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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

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sacfs@sacfs.asn.au

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PO Box 322,
Modbury North,
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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CFS sufferers: living corpses left for dead

Sunday 21 November 2010

CFS sufferers: living corpses left for deadFrom YouCommNews:

CFS Sufferers: Living Corpses left for Dead

Author
Toula Mantis

How would you react if you were left to deal with a chronic disease that medical professionals are at a loss to explain its causes and more importantly its cure?

What effect do you think it would have on your life if one day you began to cough and continued to cough and then began to lose weight - only to finally find that you had somehow lost your comprehension faculties? How do you think you would fare with your boss, your friends, your family? And then to be told: "It's all in your mind...you need some cognitive therapy..."?

By now, most Chronic Fatigue Syndrome sufferers have lost their job, lost their friends and are occasionally visited by family. The question they are left with is "Why should I live...why not end it all?" Theirs is a life of monotonous painful days lived in bed and riddled with guilt and misunderstandings. Some have ended up sleeping in their cars, others are living in tents and then there are those who have ended it all. It seems that no-one cares and everyone judges.

This is a series of 10 personal stories that looks into the lives of Chronic Fatigue Syndrome sufferers and their plight for survival. It considers the individual stories, the diagnosis, the support level and the government response. It follows on from a Community Cabinet Presentation made to the Victorian Health Minister, Daniel Andrews, in October 2007, titled, "The Plight of CFS Sufferers in Victoria".

The first story covers the survival of Katherine McIntosh who lives between a tent and a caravan in country Victoria.

If you were ever left for dead from the world, would you not want to know how to survive?

The above originally appeared here.

Please note: This article contains references to death. If you have feelings of helplessness, or of suicidal thoughts, seek help immediately. Lifeline is an excellent starting point: Lifeline – Suicide Prevention resources and links.

 


 

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