ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
|
|||||||||||
'ChronicBabe' blogs about pains of FibromyalgiaThursday 14 April 2011
'ChronicBabe' blogs about pains of fibromyalgia April 7, 2011 (CHICAGO) (WLS) -- A local writer became an "accidental advocate" while sharing her personal experiences with chronic pain. At an age when your life is just beginning, 38-year-old Jenni Prokopy spent her 20s trying to gain control of her life despite living with pain. Creator of the ChronicBabe.com health blog, Prokopy tells what is was like when she was diagnosed with fibromyalgia. "It's one of those invisible illnesses," said Prokopy. "It's not something that for most people, with fibromyalgia I think, that as you go through your day you might not look like you have anything going on but you have all these symptoms that are within that most people can't see." Fibromyalgia is a condition that affects 5 million people, mostly women. "I experience pain every day and I experience pain in a lot of different ways," said Prokopy "I may have some days, just general pain all over, and I go through my day anyway despite it. For example, the other day, I woke up and burst into tears, just from the moment that I woke up, and the pain was so intense from the minute that I woke up that I just felt like my day was going to be over." Prokopy started ChronicBabe six years ago. She works on it from her home. The blog receives an average of 14,000 page views per month. "The experience of being able to help people and use the challenges that I'm facing and maybe inspire them to do better through things like the website I have, ChronicBabe, or the writing I may do, freelance writing for different organizations or magazines or newspapers, if I can help them that's great and that inspires me to get up out of bed even if I'm having pain." www.healthywomen.org/explainyourpain (Copyright ©2011 WLS-TV/DT. All Rights Reserved.)
The article originally appeared here.
blog comments powered by Disqus |
||||||||||||
|
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)