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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
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Temecula boy recognized for fibromyalgia awareness fundraising
Sunday 20 June 2010
 Noah Carillo with mother Maria |
US newspaper The Valley News reports on the achievements of Noah Carillo:
Temecula boy recognized for fibromyalgia awareness fundraising
Friday, June 11th, 2010.
Issue 23, Volume 14.
Story Last Updated : Jun 13th.
Noah Carrillo, 11, from Temecula was named "Highest Individual Fundraiser" for raising over $2,000 for the 3rd Annual Walk of F.A.M.E. (Fibromyalgia Awareness Means Everything) held May 15 at California State University, Fullerton (CSUF).
Noah’s team called "Fibro Fighters," participated in the 5K walk, which was part of the day-long activities that also included a Wellness Fair, educational seminars and concert commemorating National Fibromyalgia Awareness Day hosted by the National Fibromyalgia Association (NFA) and the Fibromyalgia Research and Education Center at CSUF.
"Make Fibromyalgia Visible" was the NFA’s theme for this year’s National Fibromyalgia Awareness Day, officially observed on May 12.
The day is designed to increase awareness and understanding of fibromyalgia – a chronic pain disorder usually characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress.
Diagnosed in February, Noah rode a tricycle on the walk trail around campus. Members of team "Fibro Fighters" consisted of Noah’s mom and dad, Maria and Gabriel, big sister, Carrissa and friends and other family members.
"Even though I was in a lot of pain at the end of that day, it was worth it," said Noah. "I met other kids there with fibromyalgia, and I’m excited to help the NFA tell as many people and kids as we can about this illness."
It took over a year and Advertisement Shriners Hospital for Children several doctors before Noah was correctly diagnosed with fibromyalgia, according to Maria Carrillo, Noah's mother.
"The doctors told us it was just ‘growing pains,’ but we knew in our hearts that it should not hurt like this just to grow up," said Maria.
After finding the National Fibromyalgia Association online and doing countless hours of research, the Carrillos said they wanted to raise awareness about fibromyalgia, especially among families with children suffering from fibromyalgia, as well as the Latino community.
"We would love to be a part of being able to reach out to the Latino community because in the Latino culture, doctors are very well respected and even revered, but they’re not always right. We want to tell other families, especially Latinos, that it’s okay to get a second opinion, or third or fourth. Do everything you can to find help and treatment options for your child," Maria said.
"We commend Noah and the Carrillos for their dedication and love to one another, and for helping other children and families with fibromyalgia," said Lynne Matallana, president and founder of the National Fibromyalgia Association. "Fibromyalgia is such a debilitating disease, but especially heartbreaking for children who should never know such pain in their young lives."
To read more about Noah Carrillo, visit the Fibro Fighters Team page at www.fmaware.org/goto/fightfibro.
The article, with comments, originally appeared here.
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