome? A case series, suggest that the next step should be to conduct a larger-scale, randomized controlled clinical trial to examine the effectiveness of pacing self-management for people with CFS.
Chronic Fatigue Syndrome is one of three presumptive conditions for VA service-connection for veterans with Persian Gulf service in August 1990 or later.
The study’s abstract, published in the Journal of Rehabilitation Research and Development, is as follows:
Given the lack of evidence in support of pacing self-management for patients with chronic fatigue syndrome (CFS), we examined whether physical behavior and health status of patients with CFS would improve in response to a pacing self-management program.
We performed an observational study of pacing self-management in seven CFS patients using a single-case study design. Stages A1 and A2 (7-day assessment periods) of the A1-B-A2 design corresponded to the baseline and posttreatment measurements of physical behavior (real-time activity monitoring) and health status (self-reported measures), respectively. Stage B (3 weeks of treatment) consisted of three individual treatment sessions of pacing self-management.
When comparing pre- versus posttreatment data, we found that the patients' ability to perform daily activities and the severity of their symptom complexes were improved (p = 0.043). Concentration difficulties, mood swings, muscle weakness, and intolerance to bright light improved as well. A statistically significant decrease in the mean time spent doing light activity (<3 metabolic equivalents) was observed, but a change in the way physical activity was spread throughout the day was not.
We found that 3 weeks of pacing self-management was accompanied by a modest improvement in symptom severity and daily functioning.
The outcome of the present study calls for a randomized controlled clinical trial to examine the effectiveness of pacing self-management for people with CFS.
The full document (Can pacing self-management alter physical behavior and symptom severity in chronic fatigue syndrome? A case series) can be found here.
The above blog article by Anthony Hardie originally appeared here.
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