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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Email:
sacfs@sacfs.asn.au
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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The Voices of Fibromyalgia
Friday 2 April 2010
The New York Times has a series of audio recordings called Patient Voices. Tara Parker-Pope has an introduction to a episode that focuses on Fibromyalgia:
People who suffer from fibromyalgia experience problems beyond the pain caused by their illness. Their condition is little understood and hard to explain, and often they are disbelieved by doctors. Even friends and loved ones may express skepticism toward the fibromyalgia sufferer, who, burdened with inexplicable pain, may cancel social plans, miss work and recoil from physical affection because it hurts too much.
For a glimpse into the frustrating world of fibromalgia sufferers, listen to the latest installment in the Patient Voices series by producer Karen Barrow in which six men and women speak about living with the condition.
You’ll meet Christine Wysocki, 33, of St. Augustine, Fla. who waited three years before a close friend and co-worker believed she had a health problem.
“Frankly I still don’t know if I understand exactly what it is,” says Ms. Wysocki. “Everything seems so vague about what fibromyalgia is, and it feels like no one wants to commit to what an actual answer is.”
And there’s Leon Collins, 59, of Clayton, N.J., who was relieved when he heard he had fibromyalgia because he at least had a diagnosis after many other doctors had dismissed his symptoms.
“We even experienced one doctor who wanted to send me to a psychiatrist because he felt my pain was imagined,” he said.
To hear all the voices of fibromyalgia and see the accompanying slideshow, click on this Patient Voices link. And be sure to check out the Times Topics page on fibromyalgia to read “The Long Search for Fibromyalgia Support”, an expert Q&A with a rheumatologist and five things you need to know about the condition.
Patient Voices: Fibromyalgia can be found here.
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