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ME/CFS SOUTH AUSTRALIA INC

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS awareness art exhibition

Wednesday 12 May 2010

ME/CFS awareness art exhibitionCo-Cure reports on a virtual art exhibition in the online community Second Life:

ME/CFS Awareness Art Exhibition in Second Life

The ME/CFS Centre in Second Life is launching an art exhibition on Wednesday May 12, 2010. The exhibition features creative works in all forms authored by people with ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome).

The exhibition includes paintings, illustrations, line drawings, sculpture, digital art, poems, prose, book extracts and song lyrics. Every contributor has a story to tell.

The exhibition is spread throughout three floors of the Centre. Features include a gallery on the ground floor, an art installation called “Have a drink for ME” on level 2, and a “Day in the Life of ME” on the roof garden.

The exhibition is being launched on International ME/CFS Awareness Day in order to promote awareness of this misunderstood, under-funded and under-researched illness.

Despite having ME/CFS, contributors to the exhibition have demonstrated an amazing wealth of talent.

Time and day of launch: May 12, 2010, 6-8pm Pacific Daylight Time (GMT-7)
Location of exhibition: ME/CFS Centre, Murdoch University Island, Second Life (SLURL: www.tinyurl.com/me-cfs)
Website: www.mecfscentre.org

For more information, please contact Kirsty Best at [log in to unmask] (avatar name Kirsty Bearsfoot).

To access Second Life, create a free account at http://secondlife.com or through Virtual Ability at http://virtualability.org/signup.aspx and then teleport to the ME/CFS Centre (www.tinyurl.com/me-cfs).

The article originally appeared here.

The exhibition has a web page: http://www.mecfscentre.org/events-in-the-centre/art-exhibition.

And from The Metaverse Journal:

ME/CFS Awareness Art Exhibition

Posted by Lowell Cremorne on May 10, 2010 · View Comments

In late March we profiled some work being done by Australians in regards to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

That work has continued, with the launch of an art exhibition occurring this Wednesday May 12th, 6-8pm SL time (11am – 1pm Thursday 13th AEST).

All the works exhibited are by people living with ME/CFS. To have a closer look for yourself, here’s where to go or you can view some pictures of the exhibition space here.

The picture leading this post is an example of the excellent work on show, so take the time to visit if you can.

The Metaverse Journal article originally appeared here.

Here's an excerpt of an interview with Murdoch University's Kirsty Best that was mentioned in the article above ("we profiled some work..."). Kirsty was responsible for a research study that gave rise to the exhibition. The interview was published in Metaverse Health:

ME / CFS support in Second Life

MARCH 30, 2010 BY LOWELL CREMORNE · LEAVE A COMMENT

In recent weeks, thanks to a health professional colleague, I became aware of a research project underway at Murdoch University, looking at the use of virtual worlds as a support mechanism for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It’s an ARC funded, three-year project titled Isolation, illness and the Internet: Exploring the possibility of a second life for sufferers of ME.

Chief Investigator for the research is Kirsty Best, a lecturer in Communication and Media Studies. She kindly spent some time explaining the research project and providing some insight on the wider issues faced by those with ME/CFS. There is also a further viewpoint after the Q&A section from Alex, an Australian living with ME/CFS who has been taking part in the project.

DH: To start off, can I get you to tell me a little about yourself, your specific role at Murdoch and with this project?

KB: I’m a Senior Lecturer with the School of Media, Communication and Culture. I received an ARC Discovery grant last year – the project and the centre are the result of that grant but I am planning to keep it going after funding runs out.

DH: So the part we’re standing in now contains resources on ME/CFS?

KB: I have created some user-friendly resources about ME/CFS. They’re aimed both at people with ME, who end up having to do a LOT of research on their own due to ignorance of the illness, and the general public. We also have a calendar of what’s going on. Then over here I have some major ME/CFS websites that I have found the most useful and user-friendly, with various theories of the cause, various treatment protocols and also support groups.

DH: With the cause theories, how have you assessed their validity?

KB: That’s not my area of expertise, and it’s not about that. This is about giving people with a very misunderstood illness the resources they need to find out more, get support, and be heard. I’m not a scientist. Some of our members are very interested in the biochemistry, etc and in our mailing list and groups the discussions often end up talking about some of these things.

DH: Absolutely – but what I’m getting at is how do you determine that the information is clinically sound? Let’s say an illegitimate site popped up making incorrect claims that could cause harm – how do you screen that?

KB: I don’t screen that. There are a lot of competing theories out there. I am just providing links to the sites that provide the best summaries of what has been said so far. To be honest, VERY little scientific research is even conducted about ME/CFS

DH: Ok, that makes sense. I suppose what I’m getting at is some of the value add for virtual worlds and health can be to provide guidance on the evidence-base or to debunk incorrect information.

KB: That is not what my work is about. I am not looking into causes and effects. I have no training in that. I am looking to provide people with ways to overcome their social isolation using virtual media. This area is a very small part of what the centre is about.

The full interview can be found here.

 


 

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