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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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ME/CFS State of the Knowledge Workshop: videos
Tuesday 19 April 2011
Both days (7 and 8 April 2011) of the ME/CFS State of the Knowledge Workshop are now available on video:
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Here is some background information from the CFIDS Association of America:
ME/CFS State of the Knowledge Workshop Resources
The National Institutes of Health (NIH) hosted the ME/CFS State of the Knowledge Workshop on April 7-8, 2011. The workshop brought together subject matter experts to discuss multiple aspects of ME/CFS, including epidemiology, etiology, pathophysiology, diagnosis and treatment. The workshop panelists helped identify gaps in knowledge and opportunities for advancing biomedical research. NIH Director Francis Collins addressed the meeting and several other top Department of Health and Human Services and NIH staff attended all or part of the workshop. Secretary Kathleen Sebelius expressed her support in a letter sent to workshop participants.
The two-day meeting agenda provides the presentation topics and speakers’ names. The meeting was webcast live and the recordings have been archived for on-demand viewing.
The Association’s scientific director, Suzanne D. Vernon, PhD, was a member of the workshop steering committee and she was asked by organizers to provide a summary at the end of the Workshop. View her slides here.
Kim McCleary, the Association’s CEO, was invited to briefly address communicating with research stakeholders during a Day 2 session on Communications. View her slides here.
Amy Dockser Marcus of the Wall Street Journal attended the first day of the Workshop and she posted this report on the WSJ Health Blog, “At NIH Conference on CFS, XMRV Debate Heats Up.”
The Association will provide a short summary report on the Workshop soon. NIH plans to make a full report available; however its compilation will take several weeks.
The Workshop was planned by the Trans-NIH ME/CFS Working Group under the leadership of Dennis Mangan, PhD, and a steering committee comprised of the following volunteers appointed by NIH: Pat Fero; Ken Friedman, PhD; Lenny Jason, PhD; Nancy Klimas, MD; Mary Schweitzer, PhD; and Suzanne Vernon, PhD.
The above text originally appeared here.
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