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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Fibromyalgia sufferers search for answers
Sunday 13 March 2011
 Pat Fisher (left) and Gaa Holdiman. Photo of Pat by Dave Kettering. Photo of Gaa by TH: Erik Hogstrom. |
From US newspaper the Telegraph Herald:
Fibromyalgia sufferers search for answers
Medication often doesn't relieve the pain.
Gaa Holdiman had some information to share and wondered what knowledge others had about her misunderstood condition.
The Dubuque woman approached a friend, Pat Fisher, the dietitian at the Locust Street Hy-Vee.
"Wouldn't it be wonderful if we could start a support group?"
Fisher now hosts the Fibromyalgia Support Group, which Holdiman coordinates. It has 15 members.
"We have been meeting for over a year now," Fisher said. "The group meets each month and has a speaker each time, and the speakers have covered the gamut of topics and have been excellent."
Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue and sleep, memory and mood issues.
The Centers for Disease Control and Prevention estimates that 5 million Americans have fibromyalgia, but the amount could be higher because of missed diagnoses.
Holdiman was diagnosed with fibromyalgia about eight years ago.
"I had a terrible aching, especially in my ankle," she said.
Prescribed medication didn't relieve her symptoms -- which can be a common challenge when dealing with the disease.
"Fibro is a difficult disease to pin down," said Fisher, who does not have fibromyalgia but has been studying some of the ways people manage the disease.
"Many different things appear to help," she said.
Some of the latest research has looked at the potential benefits of vitamin D, a cellular sugar called D-Ribose and an omega-3 fatty acid called docosahexaenoic acid.
"There are a number of nutritional factors," Fisher said. "Some people who eat a gluten-free diet tend to do well."
Since starting the support group, Holdiman has tried massage and various nutritional changes to lessen her symptoms.
"I learn something new at every meeting," she said.
Fibromyalgia Support Group Tuesday |
The above originally appeared here.
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