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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')

Office Hours:
Wednesdays, 10am-3pm

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237

SA country callers:
Ph: 1300 128 339
(local call)


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Voices from the Shadows – world premiere and discussion

Monday 28 November 2011

From Jeannette's Thoughts About ME blog:

 

Voices from the ShadowsVoices From The Shadows—World Premiere and Panel Discussion

By Jeannette
Posted on October 15, 2011

Voices from the Shadows,” a one-hour documentary about the commonplace abuse and neglect of gravely ill ME patients, including children, by the British government and medical establishment, most notably psychiatrists, and the misportrayal of ME* by the media, premiered on Saturday, October 8, 2011 at the Mill Valley Film Festival. The movie was produced and directed by Natalie Boulton and Josh Biggs, the mother and brother of a patient who has been severely ill with ME for 20 years. The wonderful music for the film was written, free of charge as a donation to the ME community, by Emmy-nominated composer David Poore.

The movie is a sequel to the book “Lost Voices from a Hidden Illness” by Natalie. This was the first time Natalie and Josh produced and directed a film (although Josh is a professional freelance editor and cameraman); it was self-funded and the screening at the prestigious Mill Valley Film Festival was a tremendous achievement for Natalie and Josh. I attempted to summarize the highlights of the movie below for those patients who will not be able to watch it, but there is no way that my written words can do justice to this powerful movie and I urge every who feels up to it to watch the movie.


Voices from the Shadows Trailer from Josh on Vimeo.

*ME, standing for myalgic encephalomyelitis, is the term frequently used in the UK for this disease. It is commonly referred to in the US as CFS, chronic fatigue syndrome, which I and many in the patient community consider a mislabeling and derogatory term.

 

The full article, with comments, can be found here.

 


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