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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Research breaks CFS stereotypes
Saturday 26 February 2011
Following on from yesterday's news item about unique proteins found in spinal fluid, CBS Evening News with Katie Couric featured a story on CFS:
Research breaks Chronic Fatigue stereotypes
New study found indicators of disease unique to Chronic Fatigue Syndrome patients
(CBSNews) NEW YORK - Four times a day, for the last 16 years, Maria Brant takes an assortment of supplements and medications to combat the symptoms of exhaustion, lack of concentration and muscle aches.
She has Chronic Fatigue Syndrome, a disease often dismissed and misunderstood by some medical professionals, even one of her own doctors, reports CBS News correspondent Michelle Miller.
"He said, 'lots of women are tired,'" Brant said. "I knew that I was different."
For Brant and as many as 4 million Americans afflicted with CFS , today science offers tangible proof that they have a disease.
"This study says there is a physical root cause or effect to this disease," said Dr. Steven Schutzer, with the University of Medicine and Dentistry of New Jersey and a study author.
Researchers examined the spinal fluid of CFS patients, healthy people and patients afflicted with a similar disorder - Lyme Disease. They found over 700 proteins, or indicators of disease, unique to CFS patients alone.
Dr. Nancy Klimas runs a support group for CFS patients in Miami. She can finally tell her patients that science has validated their symptoms, and one day they could be tested for it.
"We haven't had something we could just draw blood in a tube and let us measure [and say] 'Ah-ha! You must have Chronic Fatigue Syndrome,'" Climas said.
Once researchers design that test, they can zero in on a cause and develop better treatments. And not soon enough for Maria Brant.
"Talk to me in two years about this study, then we'll see," Brant said.
http://www.cbsnews.com/video/watch/?id=7357544n&tag=related;photovideo |
The above originally appeared here.
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