ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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Fibromyalgia sufferers search for answersSunday 13 March 2011
From US newspaper the Telegraph Herald:
Fibromyalgia sufferers search for answers Medication often doesn't relieve the pain. Gaa Holdiman had some information to share and wondered what knowledge others had about her misunderstood condition. The Dubuque woman approached a friend, Pat Fisher, the dietitian at the Locust Street Hy-Vee. "Wouldn't it be wonderful if we could start a support group?" Fisher now hosts the Fibromyalgia Support Group, which Holdiman coordinates. It has 15 members. "We have been meeting for over a year now," Fisher said. "The group meets each month and has a speaker each time, and the speakers have covered the gamut of topics and have been excellent." Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue and sleep, memory and mood issues. The Centers for Disease Control and Prevention estimates that 5 million Americans have fibromyalgia, but the amount could be higher because of missed diagnoses. Holdiman was diagnosed with fibromyalgia about eight years ago. "I had a terrible aching, especially in my ankle," she said. Prescribed medication didn't relieve her symptoms -- which can be a common challenge when dealing with the disease. "Fibro is a difficult disease to pin down," said Fisher, who does not have fibromyalgia but has been studying some of the ways people manage the disease. "Many different things appear to help," she said. Some of the latest research has looked at the potential benefits of vitamin D, a cellular sugar called D-Ribose and an omega-3 fatty acid called docosahexaenoic acid. "There are a number of nutritional factors," Fisher said. "Some people who eat a gluten-free diet tend to do well." Since starting the support group, Holdiman has tried massage and various nutritional changes to lessen her symptoms. "I learn something new at every meeting," she said.
The above originally appeared here.
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