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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Society Annual General Meeting reminder

Friday 26 November 2010

ME/CFS Australia (SA) IncA (belated) reminder that the Society's Annual General Meeting will be held tomorrow (Saturday 27 November).

Here are the details:

ME/CFS Australia (SA) Inc
Annual General Meeting
27 November 2010,
11am - 1pm

Our South Australia Annual General Meeting will be held in the usual format. We don’t expect the reporting side will take very long, followed by the usual election announcements and declarations [note: we handle nominations before the event, so have no fear of being dragooned onto a committee from the floor]. Business should take only half an hour approximately, followed by a break to allow folk to stretch, get a drink, talk, or rest.

If you are able, please join us this Saturday, 28 August from 11am to 1pm at the Sofia Conference Room (situated in Cabra Dominican College), 225 Cross Rd, Cumberland Park (see map below).

Here are the details:

Speaker

Dr Richard Kwiatek

Dr. Kwiatek has some very interesting preliminary findings to discuss relating to his research (more details at the bottom of this message). Dr Kwiatek is an Adelaide based Rheumatologist who has treated a number of our members with Fibromyalgia and ME/CFS and has been involved in ground-breaking research using brain scans of patients and controls.

Dr. Kwiatek's research:

ME/CFS and Fibromyalgia Research Participants Needed in Adelaide

Following on with the data collected from Dr Richard Burnet’s ME/CFS brain scan research, Dr Richard Kwiatek et al. have reanalyzed the data and are looking for new volunteers to take part in a confirmatory follow-on study. Dr Kwiatek explains that “these are very novel and seemingly highly significant mechanistic findings concerning the extremely vexing disorder of CFS” and the society is excitedly following its progress.

Both healthy controls and people with ME/CFS are invited to participate. Dr Kwiatek explains “We are slowly continuing to recruit, now both CFS and healthy controls, all 18 to roughly 50 years old, premenopausal (if female), with no other major medical illnesses and not overweight. The study will certainly spill over into 2011”. Participants will receive a brain MRI and SPECT scan to analyze functional blood flow to the brain.

All interested ME/CFS sufferers or healthy controls should contact Dr Kwiatek’s rooms directly on 8267 1767 for further information and, if appropriate, formal assessment. A few members have recently offered to participate and we hope to help him reach the aspired number of participants.

Dr Kwiatek stresses that the healthy control volunteers should not be biologically related to CFS sufferers. Volunteers could be in-laws, friends, step-children or step-parents.

Ideally, the non-CFS participant will be a sedentary healthy adult (male or female), is on no regular medications (mild asthma medications okay and mild intermittent migraine okay), and is less than 100 kg in weight.

More details can be found here:

http://sacfs.asn.au/news/2010/04/04_22_adelaide_brain_scanning_study.htm

Cost

The cost for each meeting is a gold coin for members, $5 for non-members. We'd love to see you there.

Reminders

Sofia is at the western end of Cabra College (i.e. the seaside end, not the hills end). The Circle Line goes past there, and there are bus stops for other routes on Goodwood Road for those who can walk further. Go in the gate marked Sofia - it's the next gate along travelling towards the sea from the Cabra College entry. The conference room is in the modern building to the left, at the end of the lane. There is a small car park immediately to the left from the beginning of the lane.

Please wear warm comfortable loose fitting clothing and you may like to bring a rug or cushion. You can sit in a chair or on a cushion or lie on a carpeted floor if unwell.

Many people with ME/CFS are extremely chemically sensitive, so we ask attendees to refrain from wearing aftershaves, perfumes etc, and please refrain from smoking at our meetings. We will make every effort to clear the venue of fragrances and chemicals. There have been MCS issues there in the past and we have been in contact with Sofia's management to find ways to minimise or remove any potential issues for future meetings. We will continue to make every effort we can to minimise these problems at our meetings.

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Please note that this program is subject to change.

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Download Society Meeting Program for 2010 (PDF, 13KB)

 


 

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