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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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International survey on ME/CFS

Friday 15 October 2010

SurveyFrom Co-Cure:

International Survey on CFIDS/ME - invitation to fill in anonymous questionnaire

Dear All

I am a researcher preparing a book on CFS/ME/CFIDS and I am trying to get as many experiences from CFS patients as possible, with the aim of giving voice to them in the book. I was wondering whether any of you could help?

I have already gathered several experiences from the Spanish-speaking, French-speaking and Italian-speaking world, with the aim of showing in the book that the experiences/problems faced by patients are very similar throughout the world, and I would be keen on gathering experiences from the US as well.

I have developed a questionnaire in several languages and I was wondering whether you would be willing to fill it in and distribute it as widely as possible? I have explained both the questionnaire and the reasons behind it in the document. The questionnaire is anonymous and also be filled in online at http://www.surveymonkey.com/s/HHBB75P.

I should also point out that I myself suffer from CFIDS, so I obviously have a very strong interest in this matter and no interest whatsoever in speculating on other fellow sufferers. I only want to raise the awareness of this very insidious disease and, since I am still able to write and I am an academic, shake up a bit the medical establishment in the process!

Thank you very much in advance for your help and please do not hesitate to contact me, should you need further information.

With my warmest regards and very best wishes for your health!

Herman

Dr Herman Salton
BA (Italy), MPhil (Oxford), PhD (Auckland)
Email: herman.salton@auckland.ac.nz
Or herman.salton@exeter.oxon.org

The above originally appeared here.

 


 

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