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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
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Support Line:
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10am-3pm)
Ph: (08) 8346 3237
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FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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"Governed by the pain": Narratives of Fibromyalgia
Tuesday 31 January 2012
“Governed by the pain”: Narratives of fibromyalgia – Source: Disability and Rehabilitation, Jan 23 , 2012
Purpose: Fibromyalgia (FM) is a chronic syndrome characterized by pain and fatigue. The aim of this study was to explore how individuals with FM make sense of the illness experience and integrate it into their personal biographies.
Method: Ten women from a pain management service in the north west of England were interviewed for the study. A chronological summary of each life story was produced and narrative features such as plot, tone, imagery and metaphors were identified and compared.
Results: Findings are presented in the form of a meta-narrative incorporating all 10 narratives over five phases:
1. Making sense of FM: When I was younger, I didn't have any problems at all;
2. Onset and diagnosis: You just feel like you're constantly complaining;
3. Invasion of FM: You're just trapped; trapped in this body;
4. Coping with FM: You try to do things in a pattern it will obey; and
5. Ongoing struggle: I refuse to give in to it.
Conclusions: The narrative is characterized by a lack of movement and resolution, with participants engaged in an enduring struggle against the challenges of FM. Psychological approaches that facilitate this ongoing adjustment process may prove beneficial in FM treatment and rehabilitation.
Implications for Rehabilitation
• Fibromyalgia (FM) is a chronic syndrome characterized by pain and fatigue.
• This study shows women with FM are engaged in an enduring struggle against the challenges this presents.
• Psychological approaches which acknowledge and facilitate the adjustment process may prove beneficial in terms of assisting rehabilitation for this client group.
Source: Disability and Rehabilitation, Jan 23 , 2012. McMahon L, Murray C, Sanderson J, Daiches A. Tees, Esk & Wear Valleys NHS Foundation Trust, Middlesbrough; Division of Health Research, Lancaster University, Lancaster, Lancashire Care NHS Foundation Trust, Lancaster, UK. [Email c.murray@lancaster.ac.uk]
The above originally appeared here.
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