December |
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Petition to FDA: Give CFS patients access to Ampligen!
A petition to the FDA, posted on iPetitions.com, allows people with Chronic Fatigue Syndrome/ME to register their desire to have an opportunity to try Ampligen therapy if they wish. |
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Why Fibromyalgia is a balancing act
According to a study by Nuray Akkaya, M.D., and his research team in Turkey, the quality of sleep in a person with Fibromyalgia the night before plays a major role in how well they navigate movements the next day. |
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Fibromyalgia underdiagnosed, report Mayo Clinic experts
The first population study to compare the prevalence of diagnosed Fibromyalgia (FM) to the general population prevalence of people reporting symptoms that met the updated 2010 American College of Rheumatology diagnostic criteria indicates that FM may be more common than previously thought and that most FM cases are not being diagnosed, especially in men. |
• |
Immune responses after influenza vaccination in patients with CFS
A research article published in BMC Immunology entitled "Humoral and cellular immune responses after influenza vaccination in patients with chronic fatigue syndrome". |
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Laser therapy may reduce Fibromyalgia symptoms
A study published in the Journal of Alternative and Complementary Medicine found that laser therapy may help reduce Fibromyalgia symptoms. |
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Merry Christmas from the Society
From all of us here at ME/CFS Australia (SA) Inc, we wish you a very Merry Christmas and a Happy New Year. |
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Men with Fibromyalgia often go undiagnosed
A new Mayo Clinic study published in the in the online edition of the journal Arthritis Care & Research suggests that many people who have fibromyalgia, especially men, are going undiagnosed. |
• |
Panel rejects experimental Chronic Fatigue Syndrome drug
Ampligen, a drug for chronic fatigue syndrome that spent decades in clinical development and won fervent patient support, has been turned down for approval by a committee of advisers to the US Food and Drug Administration who voted 9–4 against it. |
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Unique immunologic patterns in Fibromyalgia
Recent data highlight the role of the immune system in Fibromyalgia. |
• |
Signs of autoimmunity in Chronic Fatigue Syndrome?
New research suggests abnormalities in an immune cell that could further the theory that Chronic Fatigue Syndrome may be an autoimmune disease. |
• |
Childhood risk factors for developing Fibromyalgia
A study that shows adverse childhood experiences contribute to the development of Fibromyalgia. |
• |
Getting through Christmas with Fibromyalgia and Chronic Fatigue Syndrome
An article by About.com's Adrienne Dellwo about coping with the Christmas season when you have Fibromyalgia and Chronic Fatigue Syndrome. |
• |
Amitriptyline for neuropathic pain and Fibromyalgia in adults
A study to assess the analgesic efficacy of amitriptyline for chronic neuropathic pain and Fibromyalgia. |
• |
FDA set to review Ampligen application
Research1st reports on the latest news about the state of Ampligen for use in CFS. |
• |
Author Laura Hillenbrand confronts Chronic Fatigue Syndrome
A profile of best-selling author Laura Hillenbrand, who confronts Chronic Fatigue Syndrome by writing stories that inspire. |
• |
Sleep and digestive problems in Fibromyalgia and Chronic Fatigue Syndrome
An article by About.com's Adrienne Dellwo about the problems CFS sufferers have with sleep and digestion. |
• |
Sleep abnormalities in Chronic Fatigue Syndrome
A review published in the Journal of Clinical Sleep Medicine that "aims to provide a comprehensive overview of the literature examining sleep in CFS/ME and the issues surrounding the current research findings". |
• |
ME/CFS significant others' negative reponses linked to blaming the patient, not the illness
Research published in the Journal of Health Psychology entitled "Attributions, distress and behavioral responses in the significant others of people with Chronic Fatigue Syndrome". |
• |
"ME can feel like a life sentence but now I don't see myself as ill"
A profile of UK ME sufferer Cheryl Harper who has received help from Sheffield's specialist CFS/ME service. |
• |
Jennifer Tosolini wins Outstanding Achiever award
Long-time Society member Jennifer Tosolini recently won the COTA SA Every Generation Outstanding Achiever Award for 2012. |
• |
CDC's Chronic Fatigue Syndrome research changing course
The CDC has announced that it's looking into ME/CFS subgroups in the hopes of improving treatment options, discovering the underlying physiology, and nailing down a case definition. |
• |
Small fibre neuropathy detected among Fibromyalgia patients
A majority of patients with Fibromyalgia and neuropathic pain were diagnosed with small fiber neuropathy based on reduced epidermal nerve fiber, according to research presented at the American College of Rheumatology Annual Meeting. |
• |
CFS patients with POTS: clinically distinct subgroup
Research published in the Journal of Internal Medicine entutled "Clinical characteristics of a novel subgroup of chronic fatigue syndrome patients with postural orthostatic tachycardia syndrome". |
• |
Rituximab for ME: I am patient pilot
Norwegian ME/CFS sufferer Maria Gjerpe has written about her experience being one of the first subjects of a trial of the drug Rituximab. |
• |
First-ever test for CFS symptoms is close
A simple blood test may finally be available to diagnose Chronic Fatigue Syndrome in some patients. |
• |
Society seminars for 2013
Dates and details of the Society's seminars for 2013. |
• |
Pet therapy reduces Fibromyalgia pain
Dawn Marcus, M.D., the lead author of a study at a Pittsburgh pain clinic, found that pain severity in people with Fibromyalgia was significantly reduced after a brief therapy dog visit. |
• |
Multi-site clinical assessment of CFS
The CDC has begun a multi-site clinical assessment of chronic fatigue syndrome (CFS) to characterize patients with CFS or myalgic encephalomyelitis (ME) in clinical practices of clinicians with expertise in CFS/ME. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Does brain fog from CFS start in the heart?
New research suggests that the cognitive function ("brain fog") of ME/CFS may be due to irregularities in the heart, which in turn stem from impaired vagus nerve activity. |
November |
• |
Building a low-impact den for Multiple Chemical Sensitivity
A profile of Multiple Chemical Sensitivity sufferer Gillian McCarthy. |
• |
Fibromyalgia can have a substantial negative impact on relationships
An abstract of the Fibromyalgia and Family Impact Survey conducted by ProHealth. |
• |
Pain regulation goes awry in Fibromyalgia
The main pain inhibitory mechanisms in the brain may not function properly in Fibromyalgia patients, researchers found. |
• |
Alcohol, holidays & CFS / FM
About.com's Adrienne Dellwo discusses the problems and pressures on people with Chronic Fatigue Syndrome and/or Fibromyalgia with the consumpton of alcohol during holiday periods. |
• |
Online Multiple Chemical Sensitivity survey
Renowned MCS researcher Dr Pamela Reed Gibson and the James Madison University (JMU) CI/MCS research team are seeking participants for their latest research on chemical sensitivity and health care. |
• |
Stanford antiviral CFS trial promises hope, but more study needed
An article by Phoenix Rising's Cort Johnson about the lack of follow-up after the spectacular success of a trial of the drug Valcyte for use in people with Chronic Fatigue Syndrome. |
• |
Fibromyalgia and the brain: new clues reveal how pain and therapies are processed
According to research presented at the American College of Rheumatology Annual Meeting in Washington, D.C., pain experienced by people with fibromyalgia may be caused by a problem with the way pain stimuli are processed in the brain. |
• |
Society Annual General Meeting reminder
One last reminder that the Society's Annual General Meeting will be held tomorrow, Saturday 24 November 2012. |
• |
Controlled trial of Graded Exercise Therapy for ME/CFS recruiting in London now
A two-center trial at two Barts & the London NHS Trust clinics, led by Prof Peter D White, intends to develop a further understanding the effects of Graded Exercise Therapy on people with ME/CFS. |
• |
Pfizer's once-daily Lyrica met goal of trial in Fibromyalgia
Pfizer Inc said a late-stage trial of a once-daily version of its drug Lyrica in patients with fibromyalgia, a pain condition affecting more than 5 million Americans, met its main goal. |
• |
Psychiatrist and journalist win prize for defending science
In recognition of their efforts to champion science despite extreme opposition, a science journalist and psychiatrist have both received the 2012 John Maddox prize. |
• |
Michigan man walks to raise ME/CFS awareness
Koerner Gray Buchta's 291-km trek across Michigan was done to raise awareness for ME/CFS, a syndrome he has. But it also acquainted him with the state and its people. |
• |
Chronic Fatigue Syndrome and heart rate variability
Australian researchers have discovered for the first time that reduced heart rate variability – or changes in heart beat timing – best predicts cognitive disturbances, such as concentration difficulties commonly reported by people with Chronic Fatigue Syndrome. |
• |
Society Annual General Meeting reminder
A reminder that the Society's Annual General Meeting will be held in one week, on Saturday 24 November 2012. |
• |
Discovery could lead to faster diagnosis for some Chronic Fatigue Syndrome cases
For the first time, researchers have landed on a potential diagnostic method to identify at least a subset of patients with Chronic Fatigue Syndrome. |
• |
Belly dancing reduced pain in Fibromyalgia patients
Patients with Fibromyalgia reduced pain and improved functional capacity, quality of life and self-image after beginning a belly dance program in a recent study. |
• |
Mayo study of CFS incidence and classification in a Minnesota county
A study entitled "Prevalence, Incidence, and Classification of Chronic Fatigue Syndrome in Olmsted County, Minnesota, as Estimated Using the Rochester Epidemiology Project" published in the Mayo Clinic Proceedings. |
• |
Melatonin for Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo discusses the benefits – or otherwise – of melatonin for people with ME/FS/FM. |
• |
Evidence that heightened pain perception in CFS linked to oxidative stress
A study entitled "Modulation of the Axon-Reflex Response to Local Heat by Reactive Oxygen Species (ROS) in subjects with Chronic Fatigue Syndrome" published in the Journal of Applied Physiology. |
• |
Fibromyalgia patients controlled thoughts, emotions differently
Women with Fibromyalgia significantly differed from pain-free counterparts in their ability to control their thoughts, emotions and physical reactions, according to study results. |
• |
Society Annual General Meeting
The Society's Annual General Meeting will be held in two weeks, on Saturday 24 November 2012. |
• |
Sleep problems worse for Fibromyalgia patients than previously thought
A new report published in BMC Musculoskeletal Disorders suggests that patients with Fibromyalgia may be plagued with more sleep problems than other patients with chronic illnesses. |
• |
Book review: Chronic Fatigue Syndrome - A Treatment Guide
A review by BlogCritics' Paige Lovitt of the Second Edition of Chronic Fatigue Syndrome: A Treatment Guide by Erica F. Verrillo. |
• |
Anxiety in kids with Chronic Fatigue Syndrome
New research into anxiety in juvenile Chronic Fatigue Syndrome suggests that nearly 40% of kids with this condition have anxiety problems. |
• |
Book of poems written by ME poets
Four UK women who suffer from ME, CFS, and Fibromyalgia have joined together to form a support group for Tewkesbury and the surrounding area. |
• |
Support group set up by trio with debilitating illnesses
Four UK women who suffer from ME, CFS, and Fibromyalgia have joined together to form a support group for Tewkesbury and the surrounding area. |
• |
A life unexpected: Karen Cripps on living with CFS
Karen Cripps describes how a diagnosis of Chronic Fatigue Syndrome changed her life - in some unexpected ways. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Accredited online colleges and disability education
An article from the US's Accredited Online Colleges about the availability of online learning for people with disabilities. |
• |
Fibromyalgia treatment: most common meds
New research published in the journal Pain Medicine reveals some interesting statistics about the drug treatments most commonly used by people with Fibromyalgia. |
• |
Opinion: Moving forward on Chronic Fatigue Syndrome
An op-ed piece from Ryan Prior, USA Today's Fall 2012 Collegiate Correspondent. |
October |
• |
Disaster survival with Fibromyalgia & Chronic Fatigue Syndrome
Advice from About.com's Adrienne Dellwo about how to cope with natural disasters when you suffer from Fibromyalgia and Chronic Fatigue Syndrome. |
• |
The treatment showdown: CDC Toolkit vs IACFS/ME Primer
The publication of the IACFS/ME Treatment Primer "Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Primer for Clinical Practitioners" has prompted Phoenix Rising's Cort Johnson to compare it, section by section, to the CDC's ME/CFS "Toolkit". |
• |
'Chronic Fatigue Syndrome' challenged
A grass roots effort to change the name 'chronic fatigue syndrome' is gaining momentum, giving patients the opportunity to vote on a new name. |
• |
Tonix: a small biotech company with the potentially huge key to the Fibromyalgia puzzle
An article promoting US biotech company Tonix to potential investors. |
• |
Walking across Michigan for Chronic Fatigue Syndrome
A West Michigan man is halfway through his journey walking across the state. |
• |
Genetic breakthrough offers promise for ME, Fibromyalgia
An article by Rich Carson about recent research involving genetics and its implications in treating ME/CFS/Fibromyalgia. |
• |
Sleep symptoms impair Fibromyalgia patients' quality of life
A study of Fibromyalgia patients highlights the impact of sleep symptoms on health-related quality of life (HRQoL) in this population. |
• |
Valganciclovir for Chronic Fatigue Syndrome
New research adds to the body of evidence that the anti-viral drug valganciclovir may effectively treat both physical and cognitive symptoms in some people with ME/CFS. |
• |
The real world of Fibromyalgia: case-by-case search for help among scores of drugs, therapies
A study published in Pain Medicine entitled "Burden of Illness and Treatment Patterns for Patients with Fibromyalgia". |
• |
Premature-aging marker linked to Fibromyalgia pain
New research suggests that a biological measurement of premature aging may be linked to Fibromyalgia pain. |
• |
Letter from author Roger King
An open letter written by US author Roger King in response to the overwhelmingly positive feedback he has received from readers of his novel, Love and Fatigue in America. |
• |
Lyme Disease: where wrong diagnosis & medical injustice meet
From Mercola.com, an article proclaiming itself to be "The Untold Story of Lyme Disease: History, Discovery... Misdiagnosis". |
• |
Fighting Multiple Chemical Sensitivity and searching for a safe home
For Lou Anne Cottingham, finding the right home is more complicated than just finding the right neighborhood or number of bedrooms. |
• |
South Australian carnitine study: volunteers wanted
We mentioned this study from the University of South Australia's School of Pharmacy and Medical Sciences last month, but the researchers are still keen to hear from anyone with ME/CFS living in South Australia who can participate. |
• |
Caffeine intake, Fibromyalgia pain severity linked
New research has found a link between caffeine consumption and the severity of fibromyalgia pain, and although low to moderate intake showed little to no association with pain severity, the news is not as good for individuals who drink large amounts. |
• |
ME: International Consensus Primer for Medical Practitioners
A new publication entitled "Myalgic Encephalomyelitis – Adult & Paediatric: International Consensus Primer for Medical Practitioners". |
• |
Study: indoor air quality poses possible health threat
A study from Malaysia found that new buildings, public buildings and air-conditioned buildings were found to have higher readings of formaldehyde. |
• |
CFS Alert video: lacklustre response to CFSAC recommendations
A video in which CFS Alert co-hosts Llewellyn King and Deborah Waroff discuss GC-MAF (a treatment by Dr. Derek Enlander that is helping Deborah now) and the lack of HHS response to the CFS Advisory Committee’s recommendations. |
• |
Two surveys from Research1st
Rsearch1st is asking people to participate in two surveys. |
• |
ME/CFS Primer for Clinical Practitioners
ME/CFS information in booklet form for health professionals. |
• |
Should you get a flu shot?
An article about vaccination that features the current insights and recommendations of Dr. Charles Lapp, director of the Hunter-Hopkins Center in Charlotte, NC. |
• |
Woman graduates from university after 28 years
Sandi Haynes obtained her university degree after working on her studies while dealing with Chronic Fatigue Syndrome and Fibromyalgia. |
• |
Clinical exercise testing in ME/CFS research and treatment
A video of a presentation by exercise physiologist Prof. Christopher Snell who makes the case for ME/CFS post-exercise testing. |
• |
Perfectionist pressure means poorer health for women with Fibromyalgia
Women suffering from Fibromyalgia who exhibit perfectionist traits tend to have poorer health than their non-perfectionist peers, according to new research out of York University. |
• |
Lysine for Fibromyalgia & Chronic Fatigue Syndrome
An article about lysine, an essential amino acid, and its health benefits to people with ME/CFS/Fibromyalgia. |
• |
FDA moves forward - on one of the most successful ME/CFS advocacy efforts ever
An article by Cort Johnson about future activies of the US Food and Drug Administration. |
• |
Identification of subgroups among Fibromyalgia patients
A paper presenting hypotheses concerning the identification of homogeneous subgroups among Fibromyalgia patients in order to improve the management of the disease. |
• |
Chronic Fatigue Syndrome linked to vitamin D insufficiency
Taking vitamin D supplements or getting exposed to the sun often may help chronic fatigue syndrome, according to a new study in International Journal for Vitamin and Nutrition Research. |
• |
CBT ‘has no impact’ on juvenile Fibromyalgia physical activity
Cognitive behavior therapy is not associated with increased physical activity levels in adolescents with juvenile fibromyalgia, research shows. |
• |
IBSFree.net
IBSFree.net is a new website focusing on the FODMAPS diet, a food regimen that has been shown to alleviate the symptoms Irritable Bowel Syndrome, a condition that many sufferers of ME/CSF/Fibromyalgia share. |
• |
Barbara Lewis allergic to modern life
A profile of Barbara Lewis, a sufferer of hemical and electrical sensitivity, as well as others suffering from Multiple Chemical Sensitivity. |
September |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Inflammation and stress feedback in Fibromyalgia
A recent study suggests that a relationship between inflammation and stress-system dysregulation are an underlying part of Fibromyalgia. |
• |
Two women reveal how they turned serious illnesses into good opportunities
When the going got tough, two women refused to give up the fight when they were struck with life-threatening illnesses. |
• |
Toolkit vs. toolkit: Chronic Fatigue Syndrome
A profile of 17-year-old New Zealand ME/CFS sufferer Briar Wyatt. |
• |
Going viral: surgeon, professor team in new approach to pain treatment
A chronic pain condition and numerous gastrointestinal disorders may all be caused by a virus. |
• |
Chronic fatigue cases almost double at local hospitals
The number of Irish patients hospitalised because of Chronic Fatigue Syndrome has almost doubled. |
• |
Pain as a key neuro-immune symptom of ME/CFS & the need for treatments
An article published in Pain Physician entitled "Pain in Patients with Chronic Fatigue Syndrome: Time for Specific Pain Treatment?". |
• |
'Invisible' illness common in queer community
A new study by a Toronto psychotherapist is bringing to light the high number of invisible conditions such as Chronic Fatigue Syndrome in the gay and lesbian community. |
• |
Avoiding distractions with Fibromyalgia & Chronic Fatigue Syndrome
When you have cognitive dysfunction along with your Fibromyalgia and Chronic Fatigue Syndrome, distractions can be a big problem. It can be hard enough for us to follow our trains of thought, and a distraction can derail us completely. |
• |
CFS patients 'neglected' by NHS
Patients with Chronic Fatigue Syndrome are still suffering from neglect within the NHS despite initiatives aimed at improving services for those with the condition, according to a new report. |
• |
Briar aims for a better life
A profile of 17-year-old New Zealand ME/CFS sufferer Briar Wyatt. |
• |
'No connection' between ME and two specific viruses
Two particular viruses, XMRV and pMLV, have nothing to do with Chronic Fatigue Syndrome, despite earlier evidence of a link, a study has shown. |
• |
ME sufferers in the Borders are not neglected, says medical director
Scottish health chiefs have refuted claims that patients with chronic fatigue syndrome are being neglected. |
• |
More evidence that illness name shapes attitudes, respect
Research from the Netherlands entitled "How do patients interpret terms for medically unexplained symptoms?". |
• |
The latest on the methylation protocol for ME/CFS
On August 25, Rich Van Konynenburg, PhD, posted his "Revised Simplified Methylation Protocol" across the Web, including ProHealth's ME/CFS Message Board. |
• |
Hannah's hair-raiser to help fight against mum's disease
Hannah Gardiner, a 22-year-old from the UK, had her head shaved to raise awareness about a little-known condition which causes chronic pain. |
• |
Great North Run: raising money and awareness
A profile of UK ex-gymnast and ME/CFS sufferer Rebecca Griffin and her fundraising efforts with the Great North Run. |
• |
ME and my sister
They say lightning never strikes in the same place twice, but for the Jenkins family, the controversial chronic fatigue syndrome ME has struck as a devastating bolt from the blue for two young siblings. |
• |
Young carers missing out, poll says
Young carers are missing out on normal, everyday activities enjoyed by other children and teenagers, according to a survey. |
• |
'PHANU Rising': Australian Chronic Fatigue Syndrome research lab making waves: Pt I
An article focusing on Bond University's Population Health and Neuroimmunology Unit. |
• |
Is Fibromyalgia caused by 'cold sore' virus?
Fibromyalgia and various gastrointestinal disorders may all be caused by a virus – specifically herpes simplex type 1 – according to University of Alabama virologist Carol Duffy, PhD, and Tuscaloosa-based GI surgeon/chronic pain specialist William Pridgen, MD. |
• |
Hannah shaves her head in aid of Fibromyalgia
Hannah Gardiner has decided to make herself stand out in a crowd – by having her head shaved to raise awareness about a little-known condition which causes chronic pain. |
• |
Multidisciplinary approach cuts symptoms of Fibromyalgia
Multidisciplinary treatment adapted for women with low educational levels is superior to conventional pharmacotherapy in reducing key symptoms of Fibromyalgia according to research published in Arthritis Care & Research. |
• |
Fibromyalgia does not hinder Concord artist's passion for painting
A profile of Californian artist Blanca Alfonso. |
• |
Andrew McLeod, Craig Hilton and Chronic Fatigue Syndrome exhibition
A Chronic Fatigue Syndrome exhibition by two artists that will be displayed at New Zealand's Audio Foundation gallery. |
• |
Alison Hunter Memorial Hunter Foundation appeal
Invest in ME are working in collaboration with Alison Hunter Memorial Foundation of Australia to help to raise the remaining funds required for a new flow cytometer for use by PHANU - Population Health and Neuroimmunology Unit. |
• |
Pain maps could expose partners who exaggerate for sympathy
Using brain scanning technology, neuroscientists have been able to see how the brain responds to pain and map the signals to different parts of the body. |
• |
Study volunteers needed
The University of South Australia's School of Pharmacy and Medical Sciences is seeking volunteers to participate in a research study investigating the levels of carnitines and fatty acids (important compounds for energy production) in patients with Chronic Fatigue Syndrome. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
When chronic fatigue isn't taken seriously
A profile of ME/CFS sufferer Robert Miller and his family. |
August |
• |
Explaining ME/CFS as immune system's 'Pavlov' response to persistent EBV
An article published in the Journal of Biological Dynamics entitled "Can persistent Epstein-Barr virus infection induce chronic fatigue syndrome as a Pavlov reflex of the immune response?". |
• |
FDA again looks at Ampligen for Chronic Fatigue Syndrome
The manufacturer of the drug Ampligen (rintatolimod) says the US Food and Drug Administration has accepted the company's latest submission regarding the drug as a treatment for Chronic Fatigue Syndrome. |
• |
Interstitial cystitis prognosis worse in ME/CFS patients
A study published in the British Journal of Urology International entitled "Prognostic factors for recent-onset interstitial cystitis/painful bladder syndrome". |
• |
Chinese exercise eases Fibromyalgia pain
A traditional Chinese meditative exercise significantly reduces pain in as little as 8 weeks in patients with Fibromyalgia, according to a new study by Canadian researchers. |
• |
US Social Security administration issues new Fibromyalgia disability ruling
The US Social Security Administration has released a new ruling that details how they evaluate Fibromyalgia in disability claims. |
• |
Channel swim of a lifetime is joy for Pendle mum
A UK mum-of-two has fulfilled a lifetime ambition of swimming the English Channel. |
• |
A question for Grill the Independents
People can vote on questions that will be asked in a live question-and-answer broadcast with Federal Parliament independents on 12 September. |
• |
When chronic fatigue isn't taken seriously
An analysis of Chronic Fatigue Syndrome support in Australia. |
• |
What price a home?
The Victorian state government's looming overhaul of public housing could mean higher rents for tenants, less security of tenure and many lives being uprooted. |
• |
Illness creates bond for two pastors
Two independent Baptist pastors have been ministering to each other, across a continent via telephone, for the past five and a half years. |
• |
Obama takes an interest in Chronic Fatigue Syndrome
On April 21, 2011, at a town hall meeting in Reno, NV, local resident Courtney Miller asked President Obama what the administration was doing to fund research into the debilitating lifelong illness Chronic Fatigue Syndrome, also called Myalgic Encephalomyelitis. Miller's husband, Robert, is a sufferer. Now the president has responded fulsomely. |
• |
Sublingual formulation of Fibromyalgia drug reduces production of a psychoactive metabolite
Tonix Pharmaceuticals Holding Corp., a specialty pharmaceutical company developing non-addictive treatments for chronic pain syndromes, reported that its new sublingual (under-the-tongue) formulation of its Fibromyalgia drug TNX-102 reduces the production of a problematic metabolite, according to data from a recently-completed clinical trial. |
• |
Chronically fatigued patients face huge inequalities in accessing specialist services
New research has identified the true extent of inequalities faced by adults who require access to specialist Chronic Fatigue Syndrome or Myalgic Encephalopathy services in England. |
• |
Heart rhythm typical of ME/CFS confirmed in large UK study
A study reprinted in the Bulletin of the IACFS/ME entitled "Shortened QTc interval in chronic fatigue syndrome". |
• |
Lost productivity costs outweigh healthcare costs for Fibromyalgia patients at all severity levels
An article published Journal of Managed Care Pharmacy entitled "The comparative economic burden of mild, moderate, and severe fibromyalgia: Results from a retrospective chart review and cross-sectional survey of working-age US adults". |
• |
Topical capsaicin helps severe Fibromyalgia pain
An article published in Rheumatology International entitled "Short-term efficacy of topical capsaicin therapy in severely affected fibromyalgia patients". |
• |
Johnny Depp lawsuit by woman suffering from fibromyalgia dropped in Los Angeles
Actor Johnny Depp is off the hook after a Los Angeles judge dismissed a woman's lawsuit alleging the actor's bodyguards roughed her up during a concert last year. |
• |
Researchers discover how cytomegalovirus damages immune system
An article published in New Scientist about a herpesvirus called human cytomegalovirus and its implications for Chronic Fatigue Syndrome. |
• |
Gabriella nominated
A young UK woman living with Fibromyalgia has been nominated for an award after returning to education and making a documentary to raise awareness of her illness. |
• |
One in three PCTs 'failing people with chronic fatigue syndrome'
Primary care trusts across the country are not doing enough to support people with ME/CFS, a report has claimed. |
• |
Dr. William C. Reeves, who sought cause of Fatigue Syndrome, dies at 69
Dr. William C. Reeves, an epidemiologist who fought his own federal agency to obtain funds to study Chronic Fatigue Syndrome, then infuriated patients with the ailment by suggesting that it was linked to psychological problems rather than a virus, died Friday at his home in Atlanta. He was 69. |
• |
Is Chronic Fatigue Syndrome all in my head?
An article by About.com's Adrienne Dellwo in which she answers the question with a resounding "Absolutely not". |
• |
Vulvar pain linked to Fibromyalgia and chronic pain
Women with chronic vulvar pain, or vulvodynia, are at a substantially increased risk for other chronic pain conditions, according to a University of Michigan Health System study published in Obstetrics & Gynecology. |
• |
A randomized controlled trial of qigong for Fibromyalgia
The results of a study published in Arthritis Research & Therapy. |
• |
When your clothes hurt because of Fibromyalgia
A lot of people live with pain, but few people without Fibromyalgia find the simple act of wearing clothes painful. |
• |
Tammy Franks MCS speech
Tammy Franks, member of the Greens party in the South Australian Legislative Council, recently made a speech in South Australian Parliament discussing Multiple Chemical Sensitivity. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Teen endures Fibromyalgia, creates awareness bracelet business
A Fibromyalgia diagnosis changed Jenna Rice's ability to play flute, but it couldn't stop her love for helping and connecting with others. |
• |
Society meeting reminder
A reminder that the Society's next meeting will be held next tomorrow (Saturday 4 August). |
• |
Fashionable way to raise awareness
About six professional models posed up to help a Cotswold group which supports sufferers from Fibromyalgia and ME. |
• |
You don't know $#% about CFS
An article by Carey Tennis that tackles the question: "People treat me like a fool or liar because I have an incurable disease. What can I say to these idiots?". |
July |
• |
Lifescript launches new online Fibromyalgia Health Center
Lifescript.com, a women's health and wellness website headquartered in Mission Viejo, California, has launched a new online Fibromyalgia Health Center, designed to help women treat and reduce the frustrations and pain of Fibromyalgia. |
• |
Might cadmium exposure explain some CFS-like symptoms? If so magnesium & zinc could help
An article published in Medical Hypotheses entitled "Could cadmium be responsible for some of the neurological signs and symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". |
• |
Trial of ketotifen for Fibromyalgia recruiting at Indiana University
The Indiana University School of Medicine Division of Rheumatology is conducting a study of an oral allergy medication to improve the symptoms of Fibromyalgia. |
• |
Smiling through pain: living on-air with Fibromyalgia
A profile of Susan Solovic, a successful entrepeneur, best-selling author, and television personality who also endures the chronic pain of Fibromyalgia. |
• |
Michelle Penny talks of living with ME for the last 17 years
A profile of Welsh woman Michelle Penny who has been crippled by chronic fatigue and pain for the last 17 years, and has left her virtually bed-bound. |
• |
Could ME/CFS be a virus-triggered loss of cell stress response?
Research published in Cell Stress & Chaperones entitled "Loss of stress response as a consequence of viral infection: implications for disease and therapy". |
• |
How research into Chronic Fatigue Syndrome turned into an ugly fight
How did a star researcher into the medical mystery of chronic fatigue syndrome end up in jail and unemployed? For the first time, Judy Mikovits tells her story. |
• |
Physical or mental? A perspective on Chronic Fatigue Syndrome
An article published in Advances in Psychiatric Treatment that examines the question of whether chronic fatigue syndrome, often known as myalgic encephalomyelitis, should be classified as a physical or mental illness. |
• |
Ampligen to go back before the FDA as Chronic Fatigue Syndrome treatment
Hemispherx Biopharma Inc. has announced that it will soon be putting Ampligen (rintatolimod), its prospective chronic fatigue syndrome (ME/CFS) drug, back before FDA for approval. |
• |
Fluid Ink, the Phantom Scribbler, and Smudj
An article by Rainer Galea, a cartoonist/illustrator who became seriously ill with Fibromyalgia. |
• |
Changes to disability support pensioners working hours introduced into Australian Parliament
The Australian Federal Government has introduced further reforms to the Disability Support Pension allowing people with disabilities to work twice as many hours. |
• |
University of Utah recruiting for pregabalin biomarker study
The Department of Anesthesiology at the University of Utah, Salt Lake City, announced July 10 that it is seeking participants for a study to investigate Lyrica's "effects on blood biomarkers" in patients with Fibromyalgia or FM & Chronic Fatigue Syndrome. |
• |
"Chemical intolerance" a common complaint: study
A sizable percentage of low-income patients in primary care may be particularly sensitive to chemicals in household cleaners, perfumes and other everyday products, a small study suggests. |
• |
Canadian clinic to specialize in complex, chronic conditions
British Columbia's first clinic for those with complex, chronic conditions like Lyme disease and Chronic Fatigue Syndrome is finally inching toward reality, now that a medical director from Toronto has been hired. |
• |
Even in 'recovery,' Chronic Fatigue Syndrome symptoms persist
Even when someone is medically labeled as "recovered" or "in remission" from Chronic Fatigue Syndrome, they have significant impairments, according to a new study. |
• |
Ribose aids Fibromyalgia, Chronic Fatigue patients
D-ribose supplementation improved energy levels, sleep, mental clarity, pain relief and wellbeing in patients suffering from Fibromyalgia and Chronic Fatigue Syndrome in a recent multicenter study led by Jacob Teitelbaum, MD. |
• |
Disturbed metabolic pathways
Researchers at the University of Melbourne have found significantly decreased levels of glutamine and ornithine in CFS blood samples. |
• |
Anti-seizure medication shows promise in relieving Fibromyalgia symptoms
The drug Clonazepam, typically used to control seizures and panic attacks, may help relieve pain for Fibromyalgia patients. |
• |
Redhill Olympic torchbearer Claire Gunney speaks of honour of carrying flame
Claire Gunney is carrying the Olympic flame through Redhill for her dedication to her sport and overcoming personal challenges. |
• |
Neurological effects of dietary glutamates may contribute to Fibromyalgia symptoms for many
An article entitled "The effect of dietary glutamate on fibromyalgia and irritable bowel symptoms" pucblished in Clinical and Experimental Rheumatology. |
• |
Age no barrier to run for chronic cause syndrome
70-year-old Irene Herceg hopes to shock a few people into supporting a worthy cause by taking part in the five-kilometre leg of The Age Run Melbourne fund-raiser. |
• |
Chronic Fatigue Syndrome sleep pattern is unique: Ultra-slow delta power only 20% of normal
A research article entitled "Ultra-Slow delta power in chronic fatigue syndrome", published in Psychiatry Research. |
• |
New book about long misunderstood illness
An article about South Australian Fibromyalgia sufferer Dee Campbell and her book, Fibromyalgia Well-Being. |
• |
Refusal to diagnose Fibromyalgia and Chronic Fatigue Syndrome
Doctors sometimes simply refuse to diagnose Fibromyalgia or CFS, which is a major frustration for people trying to figure out what's wrong with them so they can start trying to fix it. |
• |
We'll tough it out to support mum
Two brothers from Lower Largo in Scotland are about to take on a 12-mile assault course, dubbed the 'toughest event on the planet'. |
• |
Rare disorder drives woman to document industrial Canaries
A profile of photographer Thilde Jensen and her work documenting MCS in New York. |
• |
Karen finds a lifeline in new support group
A UK woman who is in almost constant pain from Fibromyalgia says a new support group has become her lifeline. |
• |
Understanding long-term outcomes of Chronic Fatigue Syndrome
The results of a study sought to examine long-term health, symptom, and disability outcomes among patients with Chronic Fatigue Syndrome (CFS) by comparing those diagnosed with CFS 25 years ago with healthy controls. |
• |
Fireworks and the startle factor with Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo discusses the problems associated with being easily startled for ME/CFS and Fibromyalgia sufferers. |
• |
Chronic Fatigue Syndrome: study proves defective cellular energy function
Sufferers of CFS/ME can now state unequivocally to their doctors that their symptoms are not in their heads, that they suffer from a mitochondrial dysfunction. |
• |
Patients with Fibromyalgia feel pain more intensely
Research shows that people with Fibromyalgia feel pain more intensely or have a lower threshold for pain than others. |
• |
Brain activity reflects pain in Fibromyalgia
A novel functional MRI approach that measures resting brain activity and connectivity may provide a much-needed objective measure of pain in patients with Fibromyalgia, researchers suggested. |
• |
Novel drug helped in Fibromyalgia
Treatment with a novel selective norepinephrine reuptake inhibitor led to decreases in pain among patients with Fibromyalgia and lessened the impact of the disease on their daily lives, a large multicenter clinical trial found. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
June |
• |
In the end, it all came down to John Roberts
An article by Llewellyn King about the US's Affordable Care Act ("Obamacare") and what it may mean for Chronic Fatgue Syndrome sufferers. |
• |
The torture of sleep deprivation in Fibromyalgia and Chronic Fatigue Syndrome
An article by About.com's Adrienne Dellwo about the problems associated with sleep deprivation. |
• |
Voluntary work is an inspiration for campaigning poet Kate Adams
A profile of UK ME sufferer, human rights campaigner, and poet Kate Adams. |
• |
Understanding the pain response of Fibromyalgia
About.com's Adrienne Dellwo offers simple, jargon-free explanations for the pain processes in Fibromyalgia. |
• |
More than 10 percent of Fibromyalgia patients use marijuana to relieve pain
More than 10% of Fibromyalgia patients report that they use marijuana to relieve pain, according to a study published in Arthritis Care & Research. |
• |
Unique book presents author's research into Fibromyalgia
Elaine Marie Graham shares her findings about chronic conditions after her own struggles. |
• |
Desperate, determined husband, caregiver launches effort to unite those affected by Fibromyalgia
John Obenchain is on a mission to unite Fibromyalgia sufferers, caregivers, and their families throughout the world. |
• |
Dr. Jesse Stoff welcomes more information about Chronic Fatigue Syndrome
An article about Dr. Jesse Stoff and his insights into ME/CFS. |
• |
Fibromyalgia: kicking the sugar habit
An article by Dr. Jacob Teitelbaum about the benefits of reducing sugar intake for Fibromyalgia sufferers. |
• |
Josie eyes Hawaiian treatment in bid for better life
A profile of Australian ME sufferer Josie Eldred Downes and the fundraising effort to get her treatment in Hawaii. |
• |
Fibromyalgia explained
A video from US TV program Sonoran Living's House Calls (via YouTube). |
• |
Student lands a dream job with top fashion house
A talented UK designer has overcome debilitating health problems to secure a dream job with a leading fashion boutique popular with the rich and famous. |
• |
Teaching doctors to treat Fibromyalgia and Chronic Fatigue Syndrome
A lot of doctors don't know what to do for their patients with Fibromyalgia and Chronic Fatigue Syndrome. |
• |
Still the 'Yuppie Flu'
An article by Cort Johnson of Phoenix Rising about the history of funding in the US for ME/CFS. |
• |
Charges against Chronic Fatigue Syndrome researcher dropped
Criminal charges filed against Judy Mikovits, PhD, the lead researcher of now-retracted studies linking a mouse virus to Chronic Fatigue Syndrome, have been dropped. |
• |
'I found that there was very little in terms of support'
A profile of UK ME sufferer Shara McDonald. |
• |
Heat, humidity, and rain: effect on Fibromyalgia
People with Fibromyalgia often say that a certain type of weather makes their symptoms worse, but a new study contradicts much of what's said. |
• |
Jill Anderson: "Why I let my husband die"
A profile of UK woman Jill Anderson, whose husband Paul had been suffering from severe ME/CFS. |
• |
German Fibromyalgia survey results challenge heavy emphasis on drug therapies
A German study where participants diagnosed with Fibromyalgia rated the effectiveness and side effects of pharmacological and non-pharmacological interventions. |
• |
New disability legislation for South Australia
The South Australian Government is drafting a new Disability Act to replace the outdated 1993 [sic] Disability Services Act. |
• |
Looking at muscle cells in Chronic Fatigue Syndrome
A radio interview with Professor Julia Newton from Newcastle University about the causes of various symptoms associated with Chronic Fatigue Syndrome. |
• |
Journalist Mark Rahner files lawsuit against Seattle Times alleging disability discrimination
Ex-Seattle Times reporter/current comic book writer Mark Rahner s suing his former employer, claiming he was unfairly fired after he refused to work a night shift. |
• |
Cognitive dysfunction finding in Fibromyalgia
New research helps shed light on the cognitive dysfunction associated with Fibromyalgia, which is often called "fibro fog". |
• |
Testing for Chronic Fatigue Syndrome
The US's Centers for Disease Control and Prevention (CDC) has a helpful list of tests for the diagnosis of CFS. |
• |
IACFS/ME releases new guidelines for Chronic Fatigue Syndrome
The International Association for Chronic Fatigue Syndrome and Myalgic Encephalomyelitis (IACFS/ME), the largest group of physicians and researchers dedicated to CFS/ME, has released updated care guidelines directed at primary care physicians and other health care providers. |
• |
Trying too hard could trigger rare illness
A profile of Indian CFS sufferer Iqbal. |
• |
ME/CFS strongly associated with later life non-Hodgkin lymphoma: Medicare statistics
A research paper entitled "Chronic fatigue syndrome and subsequent risk of cancer among elderly US adults" published in Cancer. |
• |
Hospital to pay $95,000 in discrimination claim
Federal officials say Children's Hospital Colorado has agreed to pay $95,000 to settle claims it discriminated against a job applicant with Fibromyalgia. |
• |
Science reporters win ASM Public Communications Award
Jon Cohen and Martin Enserink, veteran reporters for the journal Science, have won the American Society for Microbiology's 2012 Public Communications Award for their in-depth article on a controversial study that linked a mouse retrovirus, XMRV, to Chronic Fatigue Syndrome. |
• |
New device cuts Fibromyalgia pain in pilot study
An investigational, four-coil device for transcranial magnetic stimulation deep in the brain produced some striking cases of sustained pain relief when it was tested on five Fibromyalgia patients in a pilot study. |
• |
Two Chronic Fatigue Syndrome victims win denied disability insurance appeal
In two recent and separate incidents, two CFS sufferers were wrongfully denied disability insurance won their appeals in court. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Providence resident working to close information gap on Fibromyalgia
A profile of Jan Chambers, founder and president of the National Fibromyalgia and Chronic Pain Association. |
• |
ME sufferers in Limerick highlight their 'invisible' pain
It's called the 'invisible disease', but hundreds of Limerick, Ireland, people are potentially suffering from ME, or Chronic Fatigue Syndrome. |
May |
• |
Florence Nightingale still comforting the sick
A profile of Florence Nightingale and her relevance to ME/CFS. |
• |
Halfway woman won't let illness keep her from being mom
A profile of US ME/CFS sufferer Melinda Malott. |
• |
Author Roger King describes effects of chronic fatigue syndrome
A profile of author Roger King, whose latest book chronicles his experiences of Chronic Fatigue Syndrome. |
• |
Sufferer wants more people to realise devastating impact of illness
A UK woman has spoken out about her struggle with the 'invisible illness' Fibromyalgia, in an effort to raise awareness of the disease. |
• |
Phone app tracking of Fibromyalgia, other pain
The creator of a smart-phone app for tracking chronic pain has announced that Fibromyalgia is among the top conditions for which people use the app. |
• |
Shining a spotlight on mystery of ME
UK publication The Shields Gazette spoke to two ME/CFS sufferers about the effects it has on their lives. |
• |
Kayla Stewart turns to home-schooling to avoid bullies
A profile of Fibromyalgia and juvenile arthritis sufferer Kayla Stewart. |
• |
All in the mind? Why critics are wrong to deny the existence of chronic fatigue
An article by Sonia Poulton that debunks myths about ME/CFS. |
• |
Former Holy Cross coach Dan Allen's legacy lives on
Dan Allen, a longtime US football coach at Massachusetts's College of the Holy Cross, was 48 when he died of complications from multiple chemical sensitivity syndrome in 2004, but his legacy lives on through his family. |
• |
Chronic pain stigma revealed in new report
A report into New Zealanders suffering from chronic pain shows many feel others, including healthcare professionals, underestimate the extent of their suffering. |
• |
Universities awarded ME research grant
Two north east universities have been awarded a grant to conduct new research into the condition ME or Chronic Fatigue Syndrome. |
• |
Fantastic fundraisers: Student suffering from muscle condition takes on Great London Run
A student who has spent the last year battling an unknown muscle condition will face the Great London Run. |
• |
Disease often misunderstood
When Denise Hurtubise was feeling achy and sore, having bladder and stomach problems, it took several visits to several doctors to finally find the answer, even though it is the third most common chronic illness: Fibromyalgia. |
• |
New free-access Fibromyalgia management guide for primary care doctors
Four Fibromyalgia specialists have developed an educational framework that primary care doctors can use as a guide to best practices in fibromyalgia case management. |
• |
MEPs vote to include MCS in the International Classification of Diseases
The European Parliament will vote on the inclusion of environmental diseases such as electrosensitivity and multiple chemical sensitivity in the International Classification of Diseases the next June. |
• |
Belgian trial of sodium oxybate for Chronic Fatigue Syndrome announced
Belgian investigators at University Hospital, Ghent, have announced they're preparing to enroll about 65 patients with chronic fatigue syndrome (ME/CFS) but without fibromyalgia in a placebo controlled, randomized, double blind, cross-over efficacy trial of the experimental drug sodium oxybate (Xyrem). |
• |
Vitamin D may be of help in Fibromyalgia
Only 15% of Fibromyalgia patients in a small study had adequate levels of vitamin D, suggesting implications for treatment. |
• |
Founder of online Fibromyalgia support group details life with Fibromyalgia, insurance companies
John Obenchain, founder of the Alliance Against All Fibromyalgias, explains how dealing with Fibromyalgia extends far beyond physical and mental anguish. |
• |
Natividad Medical Foundation receives new grant for Fibromyalgia
Natividad Medical Foundation has received new grants from Community Foundation for Monterey County and The Hearst Foundations to support the programs and equipment needs of Natividad Medical Center. |
• |
Out of illness, a vital creative life
A profile of author and ME/CFS sufferer Peter Hobbs who relied on books, and friends, to sustain him for 10 years. |
• |
'I feel I'm living in a cage that is closing in on me'
A profile of Maltese ME/CFS sufferer Rebeca Sultana and her efforts to get the disease officially recognised as a disability in Malta. |
• |
CFIDS Association research fundraiser launches with Jennifer's Story
A profile of Jennifer E. Wright to help launch The CFIDS Association of America's research project Research Without Walls. |
• |
Genetic link to pain sensitivity in Fibromyalgia
A new study published in the European Journal of Pain provides further evidence of a genetic component of Fibromyalgia. |
• |
Fatigue not a factor in Fibromyalgia pain, study says
Poor sleep is not a significant predictor of pain intensity and duration in patients with Fibromyalgia, a new study says. |
• |
Hypervigilance in Fibromyalgia or Chronic Fatigue Syndrome
Some researchers believe that hypervigilance is a feature of Fibromyalgia and Chronic Fatigue Syndrome. |
• |
Call goes out for research on ME
Nikita Watson had just turned three when she stopped being active and was tired and plagued with body pains. |
• |
ME/CFS appears to be a disease affecting the basal banglia and dopamine metabolism
A new study led by CDC investigator Elizabeth Unger, MD, PhD, with collaborators at Emory University, Atlanta, and the University of Modena and Reggio Emilia, Italy, has identified unique responses in the brain's basal ganglia that suggest an association between a biologic functional response and chronic fatigue syndrome. |
• |
Oxidative stress linked to headache in Fibromyalgia; CoQ10 supports important improvement
An article from PLoS One entitled "Oxidative Stress Correlates with Headache Symptoms in Fibromyalgia: Coenzyme Q10 Effect on Clinical Improvement". |
• |
State of Washington MCS Proclamation
The State of Washington has issued a Proclamation for Multiple Chemical Sensitivity Awareness Month. |
• |
Study explores role of impaired sleep in Fibromyalgia pain
Patients coping with fibromyalgia often have difficulty sleeping, and a new study published in The Journal of Pain reports that despite the negative quality of life implications, poor sleep is not a significant predictor of fibromyalgia pain intensity and duration. |
• |
North Carolina MCS Proclamation
Beverly Eaves Perdue, Governor of the State of North Carolina, has issued a Proclamation for Multiple Chemical Sensitivity Awareness Month. |
• |
Oxidative stress correlates with headache symptoms in Fibromyalgia: Coenzyme Q10 effect on clinical improvement
Research published in PLoS One. |
• |
Cuyahoga County, Ohio MCS Proclamation
Cuyahoga County, Ohio has issued a Proclamation for Multiple Chemical Sensitivity Awareness Month. |
• |
Pregabalin (Lyrica) may support meaningful improvement in Fibromyalgia sleep maintenance
An article published in Arthritis Care & Research entitled "Effect of pregabalin on sleep in patients with fibromyalgia and sleep maintenance disturbance: A randomized, placebo-controlled, 2-way crossover polysomnography study". |
• |
Pfizer halts late-stage Lyrica study
Pfizer halted a late-stage study of its second-best selling drug, Lyrica, as a possible treatment for a nerve pain in HIV patients. |
• |
Perceptions of painful stimuli are not 'exaggerated' in Fibromyalgia patients
A research paper entitled "Behavioral and neuronal investigations of hypervigilance in patients with fibromyalgia syndrome". |
• |
Sub-typing daily fatigue progression in CFS
A report published in the Journal of Mental Health. |
• |
Living with Chronic Fatigue Syndrome
Interviews on Australian radio station 612 ABC Brisbane. |
• |
Living with Chronic Fatigue Syndrome
Interviews on Australian radio station 612 ABC Brisbane. |
• |
Multiple Chemical Sensitivity – Deborah's story
A profile of MCS sufferer Deborah. |
• |
Constant suffering for Urris mother
An Irish woman living with chronic pain has revealed she is forced to make an agonising journey to Dublin for regular treatment. |
• |
Fatigue supplements are actually misbranded drugs: FDA
A commercial website for people suffering from symptoms of Chronic Fatigue Syndrome and Fibromyalgia is rife with numerous illegal and misleading treatment claims, according to a recent warning letter sent to Dr. Jacob Teitelbaum by the U.S. Food and Drug Administration. |
• |
Fiona Ross battles illness to reach for the stars
A profile of Fibromyalgia sufferer Fiona Ross. |
• |
Chronic Pain and Fatigue Trust launches in New Zealand
An article about a new charitable trust that will be launched in New Zealand. |
• |
Leeds man wins marathon fight to keep benefits
A former company director who has suffered from a debilitating chronic fatigue condition for two decades has won a year-long benefits battle. |
• |
55% of rheumatologists in Ontario think Fibromyalgia is psychosomatic
An article from Clinical Rheumatology entitled "Should rheumatologists retain ownership of fibromyalgia? A survey of Ontario [Canada] rheumatologists". |
• |
'I was forced to take stock of my life' - bestselling author speaks to the SNJ
A profile of UK actress and author Sophie Neville. |
• |
Runner leaves medical hindrances in the dust
With a 10-kilometre marathon under her belt, a local runner has no plans to let an inhibiting medical condition slow her down. |
• |
Society seminar presentation by dietitian Mel Reid
A presentation by guest speaker, dietitian Melanie Reid, from the Society's recent seminar. |
• |
Massachusetts MCS Proclamation
A Proclamation by the Governor of Massachusetts recognising Multiple Chemical Sensitivity. |
• |
Linley Frame: Olympian and Chronic Fatigue Syndrome sufferer
Linley Frame talks to Lindy Burns ahead of International ME/CFS Week. |
• |
Another pathogen for CFS: Giardia outbreak causes CFS 'outbreak' in Norway
A new study reports at least 5% of patients with CFS nearly 3 years after an acute Giardia enteritis infection, providing evidence of yet another infectious agent that can trigger CFS along with Epstein-Barr Virus, Viral meningitis and the bacterium Coxiella burnetii, amongst others. |
• |
Chronic Fatigue Syndrome: real, weird, and mysterious as ever
A new study find some biological differences in the brains of people suffering from chronic fatigue syndrome, but little that can explain the problem. |
• |
Low brain activity seen in Chronic Fatigue Syndrome
Patients with Chronic Fatigue Syndrome had significantly less activation of the basal ganglia in response to a known stimulus compared with a control group, investigators reported. |
• |
Champion swimmer fights for understanding of 'the most misunderstood' disease
A discussion about the criteria for defining Chronic Fatigue Syndrome. |
• |
Pet lover turns her hobby into a business
An animal lover who has overcome a debilitating muscular condition to set up her own business is encouraging others in a similar position to do the same. |
• |
To PEM or not to PEM? That is the question for case definition
A discussion about the criteria for defining Chronic Fatigue Syndrome. |
• |
'Family forced out' by Trecwn power plant
A father with Multiple Chemical Sensitivity says he and his family will be forced from their home by the creation of a diesel-fired power plant nearby. |
• |
MCS Awareness Month
May is Multiple Chemical Sensitivity Awareness Month worldwide. |
April |
• |
ME/CFS Awareness Week 2012 Seminar
ME/CFS Australia (Vic, Tas, NT) invite you to attend our annual Awareness Week Seminar. |
• |
Patients' fears at changes to Leeds CFS clinic
Cash-strapped health bosses in Leeds plan to make around £46,000 worth of savings by changing the treatments offered at its specialist CFS clinic at Seacroft Hospital, and patients have criticised the planned shake-up. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
An alarm system gone awry: Pain in Fibromyalgia and CFS
Pain is helpful in many ways, but when your body starts processing it abnormally, as in fibromyalgia and some cases of chronic fatigue syndrome, pain ceases to be helpful and starts doing harm. |
• |
CFS: one disease and its costs
An article about CFS from the White House Chronicle's Llewellyn King. |
• |
Society seminar reminder
A reminder that the Society's first seminar for 2012 will be held next tomorrow (Saturday 28 April). |
• |
Experts meet on pain treatment advances
A conference on medical treatment of pain will be told some treatment advances are not being adequately relayed to clinicians. |
• |
New drug formulation for Fibromyalgia moves forward
An old drug in a new form is moving forward through trials, and the manufacturer hopes it will eventually be approved for treating Fibromyalgia. |
• |
Yes, they are really trying: CFS patients fail cognitive test and pass the effort test
Research from the Pacific Fatigue Labs. |
• |
Couple works to remove stigma and isolation associated with Fibromyalgia
John and Sandra Obenchain openly discuss a very personal struggle to help the millions living with the mental, physical and emotional pain of Fibromyalgia. |
• |
UK woman and friends raise over £2,000 for Fibromyalgia Association
An epic journey along the north Norfolk coast has left a hardy group of fundraisers battered, bruised and blistered - but it has all proved worth it. |
• |
Cognition and CFS: What do we know?
A two-hour webinar on "Cognition & CFS: What Do We Know?", hosted by The CFIDS Association of America, and filmed on April 11, 2012. |
• |
An oasis in a toxic world
A profile of MCS sufferer Jennyfer Sausa and her life in an Arizona desert community that caters specifically to those with MCS. |
• |
Fibromyalgia's effects
A US radio show in which Dr. Gracer interviews Dr. Beth Hodges concerning new surveys that show how severely sufferers of Fibromyalgia are affected and how much the general public knows about this problem. |
• |
US court finds AT&T abused discretion in denying benefits to policyholder with CFS
Legal company Kantor & Kantor, LLP announced a victory in a Californian District Court on behalf of client Judi Peterson, who suffers from Chronic Fatigue Syndrome, against AT&T. |
• |
Radio show: Treating Chronic Fatigue Syndrome
An episode of the Internet radio program Health Matters Show that focuses on CFS. |
• |
Letter to Canadian Minister of Health
An open letter to Ontario's Minister of Health. |
• |
A judge should check the degree of MCS disability
A judge has ruled in favor of one affected by Multiple Chemical Sensitivity and forced the Catalan Institute Assistència i Serveis Socials (ICASS) to review their degree of disability. |
• |
Using public transport is 'stressful' for the disabled
The UK's Worcester News reports that a disabled man from Evesham has called for better access on public transport for wheelchair users. |
• |
Llewellyn won't snooze through tiresome disease
White House Chronicle host Llewellyn King has a fierce new interest: He has become a voice for people who suffer from an incurable disease, myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome. |
• |
AD calls for inclusion of ME and FM in list of chronic conditions
Maltese political party Alternattiva Demokratika calls for the inclusion of ME (Myalgic Encephalopathy) and FM (Fibromyalgia) in schedule which guarantees entitlement for free medicines. |
• |
Pregabalin lets Fibromyalgia patients sleep
Sleep difficulties commonly experienced by patients with fibromyalgia were greatly improved during 4 weeks of treatment with pregabalin (Lyrica), a randomized trial found. |
• |
Don't worry Jessica, we got it on film!
A teenage girl with chronic fatigue syndrome will get to see her friend perform after all. |
• |
Odds of TMJ disorder in Fibromyalgia may be as high as 1 in 3
Research entitled "Signs and symptoms of temporomandibular dysfunction in fibromyalgic patients" that was published in the Journal of Craniofacial Surgery. |
• |
Summary of research into harm caused by CBT/GET
Tom Kindlon has created a summary of his research into the harm caused by Cognitive Behaviour Therapy and Graded Exercise Therapy. |
• |
People with Fibromyalgia aren't crazy
A profile of Fibromyalgia sufferer Mara Mittelman. |
• |
New research raises question – is CFS an autoimmune disease?
Tina Marie Miller Tidmore and Dr. Kenneth Friedman joined Leslie Carol Botha on US radio program Holy Hormones Honey! to discuss the latest research on ME/CFS. |
• |
Speech in Parliament: Introducing the Disability Services Amendment Bill 2012
A speech made in South Australian Parliament by Kelly Vincent MLC. |
• |
Ampligen for Chronic Fatigue Syndrome: Trial Data Released
A newly released study demonstrated that the drug Ampligen improved exercise tolerance and other symptoms of ME/CFS, and also lead to decreased use of other medications. |
• |
Petition regarding ME/CFS presented to NZ government
A petition regarding ME/CFS was presented to the government in New Zealand. |
• |
ArtSunday: "trapped in our bodies" – coping with CFS through photography
An article by photographer and ME/CFS sufferer Sarah Allegra about how she copes with her disease via her chosen medium, photography. |
• |
ME is often dismissed – but sufferers like Emily Collingridge are dying
An op-ed piece from The Guardian. |
• |
The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
March |
• |
New surveys reveal striking differences between public perceptions and private realities of people with Fibromyalgia
National US findings suggest better understanding and support may empower people to seek help early for fibromyalgia symptoms. |
• |
Emily Rose Collingridge
An article about severe ME/CFS sufferer Emily Rose Collingridge. |
• |
Michael Crawford talks about ME
A radio interview with English actor Michael Crawford who moved to New Zealand to help recover from ME. |
• |
Tossing out toxins
A University of Arizona professor proposes to ban toxic dry-erase markers from classrooms. |
• |
A look at Chronic Fatigue Syndrome
US TV station KHAS-TV News 5 takes a look at CFS. |
• |
Personality and physiology in Fibromyalgia: a new discovery
New research may resolve a controversy by tying both fibromyalgia AND a personality trait to a physiological root. |
• |
10 recent pain management studies
Here are 10 recent pain management studies published in the past month on topics including opioid use among the elderly, morphine tolerance and fibromyalgia pain relief. |
• |
Adelaide Entertainment Book
Adelaide Entertainment™ Books are available for purchase as a fundraiser for ME/CFS Australia (SA) Inc. |
• |
Riverland meeting reminder
A reminder that the Riverland ME/CFS Support Group's next meeting will be held today (Friday 23 March) at the Riverland Resource Centre, 9-11 Seekamp St, Berri from 1:30pm to 3:30pm. |
• |
Adelaide Support Group meeting
The Adelaide Support Group will be holding its next meeting this Wednesday (28 March 2012). |
• |
Books by Paul Gregory
UK psychologist and ME/CFS sufferer Paul Gregory has published two books. |
• |
Could discovery 'erase' Fibromyalgia pain?
A team of researchers has made an important discovery about how the memory of pain is stored in the brain. |
• |
Trial of Ampligen treatment for severe ME/CFS reports positive results
A study published in PloS One entitled "A double-blind, placebo-controlled, randomized, clinical trial of the TLR-3 agonist Rintatolimod [Ampligen®] in severe cases of Chronic Fatigue Syndrome". |
• |
More weight equals more Fibromyalgia pain
New research now shows that the more severe the obesity, the more severe the fibromyalgia symptoms, and those who have a body mass index of 35 or higher experience the worst symptoms. |
• |
Riverland meeting
The Riverland ME/CFS Support Group's next meeting will be held Friday 23 March at the Riverland Resource Centre. |
• |
Health trust 'among worst offenders' over lack of spending on ME patients
A call has been made for more NHS cash to be spent on people suffering from a mysterious illness which causes chronic tiredness. |
• |
Caring Choice
Information about the South Australian organisation Caring Choice. |
• |
Moving to New Zealand helped Michael Crawford deal with ME
Actor Michael Crawford, the Phantom of the Opera star, has opened up about his move to New Zealand that helped him deal with his chronic fatigue syndrome. |
• |
The name game and CFS: DSM-5 revisions should be openly debated
A discussion of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5). |
• |
Treating pain via immune pathways: Naltrexone and Fibromyalgia
New information is available about extremely low doses of the drug naltrexone, which Stanford researchers have for the past several years been investigating as a Fibromyalgia treatment. |
• |
Weekend House Call: Fibromyalgia
A video from US TV station WDSU New Orleans featuring Medical Editor Dr. Corey Hebert explaining Fibromyalgia. |
• |
Wait six months before treating fatigue, GPs told
GPs should advise patients with chronic fatigue to wait and see if their tiredness resolves itself with six months, recommend UK researchers who looked at the time course of symptoms. |
• |
Biovista awarded research grant on CFS
Biovista announced that it has been awarded a research grant by The CFIDS Association of America to identify non-obvious mechanisms of the disease and potential drug repositioning candidates that will advance objective diagnosis and effective treatment of Chronic Fatigue Syndrome. |
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The objective medical findings of the chemically sensitive
An article in response to certain political operatives who claim that the medically proven malady of chemical and irritant sensitivities is not a proven one. |
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Rachel on the walk of her life
A profile of Rachel Klyves and her 700km walk from Byron Bay to Sydney for charity. |
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Naltrexone may never be approved by the FDA
Although researchers at Stanford University's School of Medicine have conducted two small studies showing that low doses of naltrexone can reduce fibromyalgia symptoms by as much as 50 percent, the FDA has not approved the use of naltrexone to treat fibromyalgia. |
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Society seminars for 2012
A list of Society seminars for the year. |
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For many with Fibromyalgia, stigma bars the way to treatment
A new survey finds that 59 percent of fibromyalgia patients delayed getting a diagnosis or treatment because of fears that people would think they were complaining or faking symptoms. |
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Web-based therapy for chronic fatigue
Treatment programs via the internet are now used in a variety of health conditions. |
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Online therapy reaps rewards for teenagers with chronic fatigue
A web-based therapeutic programme for adolescents with chronic fatigue syndrome is at least three times more effective in reducing symptoms of the disorder than regular treatment, one study has found. |
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Change for ME Australia
Facebook group Change for ME Australia has created a video entitled "Good Day Bad Day". |
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Study provides evidence of milnacipran efficacy for the long-term treatment of Fibromyalgia
A study that evaluated the effect of discontinuing long-term treatment with milnacipran on the symptoms of fibromyalgia found that once the agent was withdrawn, time to loss of therapeutic response was significantly shorter than in patients who continued treatment. |
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The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
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Whittemore Peterson Institute seek millions in damages from fired researcher
Now that a judge has ruled in favor of the Whittemore Peterson Institute in a civil case against a researcher who took a laptop, notebooks and files after she was fired, the two sides are fighting over damages. |
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Researchers test drug, psychotherapy combo for Fibromyalgia
For the first time, researchers will test whether two treatments are better than one for patients with fibromyalgia. |
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CFS in the media: a content analysis of Norwegian newspaper articles
Research published in the Journal of the Royal Society of Medicine. |
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New survey finds majority of Fibromyalgia patients delay diagnosis & treatment due to common misperceptions
New research finds Americans living with Fibromyalgia suffer from much more than chronic pain, fatigue and depression – they often endure common misperceptions about their condition. |
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Confirmation: low-dose naltrexone eases Fibromyalgia pain
A new study, reported at the American Academy of Pain Medicine 28th Annual Meeting, shows that a low dose of the opioid antagonist naltrexone significantly reduces daily pain in patients with fibromyalgia. |
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The sensitization model to explain how chronic pain exists without tissue damage
There is now enough evidence available indicating that chronic pain syndromes such as low back pain, whiplash, and fibromyalgia share the same pathogenesis, namely, sensitization of pain modulating systems in the central nervous system. |
February |
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Cheryl Gillan's special adviser Richard Hazlewood's 300-mile bicycle ride for charity
Welsh Secretary Cheryl Gillan's special adviser Richard Hazlewood is going on a 300-mile bicycle ride to raise money for charity after his wife Rachel was diagnosed with ME. |
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Coenzyme Q10 in salivary cells correlate with blood cells in Fibromyalgia
A study published in Clinical Biochemistry. |
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Substantial cognitive impairment in Fibromyalgia linked to one factor: pain level
An article published in the European Journal of Pain entitled "Cognitive impairment in fibromyalgia syndrome: The impact of cardiovascular regulation, pain, emotional disorders and medication". |
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Research examines environmental triggers altering gene function in CFS patients
A University of Toronto Scarborough researcher is examining how environmental triggers might alter gene function in people with Chronic Fatigue Syndrome. The research could lead to better insights into the disease and eventually to new treatments. |
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With help from author Laura Hillenbrand, drug repurposing comes to CFS
The CFIDS Association of America says that $2 million in funding — backed by individual gifts including a $250,000 donation from best-selling writer Laura Hillenbrand, who has chronic fatigue syndrome — is going to grants and projects designed to accelerate the development of treatments for CFS. |
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Societal and individual burden of illness among Fibromyalgia patients in France
A study published in the medical journal BMC Musculoskeletal Disorders. |
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Working memory problems in Fibromyalgia and CFS
Working memory impairment is a common part of the cognitive dysfunction (brain fog or fibro fog) caused by Fibromyalgia and CFS. |
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Research Institute Without Walls
The CFIDS Association of America has announced new additions to its comprehensive research initiative to advance objective diagnosis and effective treatment of CFS. |
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Test of immune activity in ME/CFS indicates it's a condition associated with overactive Th2 response
An article published in the Journal of Medical Laboratory and Diagnosis entitled "Self-test monitoring of the Th1/Th2 balance in health and disease with special emphasis on chronic fatigue syndrome/myalgic encephalomyelitis". |
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Autonomic dysfunction in women with fibromyalgia
An editorial by J Derek Kingsley published in Arthritis Research & Therapy. |
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Norwich woman with Fibromyalgia takes on fundraising coastal walk
UK Fibromyalgia sufferer Rebecca Wass plans to walk 100 miles around the length of Norfolk's coastline for charity. |
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Ladies sneak peak at 2012 Olympic stadium site
Three UK women got a sneak preview of the 2012 Olympic Park as a thank you for their work in the community. |
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Life's A Beach Walk
Life's a Beach Walk is a 700km walk on the NSW Coast from Byron Bay to Sydney that was created by Rachel Klyve to raise awareness of ME/CFS. |
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Men with Fibromyalgia: special problems and symptoms
An article about how Fibromyalgia affects men differently to women. |
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Radio show podcast: CFS infection and research
An episode of the Health Matters Show that focuses on CFS infection and research. |
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Chronic fatigue seen in many previously infected with Q fever in the Netherlands
In a study just released in the European Journal of Public Health, Dutch researchers show that many of those infected with Coxiella burnetti previously, now face chronic fatigue syndrome and other physical symptoms. |
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Mitochondrial myopathy presenting as Fibromyalgia: a case report
Research results demonstrating that "adults diagnosed with fibromyalgia may have their symptom complex related to an adult onset mitochondrial myopathy". |
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Five locals set sights on climbing Mt. Kilimanjaro
An article about Lisa Moretto and four other people who aim to climb Mount Kilimanjaro for charity. |
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Two inspirational Palm Beach County women take on Sunshine State Races despite challenges
Among the hundreds of participants who will be competing in the Sunshine State Races on Feb. 25 is Frani Schmidt, a West Palm Beach woman who has overcome several challenges and calls running a "symbol of life." |
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Bowel parasite may lead to Chronic Fatigue Syndrome
A new study out of Norway suggests that the bowel parasite Giardia lamblia lead to an increased rate of chronic fatigue syndrome (ME/CFS). |
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Mayo Clinic links obesity to Fibromyalgia
Researchers at the Mayo Clinic say obese people are at greater risk for fibromyalgia and are more likely to suffer from severe symptoms. |
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Lyme disease victims ignored
South Australian current affairs television program Today Tonight has a story on Lyme disease. |
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Group behind retracted XMRV paper holds on to grant money
The Whittemore Peterson Institute in Reno, Nevada, has managed to keep a 5-year, $1.5-million U.S. government grant in spite of firing the principal researcher named on the grant. |
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Emma's success against all odds
An article about 16-year-old UK ME sufferer Emily Manning who hopes to take part in a once-in-a-lifetime opportunity doing charitable research work in Africa later this year. |
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Pain negatively affects cognition in Fibromyalgia
Stefan Duschek, PhD, from the University of Munich has told the 6th World Congress of the World Institute of Pain that pain is the primary factor contributing to cognitive impairment in patients with fibromyalgia syndrome, over and above depression, anxiety, fatigue, sleep complaints, and medication use. |
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ME sufferers call for help
Thousands of people across Northern Ireland suffer from ME, also known as Chronic Fatigue Syndrome, but they say there is not enough medical help in the region. |
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Women with Fibromyalgia walk with an altered muscle synergy
Research results published in the journal Gait & Posture. |
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Fallout from fatigue syndrome retraction is wide
An article from The New York Times about the brouhaha surrounding the XMRV false trail. |
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Increasing orthostatic stress impairs neurocognitive functioning in CFS
A study published in London's Clinical Science entitled "Increasing orthostatic stress impairs neurocognitive functioning in chronic fatigue syndrome with postural tachycardia syndrome". |
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Sodium oxybate therapy provides multidimensional improvement in Fibromyalgia
A study published in the Annals of the Rheumatic Diseases entitled "Sodium oxybate therapy provides multidimensional improvement in fibromyalgia: Results of an international phase 3 trial". |
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Oxidative stress in Chronic Fatigue Syndrome
A new study supports the theory that chronic fatigue syndrome (ME/CFS) may be related to oxidative stress, and that oxidative stress may play a key causative role in the illness. |
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Concern over cuts to carers' support
A UK mother and daughter have expressed concern over plans by Somerset County Council to cut the number of youth workers that support young carers. |
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Trapped in her room for over 1000 days
A profile of South Australian MCS sufferer Amelia Hill. |
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EC mom wins suit against Shoprite
A South African woman has successfully sued Shoprite Checkers after a box of frozen vegetables fell on her during a shopping trip, injuring her neck and shoulder, resulting in ailments that include Fibromylgia. |
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The case against the Whittemores and the importance to the neuro-immune disease community
Harvey and Annette Whittemore, founders of the Whittemore-Peterson Institute for Neuro-Immune Diseases, have been sued by their former business partners for embezzlement in the amount of more than 40 million dollars. |
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The MusicWorks
The MusicWorks – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
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National Welfare Rights Network
Australia's National Welfare Rights Network provides free and independent information, advice and representation about Social Security law and its administration. |
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Pulse abnormalities at rest and during tilt test could be highly indicative screen for ME/CFS
An article published in Physiological Measurement entitled "Chronic fatigue syndrome and impaired peripheral pulse characteristics on orthostasis - a new potential diagnostic biomarker". |
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Society seminar reminder
A reminder that the Society's first seminar for 2012 will be held next tomorrow (Saturday 4 February). |
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Student hub for people with ME
UK charity Action for ME has set up a Student Hub section on its website. |
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Breaking the Shell: Understanding centralization and myofascial trigger point's effects in Fibromyalgia
An article by Celeste Cooper focusing on her concerns about modifications to the "Preliminary Proposed Diagnostic Criteria for Fibromyalgia." |
January |
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"Governed by the pain": Narratives of Fibromyalgia
Research results published in the journal Disability and Rehabilitation. |
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Cortical electrostimulation for Fibromyalgia
A study published this month in the journal Pain Medicine supports earlier findings that noninvasive cortical electrostimulation may be somewhat effective against fibromyalgia symptoms. |
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Surveying Siberia on a 70-year-old motorcycle
A London surveyor is celebrating his return to health after battling chronic fatigue by crossing Siberia on a motorbike in temperatures as low as -60C. |
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Society seminar
The Society's first seminar for 2012 will be held next Saturday (4 February). |
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For many Fibromyalgia patients, pain takes a back seat to other symptoms
An article published in the New Zealand Medical Journal entitled "Women with fibromyalgia syndrome in New Zealand: The symptom experience". |
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Ampligen for Chronic Fatigue Syndrome: still a possibility
After being rejected 2 years ago, the drug that many thought would become the first FDA-approved treatment for chronic fatigue syndrome (ME/CFS) apparently isn't off the table. |
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CFS and the UK insurance industry
An article by Peter Kemp. |
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Mother suffering debilitating condition tells of verbal abuse distress
A profile of UK Fibromyalgia sufferer Gemma Hall. |
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Foods that aggravate Fibromyalgia and their substitutes
A video from Fox 4 News Kansas City. |
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Portraits of Americans living with Multiple Chemical Sensitivity
The work of MCS sufferer Thilde Jensen, a Danish photographer whose series of photographs chronicle the day-to-day-lives of fellow MCS sufferers. |
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Dr. Kevin White's response to Fibromyalgia disbelievers
A video from Dr. Kevin White. |
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eReader benefits for Fibromyalgia and Chronic Fatigue Syndrome
About.com's Adrienne Dellwo highlights several benefits of an eReader for people with Fibromyalgia or CFS. |
• |
Toxic Tiredness examined on TV
Benjamin H Natelson, MD believes that the seat of CFS and Fibromyalgia lies in the central nervous system, and has published more than a dozen papers on the subject in the past two years alone. |
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Authors link personal experiences with Fibromyalgia in latest issue of magazine
Benjamin H Natelson, MD believes that the seat of CFS and Fibromyalgia lies in the central nervous system, and has published more than a dozen papers on the subject in the past two years alone. |
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Do brain problems drive ME/CFS and Fibromyalgia?
Benjamin H Natelson, MD believes that the seat of CFS and Fibromyalgia lies in the central nervous system, and has published more than a dozen papers on the subject in the past two years alone. |
• |
Irish doctor opens new CFS clinic in NYC
Clinic opens after $1 million donation from Doctor Enlander's patients. |
• |
ME/CFS: Into 2012 without cure or care
It's an indecent disease, shrouded in mystery, endless in suffering, in stigma and in despair. |
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Study demonstrates glutamate dysregulation in Fibromyalgia
A new study provides further evidence of high levels of the neurotransmitter glutamate in Fibromyalgia and suggests that lowering glutamate levels could help alleviate symptoms. |
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CFS or ME: more than just tired
Red Symons talks to psychiatrist Dr Nicole Phillips about Chronic Fatigue Syndrome, including some of the misconceptions surrounding the disease also known as Myalgic Encephalomyelitis. |
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Teddington School first year completes charity walk
An 11-year-old UK boy completed a charity walk around Richmond Park to help his neighbour who suffers from ME. |
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Writing a book helps woman deal with chronic disease
A profile of Sheila Dembowski who has written a book called Leaning Into the Light which details her struggles with Fibromyalgia. |
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Retired church minister from Yate 'used to sleep for 22 hours a day'
A profile of Methodist minister and ME sufferer Mary Yates. |
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School-based clinics feasible for ID'ing Chronic Fatigue
School-based clinics can identify children with chronic fatigue syndrome/myalgic encephalomyelitis, and may be useful for diagnosing children with less severe symptoms, according to a study published online in BMJ Open. |
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Pageant a platform for Desiree Quinn to spotlight Fibromyalgia
A profile of Desiree Quinn who was recently crowned Mrs. Clark County International and is using her position to raise awareness for Fibromyalgia. |
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Advocating for invisAbilities
An article about how we can accommodate people with "invisible" chronic illnesses. |
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A tale of two viruses: why AIDS was pinned to HIV, but Chronic Fatigue Remains a mystery
An article about how two diseases are researched. |
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Woman perseveres with artwork
A profile of glass sculptor and ME/CFS sufferer Christa Alford. |
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Does personality relate to Fibromyalgia?
Can your personality affect the likelihood that you'll develop a health condition? Some scientists believe that may be the case with fibromyalgia. |
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Positions vacant
We currently have a number of positions available. |
• |
Lawton-area boy's sensitivity to chemicals leaves parents pleading for change in roadwork plans
Parents January Slater and Ben Khabra are rabidly green on behalf of their 4-year-old son, Jackson, not because of political leanings but because Jackson's medical condition, Multiple Chemical Sensitivity, requires that level of diligence. |
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South Australian Government Medical Heating and Cooling Concession
The Medical Heating and Cooling Concession is a new energy concession introduced by the South Australian Government on 1 January 2012. |
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Medical marijuana shows promise for pain
A discusson about the pros and cons of medical marijuana. |
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More evidence that CFS and CFS+FM differ in their response to exercise
A study published in Medicine & Science in Sports & Exercise entitled "Responses to Exercise Differ for Chronic Fatigue Syndrome Patients with Fibromyalgia". |
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Queen's Hospital scientist disciplined after calling GP "uber quack"
A senior clinical scientist at Queen's Hospital who made "disparaging, inappropriate and unprofessional" comments about a GP on a public forum was found guilty of professional misconduct. |
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Spain's Ministry of Health presents its Consensus Document on MCS
The Ministry of Health in Spain has submitted its consensus document on Multiple Chemical Sensitivity. |
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Illness clusters: the reason Fibromyalgia & Chronic Fatigue Syndrome "bring friends"
In a review of Fibromyalgia literature, noted researcher Dr. Muhammed Yunus presents evidence for the cluster of illnesses we generally see all having a key feature in common: central sensitization. |
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Former YSU recruit Kaitlin Rohrs battles rare disease head on
A profile of US basketballer and ME/CFS sufferer, Kaitlin Rohrs. |
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"Catalysts" are transforming research
THECatalystFUND is a fund created by the CFIDS Association of America that hopes to speed discovery and transform the way that CFS research is conducted. |
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Happy New Year
All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year. |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)